Most Recent Messages

Feel worn out!

Hi! I received my pacemaker four days ago and felt like a million bucks the day after. I was thrilled!

Since then, I feel so run down and tired. I'm okay with the pain, all is well, bp good, pulse amazing, I'm eating, moving around and slept the last two nights. My daughter comes to visit. I'm just really tired.  

I was diagnosed because of a slow heartbeat for years, that started dropping into the 30s! I'm wondering if my heart can...

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ICD

Hello.

I may be in the wrong saloon, but does anyone know what they will do WHEN I decide not to replace my battery? Will they remove it of simply turn it off? (Please don't chime in with "why" etc.)

 

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Ventricular pacing

Hi All! Happy to have found this awesome page! I am pacing 100% in the ventricles but 0% in the atria, does this mean I'm 100% dependant on the pacemaker? 

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Pacemaker tuning for mountain biking

I am a 71 year old mountain bike enthusiast but I can't keep up with my friends anymore. I had my pacemaker put in about 5 months ago. After the initial disorientation I started taking data on heart rate during my rides (apple watch). I felt that my heart rate was too low (130 bpm) during steep pitches. Gradually we've increased that over the months to 150 bpm with the slowest recovery time possible and supposedly a pretty sensitive to motion response.  I am learning how to...

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weird and ongoing situation

Hey there, Its Ahamad here I love to join the club, so I born with third degree heart block got dual chamber pacemaker in 2013 things were going very well till 2020 when in March 2020 I started feeling some shortness of breath and went to my cardiologist. He did echo and tell that your EF decrease to 45% but he said your heart is little weak. They upgrade my pacemaker to Crt pacemaker but I still having complications its been almost four months now, my heart beat very fast and having some nau...

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OT: Responses

Those posting replies are doing a great service to fellow patients. Just one request, could you give the Readers Digest shortened version of your response. I'm old and running severely short on time, not to mention attention span. It's near impossible for me to read a complete history of the world. Thanks

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Fluttering feeling

I am having this aggravating flutter feeling in my chest and throat. I asked the Device nurse at the Doctors office and they don’t know what is causing it. I’ve had my Pacemaker for about 5 weeks. Does anyone else experience this?

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MRI and the PM

I recently had a Medtronic Micra AV leadless PM installed. The care says it is MRI-conditional. Anyone have any idea what that means?

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Low blood pressure

Hi everyone.

On Dec. 5, 2019, I had a pacemaker implanted. After about 3 weeks, I started feeling light-headed and had difficulty concentrating, sometimes feeling like I might faint. My normal blood pressure prior to this implant was approximately 136/80. In recent months, my blood pressure is now much lower, approximately 100/60. I have spoken to numerous doctors and cardiologists and they have not been able to explain any of these changes, saying that this is relatively normal. I...

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New member advice request

Hi All

I am due to have a pacemaker fitted next week and would be grateful for any advice on settings to enable me to continue running to a similar level than at present.

I am a 63 year old  male and ran a sub 20 minute 5k before lockdown with a HR max of around 155 to 165 when racing and 125 to 130 when running steadily 

I would be grateful for advice on settings and questions I should ask to find what suits though appreciate from other posts that it might take fu...

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HEART FAILURE

I JUST VISITED MY HEART SURGEON AND HE SAID MY PACEMAKER IS WORKING FINE BUT THE SYMPTOMS I'VE BEEN HAVING FOR 1 MONTH INDICATE I'M IN HEART FAILURE AGAIN.  I HAVE BEEN LIVING IN CA. FOR THE WINTER AND SINCE COMING BACK EAST I HAVE BEEN IN TACHYCARDIA AND BRADYCARDIA AND PULSE RATE UP TO 114..  I THOUGHT THE PACEMAKER TOOK CARE OF THIS PROBLEM BECAUSE THIS IS WHY I GOT THE PACEMAKER IN THE FIRST PLACE.  SINCE COMING BACK, I HAVE A NEW CARDIOLOGIST I SEE IN A WEEK'S...

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Pacemaker adjustment

Hi everyone, I am glad to find this forum.  I had a pacemaker put in for a secondary block - low heart rate do to bottom chamber not communicating with top.  I was tired but really only felt a little pressure which caused me to go get checked and glad I did or else I wouldn't be writing this.  I am having a difficult time with adjusting as I get parenoid about flutters or any wierd feeling.  I am checking my heart rate more times then I want to admit.  How do over...

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MRI with percepta CRT-P

hi all,

i am scheduled for an MRI of left shoulder in a few weeks.  i have a Percepta Sure Scan CRT-P.  Has anyone heard of any problems?  i am told that it is safe but need to check with this forum.  thanks.  h

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Weightlifting

I'm 22 years old and I had my pacemaker implanted under the skin in my chest earlier this year. I enjoy my weightlifting and I'm quite lean so the pacemaker is clearly visible under my skin.
 

When I do chest exercises like bench press, the side of the pacemaker where the leads go in, pushes at the skin from below leaving a clear outline of that side of the pacemaker. I don't mind this but what I'm concerned about is if this could damage the skin...

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ICD

My hubby is 72 had ICD just put in 4 days ago. He is left handed so it is on right side for convenience.  I know everyone is different and it takes time but do you honestly feel better, or notice any change. He has been so worn down and exhausted for so long, I don't think he is seeing alot of light at the end of tunnel.  Also like alot of men he wants results now, patience is needed. 

 

Do you know what I'm saying. Any words of advice

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skydiving

Hello,

Last week I was looking for information on skydiving with a pacemaker. I couldn't find anything conclusive and there are a lot of contradictory opinions. I had my pacemaker installed 4 years ago for a 3rd-degree heart block. I'm only 51 now. My husband thought it would be fun to try skydiving and I hoped I would be able to use the excuse of my pacemaker and not be allowed to go. I called my PM doctor and he told me there should not be any issues(great, no excuses now!!)&n...

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New Here - Need Your Advice, Please

Hi,

I’m new to this forum and could use some experienced advice. Here’s my story:

I was diagnosed with advanced prostate cancer 5-years ago (stage 4). The cancer had spread to one area outside the prostate – the T8 vertebra.  Went through chemo, radiation and surgery as well as 5-years of hormone therapy (Lupron). I’m in remission now and not taking any cancer medications. ;)

The doctors...

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Just Joined the Club.

Hello, everyone. I'm 38 and I was diagnosed with Nonischemic Congestive Cardiomyopathy in 2019, and I received my 3 lead CRT-D implant about 6 weeks ago. I do not personally know anybody with a pacemaker, much less someone my own age, so I joined this forum today in hopes of maybe finding some information, and/or comfort, to help me wrap my brain around everything. 
 

On one hand, I feel better than I have in *years*. My ejection fraction has been 20-25...

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Device Detected Afib - Blood Thinners

I have had my Medtronics 2 lead pacemaker for third degree heart block for 3 years.  I have also had two ablations for atrial flutter.  My pacemaker is now detecting small amounts of afib; less than 0.1% of the time, but rare episodes of an hour or so.  My doctor now wants me to take Eliquis because of the threat of a blood clot and stroke.  I am resisting because of the small amount of afib and the risk of this new family of blood thinners and law suits for excessive blee...

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steel and pacemakers

hey everyone!

so kind of a stupid question, but i'm getting a new bed and the bed frame is of steel and before i purchase it, i wanted to know if the steel will interefere with my pacemaker or will it be fine? anyway some feedback would be greatly appreciated :)

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You know you're wired when...

You always run anti-virus software.

Member Quotes

My pacemaker is the best thing that every happened to me, had I not got it I would not be here today.