A life of pacemakers since 3 years old. Now I am 44 !!
Hiya, I just randomly found this site and thought I would get in touch with similar people in the same boat.
I am Nik, I have a rare heart condition which is inherited. Both parents are fine but brother died aged 2 and sister has the same. It's a gene on my mums side coupled with a gene on my dad's side. Parents fine, but combine these genes makes me !!! The chances of my parents getting together with the rare gene are a million to 1.
But here I am. I have had pacemakers since I was 3, and treated at the Royal Brompton in London. Shout out to them, as they are awesome!
I have played tennis and squash for the County as a kid despite being 100% reliant on the devices. It has been a bit tough at times, but I am competitive, and never let it stop me.
Now, I am 44 years old. I have kids now too. Loving life.
Just wanting to say hello and stuff and would love to meet others in similar position.
I am happy and healthy. And never really let pacemakers or this rare condition stop my rock and roll lifestyle.
I was a TV presenter for quiz channels on sky for a while and now I am a photographer and artist.
Please to meet ya xxx love nicola xxx
You know you're wired when...
You have a dymo-powered bike.
I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.