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Most Recent Messages in ICDs
CRT-D
Hi all.... have not posted in forever, if ever. My hubby has medtronic ICD, 2011, but they are now going to change out for a CRT-D. Understand everything about them, and why.....
My question: Is there one that I can send transmissions over the internet? I live in Mexico and our Medtronics Carelink can not.....they are supposed to in the near future, but that does not help me now.
Any input would be wonderful!!!
Thanks,
Sandy
Question about ICD and Sexual Partners
My doc wants me to get an ICD. I would like to know how others have told their sexual partners about the device. I doubt I would get shocked during sex as the upper limit will be set at 170 bpm and the meds I take keep my heart rate way below that point. My concern is that partners will flee thinking that my ticker will stop (just what I am trying to avoid with the ICD).
Any experiences to share?
CHF AND CARDIOMYOPATHY
- by lovelynessa
- 2012-09-08 04:09:41
- ICDs
- 1525 views
- 0 comments
HI EVERYONE, I'M 27 yrs old and was diagnosed with CHF last year in March 20112011. December 2012 my ICD/pacemaker was inplanted. My ejection fraction is 30%. I don't have any children but i plan to start a family soon, i will discuss with my doctor if its safe to do so, i wanted to know if any of you suffer with the same thing i do and have gotten pregnant and how it was for you during your pregnancy and labor.
Thank you,
Vanessa
ICD kicks
- by abigailwinthrop
- 2012-09-07 04:09:57
- ICDs
- 1616 views
- 5 comments
I just had my second defibrillator put in on August 3rd, and I was recovering really well until I got shocked on August 12th. Now I'm having panic attacks and lots of anxiety because I'm so scared it will shock me again. I also have this weird kicking feeling on the opposite side of my ICD. Every night at 1 AM my heart feels like it's slowing down, then I get three kicks 2 little ones then one big one and then my heart speeds up and then goes back to normal, but sometimes the kicking happens on...
Normal?
Hi all, I just have a question..is it normal for my heart rate to constantly go under 60 even thought that is what my pacemaker is set at for the low? I am about 7 weeks or so out from getting my pacemaker. I had inappropiate sinus tachycardia and after 3 ablations they pretty much knocked out my sinus node and during my last ablation they ablated for 7 hrs then my heart rate went to 40 so they put the pacemaker in. Off and on I check my heart rate and its usually running between 53-62. Shouldn'...
Left arm swelling up, icd implanted 5 weeks ago
- by Ashley from australia
- 2012-09-02 04:09:43
- ICDs
- 2123 views
- 5 comments
Hi all, im a newbie. 5 weeks ago had a boston scientific ICD implanted in the flinders hospital in adelaide australia, absolute great bunch of people. Just had my first follow up on the settings and that and whilst they were doing settings they advised id have a small tingle sensation which i did and was all ok and good. After i left doctors and was given the ok, the next morning my left arm was double in size and blueish like if u put a bandaid on to tight, it is very sore (throbbing) and the v...
kansas
- by Godincontrol
- 2012-08-30 10:08:47
- ICDs
- 1457 views
- 2 comments
Is there anyone living in Kansas around the age 30-40 that is going thru this?????? I live in Hutchinson, Have an ICD and getting ready for transplant list. Im 32.
coping and fear
- by Godincontrol
- 2012-08-29 10:08:05
- ICDs
- 1546 views
- 5 comments
I am a mom of two children and Im 32. Im terrified! I cant find a support group where I live. I hate being tired all the time. I was just diagnosed in May of this year. My EF has been 15% sence then and has not changed. On August 7th I got my ICD. Now in 6 months I will be on a hear transplant list. Im scared I will die and my children will not have a mom. Everything is happening so fast. I have been trying not to dwell on things, and not take anything for granted. But what if my body doesnt han...
PM moving?
Can anyone let me know if its normal for a PM to move, I just had mine put in aug 17th I would appreciate any imput!! Thanks
So glad I found this club!!!
I am so glad I am not the only one scared about getting shocked again,,, the most I had in a matter of a few mins is 6 and that scared the hell out of me...I didn't know it could go off more than 1 time , they never told me , I had been shocked a few times before that but never even felt this 1 coming and I feel everything when it comes to my heart..lol after the first 1 when I actually thought I got shot walking by the window...lol I looked for blood and then realized what it was...I didn't lik...
Not sleeping well solved
Hi,
I have not been sleeping well since an ICD implant last July. I seemed to be hovering between sleep/awake for long periods. They had set my lower pacing to 50bpm. I went for my first check-up yesterday and after discussing it with the technician he set my HR to 45bpm from 22.00hrs to 07.30hrs. I slept like a log last night!!
As I have VT and no other problems I asked him why they used the lower pacing function anyway - the answer was "because they can". Enough said!
In Pain
- by dksussmann
- 2012-08-24 06:08:15
- ICDs
- 1514 views
- 3 comments
I got my ICD implanted on August 14, 2012. It was implanted on my left side. I have had it 10 days now and today on my RIGHT side i am having chest pains. Is this common? Has anyone else had these pains?
ICD SWELLING
I RECEIVED MY ICD ON JULY 31,2012 IS IT COMMON FOR IT TO STILL BE SWOLLEN AND STILL HURT ...........
Went to follow up appt
So I went to my follow up appt on monday which was 4 weeks after getting a PM I told him I'm still having alot of flutter off and on and he says that isn't normal so he did a 24hr holter monitor to see if anything shows up before he does any adjustment with the settings. When they checked my PM I was told that I have extra electricity, which is what started my whole problem for inappropiate sinus tachycardia, and he also told me right now I'm 70% paced. My settings are 60 for low and 130 for hig...
CNC job restrictions/brand advice
Hi, my brother luckily managed to live through SCA last sunday, and is getting great care at his hospital, and making a quick recovery. now we are posed with the overwhelming task of deciding on a brand of ICD to have placed, so he can get back to a relatively normal life. My brother is only 39, and we have no history of heart problems in our family, so we have no idea what the differences may be from one brand to another. He is very high energy, and is constantly busy with something, but the...
news from FDA, Riata leads
They are now recommending everyone with these leads get an xray to check for insulation problems
http://www.theheart.org/article/1435671.do?utm_medium=email&utm_source=20120816_breakingNews_2&utm_campaign=newsletter
You may have to register to log in to see the article but it's a reputable site, aimed mostly at cardiologists.
Medical Id jewelry question
- by patches_mom2000
- 2012-08-12 09:08:33
- ICDs
- 2225 views
- 3 comments
So I have decided to get myself a bracelet to identify that I have an ICD in case someone comes upon me in need of medical help. My doctor's physician assistant wanted me to wait until I had genetic testing to find out if I have "long QT syndrome" which is what they discovered I had when I had my cardiac arrest. Whether it's drug induced or genetic is the big question. My thought process is this: The average person is not going to know what "long QT syndrome" is, therefore it's a moot point....
anybody hear of CRT-D?
Hi,
I am about to have an ICD insert in me nexth month. I will be working in Vietnam for most of the year, except for the summer. There are checkin machines for both ICD and CRT-D in Vietnam. I am 55 yrs old male.
Does anyone know anything about the differences between these two? My doctor in VN recommends me to have the CRT-D. Any advice or opnion would be greatly appreciated.
JT
ICDs and CRT's
- by raiderralph
- 2012-08-07 06:08:26
- ICDs
- 1489 views
- 1 comments
I had an ICD implanted in April and for the most part I am doing fine. I was scheduled to have CRT-D but my artery was small and I was out to long to go further. Does anyone have information on a second surgery and the wire attached to the heart? I have Cardiomyaphy and an EF of 20 I work every day although I can get winded from time to time
Any information is appreciated
Getting aggravated
I first would like to thank everyone on here for their posts its nice to talk to people who have went through the same things and doesn't make me feel like such an abnormal freak!! I'm still waiting for my follow up appt on the 13th which can't come soon enough, what bothers me the most they were suppose to get rid of the tachycardia and just this evening while sitting on the couch my hr sky rockets to around 115 from around 60 for no reason while making me feel short of breath, heart racing, an...
You know you're wired when...
You run like the bionic man.
Member Quotes
Do feel free to contact the manufacturer of your device. I have found them to be quite helpful when I have had questions and concerns.