Most Recent Messages in General Posting

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Heart block

New member

Any one been given diagnosis of ideopathic low adenosine heart block (child) ? Apparently it’s rare, don’t know much more than that,  so any help greatly appreciated.  

I’m a parent of a child, soon to be fitted with pacemaker. Curious to hear from other parents, especially in terms of how much restrictions are on them playing in playground and activities. Can children still do dancing, gymnastics, press-ups,  cl...

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Moving?

I am on the heavy side so larger on the top. My pacemaker is on the low side also. When I lean foward or turn over in bed it seems like it all moves and I can really feel it. It feels better when I wear a bra. It feels like it's pulling without it. Like when I turn on my side it feels like it turns on it's side. I hope I'm getting my point across.lol It's only been 2 weeks since I got it. Is this normal? Or is the swelling going down and I am just noticing it. I noticed it yes...

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Dog Pacemakers

Really off the wall:  Are there any members of the Pacemaker Club that are members because their dog has one?  Not really a joke, just curious.

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PACING??

Hi.. Can anyone shed some light on my current symptoms. 

I have got a cardiologist appointment in June but having symptoms most days and June 11th seems so long away!!   I have 2nd degree heart block.. Mobitz type 2. Have had a pacemaker implant since 2007..thie current pacemaker I've had 2.5 years.

I have posted on here as I could feel my heart pausing . Went to the pacemaker clinic.. It was all checked and I was told they allow the heart to pause for a second...

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Pro BNP

I noticed nowhere on this site is there a discussion about Pro BNP NT (Probrain Natriuretic Peptide NT). It's generally related to heart failure. Normal # is 0-124 pg/mL.  Last July, my Mayo Clinic blood draw showed my Pro BNP NT number to be around 3,700 and a more recent blood draw showed it has risen to 4,659 - way high.  Altho the test Mayo performed had this footnote: diagnostic NT-proBNP cutoff of 900 pg/mL has been suggested in adults 50-75 years of
age in the a...

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Fluid around the heart

Hi, I posted about 2 weeks ago and responses were very supportive and informative.  I need help again.

I was diagnosed with CHF November 2015. Possible Myocarditis. I also ave LBBB since 2005.

My EF was 37 in March as per MRI m situation unchanged since last MRI in 2015.

I dont tolerate meds well so May 7 2018 I Had a CRT D done.  Wasnt feeling well so last Friday I had an echo done. Todays results revealed fluid around heart. I was on Lasix occasionally and the la...

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Decision Time!

Hi everyone! I’m brand new to the group. I don’t have a pacer yet, I’m supposed to be making the decision myself. I’m about to call my cardiologist for a referral for a second opinion, I don’t feel like my electrophysiologist has given me much information to make the decision myself. I’m sorry, this will be long :)

Background: I’m 31, and I’ve had heart palpitations for probably 10-12 years. Around 6 years ago, I went to the doctor because...

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Livin Life

Hello all! Haven’t been around much, but I thought all the newbies would want to hear it does get better, and with regular trips to the mechanic life does not end! 

My sparky is coming up on its 5th anniversary this October, and I still say life with is much better than life without.  I have not passed out due to my Neurocardogenic Syncope since I’ve been implanted.  

For all of you under 40 set- I was implanted at 32, and that was after a solid five yea...

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Hi, I am new to this forum....

I'm new to the forum but not new to the subject.

I got my first AICD on April Fools day 2003.

The second one on July 21, 2009

Now I am in the final months before number three. I've been pacing 100% for a very long time.

I usually go through life just like everything is normal, have had these things in my chest for over 15 years. Started out with EF <25, now it is 50-55. My heart is now normal size.

Since 2001 I have been on Coreg 25mg twice a day and A...

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Pain

Hi everyone ! just wondering has anyone still have pain 6mo after having a pacemaker implanted? I have started recently having pain around the pacemaker site, I had gotten to point that I wasn't having hardly any pain. I don't know if I have strained the pacemaker site or what? This just started suddenly. 

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Pacemaker

Just a big thank you to everyone who posted answers to my pacemaker rejection query.  I really appreciate them all and have found great comfort in reading your answers. Once again - thankyou.  

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Pacemaker dependent

Hello all

I am 69 years old & pacemaker dependent with no underlying rhythm. I am 18months from going to London for a romantic river trip with my partner but passing out twice on Blackfriars station directly over the Thames (my partner gave me CPR).I was taken to St Thomas hospital and was recommended for a duel lead Medtronic pacemker - I went on to have an aystole episode in hospital of 12s (Very frightening and not at all like the passing outs) then another heart stop o...

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cozar

has anyone  been administered this medication?  I was just ordered this 25mgm daily, however  after reading about it , I am hesitant. 

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New and Terrified

Hi Everyone,

This is not a club that I was excited to join!!!  I just had a Pacemaker installed nine days ago.  

I has only been to the Cardiologist one time!  He sent me home with a loop monitor and told me to wear it for 2 weeks.  I had told him I would be old enough for Medicare August 1 and wanted to wait until then in case he wanted to do stress test or something...I was thinking about financial costs.  Thus the heart monitor and he sai...

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some hand holding needed

I got my pace maker two weeks ago today, and I read all the stories of people with the REAL problems, and I cannot help them at this juncture as I am still trying to get adjusted to my own new experience.  I exercise without getting s o b and am so grateful....I feel great, etc., but I am beginning to wonder how long I will have this ''elephant' sitting on my chest'.  Does the acute awareness wane as time passes?  

Thank you for your th...

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ICD alarm, what should I do?

hello everyone,

My ICDs alarm just went off, I have Medtronic ICD, and I was getting out of my car when a single monotone alarm went off. It’s after 5pm, should I call the doctor on call or should I go to ED or wait until tomorrow to call the office? Any advice highly appreciated !

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Can I fast

Hello Friends ,
I Have a question, I am a Muslim it is Ramadan and I wish to fast. Does it affect on the work of my pacemaker or on my health? I called my doctor but he is not responding these days

Any idea ?

Thank You

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Pacemaker and apple watch series 3

Hope everyone is well.  I haven’t posted in quite some time.  Guess that means all is ok.  My hubby just bought me the apple watch ⌚️ with the idea that i can call quickly in case of emergency.   But, just tonight reading the info about it, it says that because of the magnet it could interfere with my pace maker.  Which is a st. Judes  two lines forMobitz 2. Any feedback would be do appreciated.  Thanks in advance.

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Dizzy

I had my single chamber pacemaker put in 5/10 due to Sinus Bradycardia. I went for a short walk today and I was fine until I stopped. Then I got very lightheaded and like vertigo feeling. The funny part is when I was walking I felt fine. Only happened whenever I stopped. I go Friday to see my cardiologist for my first check. I am also on Lisinopril 20mg. Does anyone know if I am trying to do to much at first and does this pass? It's like my mind is telling me to go, but my body says other...

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Ceiling fans

Can ceiling fans effect my pacemaker?

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You know you're wired when...

You can shop longer than the Energizer Bunny.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.