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Most Recent Messages in Coping
Tinnitus
Hi all. I had my pacemaker fitted 4 weeks ago. I have been gradually suffering from tinnitus , progressively getting worse which is affecting my hearing and concentration. It feels like whooshing, a tone and it's pulsating to my heart beat. It's troubling. I'm going to contact my doctor today but does anyone suffer with or have had this and what did you do to combat it? Thanks in advance. Jill
Living with SSS
Hello,
My question is to people with a diagnosis of SSS. Living with a pacemaker do you still have episodes? What are your symptoms?
Thanks in advance for answering my questions.
Vasovagal syncope
- by serialquilter
- 2024-11-04 16:22:19
- Coping
- 191 views
- 5 comments
Anyone else have this? I had it before pacemaker surgery, although at that point, it was not diagnosed. I had an episode last week, first one in 3 months since receiving pacemaker. Post hospital visit with cardiologist today. She said I would have flatlined without pacemaker. Technology is wonderful. My heart will not stop, but BP still plummets. The vasovagal episodes wipe me out, and not knowing when the next one is coming is unnerving . It is always...
breathlessness 1 year after pacemaker fitted
I had a double bypass in 2018. due to coronary blockage. But no symptoms.
In 2023 I had a series of blackouts. No diagnosis but after 6 months a loop recorder was fitted & heart block discovered. A pacemaker was quickly fitted. I have had no complications & recovered quickly. I was very tired at first but this has improved over the last year. I had severe breatlessness before the pacemaker was fitted and this has gradually improved but I am still breatless on exertion...
Pacemaker fitted 3 and a half months ago
Hi,
I had a pacemaker fitted 3 and a half months ago and I am still very aware of it all the time. I can feel it when I'm sitting, when I'm standing, when I go to sit down, when I go to stand up, when I'm walking around, actually all the time !!!! And it's really bugging me !!!
And sleeping is a nightmare. It just is sooooo uncomfortable. It is fitted on my right, so I can't sleep on my right side but I try to sleep on my lef...
Pacemaker imlantation two weeks ago
Is it 'normal' to have a feeling of apprehension after my pacemaker surgery two weeks ago. I physically feel so much better but I have an anxious feeling, which worries me, so a bit of a vicious circle. I'm trying to keep buoyant but still the 'feeling' persists.
Pacemaker Implant
- by Momof2amazingDogs
- 2024-10-28 15:15:29
- Coping
- 169 views
- 4 comments
Hello friends. I'm new here. Guessing I really am searching for some support. Pacemaker implant happened 13 days ago. Surgery was painful. I still have painful itching and soreness from the procedure. How long will this last? I used to be so vibrant and active. Am 69 and feeling like maybe I made a mistake. Any encouragement would be much appreciated.
New PM Club Member
I just got my pacemaker 2 weeks ago (10/14/2024). The day after I got my pacemaker, I had major complications. Had a minor heart attack then a stroke. They ended up doing an angiogram, and found seventy percent blockage. I am now so anxious about doing anything I'm scared of even walking down the road. I'm hoping I'll laugh at this in the future - things have got to get better - I'm not used to being sedentary.
What To do?
Uncomfortable all the time
Hi everyone, I had my pacemaker fitted 3 months ago now and am still feeling very sore inside.
Is this usual ?
I am still very aware that I have this little machine fitted inside my chest, I can feel it all the time, when I stand up, when I sit down, when I'm walking around, when I am doing the washing up at the sink, when I'm driving.
I would like to forget that I have this, but it's soooooo uncomfortable all the time.
And sleeping is a nightmare, I...
Alcohol vrs. Gummies or neither?
Well my ep doc strongly suggested that I quit drinking alcohol to avoid irregular rythms. I had one incident where my defibrillator activated and it happened to be the morning after having two rum and cokes. It was determined that my pacemaker sensed ventricular tachycardia. So that convinced me to stop drinking. That was 7 months ago. I'm doing fine without drinking but I do miss the "happy" part of "happy hour". I'm thinking about trying cbd gummies. Does anyone...
Weird pacemaker feelings
- by EMartell97
- 2024-10-08 17:16:19
- Coping
- 270 views
- 4 comments
Hi everyone. I'm 27 F, I had my pacemaker fitted back in April after I had an ablation gone wrong. I went into complete heart block and spent 10 days in hospital and had emergency surgery to have my pacemaker fitted. I am now 100% paced.
The whole thing still feels completely bizarre to me. I feel I haven't really come to terms with the fact that I have a pacemaker, it all feels very very surreal.
I am really really grateful for my pacemaker but even after 6 mo...
Defibrillator
Since having my pacemaker fitted 10 days ago I can't sleep in my usual curled up position. It's really uncomfortable. Still taking painkillers, but it's more due to feeling it when I lie down. My anxiety has been so much worse since surgery. What position do people find most comfortable to sleep?
4 Months in
When I first got the PM, the first few weeks were scary. After some adjusting, everything seemed great. I even forgot at times I had a PM. But over the last few months I've had increasing episodes on a heaviness in the very center of my chest (where my bra would cross between my breasts). My heart rate also has started fluctuating at night, wakes me up and I'm hot.
After being in and out to see the doc all looks "good" and they are telling me that my PM has nothi...
Brain Fog / Sleepy
I experienced dramatically increased brain fog and sleepiness immediately after my pacemaker was implanted. It's now been a month and although it's slightly better, I still feel significantly more drained and constantly drowsy compared to before the procedure. My brain feels cloudy almost all the time, the opposite of what I expected.
I'm 69 in good health, an active lifestyle, a calm, care-free personality and no other health co...
Worried Daughter
- by WorriedDaughter
- 2024-09-23 10:54:35
- Coping
- 263 views
- 6 comments
I joined this group on behalf of my mom. She had a pacemaker put in on Sept 12/24 and she's not herself at all. She keeps complaining about a foggy head, and numbness in her face. She sleeps alot which I understand she needs to recover from the proceedure. She is suffering from depression and anxiety issues of late. I dont know what to do to help her. She doesn't want to see the family doctor until the six weeks recovery timea are up. I'm...
I feel sad :-(
I'm almost 6 weeks post PM now and I feel so sad all the time.
I'm in constant pain, having to take hefty doses of codeine to function somedays and I currently just feel like, what's the point.
Have a review in a few weeks due to the pain but nobody will see me before, as they've looked at photos and said my wound looks fine and reburial could cause an infection. My PM is very protruding and the pain is like nothing I've ever experienced (I've had kidney st...
Sleeping on that side
So, I just had my pacemaker installed last Friday. That shoulder is still pretty sore. I'm still taking it super easy too. My question though, is when can I sleep on that side? Like how long before it's safe to?
Thanks in advance!
Newbie
I had a dual chamber pacemaker implanted six weeks ago . It seems to be doing it's job but I am freaking out a little because at nightime when I lay my head on my pillow I am aware of my heartbeat . I hear the thrumming and it's weird . Anyone else had to deal with this ?
Symptomatic when paced
Hello everyone! I am still having trouble with exercise and would value your opinin and help understanding what is happening. The details of my PM are in my bio but I am having difficulty whenever my heart rate exceeds about 110. This happens on moderately strenuous exercise - like walking up hill - at which point I start dropping beats and my PM kicks in. However, if I continue the PM seems to take over completely with rates above 110 and when that happens I feel faint and have to stop. Once...
pacemaker rate concern
so for a week my pacemaker that is set at 65-66 has not increased in rate when i exercise with power walking my dog and steps making me short of breath. It is 12 years old this month and im thinking i need a replacement?
I have called my cardiologist for 2 days with message and today went to my primary for this, blood work all normal and my dr sent a message to cardiologist. Am i over reacting to this issue . Obviously my cardiologist must think i'm ok.
i am changi...
You know you're wired when...
You participate in the Pacer Olympics.
Member Quotes
I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.