Most Recent Messages in General Posting

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My annaul check in!

Hi everyone, I rarely get in here nowadays, I sort of forget I have a pm until I get my letter to go for my annual checkup, which is next month. Well, what a year it has been, I cannot believe it is 7 years since this quivering wreck of a woman found this site and poured her heart out, terrified of what life had to offer. Well...... when I hit 60 the kids took me on a road trip to US and Canada, it was awesome. I've had a busy year this year, started a flower business, had a grandson, my husb...

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Merlin EX1150 alarms

I recently got my merlin wireless transmitter. It randomly alarms during the night. Someone told me it could be sleep apnea? I didn't think this machine monitors that??

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Swelling

For everyone who's had a subpectoral pacemaker implant, how long did it take for the swelling to go away? I've seen some progress in only a week post implant but I assume there will probably be some residual swelling for maybe a month? Also, device probably settles in a tad deeper over time?

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Help!

Hi there, I'm a 40 yr old female and have severe bradycardia. My resting pulse is 38bpm and it drops to 31 at night. My rhythm is normal. I'm knackered all the time (and have no reason to be... I work part time, no kids, lovely life....). I've always had a slow pulse but it seems to be getting lower. I'm fit, but no athlete! My doctor has suggested a pacemaker, she thinks it will help my symptoms. Anybody else had a similar experience they are willing to share?... Thank you in advance

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New name for heart block?

Hi all, am wondering if any of you have heard the name Bifasicular Block instead of complete heart block? Saw my EP and this is what he wrote on my paperwork along with SSS/sinus Brady and Tachycardia Brady. Wondering if he is just using these terms to get my insurance company to pay for tests he has ordered. My diagnosis has always been 3 rd degree heart block or complete heart block. PS? I feel fine..😀😀

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Strange sensations in Stomach

Hi, I'm just over 4 weeks post op and feeling great,back to workand, although I've had to have two lots of voltage adjustments, in the main alls hunky dory!
However,occasionally I get these very strange flutters in my stomach - its almost like a nervous stomach and I can feel my heart beating fast (I do have Inappropriate Sinus Tachycardia too)Its definetley not anxiety, but its the same as that feeling you get if your'eon a rollercoaster or a fast ride, like butterflies in the stomach.

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scared and nervouse

Hi im lisa i am scared i have sss i put off getting my pace maker till the 23rd of this month can yall answer what does it look like through your skin and does this hurt stuff like that thanks losa

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NEED PROCEDURE WHAT DOES THIS MEAN

Hello everyone can anyone please tell me what this means this what is what they are doing on May 5th way its written below

EPS / SVT ABLATION / +OR - PPM IMPLANT

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planning a trip

hi i have had a pacemaker since birth and iv done everything iv wanted to for the past 28 years of mt life but iam planning a trip away in a few months and what to try scuba diving doctors said its ok but only to a certain deprh wondering if anyone has done this with a pacemaker and what and if it had an effect on them afterwards because id rather not if is going to effect my health and ruin my trip. thankyou

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Bumpy Roads

Hello. I'm new to the website and so glad I found it. I wish doctor's would address the emotional side as well as the medical issues. I have a question. While driving over bumpy roads my pacemaker goes into high gear and my heart rate goes up. Does anyone else have this happen to them? Thanks.

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5 years strong!!!

Today marks my 5 year pacemaker anniversary! She sure does know how to make my heart go pitter patter! Battery life is still amazing, so I'm hoping the battery will last another 3-5 years! :)

Hope everyone else's pacemaker is treating them this great!!!

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IT HAS A NAME!

Thank you to everyone (Angry Sparrow, Grateful Heart, Ellen, Donr, PJinSC, Sunny; hope I didn't forget anyone) who helped me with my recent problem of getting jolted by my PM even though I don't have a defibrillator!

Some of you suggested a diagnosis but I actually have a name for it: DIAPHRAGMATIC STIMULATION. As you thought, it is, indeed, a lead touching the diaphragm. There is no need to worry about it occurring while sitting up, just while horizontal. It is happening to me now...

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Things to deal with

Did anyone experience a cough after the pm was inserted? Also how about a tightness in the throat and a feeling of discomfort upon taking a deep breath? Just had mine inserted 10 days ago. Am a very active person and this is somewhat bothersome.

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Accelerometer v Minute ventilation Rate Response S

rdman in a recent post touches on this subject and I don't have the background knowledge to add anything useful to golden_ snitch's comments but I do have a great interest in the choice of Pacemaker for active people

- I am very active as a runner and cyclist and currently have a Medtronic Advisa

- because I am fed up with having to tap the PM / stand on the pedals etc when cycling because of the limitations of the Medtronic accelerometer , I am thinking of switching t...

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Update to 2013-09-15 Post

(To further clarify my 2113-09-15 post, the RF ablation for the intermittent atrial flutter that was performed in 2009 also resulted in an apparent over-burn 1st degree AV Block.)

Subsequent to my 2013-09-15 post, one year later, I again mentioned the Boston Scientific pacemaker (BS) with Minute Ventilator (MV) sensor to my E/P. Since he had poo-pooed it in 2013, I was very surprised when he now enthusiastically endorsed the MV sensor feature for my active life and agreed to schedul...

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Universal Studios - Don't Ask, Don't Tell

If you go to Universal Studios and desire to ride ANY rides, do not let them know that you have a pacemaker. I took my children there (Universal Studios in Orlando, Florida) last week for spring break and they were banned from ALL rides when the park discovered they both had pacemakers. I hope sharing this helps someone else, it was devastating to my children who had looked forward to riding the rides at Harry Potter World for months. Ironically, at Disney in Florida we have requested and receiv...

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Heart Block

I have been with a St. Jude 2210, 2 lead PM since 2012. I had quintuple CABG in 2009. I have always been prompt with my Cardio visits/appts. Everything is good, I guess. My general question is:

I had a PM installed due to "heart block" (signal going from top to bottom/ atrium to ventricle) Is it possible the the scaring of the quintuple CABG caused the heart block? I mean, scar tissue would inhibit or even interrupt the electrical signals of the heart? I have been reading up on th...

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showering/bathing with a pacemaker

Hi again I'm posting on behalf of my wife who is a week and 2 days into having her pacemaker and we were both wondering what is the best way to have her to shampoo her hair without getting her incesion wet (this question is for any women in the group who has a pacemaker)

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need some postive feedback please

Hi Everyone,
I am having a av/pacemaker surgery on May 5th..I am very scared I have already had a 3 1/2 hour failed ablation. I came on this site for support but after reading how everyone seems to be having problems one way or another makes me even more scared. I hope everyone here get their problems take care of so you can go on to live a active life. I am really having second thoughts now.

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Replaced lead

All went well with my pm revision, they untangled it and moved it over a bit and sewed it securely in place, on testing the lead it had 2 years life left so a new lead was put in and I now have up to 8 years before I need a battery change. I am so pleased with the care I got from the time I got to the ward to the time I left, everyone was so kind and caring. I told them about my bad experience last time so they took extra care and gave me extra sedation so it was like others have said, it was...

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You know you're wired when...

You’re a battery-operated lover.

Member Quotes

Since I got my pacemaker, I don't pass out anymore! That's a blessing in itself.