Most Recent Messages in Coping

Good grief!

Hey PM Club!

Just a quick update on two items. First I have my Invasive Cardiopulmonary Exercise Test (iCPET) at UCLA on 12/22 at 8am. I can't wait to get this done and see what's happening to me. 

Test Link: 

https://www.uclahealth.org/medical-services/pulmonary/pvd/conditions-treatments/invasive-cardiopulmonary-exercise-testing-icpet

Next update is nothing short of shocking to me. So I thought to do some stretching and some easy exercises at ho...

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Blood thinners

Hi  long term arrhythmia, bradycardia controlled by single lead pacemaker for 8 years, cardiologist recommends anticoagulant but I depend on a good diet and exercise, anyone else who takes this approach I would be interested what you think thanks,

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Gaining to much weight

Had pacemaker put in 04/22 at age 41 for IBBB and cardiomyopathy. Have felt good since but have gained 50lbs since from occasional alcohol and bad eating habits. Starting to have fears of passing away at a early age leaving 2 young kids behind. Any recommendations for getting myself motivated and losing the weight. While losing these worries. 

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Cruising

I want to take a Cruise with my husband. I was wondering how did you feel while on it. Did you feel dizzy or did your Pacemaker function properly? I am really worried. I took Cruisi's all the time before Pacemaker was installed, this will be my first experience with it.

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Iā€™m so young

I will be 30 Saturday. I've had my PM for one week today. I'm also 20 weeks pregnant and a mom of two. I'm very emotional which can be in some part from pregnancy but I just can't believe I'm so young and had to go thru all of this. I'm doing well physically BUT emotionally I'm afraid, embarrassed, and scared of the unknown in my future. Just looking for some coping mechanisms. 

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Burning Near Pacemaker Incision

I had my first follow up checkout Friday Nov 18. All is ok with pacemaker working. Today I still get that burning pain not at the incision but above it where the arm and shoulder connect. I take Tylenol and it helps a little. Anyone take anything stronger. I use ice also.

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New Pacemaker

Hello everyone.  I am new to both this site and having a pacemaker implanted back on October 5, 2022. Let me first introduce myself.  I am from Kentucky, retired military and retired from the Federal Prison system.  I am new to the pacemaker world and to be honest with you I am scared to death.  I know many of you are saying that heck I have been involved in several wars and this pacemaker scares you.  Well the answer to that statement hell yes I am.  War is abou...

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Latest Update (Long Post SORRY!)

Hello everyone! It’s been a while since I’ve been on here so I wanted to provide a rather lengthy update regarding my current health status. These last three years since my heart issues were discovered have been disheartening to say the least. I’ve gone through so many tests, scans, hospital visits and still have no answers. I am getting close, but I am still in the testing phase with my new doctors. I started with the VA, then used my private insurance (Optum) and now...

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Biotronik identification card

Hi I'm a newbie, 41 having (very suddenly and shocked) had a pacemaker fitted 12 days ago.  I left hospital with my "identification card" which was a piece of half a4 paper, looked like recycled paper which is no way going to last 10 years!

I contacted Biotronik to see if they issue cards he said no unfortunately not. 
I feel I need to have a card for longevity can anyone advise of where is best to get one and what details I need on it exactly? Xx<...

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Heart

Has anyone had a thoracic anuism my cardiologist didn't seem to worried about it but I'm thinking of a second opinion 

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Emotion Gene is Missing

I have an Abbott dual chamber heart pacer implanted that beats my heart 100% of the time due to my 3rd-degree heart block.  My pacer beats my heart exactly at 60 bpm 24/7 except when I exercise it will automatically sense and speed the rhythm up.

Now that I am paced my heart does not react to adrenalin rushes like a normal heart in flight mode.  Today I was in a situation that would scare anyone and cause a sudden rush of adrenalin but since I am bionic I don’t get the a...

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Pain around pacemaker pocket

I am on my third pacemaker in 19 years. I have third degree heart block and feel wonderful.  Except for this last pacemaker. I received it May 19 and had lots of pain post placement.  My two previous pacemakers were no problem, almost no pain. This one has hurt since placement. Wakes me up at night pain.  And it itches constantly.  I contacted my EP and was told that they had to go through a lot of scar tissue so it will be uncomfortable longer. Don't worry.  But...

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Frequent premature ventricular contractions

Hi,

I have a dual chamber pacemaker insitu for 2:1 AV block. Recently I've been having palpitations and monitoring shows sinus rhythm with frequent premature ventricular contractions. Does anyone else have experience of this?

I'm already taking Bisoprolol 5mg and Lisinopril 2.5mg daily. 

Many thanks šŸ˜Š 

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Placement of the pacemaker

My pacemaker was fitted 2 weeks ago... it was a complete shock. I knew something wasn't quite right, but wasn't sure what it was. I had chemo 2 years ago and it seems this has affected my heart. I'm a bit concerned about the location of the actual pm... it seems to be very close to my shoulder and I it seems to obstruct the movement of my left arm across my body... anyone else had this experience?.. thank you šŸ˜Š 

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Diagnosed with complete heart block

I am 57 and recently retired and was about to begin enjoying myself. Was planning to travel to Europe next suumer and relocate to the beach. Had an abnormal EKG during a colonoscopy last month and was referred to a heart specialist. Went to see an electrophysiologist today and was told I need a pacemaker for a complete heart block. I jhave never been seriously ill in my life and excersise daily....cycling, walking weightlifting.  Still having a hard time believing this as I feel pre...

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Flutters when pacemaker cuts in

I had a pacemaker implanted a month ago and am getting light flutters in my chest and occasionally in my stomach when it cuts in.  I've been told the pacemaker sets the voltage automatically at 125% of the threshold voltage for safety so it can't prudently get reduced. It isn't as strong as PVCs but can be annoying when reading and doing other quiet activities. Is this something that one eventually gets adjusted too or are my expectations too high? I cut back on my...

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Tired

Hi, I received my pacemaker 10 days ago. My symptoms had been shortness of breath and being very tired. Also I had had 3 or 4 dizzy spells over the last year. Since getting the pacemaker the shortness of breath has improved quite a bit but I am still quite tired. Is this normal? I will be seeing my dr. on the 18th and the rep. from Boston Scientific on the 24th. 

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Alone?

Hello all,

I'm not sure if this is appropriate to post because it's not directly related to the pacemaker itself, but I'm just terrified and so afraid.

As everyone knows, my cardiac journey has been an up and down road. Recently, physical therapy and medication adjustments have helped keep the SVTs and general visual disturbances mostly at bay, to the point of experiencing them less and less, but still weekly.  
 

Now the topic of my post...

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Heart Failure

I’am a semi-retired 69 y/o female. Last Oct 31,2021 I took my blood pressure at home and my pulse was only 39. I work in a senior care facility as a Med passer/caregiver so as I would often take vitals on the residents I was used to taking my own daily, so I knew 39 was too low and something was wrong. I called Triage. They suggested I go in to ER. The ER doctor did some tests; an echo etc and told me I had complete heart block, I needed a pacemaker right now. I could not...

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Pace macker

Hi I had a pacemaker fitted 3 weeks ago got a complete heart blockage. Had a 3 wire 1. I’m only 38 and found out I was born with a congenital heart disease. My heart is the wrong way round.late on I will need heart op.I carnt stop crying . And 1 else been in this situation thanks x 

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Member Quotes

Pacemakers are very reliable devices.