Most Recent Messages in General Posting

Great article on living with serious illness

This article about a young cancer survivor is incredibly insightful and I think offers a lot of great advice for anyone living with health challenges.

"You think of health as binary: You're either sick or well, whole or broken. I think that kind of binary thinking is flawed," Jaouad says. "Most of us live somewhere in the middle. And so not striving for some perfect state of wellness is liberating. And learning to make a home in the wilderness of that in-between...

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What happened and why??

Hey everyone, I'm 28 next month and I've had my pacemaker for 4 years. Earlier I was cooking dinner on the stove. I was stirring Mac-n-cheese with a metal spoon in a metal pan and all of a sudden when holding the spoon it felt like my hand was cramping up. I tried touching it a couple more times before I realized that the spoon was actually shocking me! I thought maybe it was just a quick static shock but it did it a couple more times when I touched it again. It wasn't just o...

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Low Heart Rate

Past problems 
October 2016 – Implantation of Reveal device
Postural hypotension
Paroxysmal run of narrow complex tachycardia, possibly atrial fibrillation – longest episode was only 28 beats
No absolute indication for anticoagulation
August 2017 – Ventricular standstill (16 seconds pause) August 2017 – Implantation of dual chamber Pacemaker 

Hi I'm three and a half years post pacemaker. Recently had a remote pacemaker check...

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PVC's and salt crackers

Last week and today I felt little bit of light headedness and funny beats in my heart. I had a PM to ICD upgrade last month.When I called my doctors office they said its PVC's happening @ 8 per hour and its not denagerous and some people feel it and some dont. I never felt them when I had my PM and at that time the average was 3 per hour.They told me to drink enough water and cut down on coffee/alcohol to 1 beverage per day.They also said eating salty stuff like crackers help too. Just wo...

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Inquiring about pace maker surgery

Hi, I am 17 years old and after having an ablation that didnt work I am informed i would need to get a pacemaker fitted which I am extreemly scared about.I was wondering if anyone could tell me about how it feels after the surgery and if you can feel the pacemaker inside the body? Any advice would be good. Thanks in advance 

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Inquiring about pace maker surgery

Hi, I am 17 years old and after having an ablation that didnt work I am informed i would need to get a pacemaker fitted which I am extreemly scared about.I was wondering if anyone could tell me about how it feels after the surgery and if you can feel the pacemaker inside the body? Any advice would be good. Thanks in advance 

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Pacemaker moved?

I'm 2 weeks post op and my pacemaker seems to have moved! My surgeon told me he put it in the previous cavity (submammary) but now I feel it poking out my side. Is there a chance it will move back? Can I gently massage it back in? I don't really want to go in for another general anaesthesia to move it so was wondering if anyone has had similar experiences and what they did?

thank you in advance!

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Pacemaker movement question

I had my ICD implanted Nov 2020, and am adapting to it quite well. However, when I am lying down, it seems to pivot and ends up right against my collar bone. When I am upright, it sits about 2 1/2" below my collar bone, so it feels like it's not scarred in correctly. I am heavy-chested (G cup), and quite often feel a pull at the top of the PM. Is this something I should be concerned about? Would a breast reduction (with my cardiologist's blessing) help?

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Sinus node nicked

I see a lot of people have had their sinus node nicked during an ablation and now need a Pacemaker. Was that the surgeons mistake or is it just something that happens?

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Fell, should I have my icd checked?

Hello everyone,

I have been doing great, however, today while riding a bike I fell - my tires skidded. My left-side chest, shoulder, and arm hit the ground - luckily the ground was soft. Sounds dramatic, but luckily the only thing that broke was my phone holder - my phone and myself are completely fine. However, I am wondering, because I did hit my left side of the chest, the side that has an icd, should I have my icd checked out?  It's Friday, do you think I can just...

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Miserable

I switched cardiologist because he would only spend 2-3 minutes with me and he cancelled everybodys appointment that day and I made mine a month out. My new cardiologist spent at least 20 minutes with me and he was shocked that I was given an icd without an angiogram prior to surgery, he was not happy when no stress test was given. He stated he probably doesn't think I needed one however he made an appointment for me to have a stress test by the end of this month. Anyways my icd been in m...

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For pacemaker innovation geeks only

New, March 6, 2021. "Reconstitution of native intrinsic conduction in patients with chronic conduction block with His bundle pacing" published in the prestegious HeartRhythm Journal:

<https://www.heartrhythmcasereports.com/article/S2214-0271(21)00051-8/fulltext>

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Melatonin

Does anyone take melotonin to help with sleep while having a pacemaker and taking blood pressure meds....makes my blood pressure low like 87/60 normally it’s 117/75 wondering if this happens to any one else

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His Bundle pacing what is worth?

So you made need to scroll back to my post titled "two devices" to get caught up.  Brief update, my insurance covers only emergency room visits out of state, no consults, appointments anything.  The his bundle pacing sounds like a real long shot as to whether or not it will even help.  My EP who did his fellowship under the top guy at Mayo says he will do the procedure but he has 2 fails out of 3 attempts at the procedure, his partner who has done 11-12 (not sure fail...

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Remote Device check

Does anyone else feel terrible after a remote device check? I had my first remote one this morning and I have felt so exhausted and weak since they did it. My pulse is at 66, Oxygen at 96% and BP is 117/79.

My pulse will go up to 105 if I walk around, but as soon as I sit, it drops to the 60's. Feels like the top left front quadrant of my head is in a fog. Maybe 60 is too low of a pulse set?

I'm 67 and normally very active. Yesterday, Tuesday, I felt great and we hike...

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pacemaker and desktop computer tower

  I have a pacemaker (Aug 2019). 

I am having  a problem with the fan not cooling in my computer tower.  The repair shop said to bring it in to them.  In speaking with a friend yesterday.  She mentioned that she thought the tower might have magnets, in the tower.  Of course that means i should not carry it in.  Is that true?

thanks for your help.

new to pace..

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Two devices?

Has anyone made the switch from one type of device to another and been told they wanted to leave the first device in as a backup?  This seems odd to me, and perhaps a coverup of them not wanting to take the time to extract the first device;  I could be totally wrong and this might be totally logical, maybe y'all can help me out with this one?

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pm device

does anyone else has a monitor you keep at your bedside. and they aytomatic read it no sending report

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anxiety

Had my pacemaker two days ago.  Had a good first day home but today I feel so anxious again.  Anyone else newly paced and can compare notes.   Was not feeling ill before procedure but bought myself an Optimeter and discovered my heart was beating so slow.  Within three weeks I had received wonderful treatment from Royal Bournemouth Hospital and a two lead pacemaker fitted.  Was supposed to have three leads, but after three hours they gave up trying to fit th...

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Sick sinus syndrome

Hello everyone I posted before about how my heart is not fully using my pacemaker and that it only uses 2% I've had it for 5 months now, a week ago my doctor told me that I have sick sinus syndrome I guess my diagnosis with AV block wasn't accurate this is disappointing going through all of that for nothing... any ideas if my pacemaker will help me in this syndrome?

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You know you're wired when...

You have a shocking personality.

Member Quotes

I'm a runner, mountain climber, kayaker, snow skier, bicycler and scuba diver. The only activity among those that I'm not yet cleared to do is scuba diving, and when I am cleared, I'll be limited to diving to 50 feet.