Most Recent Messages in Conditions, Meds & Tests

Cardiac MRI Question

Inserted 10/22/19.  When I was in the hospital a Cardiac MRI was ordered.  My Dr used it to look at the electrical function of my heart .

i had a bypass 12 years ago so I asked what did the MRI .which was with contrast , reveal concerning my arteries. 

He said he had no idea as he was only looking at electrical function. 

After I got out I emailed my cardiologist and asked if it could be looked at ...he said no but he could do a PET scan if I wanted. ...

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Myeloproliferative Neoplasms/Polycythemia

Hello!

I am wondering if any members have a myeloproliferative neoplasm (MPN) such as polycythemia vera (PV). If so, have your doctors made any connections between hypercoagulability and your heart condition? Did your MPN status change anything about your diagnosis, pacemaker installation or programming?

I have polycythemia vera and was diagnosed with sick sinus syndrome in July 2019. I had a single lead atrial PM installed then. My resting heart rate has been...

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Magnets in Slep Number Beds

Someone a couple weeks ago asked if magnets in a Sleep Number bed would affect a PM or ICD.  I wrote NO.  Went by our local Seep Number store in Atlanta to find out if I had been completely correct, since I made a couple assumptions for my answer.

Young woman sales rep looked at me & said "You have a PM, right?"  I told her the whole sordid tale about my reasons for asking & she had a surprising knowledge about PM's & mag...

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Medication reaction

Hi, I’m 62 yr old female, first PM on Sept 12, 2019, for sick sinus syndrome bradycardia-tachycardia. I was initially put on Cardizem 25mg, but dropped pressure too low, so now am on Metropolol xl 25 mg, started on 10/25/19. I take it around 6:30 pm, and by 8:30, I’m exhaunted as I sit and watch tv. The other evening I started having hallucinations as I was sitting watching tv. Last night I almost blacked out when I got up to let the dog out. I took my blood pressure (new por...

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Pacemaker and resistant hypertension

Hey all, 

Apologies in advance for the long post.  I am 56 and for 25 years have had hypertension that has progressed to the point that 4 meds can’t control it.  I also am hypothyroid for 30 years. Because of these things my heart rate has always been low in the 50’s. It is especially low when my bp is over 200.  When my pressure is low my heart rate is usually in the 60’s.  I am always dizzy,  short of breath, fatigued and have no to...

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question

I got a PM 2 years ago for AV block and all has been well.  Beginning of Oct I sent my transmission and was called the same day to be seen the next. They told me that I have AVR    they saw 120 episodes in the previous 3 weeks.  nothing that lasted too long.  My dr has no idea why this is happening and my PM had only needed to work 8% of the time which is much decreased.  I am going tomorrow for a EP study with ablation.   The procedure  is &n...

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Biologic Treatment for Psoriasis with PM

Since my cardiac issues began in mid-August 2019 and pacemaker placement I've also developed significant psoriasis on about half of my body. I'm taking antibiotics, using a steroid cream, and getting phototherapy three times a week. The psoriasis seens to be getting worse, not better. I want to have a conversation with my dermatologist and cardiologist/EP about biologics or other systenic meds to treat the psoriasis. Has anyone dealt with this? PM implications? Cardiac side-effexts?

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Heart failure people?

Hello friends! I got my pacemaker/defibrillator when I was 29 because I am in heart failure and my heart was only working 20%. It now works 27% so I'm happy! Is anyone being considered for the heart transplant list? How long have you been in heart failure? And how are you feeling now days? Thank you for commenting! 

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MRIs with a MRI safe device

Has anyone had a MRI with a MRI safe device?  How big a deal was it?  Did you have to have it near your cardiologist's so they could reprogram the device?

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hearing

Was wondering if anyone noticed that their hearing improved after PM implanted?

mary

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Pacemaker/ICD management

I would love to hear of others' experience with the drug flecainide. I began taking it about two months ago and was given a prescription for 100 mg twice a day to supress ventricular tachycardias that began for no apparent reason or trigger. It was almost 15 months to the day of having a pacemaker/ICD implanted for reasons that were later determined to be false (I have posted my story here before).

Flecainide does supress the VTs but brings along a portfolio of side effects tha...

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monomorphic Idiopathic left VT, AV block 3 PM

I am posting this message and my experience with VT in the hope that it might someday help someone else going through a similar experience as what I went through.

My first episode of Ventricular Tachycardia was when I was 18. It lasted around 7 hours. I went home and by the time I contacted a doctor to come to my house the tachycardia had stopped and I was back in Sinus rhythm. My tachycardia was mostly triggered after exercising. I went to a cardiologist and did a stress test...

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Mammogram

Going to get my first mammogram after getting my pacemaker. Procedure is uncomfortable enough as it is. Will it be worse now? What can I expect?

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Post pregnancy with pacing increased

Hi everyone, 

I am currently 5 days post birth of my daughter and am having some issues with my heart rate staying up. I had my pacemaker put in last year on halloween. I have cardio inhibited vasovegal syncope with frequent spells. After implant of  pace maker I have has no episodes and it was pacing 22% of the time. I got pregnant in January and the pacing continued to go down from there with no complications in my heart or pregnancy. Two weeks prior to birth it wa...

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Biological Pacemaker

Hello everyone, im 20 years old and have had my pacemaker for 2 years now from a doctor that ablated my av node from WPW ablation. I want to play sports again and my pacemaker still causes problem such as 2 to 1 atrial tach and also the risk of leads being knocked out. I want to play football again soooo bad! Does anyone know of any clincal studys that may fixed heart block? I want to be able to go without a pacemaker and play sports again!

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Lead and Tricuspid valve

About 3 months ago my EP heard a murmur and after a TEE said my tricuspid valve was leaking high moderate range and borderline of needing surgical repair.  I see my EP every 6-8 weeks to monitor the cardiomyopathy and ventricular arrhythmias and make med changes. I had a 3-month followup echo yesterday and the cardiologist that shares his office came into the room where the tech was doing the echo and said that the lead looked like it was twisted and may be causing a problem wi...

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confused

2 years ago today i recieved a pacemaker due to an AV block.. overall everything has gone well , check ups ect.   Monday I sent a remote transmission and recieved a call from the doctors office that they wanted to see me yesterday.  They said they saw some tachycardia.   I went to the appointment to be told that since Sept 19, 2019 they have seen 124 epiosodes of Atrial Tachycardia.  They questioned if I could feel these.,  To be honest maybe a handful and d...

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Apple Watch

Hello,

I use the Apple Watch to monitor my heart ♥️ rate and take ECGs when I feel palpitations; PAC’sand PVC’s. It also can pick up inconclusive rhythms and my father-in-law uses his for his atrial fib and says it’s very accurate. I also take my pulse and feel the EKG is very accurate. I would love to hear all other opinions on the Apple Watch...🙏🏼Thank you

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watchman vs blood thinner

My doctor/tech keeps mentioning Watchman.  The first time when i saw him about getting a pacemaker.  Which i was not aware that i needed. The next time   was at the pacemaker clinic 2 weeks after PM implanted.  The tech said when i saw the dr. at the 6 week mark.  He will say something to me again.

  After the first time came home and looked Watchman up.  Was not thrilled with what i read.

  I was thinking if i needed blood thinner, why...

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Electro therapy for haemorrhoids

Good afternoon, posting for my Husband who is wondering if anyone has had Ultroid (USA) or Exroid (UK) therapy to treat haemorrhoids.  He will speak with his EP about this but wondered if any one else with a pacemaker has had the procedure. It is something he desperately needs done as is not a good candidate for surgery. Thank you.

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Member Quotes

My pacemaker is intact and working great.