Most Recent Messages in General Posting

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St. Judes (Abbot) Merlin@Home Remote monitoring

I'm wondering how many people are using the Merlin@Home Remote Monitor with the Broadband kit? I cannot use either the wired option or the cell option, so please don't tell me to go that route.

In the past week, I've been around in a couple of circles with their tech support, because, as seems to be the problem, the monitor, with the wireless transmitter, was "too far" from the wireless access point (both are TP-link units), leading to connectivity issues. I estima...

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welding with a pacemaker?

Is there anything stopping me from welding, 

Wire feed  ? 

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word

There is no ''best word'' as there is but two options .

"better word"  is more correct ..    

Many words (details) are better yet . But , I think ''recipient'' is better than "patient" , if we must opt for one word .. 

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Samsung Gear/Smart Watches

Hi All!

Hope everyone is well! :)

Just a quick one, does anyone use any sort of smart watch? Ive started using a Samsung Gear 2 - had it since friday, however no matter which wrist I put it on I seem to get pain down my arm. Has anyone experienced anything like this?

 

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Dressing

I am 3 days post PM placement. I am removing the dressing tomorrow. I still have a lot of bruising and soreness. I know I have staples, so I plan on leaving it open to air. Anyone else have a lot of underarm bruising? No signs of infection. Any tips on showering.  Denise 

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Thanks

Hi all

am currently sat in hospital after being referred by gp on Friday. 

Had some dizzy spells and breathlessness over the last 6 weeks and now seems I have a similar resting heart beat to Mo Farah (38-40) with it dropping into the 20's whilst asleep .

got the news yesterday that will need a pacer so thanks to all contributors to this site as the info and shared experiences are invaluable. 

My fitting is Tuesday or Thursday so have had time to dige...

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EMF ;Electro Magnetic Field' Portable Instruments

Has anyone bought any of these carry with you devices? Are they accurate? Worth a hoot?

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new recipient

I just got my pacemaker implanted Thursday March 9th.  Is it normal for the pacemaker to make you jump with each beat?  Should I just lay down for a while?  There is no information on this from the pacemaker book, or the doc's post surgery instructions, and of course his office is closed for the weekend...!

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New Member

Hello all. I'm a soon to be thirty year old librarian whose recently discovered this wonderful site. I was born with neonatal lupus that left me with a third degree heart block. My first implant was when I was maybe one year old and I'm now on implant number four. My dearest hope is that they figure out leadless pacemakers before my current set wears out!

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Sick sinus syndrome - any advice appreciated

I had a single lead pacemaker implanted 6 months ago for Sick Sinus syndrome.  24 hr trace showed heart rate dropped to 35 and rarely went over 105.

Six months on and as soon as my heart rate goes below 60 the pacemaker kicks in, but I still have periods of feeling very dizzy, short of breath, extremely tired and unwell.  I find it very hard when I try to exercise again but on a normal day, walking about my heart rate is usually in 80-90 range and when I walk the dog...

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DVLA Medical Declaration Form

Am I right in presuming that on question 4 of the medical declaration when it asks the date the device was implanted that this is the date of the last box change for those who are applying for their first driving licence?  It would seem irrelevant to enter any prior devices for DVLA purposes.  However, when applying for insurance depending on providers they may need date for first implant.

Thanks

 

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Newbie here!

Hello all!  I am set to have my PM put in on 03/13.  I'm feeling anxious, nervous, scared, excited, prepared....everything all at the same time.   I am only 35 and can't seem to digest that it's even possible to need this "at my age' but I know that age don't mean a thing! 

Recently diagnosed with Bradycardia with an average rate of 49.  Been experiencing pre-syncope, lightheaded, dizziness, extreme fatigue for a few years and just recen...

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Your Latest Poll

CHoices - Patient; Recipient.

What's wrong w/ "Host"?  we've been using it for years in here.  Sounds perfectly good & appropriate to me.

"Patient" sounds too short term & negative - especially after I've had the device for 14 years.  Also sounds a bit like the device isn't welcome.  Mine is a welcome guest that performs a useful function for me.  A much better description.

"Recipient"?  Did...

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Everything is great

hello!!!!!  i haven't been on here in awhile.. i been doing great. married now.. the only thing i still be sore its been a year and 3 months.. i hab=ve really bad head pains don't know why only on the left side. i had 3 ct scans everything was good. blood work was fine. anybody ever had this type of head pain?? i know it has nothing to do with the pacemaker.

thanks

Mrs.Cryer

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That was never ten years !!!....

So, exactly to the day,..ten years ago I was in Glenfield Hospital Leicester UK.

The World Class Surgeon..Richard Firmin cut down my sternum and delved into my heart to provide me with a new Aortic Valve.

Twelve weeks later I ran seven miles to raise £1212 for the Glenfield support charity...

Six months later I ran my first Half Marathon in Nottingham...2hrs 12 mins

I've had ten years of running up to my best of 50 kilometers in 24 hours

This is not a b...

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Congestive Heart Failure Question

Hi all,

I've had my dual lead pacer for nearly 3 years, and all has been great. It looks very likely that I now have congestive heart failure.  My cardiologist retired a few months ago, so I am waiting for an appt. with a new doc to have a complete work-up.  Last week an x-ray showed that my heart is enlarged.  I have many of the symptoms of CHF.  Pretty sure this will be my new reality.

I'd appreciate any advice you have to offer.  Thanks!

K...

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New recipient

I'm kinda feeling lost, just received my pm Friday morning. From reading up on all this pm is kinda making me feel better, still have concerns, #family#life#hobbies. 

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Pacemaker adjustments

Since the Heart Hospital near my home closed last months, docs have scatteted all over.

The initial cardiologist had me feeling pretty bad.  When i saw the 1st EP he made adjustments and i felt better.  A month later i saw the factory rep and she said she wished the EP doc would have called her - adjustments could have been made.  Go to 2nd EP (where my PM monitoring was being moved to), saw rep first who made no changes, saw EP doc who recommended ablation but do not kno...

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watchman procedure veterans??????

Don;t personally know anyone with this device. I am going for 3rd ablation and the watchman procedure march 15 and 16th.  I have had 2 ablations and several cardioversions.  Had 2nd ablation Dec 30th. In Feb,   passed out in parking garage after visit to general cardiologist .. (lucky was next door to an ER)..  Long story, but after 10 days. with no viable results....received pacemaker and went home in rhythmn..... My heart has 3 mon.healing from 2nd ab...

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Another Newb with a story...

Hi. I'm 47, and had a Pacer put in at the end of December from Bradychardia (Which I'm pretty sure I've had for at least 20 years). Symptoms that led me to seeing a Cardiologist were light headed/dizzy, fatigue, muscle chest pains and slow heart rate. I did a stress test and took 13 minutes to achieve 150 rate and sleeping rate was low 30's. So, the Pacer was put in (Main setting not to drop below 60). It's been a bit of a roller coaster ride as they've had t...

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You know you're wired when...

You have the perfect reason to show off your chest.

Member Quotes

The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.