Most Recent Messages

New member

Good afternoon 

I'm pleased to have found this forum.

I had a pacemaker fitted 4 weeks ago because of Brady tachy. Unfortunately I collapsed at 1.30 am which resulted in me being blue lighted to hospital. The positive is the pacemaker was fitted well before appointment was due.. I've been ok but can still feel nervous at times. Today it feels like the scar is pulling and having twinges. Hope this is common 

Thanks for reading 

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Pulsing in arm / chest next to pacemaker

Hi all 

I hope you are all well.

i had a pacemaker fitted right side in Feb this year with 2 leads, over the last 6 weeks i have experienced pulsing in my right arm / chest next to the pacemaker.

I visited hospital yesterday regarding this and whilst doing the test to the top lead in the right chamber, my chest started pulsing.

The Physiologist turned a setting off to prevent this happening as they said it is safe to do so.

I have woke this morning to find a...

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MRI

Who has had an MRI since pacemaker implantation and what was your experience ? I understand that a technician adjusts the pacemaker before going into the MRI and then adjusts it back to original settings afterwards.

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Leaving comments in old threads

I am still finding members are leaving comments in very old threads - please see post below from member tuck3lin.

Our current computer system doesn’t automatically bump new comments to the top of the new message board, so any comments you leave in older posts or even add to posts that are more than say a month old, may not be seen, unless you create a new message.  Furthermore, we are still not receiving “notification” of comments or of private messages...

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Update on thread dated 2009-05-18 (!)

I am re-posting a new comment left by member “tuck3lin” yesterday on his old post from 2009, ref:   BY TUCK3LIN 2009-05-18  01:05:58 EXERCISE & SPORTS 1532 VIEWS 5 COMMENTS

It is good to hear from you tuck3lin. Congratulations on the arrival of your first grandchild.  Glad you are doing so well.  Gemita

by tuck3lin - 2024-06-23 21:38:32

It's 15 years later, and I thought I would loo...

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Lower Settings

Hi All,

New member, but have read some stuff on here while researching. Very helpful!

I got my Medtronic Azure XT in September. I have second degree heart block that advanced to 3rd degree. Thankfully was in the hospital for a different condition when that happened and had CPR done.

My lower limit is set at 50 right now. At the beginning I wasn't really noticing when my heartbeat is lower, but lately I have been feeling like I did before the pacemaker when I get around 6...

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Pacemaker home monitor

I have had a pacemaker for 13 years. The first one was 10 years and now my second one is 3 years. I have a StJude with Merlin home remote. It is still working on a landline which costs me $60 a month. They once before, about 5 years ago sent me the equipment to make it WiFi. It didn't work with our Wi-Fi for some reason so I just stayed with the landline 

Well my remote I have is beat. I'm getting calls asking if it's working because they haven't seen it. So today I...

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ERI

Hello,

 

        Has anyone ever had their pacemaker vibrate or buzz when they hit the ERI window? I've had a pacer for 26+ years and I've never experienced this. What does it feel like? Will it be noticeable? Will it wake me up?

 

Thanks,

Blake

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Climbing, Swimming and Strength Training - Safe to do?

As well as being a competitive Cyclist I have always supplemented my training with other activities such as rock climbing / bouldering, strength training, yoga and swimming.

I have had mixed advice in regard to which exercises are safe to do due to the positioning of the leads that enter the subclavicle vein. I have been told by some doctors that repetition of movement in pull ups, for example, will cause excessive flexing and crushing of the lead under the clavicle bone and will p...

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Why doesn't the auto mode switch of my pacemaker prevent all pacemaker medicated tachycardia episodes?

Why doesn't the auto mode switch of my pacemaker prevent all pacemaker medicated tachycardia episodes?

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Medical Bracelet

So I have been wondering if getting a medical bracelet is a good idea for those with pacemakers. 

anyone own one? 

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re entresto

Thankyou too the two responses to my Entresto questions....i havent had a Covid injection for a while now so cant blame that, i did have a bit of a heavy cold though that may have triggered the rigors...so had blood tests an x ray..awaiting results...chrs for your thoughts, Dave

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Sinus pauses=pacemaker choice

Hi,

I am 55 and haveng a paceaker 7/10.  I am wondering if anyone is/was in a smilar situation?

I was diagnosed with Bradycardia 4 years ago-no symptoms.  Wearing a monitor noticed sinus pauses of 3 seconds, not sytmptoms. Has continued for a few years, then pauses recently went to 5 seconds, and have a loop recoarder. All puases in day-and I have no symptoms. Recent puase was 3 seconds, 2 beat, then 5 seconds. still did not notice. Since times are gradually increasing m...

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Returning to Competitive Cycle training

I am now trying to rebuild my fitness and return to a more reasonable level of Cycling but continue to struggle with the lack of information regarding this process. My question is about what the correct settings should be for the Pacemaker.

I have a full heart block and had my Pacemaker fitted on October 23 2023. On December 4th I had a DVT in the subclavicle vein. I have had this fully cleared through tests of my blood clotting proving normal although I have one final test to ensure my...

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Paced percentages

Curious ...

what's the percentage of pacing for your artrial and ventricle?

 

my atrial is 100% paced 

ventricle 70% paced

 

i read that ventricle pacing over 40% increases your chance of heart failure... anyone have info on this?

for people that are 100% atrial and ventricle paced do they rely solely on rate response to help tell there heart how fast to beat?

 

thanks for all your answers and info!

alway...

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DOES ANYONE KNOW HOW TO READ THEIR PACEMAKER REPORTS

I get my pacemaker interrogatories every 3 months, but I don't know how to read them. Basically I want to learn how often i use the pacemaker in the course of a day. I have bradycardia and don't need the pacemaker full time but would like to have an idea how often it is used and try to make improvements on that. 

Thank you to anyone who can tell me how to read a report to that effect.

 

Thanks

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New pacemaker in 9 year old

Just wanted to put a little post on, my daughter, 9 years old, has just got her first pacemaker last week. The difference in her is incredible! All my fears since finding out about her heart block when I was 24 weeks pregnant until the moment she was in recovery after her operation have calmed and I just look at my amazing little girl quickly recovering being more funny vibrate and raring to go than ever before. What a magic machine she has inside of her and what a wonderful medical team she...

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MRI Conditioned/Compatible

My new Dr. at an Advanced Heart Failure clinic I was just referred to wants me to get a cardiac MRI done to see if they can figure out why I had such a quick slide into heart failure.  I received a message that my ICD was not MRI compatible and they moved up my video appointment to discuss the possible risks of doing it anyway.  I spoke with the Dr.'s nurse because my local cardio says his records show it is MRI compatible.  The nurse said it might be a case of the generato...

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ICD Repacing

A week ago, I had some rapid HR on a Sunday, and messaged my EP asking if anything was caught in the nightly download of info.  I got a call back telling me that "no", nothing was flagged or alerted and sent to email, but they had me do an interrogation then.  It showed 2 episodes of VT about a minute a part and showed the ICD was able to repace the heart both times.  (Good to know it's working..)  My question:  Would one expect for a repacing due to VT...

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AV Node Ablation

I wrote on 13th June about my high heart rates. Anyway I went to see my cardiologist yesterday and an ECG showed I was in AF and this is why I have felt unwell. We discussed the options. To cut a long story short, we agreed that I would have an AV Node ablation. Things were explained to me and my wife and I have also looked on line about the procedure. I will be totally dependent on my CRT-D for pacing but I can stop taking amiodarone. There is a 3 to 4 month waiting time on the NHS. Do any o...

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You know you're wired when...

You run like the bionic woman.

Member Quotes

This is my second Christmas with my pacemaker and I am so happy to be with my family.