Most Recent Messages in General Posting

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First pacemaker

Hi everyone Iv just joined and I'm really glad to have found this website. I'm a 40 year old man who always exercised regularly. I didn't even no I needed a pacemaker until I was getting other checks done. I had a low heart rate and while sleeping had some heart pauses. I had no symptoms that there was a problem. Well after getting the shock to say I need one. It's in now 3 months and Iv recently went back to running and a few hours after exercise my heart rate drops to 3...

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Device Recall...

Just did a search online and it turns out my device was on a recall list on March 2018!  If I read it right my device can just short out and never deliver the appropriate therapy when/if needed.

No one ever alerted me.  I just sent a message to my electrophysiologist office but he is apparently out of office.  The EP that put the device in retired so I was without an EP without knowing I was without an EP for quite some time as I had not seen him since he implanted the de...

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Happy Anniversary to Me

... and to my little battery-powered companion.  We'll be celebrating four years next week.  I'll never forget our special moment when we became as one ...notwithstanding that I was unconscious at the time.  What a great companion over these years - hoping for a few more together :)

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Expirence with Azure XT Pacemaker

My Drug-resistant Symptomatic Paroxysmal Atrial fibrillation cannot be treated with catheter ablation, so I was recommended to get a dual-chamber Medtronic Azure XT pacemaker for treatment of AFib.


Does anybody have experience with this arrangement?

Thanks

 

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Vaccinations & Lymph Nodes with a PM

I was scanning through some old posts and saw something about lymph node swelling after a vaccination if it is administered in the arm on the same side as the PM. However, even after a search on the site I am able to find only one related post. My grandmother died of lymphoma, so of course it is a concern. I have had my PM for 35+ years and probably about 25 years ago had to have a swollen lymph node under my chin surgically removed and biopsied. It was benign. I can't say for sure i...

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Terrified

So it's been a while since I have posted. I got shocked for the 5th time last week. I'm living in fear now, I'm supposed to go to two concerts in March and one in June and I am terrified to go because I'm afraid I will get overheated or do too much walking or whatever and get shocked again and this time it won't be just me screaming inside my house, I'll be out in public which I haven't been since august unless it was for a dr appointment. This was my worst fear, I...

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IPhone13

I would like to update my iPhone 10.  I know the magnets are stronger in the 12 and 13.  Has anyone updated to one and have any problems?

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MRI

Does anyone reading this have any information on hospital MRI departments that are known for excellence in performing MRIs on patients with implantable devices (PM and Leads) in the NY/NJ/PA area??

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Just Diagnosed

Just diagnosed, very concerning, and I really don't want to do this...

I get a little dizzy from time to time and my rate will go to 22 at night, but I haven't blacked out or fainted, some days I feel like crap maybe twice a month, but that's about it. My doctors are indicating my vital organs may not be getting the appropriate blood flow at 22 beats during the night and I had a few episodes of 3rd degree block as well. However, the PM is precautionary, but it is also p...

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Vibrate

I dont know if it was a dream or something, but do pacamakers vibrate (like phone vibration) ?? 

I think I dreamt or it happened in my sleep through the night ( I am not sure), but it was very scary. 
 

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My first post

I'm pleased to join The Club, and enjoy reading the  "You know you're wired when... " posts.

There is so much useful information on here. 

My device fitted just four days ago, and positive results noticed already.

 

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Pacemaker issues

Met with my EP today and he says we should just shut my pacing off. He disregarded all my questions about fluttering (pvc) and pulsating feeling. Says everything looks good on my device check. I really don’t know what to do. I had the problem in the beginning with my diaphragm and he made adjustments that modified  it, now it’s back but he wouldn’t change anything. I feel like something is wrong. Should I get another opinion? Or just turn it off and assume somethin...

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Watchman trial

Just a quick update on my Watchman.  It was inserted Oct 2021, followed by my pacemaker in November2021   Lots of arryhymias but now three months later very well controlled with medication.

Happy to be off the anticoagulants

The TEE today showed good placement of Watchman, no leakage and no clot   Also as a bonus EF up to 55

Finally feeling good and optimistic

 

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Hi, I'm new here :D

Hi guys! I'm James.

Just found out about this site and had no idea this kinda club existed for us, so I thought I'd join.

I'm 20 now and had my pacemaker implanted when I was 19 in August 2020.

I always felt worried being so young with a pacemaker so I wondered if anyone else here is a similar age to me?

Anyway, just wanted to say hi. Hope you're all having a great week!

:D

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So I just used a smart scale without realizing I’m not really supposed to?!

Hey everyone!! 

So I got my pacemaker June of last year and since recovery I haven't worked out the way I used to so I gained a few pounds and I decided to buy myself a smart scale.

I got on my scale today about 2 or 3 times then as I was looking at info online I realized I'm not supposed to be using these?! My question is, should I get checked out immediately to confirm there were no interferences? I feel fine but I'm a little paranoid after I read the label.

...

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Advocate for yourself!

Alright guys, I feel a little guilty. I commented on another's post yesterday basically saying to be an advocate for themselves, and I haven't really been doing the greatest myself.

I had a follow up after switching from metoprolol tartrate to succinate. As soon as she came in she said that she wanted to increase the meds. She said I had a few tachy episodes each week. I told her that I had been having some shortness of breath and a stabbing pain from under my left armpit i...

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How to best use the forum

I am new here. I'm having trouble figuring out how to find new messages/comments in the forum. I don't see a "How to use the forum" section so I am just posting this in the "General Posting" section.

I know there is a "Recent Posts" section, but that only seems to list newly created threads. I can not figure out how to determine if an existing thread has gotten a new comment since I last looked. Do I have to look in every sub-forum, at every...

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Chemotherapy induced heart failure

I'm curious if anyone has heart failure due to chemotherapy or cardio toxicity. I had chemotherapy for childhood cancer when I was seven. Two years ago, when I was diagnosed with hf, I found out that most likely my condition was caused by the chemo, doxorubicin/ adriamycin. My heart muscle is basically hardened. I received my crt-d in November. My EF is 20-25%. Would love to connect with someone who has a similar history. 

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AFIB with Qualifyiers?

Wondering if anyone has heard the term or phrase "AFIB with Qualifyers"  This would be in the context of a type of AFIB.

I would appriate any info you may have or if anyone could point me to a web site to do more research.

Thank you!

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Bad Timing

Hello everyone,

I always seem to have the worst timing when posting an update on my story. I generally like to wait weeks/months of no issues to report back in hopes of not jinxing myself and as a sense of accomplishment to say "hey everyone, I was feeling crappy but now I'm great", but of course, that's not my luck. 
 

The good -- I really do feel a little better with each passing week. I underwent another head MRI and neck MRA to look at blood ve...

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You know you're wired when...

You read consumer reports before upgrading to a new model.

Member Quotes

I wasn't really self-conscious about it. I didn't even know I had one until around six or seven years old. I just thought I had a rock in my side.