Most Recent Messages in General Posting

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Drop down menu query

I have contacted this site’s admin with a query. Here is a copy of our exchange:

Hello,

I and many others have a combination CRT and ICD implanted (known as a CRT-D) but we are unable to declare this in our profile. It seems we have to choose one or the other BUT neither is correct!!!

Are you able to add CRT-D to the drop down menu to reflect this need?

Kind regards 

Mapleshaz

 

And their response.....

 

Thanks for the...

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Recent chest pains, Pacemaker since 2009

I am 68 and have had a pacemaker for quite a while.  I don’t find the pacemaker as debilitating as the drugs that often go along with it.  My problem is AFIB.  Basically the pacemaker is there to make sure my pulse rate does not go below 60BPM during an attack. I am on Sotalol to limit my pulse rate.  Too high and I go into AFIB.  I believe that limit and the drugs properties limit my energy level. 

With all the drugs, an aging body and a previous hea...

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Blacked out

Hi 

After having pacemaker now for 9 months and several adjustments, the latest on lowering sensitivity of rate response I suddenly collapsed on Saturday!  Rate response was changed 3 weeks ago and I have been feeling very tired for the last two weeks but was fine at work and  kept up running and felt ok! Then on Saturday just walking suddenly felt very tired and fainted! ECG and bloods were fine when checked in A&E, but the episode reminded me of the time when I coll...

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Drop down menu does not include CRTD

I have now received my first CRTD (more about that later). I tried to update my profile but the drop down menu only allows for either an ICD or a Defibrillator. How can I indicate that I have a combination called a CRTD?

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Did it

Not much of an IT wizz but finally down loaded a photo !!!! November 2016 

Just starting off on the River Awe , a good day a shame they havn't lasted . Flecainde good for some things, exersise tolerence worse than on Bisoprolo. 

Back to see consultant 22nd not sure what else can be done. Still I always try and do what I can.

Off for a paddle tomorrow, an easy one but will be good to get out.

Cheers Jane

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Chest pain post inplant

My PM inplanted 10/6/17. I had some chest pain before the inplant, but they were 10 times worst after the inplant. Have been seeking solution for about a year. Experience chest pain (sometimes a tightness) when walking/exercising. I stop walking for a minute or two and the pain goes away. I walk another 100 yards and the pain returns. I don't have blockages. Started taking Nortriptyline as a treatment for nerves. It seemed to help for some weeks, but the pain has returned. The mystery con...

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Back to 1oo%

Nov. 1 was 2 months post surgery.  How did I spend the day? A 7.75 Mile hike near Sedona,  AZ!! Hoped to share a picture,  but don't see how.  I had no problems,  just normal fatigue.  Hubby was tired like I was. 

I am still tender at the incision site and can't sleep face down,  but it's improving! I was very careful to follow Dr. instructions about limited arm movements  after my nurse at device check told me she recently h...

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Timer?

Hi

Does anyone know why I can feel my pm working every hour on the hour. It feels like two palpitations together. Do they set them on a timer to send info back? I have the Micra one.

Thanks

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magnesium

good morning!

anyone taking magnesium supplements?  ive read it helps heart function. 

thanks

patty

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Questions

I am new to the club. I'm 3 weeks post op with a duel chamber Medtronic PM for SSS. I have many questions and am grateful to have found this group. My first question is sometimes I feel a heavy heart beat or a thump followed by like electronic feeling in PM area followed by fluttering. What is this and is it normal? 

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Bradycardia

Hi There

Firstly, thanks for allowing me to join this group. A little bit about why I ended up finding this club, back in August we had the Irish Heart Foundation visit the office, we all got out blood pressure \pulse checked and mine showed up as 50 ... lady said to go to dr as I explained I suffer with chest pains, tiredness, headache and dizzy spells 

Finally this week I went to the dr who did an ECG and told me to head off to A&E the following day, apparently my heart...

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Wearing your heart on your sleeve :)

Since we have no choice but to have a device, we might have a sense of humor about it :) I wear this sometimes:

https://shirt.woot.com/offers/circuit-ulatory-system?ref=cnt_ctlg_dgn_36

:)

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To all pace maker receipients

 

Be Happy

 

https://www.youtube.com/watch?v=T0FTQm7SPOY

Rodger

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small sharp intermitten pains in heart area

Took horrible fall yesterday flat on my face. Since then I have been experiencing sharp short duration pains in heart area about every 3 to 10 minitues. They are not regular but feel they are getting worse. Just sent print out to Cardiologist using my Latitude and will call him in morning. Not sure if I need to go to ER? Anybody have this type issue. Pacemaker installed this past Feb.

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Acid reflux

I've had my pacemaker for two years and have had terrible acid reflux ever since. I have had a gastroscope and all is clear. I have beén on Nexium for a year and a half and would like to get off of it. My doctors keep saying the two aren't linked but I think it is more than a coincidence. Has anyone else had this problem and have the doctors found an answer other than medication and diet?

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Flutter Sensation

Every evening at 8:25 pm, I experience a fluttering sensation.  Has anyone else experienced this and doe anyone know what the cause is?

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My story..... you are not alone

I am French Canadian 🇨🇦 born in 1952 and I am a retired RGN living in South West England for the last 42 years. I was diagnosed with LBBB in 2013 following a routine pre op ECG for a knee Arthroscopy. The GP told me, “Lots of people have that and it’s not a problem!” So for 3 years, I lived in blissful ignorance. I did have SOB but GP said it was Asthma and prescribed inhalers. Then in Spring 2016 I happened to mention LBBB to a locum. Within 3 hours I had an ECG....

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Pacemakers

I am scheduled for a pacemaker next week. Pulse in the low 50's and lightheadedness, plus a fainting episode which got me a ride to ER in an ambulance. Hoping to eliminate these troubling symptoms and have more energy. I am 71 and like walking, working out and gardening.

 

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New Owner

Hi everyone! I got my PM 5 weeks ago and will go to my cardiologist for a PM checkup for the first time next week. This will be the first time I have spoken with my cardiologist since the procedure as it was performed as an emergency whilst I was on a mini holiday by other doctors. 

My question for all of you, is what kind of questions should I be asking at my appt? It happened so fast, I didn’t have time to think about what was happening. I had an ILR implanted in May t...

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Complete heart block

hello All, 

 

wondering for a complete heart block ....do they recommend single chamber or dual chamber pcemaker. do they recommend pacemaker based of your body frame/heart size/electricity needed/

Thank You all for your help 

 

 

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You know you're wired when...

Microwave ovens make you spark.

Member Quotes

My pacemaker is intact and working great.