Most Recent Messages in General Posting

Post Message!

There is a cure for A-Fib.

From the Boston A-Fib Symposium, January 11-13, 2007.
Here is an excerpt from the conference.
New research and medical developments in A-Fib, featured a live demo of a Cryo balloon catheter ablation at Massachusetts General. Cryo ablation seems to be significantly safer for patients than standard RF ablation. The Cryo balloon catheter may become a major improvement in the treatment of A-Fib. It has already been approved in Europe, with close to 100% success rate in isolating the PVs...

Read More...

New Medicine

I have been on 5mg of pindolol but kept getting severe muscle cramps. Yesterday the doc switched me to toprol xl. I was wondering if anyone has experience with toprol xl?

Thanks, boatman

Read More...

shellshocked!

hi,

I am a very recent recipient of my pacemaker- admitted suddenly into hospital 3 weeks ago, and had it fitted 2 weeks ago. I am just coming to terms with my implant, healing well and phasing myself back to work. I am considered fairly young to have this procedure (49), consider myself fit and active, and want to get back to "normal" asap -that is get to a point where I am not defining myself soley by the fact that I am a pacemaker user. I am interested in other people's experience...

Read More...

seat belts

The recent poll made me wonder if everyone knows you can "climb thru" the seatbelt and have it only around your waist. This is legal. It would be very dangerous for me to use it in the standard fashion, as it passes very close to my prominently bulging pm.

Read More...

Anemic now!

I posted after my EP said my symptoms were not because of my PM. My PCP ordered bloodwork and it turns out that I am pretty seriously anemic. My levels are very low and she says that would cause my symptoms. I am now on iron supplements and will retest in three months. Has anyone else gone on the low fat, low cholesterol (eat nothing but chicken) diet only to turn up anemic? Well, at least I know my EP isn't clueless!
Michelle

Read More...

Hello!

Hello everyone! I'm new to the site, but have been reading the posts for over a year. I'm looking forward to communicating with you all! This site has been a great source of information and encouragement for me. I want to see if I can post this before I go into "my" story. I'm having a terrible time posting anything! Have a great day! Bambi

Read More...

Disneyworld with a Pacemaker

My now 15 year old son had a Medtronic EnPulse E2 DR Series Pacemaker implanted in December, 2005, to compensate for a Second Degree Heart Block. He is about to go to DIsneyworld with the local high school Band/Orchestra/Choir trip. I have my concerns even though his health and checkups have been great since that time. Does anyone have any suggestions/information either pro or con for activities he will encounter in the various Disney parks?
This is my first posting on what appears to be...

Read More...

7 Days and Counting

I was shocked yesterday to discover where all my energy went. My handy little St. Jude Identity, which has served me well for 3 years, one month and 2 days, reached battery life on March 8, the very day I became a zombie. I'm now in battery saving mode, which apparently means that if I don't have to walk more than a few feet and take really slow deep breaths (hibernate maybe?), I will last until Tuesday morning when I get a new St. Jude. Where oh where is the Energizer Bunny when I need him?...

Read More...

Website Feedback

Hi Blake,

It's been a few days since I last logged on and just saw the new website format today. So I am trying to get acquainted with it.

If I may I would like to share some feedback. (I sent similar feedback to the webmaster address under the contact info, so I apologize for redundancy here).

I think the site looks nice and professional. However, I am already finding it frustrating at best to use. I think it's too complicated and cluttered. There are also some...

Read More...

New member, new pacer

Hello to all! I recently had a pacer implant 2/26/2007 and am happy to say that I am on the mend w/o any complications thus far. I had experienced "episodes" that would often involve seizure like activity. One recent episode was witnessed by my son which
scared the living daylights out of him. I had recently changed PCP and mentioned this to him upon a follow up for a back injury. He quickly made referrals to an EP and a neurophysiologist after the results of a Holter. One test led to...

Read More...

ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.

Read More...

Getting used to it!!

Hi Blake,
Thanks for the new website.You did a great job.I was a bit confused at first but now I have worked it all out!
I love all the "youre wired when" jokes.
Regards from Kay(rewiredaussiegirl)

Read More...

Help, I need input!

While on Chemo, I was put on Amiodarone for Atrial Fib. After chemo I wanted to get off of this nasty drug. Since then I have been on Propafanone, Flecanide, Tikosyn and 2 ablations, I am at the point of either another ablation (if I have the courage) or a pacemaker with AVNode ablation. The rock and roll effect of the AF has decreased quite a lot, so I am more comfortable, but the energy level and stamina is crappy. I would like to hear from anyone with a pacemaker or someone with similiar...

Read More...

My Lump

Hi, my name is Paul and I live in Austin, Tx. I just received my device 4 weeks ago (st. jude #365) and its been very difficult. I found this site and viewed some postings and see that I am far from being alone! My device moves when I lift my arm just like the other member was saying....phew glad to hear that. I must go find a job now, although I get tired so easy I am scared. I am glad that this site is here and I wish fellow members a hello and smile. Thanks for allowing me your time. Paul

Read More...

New, improved website!

Hi Everyone, WOW - this new website is fabulous but I am having a heck of a time using it. I feel very awkward, most likely because I could almost navigate the old site with my eyes closed (exaggeration). It will take a little time to get accustomed to the changes but the site looks very professional and is extremely well done. Great job, Blake!
Sharon

Read More...

New Website

Hey

To post a message, click on forum and scroll up to post a message. (for those who did not notice it yet) The new format looks nice Blake.

Millie

Read More...

You know you're wired when...

Your signature looks like an EKG.

Member Quotes

So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.