Most Recent Messages

Atrial Bigeminy

Hello from New Mexico, the Land of Enchantment

I recently have become acquainted with the term Atrial Bigeminy.  For some months I was pretty sure I spent a good deal of time in A-fib.  Had all the symptoms plus my Kardia Mobile confirmed.  Even my doctor was convinced after reviewing my phone log of possible A-fib events of which there were a good number.

However, very very few a-fib events showed up on my home monitor report or in office interrogation.  Almos...

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Aveir™ DR dual-chamber pacemaker availability US

Hi all,  have any one here heard since its FDA approval in July when this new dual chamber leadless PM will become offered on a more general level around the US? and will it also be offered to younger/middel aged patients since it has a retriveable function? From what I have been able to read some of the doctors in the trial believe this is doable. Br MG.

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Question on using a land phone

Hello, I'm new to this site.  I have a pacemaker. St Jude. I have Bailycardiac, slow beats.  My question is can I use my land phone safely.  Thank you, Karen

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3 year old - congenital heart block

Hi all!! 

First post for me- and first off I am delighted to have found this site and have read all posts I could find regarding complete heart block. Before I ask my questions I will recount some of my son's story- and mine, to give reassurance to anyone that may be frantically googling for information after being given this diagnosis of their unborn child during pregnancy.  (Jump to last paragraph for the questions)

That is what happened to us- CHB was found d...

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a fib

does any one have their pacemaker set to interrupt or treat a fib?  

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Still feeling sick and dizzy

Could feeling nauseous and lightheaded have anything to do with my pacemaker settings as I had check up 3 weeks ago and haven't been same since ,I've rang hospital can't seem to find report so my dr got me another pm check in couple days, some of medication I'm on is bisoprolol 2.5 twice daily, Metformin 500 twice daily,apixaban 5 mg twice daily,atorvastatin140 mg once daily,pantoprazole 40 mg twice daily,, furosemide 40mg once daily,spiractin 25 mg once daily, Ramipril 1.25 t...

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PVCs Ugh!

Not quite 3 weeks post op with a new Medtronic Claria MRI Quad CRTD and AV Node ablation.  32 years on my St. Jude mitral valve, I know a lot about heart valve replacements.  I know next to nothing about pacemaker/ICD's and am trying to learn.

I have Grade B heart failure after 7 years of a-fib that wasn't well controlled by meds.  My EF is now 32-34%.  I have no outward signs of heart failure.  The reason for the AV Node ablation was so I could be...

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voltage change effects

Hi everyone hope all is well with my dear forum members . 

Thank you for your help last time . 

i went to the hospital today and changed the settings . 

although require your help again . 

the volatage that was being used on top and bottom was 1.1 , they had it the voltage at 3 and changed it to 2.1 . 

although i have been noticing slightly anxious breathing and a double breathe in quick succession since . 

questions is can a l...

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Swelling

I had a CRT-D device implanted 3 weeks ago. Everything seems fine except for some swelling above my collar bone at the base of my neck. An ultrasound sound was done and a blood clot was ruled out. At my post op earlier this week my nurse said it may have been caused by an injury when my arm was moved during surgery. This really doesn't feel like a muscle injury. Has anyone else experienced this type of swelling after an implant? 

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New to the club.

I've been a part of an online heart valve replacement community for many years, so when I found I was getting a pacemaker/ICD implant and AV Node ablation, I was glad to see there is such an active group for this new experience in my heart-walk.  I have had a St. Jude mitral valve for 32 years.  7 years ago I got atrial fibrilation.  The doctors felt, due to my heart history, that cardioversion and/or ablation would not be successful, so for the past 7 years they've tri...

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Toprol XL

New dual chamber pm 8/4/23 for symptomatic av block.  I was prescribed Toprol XL 25 mg at discharge. I don't have have high blood pressure, my pvc and pac burden is less than 1%. It really disrupts my sleep and makes me tired during the day, even if I take it at night. At my 6 week device check, the EP fellow said I didn't have to take it, to see how I feel without it, I could always begin to take again. I asked why they even prescribed it, he said it was for pac and pvcs. I...

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PM & Ablation

I have a two lead pacemaker and am getting an ablation for palpations.  Does anyone know if this will stop my palpations and how successful is it in stopping the afib?

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Magnetic Launch Roller Coasters

Hello everyone! I am in my late 20s and got a Boston Scientific Sub-Q ICD implant. My EP doctor gave me the go ahead to ride roller coasters again, however my question is, has anyone risked riding a coaster with a magnetic launch. I love these roller coasters, and want to know if there is real risk of anything. Thanks!

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Wired for nothing

When I was brought to ER in 2015 I was diagnosed for getting a PM. Initial surgery went bad because my subclavian was crushed on both sides at one time in my younger life. They rescheduled and had a doc open it up to feed the wire. About 3 years later my wire was kinked and only one lead worked.  They gave me a second surgery to put two additional wires on the outside of my heart. Problems again and only one lead works now. I have a different cardiologist now and he said based on my 1 pe...

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Orthostatic Hypotension

I have recently been diagnosed with orthostatic Hypotension aftewr experiencing double vision,dizziness & numbness in extremities. my meds were changed as I had been given a drug which lowers my Blood Pressure & I was already on a Beta Blocker. I continue to have problems even two months after the review. 

I have now found an article where these symptoms were relieved completely by their EP adjusting their PaceMaker Rate Response sensitivity & told to tap their Pacemake...

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New Member

Just had my device fitted after a 2nd ablation and the the age of 58 it was all a bit of a shock. 
I work on the rails in the SE where the electric 25,000 volts 750amps DC is on the deck and signals and safety systems are operated by electro magnets.

Safe to say I don't think I'll be doing that job again !!!!

does anybody have any experience in medical retirement as a result of the device?

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New pacemaker

Hi,

I had a pacemaker fitted on Thursday in Edinburgh. Due to complications with sedation, I had the operation under local anaesthetic. I felt such a hero. For about two hours, I felt great. And then the anaesthetic wore off.

The pain at the side and down my left arm is horrendous. I am not able to lie down and have to sleep sitting up, which is not something I find easy. 
I also from time to time can feel a heartbeat. Sometimes two or three. My surgeon said that I will...

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AV Node Ablation and pacemaker

Hi all ,

Ive just joined the club as i wanted to see if anyone could shed some light on my situation as some of you may have been through it already.

Im 58 and had my aortic valve replaced 3.5 years ago now. Since then i have been in and out of AF. My periods in sinus get shorter and shorter being 2.5 years, 6 months, 4 months and recently 6 weeks. 

Ive had one ablation 5 months ago now. 

I have retired and want to lead an active life running, weight tra...

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New CRT-D

Hi, I have just joined this community. The information on it is very helpful. I am a retired 66 male in the UK. I had a CRT-D installed 9 days ago. Initially the HR was set at 40 but yesterday they reset it to 55 due to being poorly for a week. I suffer from AF and low heart rates and some pauses. The longest pause was 6 seconds which although I wasn't aware of it, seems a scarcely long time. Since the adjustment to 55 yesterday, I had a couple of light headed moments both whilst sitting...

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quarterly remote transmission

This time it was a shorter quarter as I was there Aug. 25,2023 in the  pacemaker clinic for my yearly check up of my pacemaker.   Since it was a shorter time frame was better able to track my A-fib episodes.  Noticed again when i had reactions to my food sensitivites, was the same  time as the A-fib episodes. 

In the comment section .  This time only had 191 atrial high rate episodes detected.  The longest lasted  0;04;16;37 in dura...

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You know you're wired when...

You can take a lickin’ and keep on tickin’.

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