Most Recent Messages in Coping

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carnival ride...

so yesterday i went to my town's yearly celebration and went on a ride. there was no harness over the pacer, just a seatbelt and a metal bar at the waist. it's the one where you go fast in circles, but side to side. sometimes it's called the scrambler or something like that. after that ride, all last night my heart was going crazy with irregularities (slow beats to dropped beats, then the pacer would kick in in the way i could tell that it my heart was trying to regulate, but it just wasn't work...

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dissappointed once again

im so frustrated and dissappointed. i had an afib ablation done on mar 28, 09 and thought it was sucessful. 2 wks after completely afib free, woopee i thought im finally getting my life back. i spoke too quick the next week i had short runs of afib but knew this was normal sometimes. i always converted back in just a few minutes. today i have been in afib HR from 126-138 for 2 hours. looks like this is going to be my life from now on. i cant have another ablation until 3 mo after this one. i don...

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Michael Jackson the King of Pop, dies! AW!!

Michael Jackson, the charismatic musician who came to be known as The "King of Pop,' has died at the age of 50.
Michael's brother Jermaine, during a brief statement at the hospital, said the following: "My brother, the legendary King of Pop Michael Jackson, passed away on Thursday, June 25 at 2:26 pm. It is believed he suffered cardiac arrest in his home. However, the cause of his death is unknown until results of an autopsy are known. His personal p hysician who was with him at the time a...

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The ONE

No one my age understands me. My health, regardless of my age, places me in a older age bracket. I recently was chatting with an older couple whose daughter I went to highschool with. Since they both have pacemakers, we had a lot in common and tons to talk about. I joked that we should hang out more often. They are in their 70's !!!

I AM TIRED of being the ONLY ONE.

In my entire city, I am the only patient in their 30's with a pacemaker. I am also the only one, reagrdless...

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coping somewhat

It is gardening season and I love to be outdoors. I have had my PM for about 3 months. I have been having shortness of breath since by PM and it mostly happens when I am doing something more strenuous than normal, in the morning and at bedtime. Today, I was trimming shrubs and raking and I got really short of breath and started sweating. It causes my breathing to increase and I have to stop what I am doing. The same thing happened last evening when I was on my treadmill. I was only at spee...

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Help me!

It's been almost a year since getting my dual lead pace maker and for the most part it has been a good year. Only recently have the PVC"s really kicked it up a notch and also the tachy/brady syndrome that I was diagnosed with. I'm getting the old anxiety feelings again and not coping well. I will be getting a holter monitor on Monday to make sure all is well. I just don't know how to do this again. I'm crying and worrying now that there is something else wrong again. I could just use some moral...

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Any help welcome

Hi, just joined after accidently stumbling on club whilst seeking information & have found others experiences very helpful. For me it happened so fast after I returned 7 day monitor for AF (after few weeks of racing heart & breathlessness). Had PM fitted just over a month now & am shocked at how tired I have been & how long it taking to get back to anything like normal. My worry is that I have planned & payed for a trip to New Zealand to see my daughter Christmas 09, stopping over 3 nights in Si...

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Isuues with dizziness and balance

Hello Everyone,

I've had my pacemaker for nearly a year now, and I have some issues. Most days , I feel pretty good, and am able to perform activities without trouble. There are some days though, that I just feel out of it, sometimes dizzy. I work a retail job, and it is fast-paced, and can be very stressful. I'll be running around, helping customers etc. when my energy will just drop off. I feel tired, and slightly dizzy.

Yesterday, we started wearing headsets to respond...

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Im drowning in medical debt

Hi, I’m new to Pacemaker club. Thought I’d check it out. So my backround. I’m 23years old, I got my pacemaker 3 years ago. Basically I have some "issue" with my heart that it beats really slow, like 24 bpm when awake, or stops all together causing me to pass out, like while driving....oh ya it happened, I call it lazy heart...the doctor calls it something really long and annoying, so I got the pacemaker. I was realy young and didn’t have insurance and now am...

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Has anyone had rejection problems?

Hello,
It has been 6 months since my pacemaker went in. Other than itching around the scar it seems healed. I have had a lot of problems with tingles, pulses and strange sensations in my arms, legs and feet since an adenozine stress test in February. I am curious if I could be having some autoimmune things with my body not liking the foreign object in me? has anyone had any similar things going on? Thanks for the support, it is good to know you all are out there.

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Pulmonary hypertension

Have any of you heard of pulmonary hypertension associated with pace makers? I have had my pm for about three months and am still experiencing shortness of breath usually when I get up in the morning, sometimes at night and often when I am exercising. Have this every occurred to any of you? I have had my pm interrogated for a second time but am still experiencing the shortness of breath. I am a worrier and just found this link to pulmonary hypertension and shortness of breath. I am not even...

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Seven Weeks Out

I'm seven weeks out today and I feel better than when I made my first posting. I attribute that to the wonderful support I've gotten from the people on this website. My pm check was good. This was my 3rd interrogation (10days out, ER and a couple of days ago) all have been good. My anxiety is doing better and I am trying to frame the "what if" thoughts to positive thoughts. I have good days and I have bad days. All it takes is one incident of shortness of breath or lightheadedness to ruin t...

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Trying to Deal

Hi, I am a 34 yr. old women who has had fainting/dizziness for about 6 yrs. I finally had an insertable loop recorder and it found that my heart stops. I am an avid horseback rider and also participate in Horse shows with my daughters. We have a hobby farm with horses/goats/dogs/rabbit and the token barn cat.
Since my PM insertion (about Mid-May) I have not been able to take care of my horses/farm/home. Nor have I been able to excersize (I usually do a cardio workout 4 x a week). Last...

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Trying to get used to my PM/ICD

Wow!
What a tramatic last few weeks I've had. Was wearing a monitor for 10 days. After the 7th day my heart clinic called. At 4 am my heart had stopped beating for almost 30 seconds.They wanted me to come to the best Heart hospital in Minnesota, ASAP. Moitored me overnight and it happened again. The next morning I was on my way to have both a pacemaker and defibrillator implanted, and they told me I would be awake during the whole procedure. I was so very scared! (Even needles scare me!!)...

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Depressed

I am a 29 yr old (Male) World Record holder, multi-time All-Conference runner with 200+ trophies and medals. I compete in triathlete competitions as well as running and cycling events regularly. April 13, 2009 I had a pacemaker implanted. I am having a very hard time adjusting/dealing with having a pacemaker with my background. No one seems to understand me or where I'm coming from. I am a Army Officer with a Infantry specialty and I am in the middle of being "medically" discharged....WOW!!...

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prayer chain

Hi everyone and God bless you all! I wanted to see if any one is interested in making a prayer chain with me. I dont know exactly how it would work yet. But it would be something like we can take turns posting a special prayer for anything or for all of us in general. I also welcome people to write to me if u are requesting a special prayer.Or if you know someone who is sick and would like a special prayer for that person. Let me know who would like to join me in this quest...jeje. God bless yo...

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Theme songs for us all!

That's right, I have found music for EVERYBODY here. If you see something on the list below that fits you, search it on YouTube.

1) If you are self conscious, hide everything, and only your closest friends/ family know about your ticker, check out "The Real Me" by Natalie Grant

2) If you are a pacemakerchick (sorry guys, I couldn't find one like this for you), look up "Anthem" by Superchick

3) If you have a doctor, family member, friends, etc. who you feel is re...

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Glad he is alive

Hi folks, I do not have a pacemaker. My husband does. I fought doctors for over a year. One month apart appointments with the cardiologist who did nothing and acted like he was smarter then everyone else. Someone at last got him into UCSD and he was told he did not have another month to live. They took him in and gave him a pacemaker and he came out of surg looking like a brand new person. Everyone needs someone to speak up for them now. I am a nag. I make him excersize etc and take care of him...

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things get better...

In the beginning when i first got my pacemaker i was very upset and depressed. I feel so much better now that 3 years have gone past. I dont feel depressed any more. I guess it is normal for us to feel sad and depressed at times but i just wanted you to know that things do get better. Yes, there are times when i feel frustrated about certain things that i cannot control but when i look at the bigger picture...Im just thankful to God that i am alive. So i pray right now for all of you. In the nam...

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Might be time...

  • by KJ7
  • 2009-06-03 06:06:52
  • Coping
  • 1584 views
  • 3 comments

I have complete congenital heart block, and have yet to receive a pacemaker. I had a CT scan recently of my stomach (for an unrelated issue), but the report came back reading that my liver was enlarged as a result of chronic passive liver congestion most likely caused by right heart failure. Well, the tech reading the report did not know about my heart condition. I was referred to a cardiologist (I recently moved and did not have a cardiologist in my new city) and had an echo performed. The echo...

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You know you're wired when...

You have an excuse for being a couch potato.

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