Most Recent Messages in Coping

Shew!

Hello and good day/evening/night. I am still stretching and it is helping somewhat. I can now wash my hair with BOTH hands now but that is as far as i can get without pain. I was thinking, could i have some nerve damage in my arm? After all it does have a tingling sensation and twitching. It has been 4 months now. I have to have a pacer check this Friday i hope two things, 1 my dr shows up and 2 i hope i don't have to cancel for any reason.

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Soreness

Can anyone speak to how long the pacemaker site remains tender to the touch.  It's been 3 months now since the surgery.  I'm a tiny person and am wondering if that has anything to do with it?  I've seen the doctor and now 2 PTs and an orthopedic and they all just shrug their shoulders.  

 

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Worried

I've only had my icd for about 3 months now. My cardiologist and surgeon stated I'll have a normal life, well it doesn't feel normal. Very little pressure in my upper chest, lower throat after I eat,, a little pains around my icd and the right side of my chest, a little light-headed. The weird thing is when I walk I feel ok. Is this normal? My pc and cardiologist said everything looks and sounds good. My pc did order a ct I'm just waiting for the results. 

How am I...

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Over A Year Since Implantation & Still Uncomfortable Sleeping

Hi everyone,

Hope you are all well in the new year. I just wanted to ask if anyone has experienced discomfort still after a year?

It's uncomfortable to lay on my left side and stomach to sleep. And sometimes there's a dull pain. It's so apparent in my daily life. I was wondering will this ever truly go away or is this something I just have to deal with?

I would truly appreciate any insight or personal experiences regarding this topic. Thank you in advance :)

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Memory Loss, Life After Death

I suffered a sudden cardiac arrest in May of 2020 at the age of 25. I've since gotten back to work and back into the gym, but there is something that is becoming obvious to me; my short term memory isn't what it once was. I find it hard to remember names, numbers, and what I went into a room to do. At work I notice that I will forget measurements or what step of a process that I am at. It's really been eating at me. Especially today after my foreman started pointing out...

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This too shall pass--I hope!

Had to come back & read some past messages about getting through the first few weeks/months to remind myself that things WILL get better over time. I'm two weeks in tomorrow & healing well physically, but this morning has been rough! I am having frequent dizzy spells, some just about as bad as when I was experiencing pauses. I try to walk every morning, but right now I'm thinking I need to just go back to bed & see if that helps. Two steps forward, one step back (or o...

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Soon to be connected

A hello from south of France.

I found out last november (2020) in the local emergency hospital, that I have serious heart failure - dilated left ventricule cardiomyopathy, with acute pulmonary edema, and I am lucky to have survived.

Im 55 years young, and never had any health issue before. After 3 months, and non satisfactory improvement with meds, I will have my pacemaker/icd (CRT-D) installed in just a few weeks.

I know my heart and I will be better, and I must admit I m r...

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Pacemaker Aches (and Pains)

My Pacemaker was installed back in October, 2020. To make a VERY long story short, I had  immediate (and painful) complications with the placement of the bottom lead which was tweaked   repeatedly, then repositioned (twice), and then (when all that didn't solve the problem) was just simply shut off. My Electrophysiologist says I am incredibly sensitive to the bottom lead when it paces, so  you'd think that shutting of the bottom would do the trick, and it has&mdash...

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Thanks!

To those who replied so quickly, and those who may read & respond in days ahead: Thank you for all of the wisdom & encouragement!

I was feeling quite negative about my experience, but now I can see there may be light at the end of the tunnel. It makes sense that there would be adjustment time--for me & for my heart! I think what really bothered me the most was the fact that I had already fought through afib symptoms (with help--a long road of cardioversion, then ablation &am...

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New to this & not really happy

Hi to all! 

I am only 1 week from impant (just had my "wound check" appt & it's healing well). My biggest problem is the total lack of instruction/education that has been made available to me about a device that is now inside my body & connected to my heart!

My doctor was pretty good about explaining the reasons for the pacemaker & the expected outcome. I am in a-fib about 13% of the time--that's with medication (tikosyn)--but when going in &...

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Heart BPM

  • by Pop
  • 2021-01-31 18:46:16
  • Coping
  • 180 views
  • 4 comments

Had PM fitted Nov 2017, Had e few problems ever since device was fitted, Been back quite a few times, see different Cardiologists each time always get different diagnosis each time. Today went up stairs to bathroom had dizzy spell out of breath reart rate was very slow and palpitating again for around four or five minutes, any one else had simular symptemy?

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Post Implant Trauma

I had a nearly fatal event that resulted in getting an implant. How long does it take to get over the trauma of the entire experience.

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ARE WE ABOUT TO RUN OUT OF PACEMAKERS?

Good Evening, I havent been on this site for quite a while. I live in the UK across the pond. I am a little worried that the heath service will not replace my pacemaker in about 3 years time. And being totally dependant on it due to an AV node ablation proceedure. The pandemic is causing chaos in the health service and i think we may have to live with it which our governments dont yet understand. I suspect the helth service will go bancrupt . Peter

 

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The Nurse congratulated me on getting paced..............

Three years ago now. I had sever A Fib the rythem specialist told me the ablation didnt work and he would install a pacemaker After the surgery The nurse asked if I was excited to know I would likely live a very long life now that I hada St Jude pacemaker/Defibrillator ? Who wouldnt be right?  I was always known for being high energy, I was very active skiing, swimming, scuba, weight lifting/body building. I could play my drums for hours on end. I'm 70 Y.O. now, grateful to be alive...

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Pacemaker syndrome

Had my pacemaker for a year and have been diagnosed with pacemaker syndrome.  My Dr reccomends changing out my pacemaker and adding an additional lead plus defibulator type pacemaker.    When my device was first implanted one lead came loose and several weeks in they had to go back in and reposition lead.  Now I am faced with this situation.  This will be third time under the knife for this implantation, Dr doesn't think there is any adjustment on current device t...

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Responses to my message

I want to thank everyone that replied to my post.  Its great to be associated with so many people that have already gone through most of which im about to go through and are willing to share their experiences.

I think therapy might definitely be in the cards for me once I physically heal up a little more. Looking forward to more support from the group and someday offering my support to others that might need it from me.

 

 

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New To Club

Hi All 

Just had my pacemaker installed ( A Boston scientific L331) last week and Ive been healing up physically pretty good but whats getting to me right now is the mental brusiing that I received after learning that I had Sick Sinus Syndrome and Bradycardia and needed a pacemaker. I am a depressed and anxious  and worried that I will not be able to get my old life back. I was very active prior to this diagnosis;  lots of exercising, weights, boxing gym, snowmo...

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Info that might be helpful to some

Hello everyone! I have been reading post were people are still having pain with their pm/icd. Me too!! But i have found these two things help. First buy Aspercreme and roll it over the painfull area. Helps with numbing. You can also spread some Voltaren gel over the painful site. This will have to be prescribed by a dr. and cause drowsiness. Well it works for me. Just thought i'd let you know.

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For Gemita to answer, or any woman

How do you females do housework?  Vacuum, dusting, windows, trash, And dishes. I mean since getting a pm i imagine your routine has changed.

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St Jude abbot PM2272

I am a active 53 year-old male and had a pacemaker installed in August 2020 with an AV node ablation. My condition is hypertrophic cardiomyopathy that I did not discover until my 40s. The first medication I was on after discovering it through arrhythmias was Verapamil. I felt the best I ever did with my condition while on that medication. As Time passed heart problems began to increase including atrial fibrillation. After four extensive oblations and numerous cardioversions (too many to count...

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