Most Recent Messages

Nervous

I am getting my pacemaker june 18th...i am so nervous...i have sick sinus bradycardia...am i overthinking i really need some reassurance thanks in advance

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New to This

After having typed out a very long story of how I arrived here, I wondered who would want to read it. In an attempt to find somes peace with everything, here's my shortest version.

CHF brought on by Coxsackievirus B. A friend pointed out this is the same as Barbara Hershey's character in the movie Beaches. That's uplifting!

EF initially 10%. It improved to about 20% within the three months I wore an external defibrillator.

Fast forward a couple of weeks ago, I re...

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UV LIGHTS

Hi.    I have had several pacemaker single lead devices for the past 26yrs and mostly forget I have one nowadays.

However sometimes when i buy new devices with all bells and whistles options i question certain things.

My latest acquisition is an air purifier with the options of uv light to kill bacteria etc.

Are uv lights any worry for interference with pacemaker devices?

It also has an ion facility which i cannot envisage using anyway.

Thanks for any a...

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Groin Pain

Having severe groin pain at the site of Micra insertion a year later, no sign of infection etc. Combined with some wierd right leg numbness and nerve pain over hip area. Not sure if related but wondering if anyone has felt anything similar re: groin pain after so much time. Going for an ultrasound and Cat scan to try and figure out- pain comes in hip and leg when laying down and groin pain is fairly constant. 

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Echo scan

Hi Guys ,  been for my check up today I have a duel pacemaker it will need replacing in under a year not had it replaced befour i have complete heart block, I'm a bit worried as the nurse said they will book me for a echo scan befour they change the pacemaker in case I need a third lead  !!! Now I'm really worried I'm going to need another lead ,  is it routine or do they see a problem ,  can anyone advice pls .  thankyou 

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Medtronic mycarelink

Hi Guys , my pm is going to need changing in around 6-9 months had it 7 years, I have 100% heart block, went for my check up today & they sent me home with a machine Medtronic my care link, the nurse said it was to save me coming to hospital so I could send my reading from home & told me to keep near my bed but not why ,  I'm rather nervous about trusting this machine when I'm due to use it , personally the more I think about it I would rather be checked at hospital for p...

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Kardia ecg

I know some folk use Kardia with their Pacemaker. Can anyone tell me if it records ectopic PVC's on the device. I'm blighted by them especially at night!! Just wondered if it is worth getting one as kardia do say it should not be used with a PM!

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1.5 years out from implant and seemingly tired

I'm 38 and had a dual lead implant put in about 1.5 years ago. Had bradycardia and was having some dizzy episodes. thankfully now I never drop below 50 bpm (always had a low heart rate as long as I can recall and fairly active). 

Lately, I've been more in tune with the fact that I seem tired more ofthen than I'd expect. No settings have been changed. I keep an eye on my apple watch and consistently running in low 50s when inactive. I have also noticed that I seem to be...

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Dizzy after working out? VVS?

I'm 33 year old male, received PM for heart block, and syncope- also have a high vagal response. Also just 2 weeks ago hit my 1 year anny with my pacer! Things have been pretty great until this last week.

Thursday went for a 3 mile run (I run 2 to 3 miles a day) and as soon as I got done running I bent over and tied my daughter's shoe. I stood up and BAM....super dizzy and nauseous. Laid down with feet up for 10 minutes and ate dinner, then felt 100% back to normal.

Today...

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Resting rate

I had a resting rate for years between 40 and 50. Competitive triathlete and cyclist. Had an athletic heart condition for 30 plus years and believe I still do. Have had flutter off an on for 8 years, mostly off. Jan 2017 sysmtoms of bradicardia began, pretty common for athletes. 7/17 got a dual lead medtronic pace maker. resting rate was set at 60 BPM. Now it is set at 70 BPM? If I still have an athletic heart condition, why 70. Now, flutter and fib are back. I cannot tell it and still go ana...

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Gastric band

Hi I'm 6"3 and weight about 400lbs I've struggled with my weight for years up and down never below 350lbs I had a pacemaker fitted a year ago ( sick sinus syndrome) and I'm thinking of having gastric band surgery to help with the weight loss. What I'm asking is this even possible has anyone had it done and the cost in the uk. Or dose anyone know of any other options I do try to eat healthy and I do walk but it's getting harder on my feet and knees and get out of breat...

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New member looking for support!

Hi all! My name is Rachel and I am a new member here on Pacemaker Club! I am 23 and got my pacemaker implanted in 2005 (if I remember correctly). I am on my second device and due for a battery change within the next year. I have never changed my leads, only the pacemaker itself. My pacemaker is in my lower abdomen under the rib cage with the leads going up. I was born with hypoplastic right congenital heart condition, and was able to have a successful fontan procedure when I wa...

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bruises on my arms, and I never had before

  • by mocus
  • 2020-05-24 20:32:52
  • ICDs
  • 81 views
  • 2 comments

I am 81 and never had a pacemaker before, now I wonder can a pacemaker get my heart pumping so good thAT THE 325mg. asprin is now acting like a blood thinner, more than it did before. 

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HR dropping below set pm rate

Hi all 

I was admitted to hospital today in the ambulance and in the ER ECG Showed my HR going as low as 40bpm my pacemaker is set at 60 showed pm capturing it but not increasing the rate like it should... i only have single lead turned on atm ... no one here could explain why.. my cardiologist is at different hospital...

Thought someone may have had this ,who could fill me in. 

Thanks 

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Macbook Air abd Pacemaker

Just unpacked a new Macbook Air and the notes indicate powerful batteries may interfere with medical devices.  Anyone have experience with this?

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Strange sensation

Hello everyone I picked my husband up from the hospital yesterday after he had a CRT D inserted on Wednesday. While in hospital " plugged in" he didn't feel any odd sensations but since being at home he is experiencing a tapping sensation in his diaphragm and stomach region. It was particularly bad during the night especially  if he lay on his right hand side. It is accompanied with breathlessness and he feels like he has hiccups inside his body but not located in his...

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Fluttering and coughing

Haven’t posted in a while hope everyone is safe in this horrible time (Covid) wee are all going though.  

Because I was having what felt like spasms followed by coughing. Just had pacemaker interrogated and changes were made.  My coughing seems to be worse. Anyone had theses problems and  Will this subside in time.  Thanks and all be safe.  

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Fluttering and coughing

Haven’t posted in a while hope everyone is safe in this horrible time (Covid) wee are all going though.  

Because I was having what felt like spasms followed by coughing. Just had pacemaker interrogated and changes were made.  My coughing seems to be worse. Anyone had theses problems and  Will this subside in time.  Thanks and all be safe.  

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Sleeping

Can someone give me information regarding turning over in bed.  I am an arm sleeper and use a sling since my PM insertion on 5/01.  When can I start turning over on the side of my PM without worry?

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Defibulator going off during deep sleep.... no pain.

Hello, anyone else have their defibulator go off during sleep and not feel it ?
 I am about 8 months into my pacemaker-defibulator and twice now it has gone off at night for rapid heart beat and I didn't know.  My monitor picked it up and I was called the next day by the cardiology people.  I have yet to feel the impact of the defibulator and I am nervous about it as my hospital experience was mega painful!!!

Glad I have found this forum.... hugs to alll, je...

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Member Quotes

I wasn't really self-conscious about it. I didn't even know I had one until around six or seven years old. I just thought I had a rock in my side.