Most Recent Messages in Coping

Can‘t breathe

Hi everyone!

got my PM six weeks ago (3rd degree AV Block).

Today I had a run of about 30min and it was quite hard at the end due to missing energy...

Some hours later I hab suddenly soemthing like a panic attack. My pulse was racing and I felt very bad for a short time. I am now under The Impression I cannot breathe enough air and sleeping is also Not possible. Cold feet are also a sign that my BP is down...

Anyone experienced The same? Anxiety? Panic a...

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Daily Struggle

I just joined this group today. I got my PM 01/29/18. I'm in complete heart block. I pace at 100%. I stil have a hard time with knowing I rely on a device to live. I don'ttalk to anyone about how I go thru or how my life has changed. I have a keloid on my device, so I see a chronic pain Dr. I went through 2 EP's before finding one that cared. My PM made me re-evaluate my life and I will be divorced in January. I have a great friend that encouraged me to find a support group....

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Tired

This is my second pm.  I popped back fast from the first one.  Had the second surgery Nov 13 and the AV ablation two weeks later.  Feel good in the morning but by noon my energy level is low.  I spend my afternoon's resting.  I sure hope I start feeling better soon.  Anyone else have this issue?

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Sleep positions and when to fly in a plane

Hi, I am new to this world of pacemakers. Had medtronic implant done Nov.7, 2018.  What sleep position(s) are you most comfortable with at night.  I'm having a few problems staying comfortable for very long.

Also when is it ok to fly?

Thank you so much.

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ELECTRICAL FLASH LIKE AN XRAY WHILE SLEEPING

Hello Everyone and Merry Christmas!

i got my pacemaker a year and a half ago. As I have mentioned in the past, it was an emergency situation and completely unexpected.

i have had a pretty easy time coping. I feel grateful. But last night I awoke with a jolt because of the following:

there was a flash of light that was a mix between a camera flash and an X-ray. With the flash I could get a visual of everything in my body particularly the skull.... teeth, etc. It felt electric...

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Afib

Hey Folks, I'm new at this. So bear with me. I had a pacemaker inplanted on November 9th, I have Atrial fibrulation, Which is literally debilitating when it starts in. I have episodes every week or so.

The are talking Ablation soon, but my question is: In the meantime, anybody have any tricks to get my heart back in regular rhythm. The episodes last from 8 to 40 hours at at time, and I feel like I'm going to pass out and hen it gets better for a few minutes then bad again. They...

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Help

Hi had my pm fitted in october slowly feeling bit better but for last few days i feel the dizzy spells agan and some flutters but feels like iv got a stuck burp pm doc says settings are fine but im not so sure bp and pulse are fine anyone any advice pl 

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Help

Hi had my pm fitted in october slowly feeling bit better but for last few days i feel the dizzy spells agan and some flutters but feels like iv got a stuck burp pm doc says settings are fine but im not so sure bp and pulse are fine anyone any advice pl 

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Sharp pain in armpit

Hi there! New to this site and PM/heart issues. I am a 34yo female in Southern California with SVT and Wolfe-Parkinson-White Syndrome. Went into the ER on Nov 26 for what I thought was lung issues and was quickly told it was my heart. I had a myocardial ablation scheduled for Nov 30th for the SVT but it was quickly bumped to Wednesday the 28th as concern grew at a rapid speed. The Ablation was 3 1/2 hrs long and caused more reason for concern. Tests on the 29th resulted in the decision for a...

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New to this PM community

Hi everyone!

I am really new to this PM thing and hope to find some advice from this great community.

My story is quite short and started on the 3rd of November this year.

On this day I fainted the first time and had no idea why...

5 days later I already received a PM due to 3rd degree av block.

I am 33yrs old and was very active (Crossfit, mountain biking) before this heart block thing happened.

Since today I lost the trust in my body and have problems to...

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Fed up

Hello all.... This sounds stupid, but I am fed up right now.  I have the stupid recalled St Jude unit that my doctor would not replace until it started vibrating.  Well, saturday night it vibrated, and it is probably due to a need for replacement.

It vibrated Sat night, twice on Sunday, so I thought I would wait until Monday and see if they contact me to ensure Merlin works the way it is suppose to.

Monday - no vibrations - I suspect the vibration part was turned off at...

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Feeling like I need a boost

Hi there,

I’ve just discovered this site so hello everybody and hope you are all doing well !

I have had a pacemaker since the age of 12 and I am now 37 ! Looking back I think I was unfazed by the news that I had to have a pacemaker fitted and lived a very normal life. Last year however I suffered a heart attack completely out of the blue. This was caused by two blood clots in one of the main arteries entering my heart. I was hospitalised twice after this...

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1 year with PM

Hello!

It's been over a year since I got my PM, following which I joined this online club. I read this site a lot and I wanted to thank everyone in this club. I've learnt a lot and have sort (& continue to seek) comfort and peace of mind from this club.

Champak

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Newbee

Hi

Found out this week are 20+ years of complaining of werid symptoms that it is heart related. I am in utter shock and really struggling to come to terms with it. I have been told it is really uncommon for my age group (20s)

Quite curious about how a pacemaker feels when things are fine? Do you notice it much? Also what does it feel like if it has to kick in? Is there much that having a pacemaker has stopped you doing? 

Seeking some reassurance 

T

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8 weeks post op - new pain

I just passed my first 8 weeks since my PM implant. I am on Pradaxa and Metropolol. I do not take these at the same time every day, but I do manage to get them taken twice a day. 

I have resumed normal activities, including my favorite exercise in a golf game (9 holes last week-plan on 18 Monday).

So today a new pain started bothering me and thought I would get some input from the group. I have a checkup Dec 4, and I will discuss it then too. But this pain is about a 6 (I hav...

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Worried and scared

Don’t have a PM yet, but looks like I’m headed in that direction, still trying to wrap my head around it, no heart issues other what looks like Sick Sinus Syndrome. Any words of advice, thinking about this is really starting to affect me, symptoms are scaring the hell out of me and are making me feel terrible. I keep thinking about, my kids, 14, 15 and 18. They would be financially set but I’m having these crazy thoughts like if I’ll be around to walk my daughters...

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Pace maker

Hey everyone, i need to remove my pm , i want to give it back to the doctors, i cant afgord the device reads and Doctor Vists,  i have no insurance and i know it runs 73 percent of my heart, but i dont want to owe something i cant afford. Its like a car that you cant aford. I told them before they did this to me that if it took money to survive i could not do it. But no one listens to the patient. I have tried to find out how to get it out. My question is can i just cut the wires off it...

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Help

Can anyone tell me if its normal to still be getting some fluttering and sick feeling a month after my pm implant any advice would be great iv been told that many diff things i dont no weather im coming or going 

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Local support groups?

Wondering if anyone knows of any local support groups for pacemaker patients with complications in the Lakeland/Orlando/Tampa area of FL?  Therapy isn't cutting it and would rather work with people/therapists who can relate to what I'm going through.

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Not seeing the light at the end of the tunnel

Background:
Began experiencing "odd" symptoms EOY 2015, slow, thunderous heartbeats, occasional almost passing out. EKG and blood tests from new primary care dr in Jan 2016.  Was told nothing was wrong other than very low iron, take iron supplements.  Symptoms worsened, primary care kept saying just iron related.  Went to urgent care in Feb 2016 and was told I was in complete heart block and had been even in Jan (primary care missed it on EKG).  Rushed over...

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You know you're wired when...

Your ICD has a better memory than you.

Member Quotes

I've seen many posts about people being concerned about exercise after having a device so thought I would let you know that yesterday I raced my first marathon since having my pacemaker fitted in fall 2004.