Most Recent Messages

New to the club

Hi there, 

I'm Nikky, I'm new to the club. I'm 50 and had my St.Jude dual chamber pacemaker installed 3/18/20. Hope everyone is staying safe out there. 

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CPR ?

After an ablation interupted (severed) the electrical system in my heart, I am now totally dependant on my pacemaker/ICD.  Have been trying to wrap my head around the fact that I'm being kept alive by a machine.

Curious however.......IF the pacemaker unit were to fail and I would pass out....would performing CPR even do anything?  I know the jolt from my ICD wouldn't work given I shared the unit has stopped performing in my scenario.

Meaning, if the heart has to...

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Passing out

Did anyone feel buzzing in their head before passing out?

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Coronavirus

 Does anyone know if we come in the "at risk" group if we are living with left bundle branch blockage and pacemaker. I am 67 and quite fit and healthy. 

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Device check

What all do they do when you have a device check right after you have a pacemaker implant?  How long does it generally take? Do they speed your heart up and slow it down? I would just like to have some idea of what they do before I go in. Thanks for your reply .

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medical alert cards

just wondering what type of cards you guys have as i dont have a card as such just a folded sheet with the details fo the devices on stickers, i see loads of different types of cards on google but cant get one like it. i recently got my icd implanted on monday 3 days ago

any help on where to get a detailed card with my details on it would be much appreciated 

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Getting Defibrillator on Friday

I'm 52/F who had a LAD Heart attack (aka Widowmaker) Jun, 2019. At the time my ejection fraction was 10-15%. After hard work, eating better and losing lots of weight, it went to 35-40%. Last week, echo revealed that it is now 20-25% so I was referred to an Electrophysiologist. My appointment was earlier today and they scheduled the procedure for this Friday. 
 

I was definitely scared out of my mind but I wanted to thank everyone posting for sharing your sto...

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auto mechanic and pacemaker

Hi everyone, i've been doing some reading up on pacemakers, as my father is having one put in this coming monday. He is an auto mechanic and owns his garage. The doctors have told him he will not be able to work anymore, however that is not in the cards for him and he does not want to do so. 

The pacemaker is being installed because his heart beats way to fast. he has had the maze procedure as well as the ablation procedure. they say he is in afib 24/7 now, and this is his last...

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heart beat monitor advice needed

I have an irregular heart beat at times and 6 yers ago, I purchased a Garmine device to measure my heart rate. It , and another Garmine replacement didn't work, which I attributed to th irregular beat and were returned. Is there anything on the market today that would work with an irregular beat?  I have an ICD due to V TACH .

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Noise on ventricular lead

Hi

I had my annual pacemaker check in February. I have a dual chamber pacemaker for Sick Sinus Syndrome. I don’t take any medication.

They picked up noise on my ventricular lead at the check and concluded it isn’t working properly. 

I was there about an hour while three of the cardiac technicians debated what to do. They concluded they were trying to keep it going and fix it as best they can.

I was to see the Consultant mid April... no i...

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Possible Carcinoid tumor?

Hi. I have a dual chamber Medtronic pacemaker now for 3yrs due to Bradycardia and arrhythmia. Symptoms of bulging neck veins and a feeling of chocking especially when leaning forward, or training my upperbody...and upperbody arm movements. I go red in my face and feels asif i am standing on my head.. They are suspecting s Carcinoid tumor and causing carcinoid heart disease. Anyone have similar symptoms?? Zm awaiting results!! 

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Pacemaker implant one week ago

Hi,

I had a pacemaker implant one week ago. Occasionally I get a burning sensation in the middle of my chest that sort of feels like a "Hotwire". Anyone else experienced this or can you tell me if this is normal one week after surgery? I have not had my pacemaker checked yet I have to wait another week for that . Thank you for any insight you can provide. 

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My Corona!

Some levity in a dark world:

Location change: <https://www.youtube.com/watch?v=ojrtwXqqc6g>

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Is my husband considered "compromised immune" or "at risk" with Covid 19?

Hi all, you were so helpful last time I had a question, so here's another one for you. Is my husband who has a biotronik dual pacemaker (not difib) and is 50 years old. He had a level 3 blockage (electrical impulses not working) due to having chemotherapy as a 10 year old.

So...is he considered a 'compromised immune system' or 'a high risk' individual in the current covid 19 era.

Thank you, Karen (his wife)

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New Rowing Machine and Irritation

I just got a very nice acqua indoor rower three days ago and have used it a bit..

After working out a little after 2 days I noticed that I felt some irritation inside my chest close to the incision. Have had the pacemaker since July 5 of last year.  I have stopped using the machine because I thought that, perhaps, the resistance I had it set to was too heavy, at this stage. I have lowered the resistance but have not used that setting as yet.

I know others are using rowers suc...

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ejection fraction fell to 40 post placement 2 lead pacer.

My EP suggested a bivnetricular pacemaker after a drop of my ejection fraction to 40 post two year placement of my original L311 Boston Scientific device.  There is no infarction or damage and the original two lead placement was for a a type II block, bradycardia. Has anyone gotton a boost feeling better when a triple lead pacemaker has been installed.

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Beta blocker side effects

Hi! I've been on bisoprolol for just over a year now. Before that, I was on metoprolol for about 6 months (many years ago). I've been experiencing extensive eyebrow hair loss, and my doctors don't know why. I'm pretty sure it started when I was on the metoprolol many years ago, and it's continuing now. There hasn't been any regrowth, so I'm almost eyebrowless now (not a good look, unfortunately). I read somewhere that beta blockers can cause hair loss. Has anyone e...

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PM Interfere

I've had a Medtronic two lead PM since January 2 2020. I had my first and only adjustment on February 13th. Pacing was set for 55 to 60bpm, from the implant setting of 80bpm. I was told that this was done so I would not become pacemaker dependent, as I am still young (72) 😊 About 10 days after the adjustment I started having a feeling that I can only describe as the same or slightly lighter version of the techs "puck" being placed over my PM when he is making the adjustment...

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Replacement

I just received a message that it's time to replace my pacemaker. Approximately how long will it be before my surgery?

please share how long you may have waited 

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Anxiety and Nightmares

Anybody familiar with intense anxiety and nightmares after have pacemaker surgery.  I had my surgery last Wednesday and now too scared to sleep.

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You know you're wired when...

You can feel your fingers and toes again.

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