Most Recent Messages in General Posting

Post Message!

Intermittent heart block

Hi! I got a pacemaker for exercise induced 2;1 high grade 2nd degree block. I use to mainly pace if my heart rate went over 100bpm. If I was under 100bpm, I wouldn't pace much. Mostly my own heart working. About a year ago, I started having heart block 2;1 outside of exercise. It would start at a heart rate of 80 then 70 then 60  Now all day. So now I pace 100%. Went from pacing 40% to 100% since implant. Which was almost 2.5 years ago. Is this normal for block to go from intermitten...

Read More...

Inherited

Hello,

I have a question... Has anyone either had parents or children who have also had electrical issues with their heart? I had a dual-chamber pacemaker implanted in 2014 at 57 years old for bradycardia / 2nd degree heart block and I'm scheduled to get a CTR-P in 13 days, November 19th. The reason I'm asking is because my daughter who is 43 had heart ablation in 2009 and only recently has been having her heart race while sitting and knitting or watching tv so she just spent 30...

Read More...

27 and bionic!!

Hey everyone I just thought I'd introduce myself. My name is Amanda. I have two toddlers that are 2 and 4. I just had my first pacemaker implanted on November 4th, 2020.

It's a dual chamber Boston scientific. I found out I have a relatively rare condition called cardio inhibitory syncope.

I'm thankful for this community as it helped me cope when I got the news I needed a pacemaker. šŸ’—

Read More...

Heart Function Drop

It's been a while since I last posted. Quick bio: female 63. Never smoked, rarely drink. I have had SOB since before getting my dual-chamber pacemaker (Biotronik) back in 2014. And even after the pacemaer the SOB never really went away. Fast forward to 3 weeks ago on October 13th when after having a cough for well over a year and SOB that has been getting significantly worse I went in to see my cardiologist. He said that my heart function had dropped from 57% last April (18...

Read More...

Waking up at 4am.

Morning team. Last couple of weeks I've been waking early for no reason, I've just started to check the time when I do and it's always 04:01 or 2. 

Wondering if it is something to do with the PM? Any similar experiences.

Thanks, Dan.

Read More...

Information required

Compared to some of the other pacemaker club members I feel I know very little about my heart condition. Both my pacemakers were emergency surgeries and my conversations with surgeons were done at the end of a hospital bed. My notes on leaving hospital told me I had moderate to severe lvsd, RWMA but although I have asked about my EF I haven’t been told yet. I had an Echocardiogram over 2 weeks ago and I am waiting for the results.

I feel very well now but I am still uncertain...

Read More...

Positive ANA test

Hi,

I have congenital complete heart block and have been paced since 1998.  I am 39 years old, on my 3rd pacemaker, and lead a very active, healthy lifestyle.  Last week I was diagnosed with Reynaud's Syndrome, and today I found out that the results of my ANA blood test were positive.  My PCP has referred me to a rheumatologist.  The rheumatologist will be in the same large university health system as my EP and cardiologist.

 Are there any other a...

Read More...

Cupping Therapy

Is cupping therapy ok? I keep getting mixed answers from various people all of which do not have pacemaker conditions.  Please advise. 

Read More...

Pacemaker Manufacturer

Are there Biotronik users in this club, or all Medtronic?

Read More...

All of a sudden high pulse on husbands pacemaker

Hello,  My husband has a pacemaker which was installed in April 2020.  It has been keeping a constant 60 pulse but just recently has a pulse of 106 even at rest.  He does have a flutter and this is not new.   Also, ever since having this pacemaker installed he has been having periodic chest pains.  He just recently had two more stents put in but still has chest pains.  They go away with nitro. Doctor said chest pain should go way in time??  and gave him...

Read More...

Pacemakers

My doctor advises on a Biventricular pacemaker.. I have several questions before I decide. I can't find the answers on-line. Maybe someone can answer.

Can I pick my own Biventricular pacemaker company and model.? If no, why not?

How can I be sure I am getting the latest model? 

 

Read More...

Young People

Hello! I'm Eva and I got my first pacemaker fitted when i was 11, I'm now 22 and have recently had my first replacement surgery. I realised i have never met another person with a pacemaker and I am wondering if there are any other young people on this forum who would like to chat/ exchange stories. Nothing against older people, i'd just love to meet someone around my age who has similar experiences! Bonus points if you live in Scotland :)

Read More...

Multivitamin

I learned today that my issue is magnesium and potassium dips. Seeking recommendations for a multivitamin. Centrum silver is not an option.

Thanks

Read More...

Iā€™m back

Hi šŸ™‹šŸ½‍ā™€ļø everyone... it's been a longgggg time.. I've been doing great šŸ˜Š I had a few issues with my pacemaker but everything is great. Divorced and finally can breathe. Love šŸ’• you guys 

Read More...

heart beat rate

when out walking there i one small incline on route ,ever since rate response was changed heart rate registers way up for one minute on my fit bit ,does anyone else get this 

Read More...

Masks

Which masks are you finding easy to breathe in?

Read More...

Pacemaker recall

I had my pacemaker implanted November of 2017 has there been any recalls on the saint judes pacemaker? 

Read More...

Had a Fall

Had a fall a few weeks ago, seems as though my pacemaker is not working well, been having those black out spells like I had before I got my pacemaker, could it be that I broke a lead or something? Something seems off! 

Read More...

Complete heart block to now having a ventricular escape rhythm

I have a damaged heart resulting from radiation therapy directed on my chest for Non Hodgkin Lymphoma in 1995. In December 2018, I passed out a few times and they discovered a complete heart block because sometimes there was no signal going to my AV node. 

At first I was paced perhaps 70-80% of the time but then over time it was 100% ventricular pacing. However, I have been continually going to the EP to get my PM adjusted so that I can get back to my running/cycling, etc. and...

Read More...

Newbie

Hi.  I just had my PM surgery on Monday.  One of my leads dislodged and He had to go back in and redo it the next day.  I'm so glad that i found this site especially since this is all new to me.  I was having issues of fainting and then one eay my heart rate dropped into the 40's and wouldn't rise but very little ( unless i did something strenuous like vacuuming).  I went to the ER and they ended up sending me home.  But the next day i received a...

Read More...

You know you're wired when...

You take technology to heart.

Member Quotes

I had a pacemaker since 2002 and ever since then my life has been a total blessing.