Most Recent Messages in Coping

Still Fighting The Good Fight

Hello all,

Figured I'd drop in to provide an update. After several rounds of SVTs and PVCs I was fitted with a heart monitor for 2 weeks. The results were lackluster. 
 

My Cardiologist and nurse went through them page by page and noted nothing too concerning or crazy. Some times, when I pressed the button and logged my symptoms, my heart was functioning as expected/normal, while a few times in the middle of the night, they noticed it was elevated, but not alarm...

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Going into Paroxysmal AF

This morning I have gone into AF and my CRT -P pacemaker has done that mode switch thing. My heart rate is steady at 70. I felt it flip in the same old way when I turned onto my left side in bed. 

My heart feels different. Sort of like its pounding....a harder beat.  And I feel a bit wierd... lightheaded and breathless when I walk around. But I guess the beauty of this pacemaker is that it eliminates the irregularity. Also, It seems to be stuck at 70 even though they said it w...

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Minor (I hope) setback

Life is sometimes a b'atch. I was starting to feel a tiny bit more energy--Was sleeping better at night & not napping dring the day, accomplishing more with both chores & liesure activities, feeling some kind of normal. Then, in spite of faithfully getting vaccines & boosters, my husband & I managed to get covid-19. I know that without the vaccines it could have been much, much worse, but it was bad enough for me! Slept for 2 days straight. Now I'm up & around but...

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Hi

Hi everyone I had first pacemaker implanted in July this year after discovering I have a complete congenital heart block and my heart rate for years has been 45 bpm my resting rate was about 35bpm  can I ask is it normal to feel ok one day then tired and sore the next. I am 7 weeks post op and still get chest pains is that normal? 
 Thankyou for reading this 

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Wearing compression Stockings

Hello all, just a brief message to see if this works as I am having trouble logging in. Does anybody have to wear compression stockings? How to cope with this? Thanks for any support

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AF?

Hi there. 

Still getting used to the aftermath of my Pace and Ablate procedure. (AV node ablation 19/7/22)

I'm still getting a few single ectopics and I've found out that my settings are currently DDD with a min/max rate of 60- 130.....Yesterday I was working and when I came home I was eating my dinner and I absolutely swear I went into AF except I didn't get that fast ventricular rate. I monitored my heart rate and it went up to 130, my max setting, but it wasn&#...

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Update on feeling tired

There have been various posts on various topics in which the subject of feeling tired comes up. That makes me prick up my ears, because this is something that I have been dealing with for a while. I had my beta blocker dosage increased maybe a year ago, and it seemed to me that from that time I began to feel extremely sleepy. I felt like I needed to sleep not only all night but most of the day as well. My PCP and my cardiologist both seemed convinced that it was something other than the med (...

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Is anxiety normal after years with Pacemaker?

Hi Everyone.

So I am a pacemaker dependent for about 34 years now with a dual pacemaker. One thing I seem to be suffering from is anxiety... but for some reason lately I worry about my health and future with this device... I am the only one in my family with this... so I don't have anyone to relate to... I do aim to focus on positive things but sometimes it creeps up on me. I wonder what should I expect as I get older. I am in my late 30's. 

Thanks :)

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not wanting pacemaker / anxiety?

sorry if i'm not posting his in the right forum, but i'm just feeling so lost and trapped, and i don't know who or where to look for answers. i don't technically have a pacemaker yet, but i'm getting one implanted inevitably.

 

i'm fifteen and i was diagnosed with third degree av block (complete heart block) within the last year. i'm asymptomatic to a certain extent, but have a low enough rate (39 resting) that my dx told me that it's basically...

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WomenHeart

Hi All,

It's been awhile since I've been on the site. I found out about this organization that I want to share with you. It's called WomenHeart.

They provide opportunities for women with heart disease and conditions to connect. They also have a lot of information on their site about health. There are a few zoom meeting groups across the US. Here is the link to their website in case anyone is interested.

https://www.womenheart.org/

 

 

...

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Anxiety returns

Hi everyone - I had a pacemaker implanted on 1 March, so just over four months ago. I struggled a lot at first with anxiety and depression - my GP put me on Sertraline 50mg/day (I've been on Amitriptyline 25 mg/day for many years and the Sertraline is in addition to that). I've also started counselling which is hard at first but I feel sure will help me longer term.

After 3 months I felt quite a lot better and resumed work - I'm self employed and do contract work from home....

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I watch

Can the watch to an accurate EKG if you have a 3 lead pacemaker. If so which series I watch and can it detect a fib or a flutter?

 

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BRADYCARDIA

I HAVE ONLY RECENTLY BEEN DIAGNOSED WITH THE ILLNESS(3WEEKS) AND SEEING A CARDIOLOGIST SOON.I HAVE HAD 1 EKG AND ECHO AS WELL AND FORTUNATELY OR NOT MY HEART IS IN GOOD SHAPE OTHER THAN LOW PULSE,44 TO 55.mY CONUNDRUM IS THAT THE TECHNIIAN HAS STATED THAT A PACEMAKER IS UNLIKELY SINCE I AM OTHERWISE HEALTHY.THE LEVEL OF FATIGUE THAT I COPE WITH IS ALMOST UNBEARABLE;THIS IS VERY NEW TO ME AS I WAS AN ACTIVE GUY EVEN THO RETIRED AND WORKED A PHYSICAL JOB MY ENTIRE WORKING YEARS.I NEED TO PERSUA...

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Mental Health

hi, i never use forums or anything like this so sorry if my post etiquette or anything is incorrect. but i'm a 19 yr old female and march 29th 2022 i had an s-icd implanted. ever since leaving the hospital i've been extremely depressed. the scarring i have is terrible, it's mostly on the side of my ribcage under my arm and i hate looking at it. the device itself is also clunky and can be seen through my skin and it's always sore and trying to sleep comfortably is impossible. a...

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Post pacemaker symptoms

First I just wanted to thank everyone for their inspiration during my pre PM procedure. It was on June 7 & the procedure was a snap. But now I am experiencing the following: Higher B/P, nothing drastic, weird dull throbbing sensations in left arm, every now & then, and yesterday some several kind of mild  jolt sensations from my heart. I am a little light headed and low energy. Now keep in mind I have high anxiety and freak out with any strange or unusual feelings....

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Electric Blankets

Hi, I have a saint jude ICD I was wondering if anyone here knows if an electric blanket would be a bad idea?   I stay cold all of the time and used to use one year round but have been too scared to try since my ICS placement.  I have a lot of other conditions as well amd the cold really affects my quality of life.  Cold air is like needles to my skin. 
thank you!

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fever with backache

Hello everyone. I threw my upper back out about 4 days ago and the last couple of days i could really feel it when i breathed. Now, it seems im starting to run a mild fever last couple of days, its only at night. its impossible making an appointment because they are all booked up. Does anyone know whether aspirin is safe to take, also, this has elevated my heart rate as well, is that to be expected? thanks for listening

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Return of symptoms

11 days post op and up until today all my previous heart block symptoms had gone completely. Today however on a walk they all came back. Shortness of breath tight chest dizziness. I’ve done some mild exercise and housework and it’s hot today. Would this cause it?

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Ablation part of pace and ablate

In the AF Association leaflet it says the following:

"The procedure does not restore the normal heart sinus rhythm and so the heart will not work as well as it would in the normal rhythm. Therefore symptom relief may not be as good as might be expected with restoration of the normal heart rhythm."

I've had my pacemaker fitted and awaiting the AV node ablation. I read this today and nobody else has mentioned this at all. Are there any other people on here that have ha...

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This One is Interesting!

Hello PMC!

I hope you are all doing well! I have something interesting to share with all of you and hopefully you can provide some feedback. I will start by saying that I have an appointment 6/9/22 with my Cardiologist to discuss same. I've been experiencing leg weakness daily and sometimes my thighs burn when I walk as if I was doing intense exercise at the gym. I've noticed that my legs (thighs mostly) have trouble doing anything really&...

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You know you're wired when...

You play MP3 files on your pacer.

Member Quotes

I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.