Most Recent Messages in Coping

New to the forum

Hello everyone....

I'm new to the forum and am 13 months post pacemaker implant. My implant came with complications and had to be taken out, cleaned and re implanted 3 weeks after the first surgery. I got a massive infection and was put on Vancomycin for 4 weeks via a port in my upper bicep. The Vancomycin wiped out my entire immune system and I felt like I was going through chemo. The pacemaker seems to be working fine but I'm a strange case and I'm not sure what's *nor...

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Update on feeling tired

There have been various posts on various topics in which the subject of feeling tired comes up. That makes me prick up my ears, because this is something that I have been dealing with for a while. I had my beta blocker dosage increased maybe a year ago, and it seemed to me that from that time I began to feel extremely sleepy. I felt like I needed to sleep not only all night but most of the day as well. My PCP and my cardiologist both seemed convinced that it was something other than the med (...

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Is anxiety normal after years with Pacemaker?

Hi Everyone.

So I am a pacemaker dependent for about 34 years now with a dual pacemaker. One thing I seem to be suffering from is anxiety... but for some reason lately I worry about my health and future with this device... I am the only one in my family with this... so I don't have anyone to relate to... I do aim to focus on positive things but sometimes it creeps up on me. I wonder what should I expect as I get older. I am in my late 30's. 

Thanks :)

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not wanting pacemaker / anxiety?

sorry if i'm not posting his in the right forum, but i'm just feeling so lost and trapped, and i don't know who or where to look for answers. i don't technically have a pacemaker yet, but i'm getting one implanted inevitably.

 

i'm fifteen and i was diagnosed with third degree av block (complete heart block) within the last year. i'm asymptomatic to a certain extent, but have a low enough rate (39 resting) that my dx told me that it's basically...

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Pacemaker

Should I worry all the time about being 100 % dependent on pacemaker they the drs never explained it to me properly 

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WomenHeart

Hi All,

It's been awhile since I've been on the site. I found out about this organization that I want to share with you. It's called WomenHeart.

They provide opportunities for women with heart disease and conditions to connect. They also have a lot of information on their site about health. There are a few zoom meeting groups across the US. Here is the link to their website in case anyone is interested.

https://www.womenheart.org/

 

 

...

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Anxiety returns

Hi everyone - I had a pacemaker implanted on 1 March, so just over four months ago. I struggled a lot at first with anxiety and depression - my GP put me on Sertraline 50mg/day (I've been on Amitriptyline 25 mg/day for many years and the Sertraline is in addition to that). I've also started counselling which is hard at first but I feel sure will help me longer term.

After 3 months I felt quite a lot better and resumed work - I'm self employed and do contract work from home....

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I watch

Can the watch to an accurate EKG if you have a 3 lead pacemaker. If so which series I watch and can it detect a fib or a flutter?

 

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BRADYCARDIA

I HAVE ONLY RECENTLY BEEN DIAGNOSED WITH THE ILLNESS(3WEEKS) AND SEEING A CARDIOLOGIST SOON.I HAVE HAD 1 EKG AND ECHO AS WELL AND FORTUNATELY OR NOT MY HEART IS IN GOOD SHAPE OTHER THAN LOW PULSE,44 TO 55.mY CONUNDRUM IS THAT THE TECHNIIAN HAS STATED THAT A PACEMAKER IS UNLIKELY SINCE I AM OTHERWISE HEALTHY.THE LEVEL OF FATIGUE THAT I COPE WITH IS ALMOST UNBEARABLE;THIS IS VERY NEW TO ME AS I WAS AN ACTIVE GUY EVEN THO RETIRED AND WORKED A PHYSICAL JOB MY ENTIRE WORKING YEARS.I NEED TO PERSUA...

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Mental Health

hi, i never use forums or anything like this so sorry if my post etiquette or anything is incorrect. but i'm a 19 yr old female and march 29th 2022 i had an s-icd implanted. ever since leaving the hospital i've been extremely depressed. the scarring i have is terrible, it's mostly on the side of my ribcage under my arm and i hate looking at it. the device itself is also clunky and can be seen through my skin and it's always sore and trying to sleep comfortably is impossible. a...

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Post pacemaker symptoms

First I just wanted to thank everyone for their inspiration during my pre PM procedure. It was on June 7 & the procedure was a snap. But now I am experiencing the following: Higher B/P, nothing drastic, weird dull throbbing sensations in left arm, every now & then, and yesterday some several kind of mild  jolt sensations from my heart. I am a little light headed and low energy. Now keep in mind I have high anxiety and freak out with any strange or unusual feelings....

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Electric Blankets

Hi, I have a saint jude ICD I was wondering if anyone here knows if an electric blanket would be a bad idea?   I stay cold all of the time and used to use one year round but have been too scared to try since my ICS placement.  I have a lot of other conditions as well amd the cold really affects my quality of life.  Cold air is like needles to my skin. 
thank you!

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fever with backache

Hello everyone. I threw my upper back out about 4 days ago and the last couple of days i could really feel it when i breathed. Now, it seems im starting to run a mild fever last couple of days, its only at night. its impossible making an appointment because they are all booked up. Does anyone know whether aspirin is safe to take, also, this has elevated my heart rate as well, is that to be expected? thanks for listening

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Return of symptoms

11 days post op and up until today all my previous heart block symptoms had gone completely. Today however on a walk they all came back. Shortness of breath tight chest dizziness. I’ve done some mild exercise and housework and it’s hot today. Would this cause it?

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Ablation part of pace and ablate

In the AF Association leaflet it says the following:

"The procedure does not restore the normal heart sinus rhythm and so the heart will not work as well as it would in the normal rhythm. Therefore symptom relief may not be as good as might be expected with restoration of the normal heart rhythm."

I've had my pacemaker fitted and awaiting the AV node ablation. I read this today and nobody else has mentioned this at all. Are there any other people on here that have ha...

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This One is Interesting!

Hello PMC!

I hope you are all doing well! I have something interesting to share with all of you and hopefully you can provide some feedback. I will start by saying that I have an appointment 6/9/22 with my Cardiologist to discuss same. I've been experiencing leg weakness daily and sometimes my thighs burn when I walk as if I was doing intense exercise at the gym. I've noticed that my legs (thighs mostly) have trouble doing anything really&...

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Extremely high anxiety

I'm 28 who gotten a pacemaker going on 4 weeks now and every since I've been unable to sleep well. My anxiety been through the roof. Scared of everything to go out to far from hospitals, to have intimacy,to run to anything. I feel like my pacemaker might have a malfunction one day. And when them thoughts get inside my head. I try to get them out but my anxiety won't let me. I feel like I'm getting depressed as well. I made me appt to see a psychiatrist for tomorrow and hopeful...

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Symptoms before PM

I have implantation surgery scheduled Wednesday. I have AV Heart Block, the doctor expects I will use almost 100% of the time, my heart rate is usually around 32-39, currently.

I've been experiencing tiredness, irritable, confusion, feelings of being overwhelmed. This was why I was going to the primary doctor, but they missed it for awhile.

did anyone else have those symptoms before PM?

 

thanks

michelle

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Group like this but for cancer?

I have found this site very helpful in that it's basically user based and user driven.  I am looking for a similar group for cancer patients.  Everything I find is dr's, care centers, pharma, psycology, or societies/professional organizations all drven, mediated, or otherwise led by professionals in their fields.  That's all well and good but I'm looking specifically for how people handled Rituximab chemo treatment from a patient perspective.  No, I don'...

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New to this whole pacemaker thing

Hi, i am a 28 year old female, recently i got an SVT ablation done it was unsucessful due to my heart beating below 40's so i had to get a pacemaker. at first i was scared i cried like a big baby because here i am this young female gotta get a pacemaker put in. its been a week now and im just having hard time coping with it. at times i feel it other times i dont. hate the feeling. i just have so many questions about it. like im even scared to have sex now because i think my pacemaker migh...

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You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

Good luck with your surgery. It will improve life amazingly.