Most Recent Messages in General Posting

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Starting to get freaked

I am one week from my procedure, which i have been fighting for quite awhile. Not sure what to expect. I took two weeks off from my job. Hopefully thats enough time. Its a new job as well. Very stressed and abit emotional. Any words of wisdom?

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Scholarships for people with ICD/PMs?

Hi all, I'm 8 weeks post op. I got my ICD put in on 11/20/2012. I'm currently a kinesiology student in my junior year looking to apply to physical therapy schools within the next year. Does anyone know if there are any scholarship opportunities for people with implants? I've looked around a bit but haven't found anything.

For what it's worth, I'm in the US, VA specifically.

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Solar flares 2013

Solar flares are soppose to be coming,nasa has some kind of alert and i saw it on fox news today,i'm going to call medtronic tomorrow and find out if there is anything i can do to protect myself,has anyone else heard anything?

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Fatigue

I see a primary doctor regularly and my cardio every six mox,i have a small clogged valve,if i walk at a regular pace i get smacked in the chest with pain,(pleursy)and i get tired quick,i have heart failure,is there anyone who has oushed through and still goes at the regular walking pace with the same problem?Makes me go slower than i like.

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wenkeback

Hi all, I just read shoes post below and saw where he mentioned wenkebach. About a month ago, I noticed that after a rather hard push while biking, I felt winded and very tired. I had also started training to run a 10k in the spring and noticed the same thing after a long run on the treadmill. I called Medtronic customer service and had a chat with a very helpful rep who told me that we who pace 100% and are active, can experience "winkebach" syndrome when our HR exceeds the pacers upper limit (...

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Dark

A woman takes a lover home during the day, while her husband is at work.

Her 9-year old son comes home unexpectedly, sees them, and hides in the bedroom closet.

Then the woman's husband also comes home. She puts her lover in the closet, not realizing that the little boy is in there already.

The little boy says, 'Dark in here.'
The man says, 'Yes, it is.'

Boy - 'I have a golf ball.'

Man -'That's nice.'

Boy - 'Want to buy...

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Hello..

So I caught the flu that's going around right after Christmas and still have this congestion hanging around. Its going on Three weeks for me and yes I did have the flu shot and pnuemonia shot and I still got it. I can't take medicine that helps get rid of the mucus except like Robitussin so do have any suggestions on how to over this flu bug?

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Vasovagal Syncope, Dysautonomia

My 20 year old daughter had a pacer placed in October for Vasovagal Syncope. She also has Dysautonomia. If you could take a few minutes to read the following and pass it along to groups you may belong to I would be appreciative. We would like to prevent others from going through the long struggle for proper treatment.

"My cardiologist is interested in starting a dysautonomia clinic monthly or bi-monthly in Toledo, Ohio as per the interest that would be generated. Please message me per...

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Private Message

I received an email last night at 11PM, EST. stating that I received a pm from this website. When I logged on today, there was no message so probably a glitch again.

If you like you can try resending it so I can respond. Have a great day all!

Grateful Heart

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1st checkup

I'm due my first check since implant on 10 December next week. I am preparing my list of questions!! I read a lot on the site about remote monitoring via landline and, occasionally, by mobile [cell] phone. But does anyone in Britain have remote monitoring by any method?

It has to be possible but I can't recall anyone from this side of the pond mentioning it. But it'd be so useful, apart from anything else it would save me spending hours looking for a parking space - parking at hospit...

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Pookie's Update

Hi Everyone,

I had every intention several weeks ago (and even wrote about it on here) about getting back on here full time - but I couldn't figure out for the life of me why I was feeling sooooooooo badly...now I know....

I was just diagnosed with kidney cancer.

My new family doctor, (who I had just met with only twice in December), had a hunch and got right on it. - I was having my ultrasound on December 24th, then that lead to a CT Scan on January 3rd which...

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Wenkiebach and a Pacemaker

Last time I posted I was days away from becoming battery operated. Tests showed severe drops in heart rate and skips up to 3 seconds. I was feeling worn out most of the time and had frequent "melt downs" when I had to drop and sleep. Dr. ordered one more 2wk halter monitor to satisfy insurance. It came back neg. Puzzled he ordered a 4wk monitor. Nothing. He did a stress test and ultra sound...nothing. He can't say what happened to my wenkiebach but he gave me a clean bill of health with no restr...

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removal

Good morning-
I was happy to see there is a 'club' for pacemaker patients.
I have browsed through the site. I am hoping someone could help me with a decision I have to make.
I am 44 years old and had my PM implanted in 2010 because my HR was around 20ish. When it was first implanted, my PM was used around 80% of the time. Then it was used less and less every time I had to check. Last time was 6 months ago and it was used 13% of the time which I have to assume was when I was sl...

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Laptops

Belated new year wishes to you all
Just a quick question, could my laptop be interfering with my pm?
Haven't used my laptop for a long time until recently and I admit its quite old and on its way out as the fan is making an awful noise and getting hot! I have been using it on a lap tray on my lap and feel as if my heart is missing beats and racing a bit but I'm not sure that its related to the laptop? Thanks Anita

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New Doctor

I had a Sinus Node Modification in September. Since then I lost my insurance and picked up a different company which means I had to switch my doctors. I go to see my new Electrophysiologist tomorrow. I am just wondering what are the questions I should be most concerned about and what is super important to inform him? I have had flutters and times when my heart rate is up over 100 while laying down but it goes away and I feel great still. Is this something that I should still tell him? is this co...

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Turning off the PM

So, after 3 years of going back and forth, tweaking and tuning the PM, my Cardiologist finally turned my PM off.
Reality is, I was pacing randomly, the last time I watched on the screen my HB go from 40 to 120, as per the doctor, both the leads to the upper and lower chambers are fractured and since there is no resolution to it, other than removing, which he thinks is more risk that its worth and since I am using the PM less than 1%, I am better off leaving it in and turning it off.

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is my heart getting worse

Hi I have had a pm for about 15 years I have only ever used it 20% of the time my tech now tells me I am using it 90% of the time insnt that a big jump ? Here in England we don't get the followup you seem to get over their I am unlikely to see my specialist until I need a new pm (5 years away) so I have no one to ask my local doctor just told me not to worry as long as the pm is working I would be fine but that's not the point I want to know is my heat getting worse and if so why

Mau...

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whiston hospital merseyside

Any one out their who attends whiston hospital Prescot who is your specialist

Moe

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English pacemaker

Hi
I am going on a few holidays this year (lucky me) can any of my English pacemaker friends tell me do we need to declare our PM to our travel insurance and if we do can you tell me of any good policy's that isn't going to cost a arm and a leg .

Moe
PS Europe

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greetings

Hi
Im Famela Ann, from Philippines, i got the pacemaker last year March 19 at the age of 24. And today Im preparing for another check up for this device.
Im new to this site, and i find it quite interesting, to read some comments and messages from my fellow patient!!
thanks again on this site.

love lots,
Fam

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You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.