Most Recent Messages in General Posting

I-STOP-Afib study

FYI - I have no affiliation with this study. Just posting this for those that might want to participate. Just got this in my email today.

Announcement below.

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Help us fight AFib, NOW INTERNATIONALLY AVAILABLE!


Thank you to all of you who wrote to our study team interested in participating outside of North America, we are now available world-wide! Please download the app per t...

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VAT

Is it true that if you have a pacemaker you can be exempt iof VAT on purchases?

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pacemaker for swallow syncope

I'm so thankful to find this forum, 16 days after getting a pacemaker to resolve swallow syncope. I noticed feeling faint while eating/drinking and a 5-second AV block was fortunately captured by the Holter monitor. It is shocking to need a dual lead pacemaker for a perfectly healthy heart. But I am so thankful that it was caught early before I actually started having blackouts and injury.

I'm relieved to hear that still having pain, 2 weeks post-op is not unusual. But is i...

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Anxious

I am so thankful for this forum. I am three weeks post dual chamber pacemaker surgery for third degree av block.  No other heart disease or damage, just this connectivity problem. My issue is that I have general feeling of anxiety and worries around trusting my pacemaker. I was told at my follow up appointment that I am being paced 98%. Can't get past the fact that this is my life now. I just turned 61 and am worried about my future though reading positive comment...

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Any others diagnosed with Brugada Syndrome?

It's been 2 years since I've been diagnosed and have received my ICD/Pacemaker. Would like to talk to a few others about the condition. Upkeep, ways to deal with anxiety, compare doctors orders and such. Haven't found any support groups or even other people with it so would be nice to hear from others with the same condition.

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I challenge you...

I always make a point of countering the post op pictures in the gallery with pictures of being active, of leading a perfectly normal life. But right now most of them are me so help me out and add yours. Show us what you do for fun, fueled by your pacer. 

p.s. the other pictures are ok too, no need to stop posting them! Not being critical, just encouraging more happy pictures. 

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Car insurance

Hi all after having a pacemaker fitted did your car insurance go up after telling the Dvla thanks Carl 

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Can I be a Driving instructor with a pacemaker

Hi I'm about to get my battery changed and as I am a painter and decorator am thinking of a new career as a driving instructor any body on here doing this with a pacemaker?thanks Carl 

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Anyone has a MEDTRONIC AZURE XT SR MRI SURE SCAN PM?

I am just trying to connect with others who might have the same pacemaker as mine: MEDTRONIC AZURE XT SR MRI SURE SCAN.

Thank you in advance.

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What does it mean

Hi been for my annual checkup and was told my pacemaker was working at 22%, can someone tell me what this means as I don’t understand thanks 

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Disney Wine & Dine races

Before the one race started, they were interviewing runners with stories and one lady said she was on her second pacemaker. Any chance she's here? I was waving hi from my corral :o)

 

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hard area in the front of the underarm?

I am not quite three weeks out from CRT-D implantation.  I wasn't able to take any painkillers except day of surgery, and this one has been a bit more painful than my first device, so I only have been able to raise my left arm well this week.  Noticed a hard lump in the left underarm; I don't think it was there before the surgery.  No pain from it; just an exeedingly mild ache after showering with, of course, warm water.

Has anyone experienced anything like t...

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medicare and pacemakers two

See URL     

https://www.cms.gov/medicare-coverage-database/details/nca-decision-memo.aspx?NCAId=267%20

 

If the pacemaker is for non reversable case it is allowed.  But I have been on sotalol since 1980s.  This is not really reversable bur Menicare considers it to be reversable so no dice.

 

Curiousd

 

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type two block

Is there anyone on this list who has a pacemaker for a type two block?

Curiousd

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Pacemaker for type two block

Medicare does not allow a pacemaker for type two heart blocks ,  Say I bought the pacemaker myself. Almost all cardiologists depend on a medicare practice and will lose their ability to have medicare if they proceed with such a pacemaker, purchased by the patient.

 

How can one get around this problem?

 

Curiousd

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Anyone here had their icd removed?

Im 26 yeara old, I've had my ICD for 20 months now, since having the icd I have had problem after problem, 

1 Month after surgery I got a blood clot in the lung, followed by a heart attack.

4 months post surgery I got another blood clot which blocked most blood flow to my left arm, which is now in constant pain, I can't hold anything longer then 10 seconds or my arm gets very weak and swollen (yes I still have the clot there, doctors say it will never desolve)

F...

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cold or reactions to what ever is in the air

Since having PM implanted end of Aug.   I now either have a cold for the first time in over  10 years or reaction to something in the air.  I do live along the coast in Fl.,where we have the bloomin Red Tide.  Which is a killer if you have breathing  problems.  Which i do not.

   Am now wondering if the PM is causing me to react to what ever is in the air.  Have been taking my allergy supplement now, which lasts 3 hours before the s...

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Blood thinners

Is anyone taking blood thinners. I was recently told by my pacemaker/defibrillator reading said I had an Afib episode. Very upset and disappointed because I have a pacemaker and did not think that could happen. Thoughts? Comments?

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Would anyone like to share their experience who's had an MRI post pacemaker?

I was recently diagnosed with breast cancer and need to get an MRI.  I have a dual chamber pacemaker that's MRI capatible but am still a little nervous.  I have no problems being in the machine.  It's just the thought of all those magnets around me.  Does anyone want to share their experience?  I'm aware that the MRI feature needs to be turned on first.

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Bruising and swelling over site

I had my pm placed in February of this year and all has been going well.  I noticed today that I have bruising and significant swelling over the insertion site.  I have not done any lifting or any activity which would explain this.  I do not have a fever but it is very tender.  Is this cause for concern?

 

Thanks

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