Most Recent Messages in Success Stories

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Success Stories? CRT, Biventricular Pacing, LBB Pacing

Hi friends. I'd like to hear from some of you that have lived with CRT pacers for significant time and have good outcomes to report. I've heard plenty about the poor symptoms people have to begin with, but where are the success stories? Did your symptoms resolve? Did you have subsequent echocardiograms that showed beautiful, wonderfully remodeled hearts? Are CRT devices ever turned off after a heart recovers, or are the imbalanced conduction issues always permanent?

More to my o...

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PM & Ablation

I have a two lead pacemaker and am getting an ablation for palpations.  Does anyone know if this will stop my palpations and how successful is it in stopping the afib?

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A bit more to tell you.

Following on from my post 1965/2023 which I posted a few days back now.  
I explained that I've had a pacemaker from the age of 8.  Nearly 67 now😱  

What I also want to let you know, my granddaughter Moneè also has a pacemaker. Unlike myself, Moneè did not present at birth with heart block. But at the age of 3 she was rushed to hospital with influenza A. To the shock of the doctor examining her Moneè's pulse was only 40 beats per min...

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1965/2023

Tried to post a quick msg last night. Not sure what happened but it just disappeared.

 

Anyhow, my last post was in 2018.  I won't go into my story again but just wanted to let you know I've just clocked up 58 years of being paced.  I was the tender age of 8.  I'm nearly 67 this year and still working full time. 

Not sure how many replacements I've had but let me tell you there has been quite a few.

I am the proud mother of...

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Here's my story

Some responders to my earlier post about leg pain urged me to tell my whole story. 

I was a fairly healthy 60+ year old with Sjogren’s Syndrome, not bad enough to require medication, just keep water handy at all times for dry mouth.  I got Covid in April 2021 after being vaxed, luckily a mild case.  In late summer 2021, I started having an increase in shortness of breath incidents like when climbing stairs or carrying boxes.  I dithered over whether it was seri...

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Alcohol, septal ablation

Morning you wonderful people out there,,,,,,, it's been just over a month of having my septal ablation and well what can I say????? It's great no chest pain, no out of breath just walking up one flight of stairs, I have more energy, I sleep better, I even think that my ankles are not as swollen, to be honest guy I feel completely brand new and 20 years younger if anyone out there has got HOCM please talk to your doctor to see if it is possible if it's an option you won't be di...

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All is well

20 years ago I was told that I had something called in AV block. About 5 weeks ago I was told that actually, this thing that I've had all this time isn't really understood, and the fact I had missing beats in the ventricle meant that it's not just my vagus nerve being overly active at rest. At the time, after having been told to "wait and see" and to come back if I started to faint on and off for decades, I was somewhat taken aback by the news that now was the time...

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My pacemaker saved my life

Hi everyone,

I'm brand new to the pacemaker club and have absolutely loved reading everyone's stories on here! I'm still trying to process everything that happened, but your stories have helped incredibly.

I'm currently in my third year of residency to become an emergency medicine doctor, and long story short, I want into work one day and left 3 days later with my pacemaker. I have no known medical problems or family history of heart issues/sudden death. I was comi...

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A life of pacemakers since 3 years old. Now I am 44 !!

Hiya, I just randomly found this site and thought I would get in touch with similar people in the same boat.

I am Nik, I have a rare heart condition which is inherited. Both parents are fine but brother died aged 2 and sister has the same. It's a gene on my mums side coupled with a gene on my dad's side. Parents fine, but combine these genes makes me !!! The chances of my parents getting together with the rare gene are a million to 1.

But here I am. I have had pacemakers s...

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Just checking in ! CCM & ICD implanted patient ! Feeling great !

Hi All,

Just checking in! I had previous posts regarding being implanted by a revolutionary new device called a CCM (Cardiac Contractility Modulator by Impulse Dynamics, FDA approved in 2020) and also an Abbot ICD one year prior. I am a machine, lol ! I am fairly young (40s) and I feel better overall. I feel as if my genetic heart condition (LMNA Cardiomyopathy) is at least getting better. The overall effect has been amazing. Did well on my last stress test. The device makers, my d...

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Just checking in.

I first found this club in 2005. I had just received my first pacer for VVS. and desperately needed support. After a couple of years, I did not come back on until I needed mine changed in 2015. So I needed support again. Everyone here was always super nice and helpful. I have a friend dealing with some problems and so I told her to join in. I know she will get her questions answered. This reminded me of how much this site meant to me and so. I am back and willing to help if I can. My problem...

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micra pacemaker

will have micra installed this week--anyone with any suggestions/problems/

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We made it

We made it to Dublin today to meet our second great grand baby.  It was a struggle for Michael to travel after spending the week in hospital but he wouldn’t have had it any other way.  She is absolutely beautiful and she bonded very quickly with her great grandfather!  I tried posting some pics but made a real mess of it using my mobile so will try again tomorrow.  Am just too exhausted but absolutely at peace now xx

 

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My New Pacemaker

Nearly three weeks ago I had a two chamber pacemaker fitted at our local hospital, Eastbourne District General. The treatment I recieved was exemplary, I was admitted at eight in the morning and discharged at 1700 hours. The operation was painless and appeared to be straightforward, the staff were all amazing and very efficient, the experience good, I have to admit its not something I would want on a regular basis but the whole situation was handled beutifully by the hosptal and medical staff...

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Just had my second pacemaker put in, and I feel even better than before

Hello and I thought I would update.  My first pacemaker was put in January of 2014 for Sick Sinus Syndrome.  I immediately felt better.  I am 66 now, still working and my second pacemaker was put in last month.  There was some type of perceived problem with the lead in the left ventricle.  My surgery was four hours and there were no problems.  The catheters and the IVs were much more bothersome than the surgery itself.  I went back to work 7 days later....

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FG Update

Hello all!

Well its been 10 days! My implant site is much less tender and swollen and there is no apparent infection. Hoorayyy!

And yes I feel better as I am more alert during the day, less exhausted in the evenings and don't have to sleep as much. No chest pain or shortness of breath. I can walk but they said I cannot drive for 2 whole weeks and no vigorous exercise for 6-8 weeks. 

Thanks, FG

 

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Success Story

Hello everyone, Gemita’s husband Michael here.  I have been a member of this Club since 2018 but have not posted before.  Just wanted to come along with my own pacemaker Success Story.  I am 84 so perhaps I should be slowing down but my nature is always to push myself to do more, to try out something new, since I have been active all my life. 

Before getting my pacemaker, I experienced a number of syncope episodes without warning.  These s...

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Success story

Hi. Thought I would also add my success story. My resting heart rate always sat around 65. I am in good health, I take no medication. Active. We still ride a motorcycle. Nov. 16 th of 2022, my resting heart rate started dropping, about 3 bpm. Every day. It showed up on my Fitbit.  On Nov. 25, I phoned our health link  as my heart rate had dropped 38 bpm and talked to the RN, she told me to go to emergency. It was just a whirl wind after that. I was sent to CCU,  where my h...

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Success stories

Hello , got wired this morning.It went so smoothly that I was amazed .Surgery lasted 47 minutes , no pain at all.When I came in my pulse was jumping from around 48 to 28 .Humming along at a smooth 60 .So happy 😃 

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My success story

(reposted)

I'm congenital and was diagnosed in 1970, so before they routinely paced kids. That meant I grew up not allowed to do any sports and in gym class I was mostly stuck on the sidelines keeping score. 

When I got my first pacer and was cleared for exercise, I stopped on the way home and bought a tennis racket and roller blades, and joined a gym. Suddenly I wasn't tired and dizzy all the time. Instead, I was full of energy. 

Before the pacer I was tol...

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You know you're wired when...

You make store alarms beep.

Member Quotes

I wasn't really self-conscious about it. I didn't even know I had one until around six or seven years old. I just thought I had a rock in my side.