Most Recent Messages in General Posting

New to the club

Hi there, 

I'm Nikky, I'm new to the club. I'm 50 and had my St.Jude dual chamber pacemaker installed 3/18/20. Hope everyone is staying safe out there. 

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CPR ?

After an ablation interupted (severed) the electrical system in my heart, I am now totally dependant on my pacemaker/ICD.  Have been trying to wrap my head around the fact that I'm being kept alive by a machine.

Curious however.......IF the pacemaker unit were to fail and I would pass out....would performing CPR even do anything?  I know the jolt from my ICD wouldn't work given I shared the unit has stopped performing in my scenario.

Meaning, if the heart has to...

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Passing out

Did anyone feel buzzing in their head before passing out?

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Coronavirus

 Does anyone know if we come in the "at risk" group if we are living with left bundle branch blockage and pacemaker. I am 67 and quite fit and healthy. 

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medical alert cards

just wondering what type of cards you guys have as i dont have a card as such just a folded sheet with the details fo the devices on stickers, i see loads of different types of cards on google but cant get one like it. i recently got my icd implanted on monday 3 days ago

any help on where to get a detailed card with my details on it would be much appreciated 

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auto mechanic and pacemaker

Hi everyone, i've been doing some reading up on pacemakers, as my father is having one put in this coming monday. He is an auto mechanic and owns his garage. The doctors have told him he will not be able to work anymore, however that is not in the cards for him and he does not want to do so. 

The pacemaker is being installed because his heart beats way to fast. he has had the maze procedure as well as the ablation procedure. they say he is in afib 24/7 now, and this is his last...

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heart beat monitor advice needed

I have an irregular heart beat at times and 6 yers ago, I purchased a Garmine device to measure my heart rate. It , and another Garmine replacement didn't work, which I attributed to th irregular beat and were returned. Is there anything on the market today that would work with an irregular beat?  I have an ICD due to V TACH .

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Is my husband considered "compromised immune" or "at risk" with Covid 19?

Hi all, you were so helpful last time I had a question, so here's another one for you. Is my husband who has a biotronik dual pacemaker (not difib) and is 50 years old. He had a level 3 blockage (electrical impulses not working) due to having chemotherapy as a 10 year old.

So...is he considered a 'compromised immune system' or 'a high risk' individual in the current covid 19 era.

Thank you, Karen (his wife)

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Sick sinus node

I've got bradycardia sick sinus node and to control it ive had a pacemaker put in, I need to know if im a high risk if i contract coronavirus??

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HIS Bundle Pacing

I would like to know from those that have HIS Bundle Pacing in the U.S. where they had it done. I found one hospital network in eastern Pennsylvania, but none that I am aware of in Northern Ohio where I live. 

I don't want any personal information, just a city and/or hospital name. 

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Icd implant under muscle

I am 28 years old and had to have an ICD put in me. I had the procedure done last Thursday. I am very grateful that my doctor decided to place it under the muscle because of my age and size, however I have been experiencing terrible shoulder pain. I have broken my collar bone several times and was in a car accident so I thought I was used to shoulder pain, but I have never felt pain like this. It starts in my shoulder blade and travels down my arm and into my fingers. The office told me this...

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poor ejection fraction

Hi all....(just checking in as hadn't posted for a while)....any thoughts on poor ejection fraction 30-35% but feeling very good and not too many exercise limitations.My cardiologist (Dr Death I call her) says she cant explain that someone with such poor EJ can do what I do.Surf, hike, ski tour,snowshoe, play bagpipes, work.Low to normal blood pressure, I have a CRT pacemaker.Any thoughts, reccomendations appreciated? chrs Dave

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Coronavirus

Hi all 

I am a teacher aged 42 and our staff have been told to go home if we are on the vulnerable list with an underlying condition. We completed our medical information a couple of months ago. 

Based on a list they have of qualifying conditions, I have been told I am on this and need to go home.
 

I have a pacemaker for malignant vasovagal syncope. I've had recent investigations of continuous ectopic beats, but nothing detected. 

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Pacemaker rejection

Since July of 2018 I've had 3 pacemakers implanted the last was the Micra leedless placed in my heart my problem is that no one wants to look into the reason why I rejected the first 2 had no infection before first pacemaker they did a metal test n it was negative but after that placement my body rejected it like a giant splinter does anyone out there know of any place that wishes to find out the reason why my doctor is letting it lie like a sleeping dog since the one in my heart hasn'...

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Corona virus

Hi I'm 51 had my pacemaker for 11 years left bundle branch blockage I'm trying to find out from my cardiac team if it is safe to continue going to work I work for the MOD in a very busy camp in an air conditioned building with no windows any help would be much appreciated thank you Moira 

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How does one find one?

Most common suggestion here is: "Find the best EP you can.....you only want someone with expertise to lay their hands on you."   So..............how does one go about this? An outfit like TCAI supposedly has a top notch Doc., Andrea Natale.  There is also a bottom notch Doc at that same location named Bailey. Unfortunately, that is who (mis)treated me.  Maybe members here can throw names around of who treated them successfully.

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ST JUDE PACER AND STRANGE VIBRATION IN MY CHEST

I am updateing this post in hopes that I get some feedback on thisx subject.  Regarding this situation, I was recently advised of an incident where one wire lead had come detached and was causing similar sensation as what I have been feeling, yet since the problem was not inside of the pacer, there was absolutely no indication on the pacer reading to reveal the problem.  Of course that leaves medical caregivers to beleive there is no problem when in reality there is...

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Normality

Hi everyone,

I am 26 years old and had a duel chamber pacemaker fitted in January for 3rd degree heart block that was causing intense dizzy spells and light headed ness. 
 

I have been struggling emotionally in the run up to the surgery and had a bit of a break down a few days before the surgery. 
 

Since the surgery I have not been having the same lightheadedness and dizziness so I know the pacemaker must be doing it's job but I constantly...

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Wired 2/2/20

Just got wired 2/2/20.  This is all new to me.

I'm male, 67, 5'10", 185lbs  diagnosed 3 years ago with partial heart block.  Asymtomatic - HR resting 30-34.  new HR 60.  Doctor said at my regular cardio appointment it was time.

1) How do I know if a "lead" is damaged, lose or not working?

2) Exercise - been told to hold off lifting my arm above my head for 4 weeks.  I like to do eliptical 30 mins 5 times a week.  Can...

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Recent travel in the times of Coronavirus

Hi! Has anyone with a pacemaker traveled by air in recent days? If so, what precautions did you take? Are we in the "at risk" category for the coronavirus?

Thanks,

Champak

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You know you're wired when...

Your electric tooth brush interferes with your device.

Member Quotes

I am not planning on letting any of this shorten my life. I am planning on living a long happy battery operated life. You never know maybe it will keep me alive longer. I sure know one thing I would have been dead before starting school without it.