My success story
I'm congenital and was diagnosed in 1970, so before they routinely paced kids. That meant I grew up not allowed to do any sports and in gym class I was mostly stuck on the sidelines keeping score.
When I got my first pacer and was cleared for exercise, I stopped on the way home and bought a tennis racket and roller blades, and joined a gym. Suddenly I wasn't tired and dizzy all the time. Instead, I was full of energy.
Before the pacer I was told not to get pregnant. With it, it was safe and I had two children.
I worked out regularly those first years but was always afraid to push it. Too many years of restrictions so there was a loud voice in my head saying I can't do that. 12 years ago, a friend convinced me to try Crossfit with her. I went into it expecting to do the 4 week intro with her and quit because it would be too much. For the first time in my life I had coaches that encouraged me to push my limits instead of saying maybe you shouldn't do that. I fell in love with barbells. I switched to Orangetheory last year after a couple of orthopedic issues. Oh how I miss the barbells, but my shoulders don't hate me anymore.
In 2019 I'd had my pacer 20 years and wanted to do something new and hard to celebrate and decided on a 5k. In hindsight it's silly that I had been doing CF for several years at that point but didn't think I could run 3 miles. I made my daughter go with me so I wasn't doing it alone. She placed in her age group and fell in love. On the way home she asked how soon we could do another 5k. Then she wanted to try a 10k. Then she thought a half marathon was a great idea. THEN she convinced me to do a challenge weekend at Disney- 5k, 10k, and half over three days in one weekend. We've done two of those and completed our 8th half marathon last weekend.
My other kid is a park ranger in summer, lift foreman in winter, so most visits with her are either skiing or checking out the latest hike she picked out. We're doing a little roadtrip in June to hit two NP we haven't visited yet.
Something changed in my head after that first race. Instead of being afraid to push it, pushing it became my mission. I also tried ziplining that year. I only went because the kids wanted to go and I am afraid of heights so expected to hate it. Turns out it's a blast. So then something else changed in my head, how many other things I thought might be scary were actually fun?? I tried bigger and faster zips. I learned treetop obstacle courses and roller coasters are fun. I did a few mud runs. I have a collection of pictures of myself in front of cardiac warning signs. My ep fully supports me, btw, he loves that I'm so active.
If I'd been born the same year as my mom, before pacing was common, I would not have seen my 30th birthday. As a kid, I was told I would not have children because my heart wasn't strong enough. They were wrong. I feel blessed to live in an age where technology gives me a full, healthy life. No one looks at me and sees a heart patient. The double takes I often get when I say I'm paced never stop amusing me.
You know you're wired when...
You have an excuse for gaining an extra ounce or two.
Without this little machine, we would not be here.