Most Recent Messages in Coping

Thanks to all of you!

I just joined this site today. My PM was placed in Nov. 08 and it has hurt like hell every day since. The HD says it will get better. It has not. I searched for PM pain and found this site. Thank God. After reading some posts of others with pain, I know I am not a looney! The site is so sore, it hurts when I breathe! Also, my left shoulder and arm and along the wire in my chest. I am going to try some of the things mentioned here! Just am so thankful that it is not "just me", but also...

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New pacemaker on July 21

Well, my son who is 29 just had his first pacemaker implanted on July 21. He has been doing very well since. He has questions & comments so I hope he will join this group soon.
It was implanted for bradycardia and Mobitz II conduction block.
It has been amazing to see how quickly his symptoms disappeared.
I have a question. How often do most people get "paced"? What percentage of the time? Especially those who have a pacemaker for either bradycardia and/or an AV block or Mobitz...

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finding out for sure in 55 hours

I've been spending the last 5 days freaking out. ended up being sent to the ER at the end of april for shortness of breath, chest pain and just feeling really crappy with super high blood pressure, released being told that I was fine and to follow up with the dr that sent me to the ER, but that's not what was put in my medical record, where they said I needed to follow up with cardio/pulmonary to determine what was going on. I almost didn't follow up but I was still feeling horrid a week later...

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pacemaker failure

My father has been told his pacemaker is failing and he is not a candidate for replacement. He is 91, his pulse is 50, he has SOB and is weak. What are other symptoms I can expect as the end nears? Do pacemakers suddenly stop? I am caring for him in my home.

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One year on

It's now one year to the day since I had my pacemaker implanted. In all that time I haven't had one bit of trouble and almost all of the time I forget that the thing is even there. I get my pacemaker checked in a simple, painless procedure and that's it. My scar healed up very quickly, I had the op in the school summer holidays and I was back at my desk for the new term starting just over two weeks later. I do have a small card to carry but this is a very small price to pay. Good luck to everyon...

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Surgery

I am sorry to read about people having trouble with the implant procedure. I had none until regular doctor told me to start taking the blood pressure medicine. Then it got so bad that the eletromagnetic doctor took me off them immediately and instantly 50% relief and I saws him the next day. I didn't get back on the blood pressure medicine for nearly 4 years after that. OR just in the last few months.... I talked to the doctor all thru my surgery . Maybe I had better explain that my pain t...

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Shold u tell about grandma?

I am 75 going on 76 in a week so I think that u should always be truthful to any member of your family. I have had mine for 4 y ears and the doc says I am good for 6 more. U didn't say how old she is but her life will be much more active than before, at least I kept on working till last October 1st. Past 75. I have a double lead because Doc said I was too active. I still have all my checkups and Doc is happy with my progress, at least my heart rate has improved from 20 beats a minute to...

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Sudden pulsating sensation

Hi, fellow members:
I've got my PM implanted on the right side since 4 and a half years ago. Today I've had the most strange sensation. The muscles around the chest area of the implant, have begun to pulsate at the heart's rythm for a while, stopped and then begun again. This has lasted for some minutes,time to go to the nearest Emergency Room, where I've taken an electrocardiogram, that's been found OK. All the time I've been feeling well, and so I' feeling now,but the thing sounds ver...

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Post ICD Shock Depression

Does anyone else here who has a pacemaker/ICD have a problem of going into a bit of a depression after being shocked by their device?? I go into a bit of a funk for a week or 2 after I have been shocked by my Defib. I really dont know the exact reason why but it definitely is linked to the incident. I want very much to be active and play sports and I am able to for stretches at a time but then I will get an irregular heartbeat and my device shocks me. After that I go into somewhat of a depr...

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Parasympathetic system

This question may be way out there, but here goes. My PM was implanted in April of this year, and it was to correct heart block that was a complication of an ablation to correct WPW / SVT that I have been struggling with.

Long story made longer, I still seem to be struggling from SVT but mainly in the evening when I am "at rest", like sitting on the couch or lying in bed trying to sleep. Some things that I have read talk about vagal stimulation and the parasympathetic nervous syst...

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29 yr old son, professional musician, pacemaker

My son, who is 29 years old, is a professional guitarist, singer, songwriter, & performer since the age of 14. He has developed a triple threat of heart conditions: (1) sinus tachycardia upon the slightest exhertion, (2) bradycardia down into the 20's, and (3) a Mobitz II (or A-V type 2) heart conduction block. He has progressed to a full type 3 full heart block on at least one occasion.

He was hospitalized at the local university teaching hospital in the CCU for 8 days within the la...

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Waking up Similar distressed feeling...

5 months post PM surgery for heart pausing, which caused me to wake up from sleeping very nauseus, lightheaded, vomiting etc. After over a yr of docs saying I had vertigo (inner ear condition) they found out after I passed out I was having 8 to 19 second pauses!
I have recently experienced 7 different "attacks" that seem very familiar to b4 pm, lightheaded, panic feeling, nausea....only after falling asleep briefly or waking up very disoriented. They check pm, only going off 2%, never letti...

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2-4 weeks away

Hello,
I found this site about 2 weeks ago and have logged on just about every day. I can't believe all the helpful people on this site, you are all amazing and I appreciate all your feedback (and I haven't even posted yet!!!).
My father was diagnosed with a LBBB about 4 years ago. I was of course, hyper-sensitive about anything regarding my heart. . .so I decided to have an ECG about 3 years ago. Well, it turns out I also have the LBBB and a cardiomyopothy to go with it. I know I ha...

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Frustrations...

Hello everyone! I am just in the mood for sharing and support. I have been through the ringer with the Department of Transportation for the last three months, and I'm very frustrated. For those of you who don't know my story, I blacked out in January while driving. I had lots of testing, mainly Neuro testing at first. I blacked out again in rather dramatic fashion in February while riding in my boyfriend's car. At this point, the ER reported that I had a seizure to the DOT. This started a...

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how long...

before i can start moving my arm normally again ?
had a new sub-pectoral impant under my right side and as i'm right handed, i'm finding it difficult to do everything with my left.
(had op two weeks ago)

I'm scared of getting a frozen shoulder - Was driving today and it really hurt (although i wasnt moving my arm much)
Had left sided device planted just under the skin last year and it was never as sore as this one.
was moving relatively pain free after about a wee...

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The Long Story

My heart has always pounded since I was a little girl. I was an extremely active child playing anything from house to baseball. I would ride my bike for miles and jump rope for hours. I once even tried to break the Guiness World Record for the most consecutive jumps on a pogo-stick. I jumped continuously for an hour, that is, until it started raining and my mother forced me to come indoors. I wasn't a hyper child, and my energy back then was fueled mostly by sugar and boredom. One thing that was...

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now too sensitive to work

Before my pacemaker I was a little out of breath from time to time and sure the week before the implant I felt like crap but now I feel pretty awful most of the time - I am so breathless that I am quite frightened to sleep some nights and I feel like I have just run 10 km with the most simple exertion... chest pains and constant fluttery feeling in the chest...The other thing that has happened is sensitivity to any stimuli - any stress and high emotion or sound sends me into a spin - someone yel...

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Trumpet player needs help with scar.

Hi:

I seem to have lost your post. I would like to tell you that if you exercise by tapping your finger near or on the scar healing will occur. Tap your index or middle finger lightly for a few minutes 2 or 3 times a day. This helps to regenerate nerve endings. Massage right on the scar and near it, also helps, especially if you use a rich lotion or cream. Check out Dr. Eaton's website, he is a hand surgeon in W. Palm Beach and I used and sometimes still use this percussive ex...

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To Be or not to Be PM'd-Defibulated

Hi all.
I am meeting with my Drs. today to discuss PM and Defibulator as I keep getting rapid A-fib ( over 200 bpm) first two years apart now 2 months apart 4 trips to the hosp overnite and after reading some of the posts I am fairly freaked out ( I just turned 60 ) by all the problems I read about. The other consideration is the cost. I have insurance but that won't cover more than 80%. Can anyone give me an idea of what they were charged ball park figure, also how long were you out of wor...

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information please

Hi I'm Danni while I am not new to having my PM but I don't know much about it, I wonder if you could help? I had it fitted in 2003 due to 12 second pauses I also have factor v leiden and don't know if this can cause problems, all your doctors seem to have given you a good grounding of whats what while mine said i needed one and that was it. should i avoid anything? what problems can arise? i sometimes get a nagging ache around the site is this normal? I still get chest pain and should i be taki...

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You know you're wired when...

You have a 25 year mortgage on your device.

Member Quotes

We are very lucky to have these devices.