Most Recent Messages

I-STOP-Afib study

FYI - I have no affiliation with this study. Just posting this for those that might want to participate. Just got this in my email today.

Announcement below.

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Help us fight AFib, NOW INTERNATIONALLY AVAILABLE!


Thank you to all of you who wrote to our study team interested in participating outside of North America, we are now available world-wide! Please download the app per t...

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VAT

Is it true that if you have a pacemaker you can be exempt iof VAT on purchases?

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Humming

Good morning, I was wondering can anybody else hear their ICD humming? I can only hear it out of my left ear and  it just has recently started since my implant on July 3rd. Thank you for sharing.

cheryl

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pacemaker

Have a new pacemaker as of last week. I have to admit I'm a bit intimidated and uncomfortable knowing that my heart relies on this tiny machine to function. I was in A-flutter and A-fib. medication no longer worked and that that had worked in the past was too damaging. SO- here I am, new to this world.

I don't know what to expect, what is normal, or abnormal. I have read the book twice and still have no peace of mind.

This type of anxiety is something I have not had b...

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Myeloproliferative Neoplasms/Polycythemia

Hello!

I am wondering if any members have a myeloproliferative neoplasm (MPN) such as polycythemia vera (PV). If so, have your doctors made any connections between hypercoagulability and your heart condition? Did your MPN status change anything about your diagnosis, pacemaker installation or programming?

I have polycythemia vera and was diagnosed with sick sinus syndrome in July 2019. I had a single lead atrial PM installed then. My resting heart rate has been...

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Battery change

Hi all I'm due my first battery replacement 5th of dec 2019 I'm scared as had a bad experience when first fitted!!im a painter and decorator at the moment in a factory which is very dirty so worried about infection!!work want to no how long I will be off !! Any ideas don't think I'm having the leads changed but not 100%!! Any ideas from people who have had this done thanks Carl 

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Cardio band to wear on the chest

Dear All

could someone tell me if a cardio frequency band (the ones that are wearable on the chest)

can be used by a subject with an implanted PM? Could it interfere with the PM?

Thank you in advance for your feedback 

I wish you all a great time. 

G

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Cardio band to wear on the chest

Dear All

could someone tell me if a cardio frequency band (the ones that are wearable on the chest)

can be used by a subject with an implanted PM? Could it interfere with the PM?

Thank you in advance for your feedback 

I wish you all a great time. 

G

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pacemaker for swallow syncope

I'm so thankful to find this forum, 16 days after getting a pacemaker to resolve swallow syncope. I noticed feeling faint while eating/drinking and a 5-second AV block was fortunately captured by the Holter monitor. It is shocking to need a dual lead pacemaker for a perfectly healthy heart. But I am so thankful that it was caught early before I actually started having blackouts and injury.

I'm relieved to hear that still having pain, 2 weeks post-op is not unusual. But is i...

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Anxious

I am so thankful for this forum. I am three weeks post dual chamber pacemaker surgery for third degree av block.  No other heart disease or damage, just this connectivity problem. My issue is that I have general feeling of anxiety and worries around trusting my pacemaker. I was told at my follow up appointment that I am being paced 98%. Can't get past the fact that this is my life now. I just turned 61 and am worried about my future though reading positive comment...

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Magnets in Slep Number Beds

Someone a couple weeks ago asked if magnets in a Sleep Number bed would affect a PM or ICD.  I wrote NO.  Went by our local Seep Number store in Atlanta to find out if I had been completely correct, since I made a couple assumptions for my answer.

Young woman sales rep looked at me & said "You have a PM, right?"  I told her the whole sordid tale about my reasons for asking & she had a surprising knowledge about PM's & mag...

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Next step for third wire

My Ep tried for a third time to add a third wire to my icd. Long story but he could not place it because my vein he had to go through was at a 90 degree angle so he did not succeed. Also tried His pacing but it did not work 

Has anyone had a wire placed surgically? I was told the wire may only last 5 years and is hard to replace. Any other alternatives I should condider or do I live without a third wire?

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Medication reaction

Hi, I’m 62 yr old female, first PM on Sept 12, 2019, for sick sinus syndrome bradycardia-tachycardia. I was initially put on Cardizem 25mg, but dropped pressure too low, so now am on Metropolol xl 25 mg, started on 10/25/19. I take it around 6:30 pm, and by 8:30, I’m exhaunted as I sit and watch tv. The other evening I started having hallucinations as I was sitting watching tv. Last night I almost blacked out when I got up to let the dog out. I took my blood pressure (new por...

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Any others diagnosed with Brugada Syndrome?

It's been 2 years since I've been diagnosed and have received my ICD/Pacemaker. Would like to talk to a few others about the condition. Upkeep, ways to deal with anxiety, compare doctors orders and such. Haven't found any support groups or even other people with it so would be nice to hear from others with the same condition.

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Breast implants

Can I get breast implants with a pacemaker ? 

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I challenge you...

I always make a point of countering the post op pictures in the gallery with pictures of being active, of leading a perfectly normal life. But right now most of them are me so help me out and add yours. Show us what you do for fun, fueled by your pacer. 

p.s. the other pictures are ok too, no need to stop posting them! Not being critical, just encouraging more happy pictures. 

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Overwhelmed

Hello, 

I'm a few days out from having an emergency pacemaker installed.  Woke up the other morning to what the cardiologist is calling a type iii block which caused my heart rate to drop to the 20's.  The whole incident lasted about 4 hours and caused me to blackout.    I'm a health conscious and very fit male in my early forties with no other health issues. I'm still in shock and denial about what happened. Honestly, I feel really dep...

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Blood pressure rise

Got my PM 3 weeks ago. Felt great that day, then shortly after laying down for sleep I started having chest and neck pain. BP has shot up to 186/125. Went to hospital and they found no issues. Follow up with heart doctor, EKG, sonogram, PM checked and all looks fine. Since then blood pressure has been high. A few nights ago 192/86. Dr has increased my BP med and added another. Also started a steroid pack for possible inflammation. BP is still running 130-150's. Anyone experienced similar...

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Car insurance

Hi all after having a pacemaker fitted did your car insurance go up after telling the Dvla thanks Carl 

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His Pacing

Interesting. My EP was going to try  HIS pacing on me but said it would not work because i have both LBBB and RBBB. Never knew RBBB would be a problem 

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You know you're wired when...

You have a maintenance schedule just like your car.

Member Quotes

I am just thankful that I am alive and that even though I have this pacemaker it is not the end of the world.