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Restrictive cardiomyopathy and odd pacemaker behaviour

So, I went for the first stage of a heart transplant assessment on Tuesday -- mostly tests I'd had before (chest X-ray, ECG, ultrasound) but also an exercise test wired up to an ECG and monitoring breathing and blood pressure and oxygen sats.

As expected, my results showed (quoting the tech) 'you're rubbish at excercise'. Not really a surprise as persistent breathlessness and inability to exercise are why they're considering me for a hear transplant.

However, d...

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BPM has changed with my new pacemaker

Had my first pacemaker replaced a few months ago. It had always paced me at 60 BPM, rarely ever changing. I note my new pacemaker (same brand) paces me sometimes as high as 80 BPM, with the average around 70. Recently, I have had episodes of breathlessness and when I do the finger check for oxygen and BPM, oxygen is always good (between 98 and 99), but BPM is high 70's or more. Is this normal, given my previous pacer. My surgeon did tell me that I am now 100 percent depende...

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Syncope

I had two episodes where I thought I would pass out from the ectopic beats prior to my PM and today three months after placement I had a short episode where I felt I was going out. I was hopeful this wouldn't occur after my PM. My heart rate was in the 70s so I probably wasn't pacing at the time. It scared me. Also had a little nausea an hour or so after walking 4 miles. Felt good while walking.  Last night I had some tachycardia for a short time while lying down. Perha...

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2 more shocks

I received 2 shocks from my ICD this Monday late afternoon.  I felt my heart go fast, which it's been doing, and then, whammo!  I called my EP in tears (I have his personal cell phone #), and he told me to call 911 and get down on the floor.  I went downstairs and waited for EMS to arrive.  The interrogation at my local 'community' hospital (they have an older unit than I have for sending info) showed I had 2 vfib events.  I was eventually transferred...

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Diet

Before my PM was instated in June 2020, I was given repeat potassium level labs. My potassium was too high. The potassium lab in  August had finally reached normal value. During these lab elevations, I  changed my diet; cut out all the high potassium foods. My cardiologist visit  this month was good; he said not to worry about any diet restrictions so much. This was nice, but vague. Do other people have to  limit high potassium fruits and vegetables? Do other pts. have a h...

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ANESTHESIA & PACEMAKER

Hello Fellow PaceMaker Users!

I have to have a routine (I don't want to type the name of it) - everyone over 50 supposed to have it  everyone 10 yrs. to prevents colon cancer & you drink a horrible drink the night before (you guessed it).

I'd like to know if anyone's ANESTHESIA affected their pacemaker?  AND/OR if your gastro doctor found a polyp to remove did that procedure affect your pacemaker?

THX TO ANYONE WHO REPLIES FOR ME.

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MRI, oh my.

So, I have a torn up Achilles' tendon in my heel and an appointment with an orthopedic doc on Friday. I saw my primary care doc on Monday and she wanted me to get an MRI of the ankle/heel before the Friday appointment. 
 

the first imaging center I spoke to said their machines work fine with my "MRI Safe" device, but they don't have the team necessary to work with pacemakers so I was referred to my local hospital MRI center. After speaking to them,...

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Slow recovery

Hi everyone

 

i am a new member but have actually had a pacemaker since the age of 10 and I am now 47.  Three weeks ago i had a routine battery replacement (it had been 12.5 years since my last one).  The surgeon had real trouble getting my pacemaker out, apparently between scar tissue and cartilage growing around the unit they essentially had to cut it out, and create a whole new 'pocket' rather than using the existing one.  I am improving and my wound...

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Pacemaker check

what is involved in a pacemaker check at the doctors office

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COPD and my PM

Although I have a long list of health issues, other than my heart, the most pressing is the COPD. I just learned a lesson that may be useful to others. I use a Trelegy inhaler once a day and it works quite well. Then Monday when I used it I noticed that I did not seem to taste the powder as before, but just figured I was getting used to it. Yesterday it was like I simply inhaled air. I wear a smartwatch and frequently check my HR. I noticed early in the day that my HR was elevated between the...

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A cancelled pacemaker check

My upcoming pacemaker check has been cancelled. Should I be concerned about the remaining battery life as it paces around 80% of the time and it was fitted nearly 7 years ago.

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Boston Scientific doctor near Rochester NY?

Does anyone know of an electrophysiologist near Rochester NY who does Boston Scientific pacemakers?

My current pacemaker is near the end of its lifetime, and I would like to replace it with a dual sensor pacemaker from Boston Scientific. I need adaptive pacing for my chronotropic incompetence. My current pacemaker (from Medtronic) is not helpful for biking.

Or maybe I'm asking the wrong question? Maybe plenty of doctors are willing to put in a Boston Scientific, and the r...

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Feeling the pace

Hi

It's me again sorry to keep going on about this topic. 

How many of you can feel when you are pacing? I don't mean the bit of a flutter when it starts, it's the real thump of the heart beat in the chest and neck, for those of you that do have this do u learn to ignore it.

Not going in to the history of it all as I am on here so often these days people must be fed up. But not a newbie to PM now have one lead and need to know if its possible to accept these...

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Does anybody have a copy of FrankMCW pdf

I have sent a couple of messages to Frank and an E-Mail to try and get his PDF he talks about in his postings. I have had some of the same issues with the optimization giving me grief when I exercise and wanted to read it. if anybody wanted to send it my way I would appreciate it as I have an appointment with the Doctor next week.

 

Thanks 

 

I have it now Thanks

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Pacemaker settings

My Study showed severe sinus node dysfunction with bradycardia 

mode DDD

Base rate  70

rest rate off

paced Av delay 250

sensed Av. delay 225

max track rate 120

max sensor rate 130

vip on   What is VIP?

ventricular safety standby on

response rate Pvarp/v ref  high

Thanks to this group I learned about RR and tested it out and I go from 70 to 90 just sitting to standing  I never ran a rate over 7...

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Shape of pacemaker

What does my St Lukes pacemaker look like? Where can I see a photo?

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Medical Clearence Check

Hi everyone,

So I have been considering applying to a foreign service fellowship with the department of state in the USA. But upon reading the requirements I saw that it requires you to pass a medical check. I was wondering if any of you know if my pacemaker would prevent me from passing one. I can't find any clear information online about the required medical check. I am not pacemaker dependent and have no other medical conditions that would prevent me from passing. But I can&...

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Exercise and PM adjustments

I have a dual chamber pacemaker/ICD set for 50 bpm. The EP wanted it set low enough because when it paced I became "symptomatic." He wanted to all but turn it off. So rather than flipping the off switch, so to speak, he put it low enough that I just wouldn't pace. 

Since then, I have gradually returned to my cycling and have become as non-competively proficient as I ever was (minus the long six-hour rides). But now I go through definite periods when my breathing...

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You know you're wired when...

You prefer rechargeable batteries.

Member Quotes

It is just over 10 years since a dual lead device was implanted for complete heart block. It has worked perfectly and I have traveled well near two million miles internationally since then.