Most Recent Messages

Genetic Testing

Has anyone here had genetic testing for heart block? I finally had my appointment with the inherited cardiac conditions team today (1 year later than it should thanks to covid) and they want to carry out genetic testing, despite it potentially being non-beneficial.

I am wondering what genes can cause heart block?

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Lead dislodge feer

Hey, I'm almost 5 weeks out from getting my pacemaker. Good news is I'm feeling so much better! I really don't have a problem sleeping with my pacemaker. And it's amazing how many things I can do easily that I couldn't do before now. I can't seem to get over my constant fear dislodging my lead

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Vigilant X4 CRT-D

On March 15 2021 I was fitted with biventricular device because I have CHF moderate to severe, one week or so it was fine, I got energy I started to go on my walks was feeling good, but about 10 days after that I started to have high rate of heart beats like racing, started to retain water in my lungs, belly and ankles, it got bad so I checked myself into the hospital and I'm still there as I write this. So far no one really knows why I'm having these issues with retain...

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cardio dr and pacemaker clinic

Saw a cardiologist this morning, said it was ok to switch to her and will see her  at least once a year for now.  Did draw me a diagram of what i have Aflutter(was not aware of that), Afib.  Mentioned of course blood thinners, Watchman and could have surgery to block the clots from going where?

  Also am now having my first yearly checkup for the pacemaker implanted Aug 2019.  At the pacemaker clinic, in the same office as the cardio and EP.    I...

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Remote Device check

Does anyone else feel terrible after a remote device check? I had my first remote one this morning and I have felt so exhausted and weak since they did it. My pulse is at 66, Oxygen at 96% and BP is 117/79.

My pulse will go up to 105 if I walk around, but as soon as I sit, it drops to the 60's. Feels like the top left front quadrant of my head is in a fog. Maybe 60 is too low of a pulse set?

I'm 67 and normally very active. Yesterday, Tuesday, I felt great and we hike...

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Activity mode.. Settings.

Hello. Iam a 75 yr old male with second pacemaker. My problem is SOB on any kind of incline.    Had nuclear stress test done In dec before     second pm procedure.All was ok with a 55 Ef. I had same problem with old pacemaker about 5 yrs ago. They turned up activity mode and all was good.

  Question. Can that be tweaked  up again without rasing my heart rate too high. Just walking accoss room will raise pulse to 100. It will go back to 70-80...

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intermittent block variation with heart rate

Hi all,

hope you are all doing well.

I am interested getting a feel for the people who have intermittent heart block whether they know if in their experience it reduces with increased heart rate or decreases.

Looking through posts on here I get the impression that the majority of people seem to see their block increase with rising heart rate but I am keen to know if any others are on here actually see it reduce with increasing heart rate.

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Pre-syncope with a pacemaker for Sick Sinus Syndrome

This is my first post, hoping someone can impart some knowledge! I was fitted with a dual chamber pacemaker in October 2020 for heart failure, asystole, syncope etc. due to Sick Sinus Syndrome with no other regulators in the heart backing it up. 

In January 2021 I was back in hospital for checks because I was having pre-syncope episodes. After two days in the hospital, I'd only had two very minor episodes, which the ECG did not pick up, so the conclusion was that it w...

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Heart Rate Monitors

I am an active cyclist and hiker w/ a pacemaker.  Recently, my Polar HR10 has been giving very strange readings.  It works for a while normally and then strats giving low rates, below 50 (which I know cannot be true).  Changing the battery does not seem to help.  I have purchased an Apple Watch 6, which is supposed to be accurate but is it?

Does anyone have any idea what could be wrong with the Polar strap?  Does anyone have any solid info on which is the more a...

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Sports at school - what to avoid and how to inform teachers?

Hi,

I'm new here. My daughter (6) got her first PM last Dec, so this topic is quite fresh for me. She goes to Kindergarden and will join school in September. Of course we will inform the school about her PM and give some general information.

However I wonder if I should give any specific instructions to the teachers for physical education. At the moment we told her to avoid climbing up walls and pulling up on bars. She doesn't do any regular sports time being as everything...

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pacemaker and desktop computer tower

  I have a pacemaker (Aug 2019). 

I am having  a problem with the fan not cooling in my computer tower.  The repair shop said to bring it in to them.  In speaking with a friend yesterday.  She mentioned that she thought the tower might have magnets, in the tower.  Of course that means i should not carry it in.  Is that true?

thanks for your help.

new to pace..

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Hitting a wall?

I wanted to report that now, 6 months post PM and 2 weeks post 2nd Covid vaccine, I feel much better. I've done some 2.5 mile hikes around town, with my pulse staying at about 90. While climbing 500 feet, my pulse did get to 150, but then recovered to 90, as I leveled out. My question is, as I am finishing the hike, my pulse comes down to my set 60bpm with my oxygen at 99% and I feel very tired. Is there a wave to the recovery rate that after you have high pulse numbers, does it...

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Newbie

I just got my pacemaker after a whirlwind weekend of emergency phone calls from my cardiologist. I got the call at work to get to a hospital asap. Apparently when reviewing my halter monitor results they saw a 30 sec pause. Holy moley. Before this all my doctors just chocked my fainting episodes up to vasovagal. 

Its been 3 days and I feel some tightness and fluttering in my chest, occasional shortness of breath, and some pain at my incision sight. I understand this...

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pacemaker - walking

Hi all,

I am seeking some help on heart rates when walking. I am almost 70 and  I have a Boston scientific K185 which was inserted in January 2015. Have complete heart block and AF all the time  but asymptomatic.   Prior to the BS I had a Medtronic with rate response only. Had that for about 8 years.  The Boston Scientific has minute ventilation and an accelerometer and I have found with cycling that the combination works very well and consistently has...

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Revitive Medic Circulation Booster,

Can this be safely used ?

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Chest Discomfort and Shortness of Breath

Hi, I'm new to the club. I'm a 53 yo male, very active and workout 5-6 days/week. My resting HR was typically around 42-45 bpms. In mid January, I went to the cardiologist for a routine check-up. The EKG showed an abnormal pause in my heartbeat, which concerned my doctor. A holter confirmed I was experiencing pauses of up to 2.3 seconds, but was not experiencing any symptoms. He immediately sent me to see an EP,  who diagnosed Sick Sinus Syndrome and told me I was...

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Surgery done

I had my pacemaker put in on April 1st. I'm very happy to say that it all went well and so far has been nothing like I feared. Pain is minimal and Tylenol takes care of it. I can't really tell if there is a difference yet since I am taking it pretty easy since coming home yesterday. Trying to adhere to the doctors rules so that I don't do anything foolish and set myself back. I'm very glad that it is done and looking forward to healing and getting energy and stamina back 🙂

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Pacemaker

  • by Riz
  • 2021-04-03 10:56:10
  • Coping
  • 151 views
  • 6 comments

A fortnight after my implant, the recovery is fine but I feel extremely fatigued and sleepy in the evenings. So much so that it is difficult to stay awake. Weakness is all pervasive. If anyone has these symptoms please share and suggest remedy.

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Spouses-I actually have a non technical question for y’all

So with all the bad news we have had over the last year.  Especially finding out my mitral surgery did not reverse remodel (although it may still yet) and my heart is getting worse, I am sure y'all can relate that me and my fiancé are worried.  My question is have any of you experienced your partner or spouse trying to "be the rock" and not show how worried they are?  My fiancé openly admits to doing this, but it confuses me.  He will tell me he...

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Diaphragmatic stimulation and GERD

I did a little search on this forum about GERD and found some old posts, but I am wondering if someone has more current information or experience. 

I am having more episodes of what I think is diaphramatic stimulation, as evidenced my twitching of my abdomen. It has been mainly positional, such as when sit with my knees drawn up whilst watching TV. But this last week, it is happening more often, usually when seated. It is not painful, per se, but it is uncomfortable and distracting...

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Member Quotes

Since I got my pacemaker, I don't pass out anymore! That's a blessing in itself.