Most Recent Messages

Post Message!

cardiomyopathy ?

just looking for others who have this and we could talk , i have had cardiomyopthathy all my life and now have a icd .

thanks talk soon...

Read More...

is this normal ?

  • by Aztec
  • 2007-12-01 06:12:00
  • ICDs
  • 2204 views
  • 6 comments

hi there, Dose anyone know about this i have a icd inplanted for my cardiomyopthy and yesterday i got my first shock since i got it in june, well all of the sudden it was bang and a bright light and my ears were ringing no pain at all, oh yes i was having a episode before it went off i felt faint... i know its working but is the flash normal....

Thanks :")

Read More...

Please help!

I'm happy to see our club is growing in compassion and concerns for others. I thank you all for your postings and your words of comfort when I need them.

I have a request to ask of you whom may have gone through a triple bypass surgery. My aunt is line up to have the surgery sometime in January. She's a bit concern and her anxiety is through the roof. My cousin whom I love like a brother is also having a hard time with the whole surgery thing. I'm asking anyone who have good or...

Read More...

Question

Hi There,

Yesterday I found out I needed to get a pacemaker.
I couldn't believe it, I cried my eyes out. I'm a 24 year old women and I couldn't believe how scared I am. In my case I have vasovagal syncope. So I pass out, I've probably passed out about 200 times in my life time. I need to make a choice, should I get one or shouldn't I. All doctors say yes, mom and dad are a go. But I don't know.

How painful is it, not the surgury but in general just to have. I've...

Read More...

encouragement

I have had a dual chamber pm for three weeks now. (dislodged wire several days after implantation which was repaired in addition).
Anyhow, it is encouraging to hear about the emotional edge many people have also experienced after getting the pm. That alone helps with the anxiety I have experienced, really, for the first time in my life - I am 59, and this all happened very suddenly. I have been in very good health beforehand, active, asymptomatic!!. No medical history to speak of. One que...

Read More...

Allan(41) Edinburgh re Atenol and a_fib

Hi everybody it is now nearly 8 weeks since my first pacemaker implantation a st judes dual lead pacemker with atrial suppressor lead.I was still getting a-fib after operation only 1-3 % of time but still uncomfortable enough to warrant bet blockers tried bismodol made me sick so switched to atenol

I have been taking theses pills for nearly three weeks now and touch wood they do seem to disguise my episodes of afib but i am sure thet are still there underneath.
i do feel quite s...

Read More...

Sicko

Okay, club members. Question for you. Have any of you seen Michael Moore's movie, Sicko? I am not asking because I want to start some big political debate or get people going at each other--I just want to start a conversation. (If you don't know about this movie, it speaks about the dysfunctional healthcare system in the US compared to universal healthcare systems elsewhere in the world.) I, for one, believe this is a people issue and not a democrat-republican, liberal-conservative, or wha...

Read More...

I've been thinking...

For years now I've been perplexed and frustrated at the confusion there seems to be concerning what exactly a pacemaker will and will not do. I think, generally, all of us were made aware of our issues concerning heart rhythms either by an abnormal EKG, symptoms, or episodes of passing out, ect. Most of us have no expert knowledge of our sometimes surprising diagnosis', and we listen with a kind of numbness to the news that we need a pacemaker or an ICD. I know I truly was under the impression...

Read More...

bad pm wires

hello
does any one know were to go and get updates on the bad wires i have a pm on recall but i have't seen much more about it don't know where to look i guess my email addres is huskersnb1@yahoo.com if any one want to help me out please put pm recall in heading
my model number is 6949 with the 65 mm wire
i come on here every nite to check things out
I'm suprised there aint a link here so people can go check these issues out since they are so important to us all
t...

Read More...

I don’t know what to do!

I have a Medtronic KDR701 Pacemaker for Vasovagal Syncope (on tilt table my heart stopped for 2.5 minutes). I had it implanted when I was 21 (7.5 years ago) and have had little to no problems to date except for the general discomfort of it. This week I have experienced shocks through my shoulder and have gone to get a check up. The doctor told me I have a faulty lead but that I don’t need the ventricular lead really so he simply reduced the voltage so as it wouldn’t shock me as much and told me...

Read More...

Update and thanks for the great feedback!

Back on 10/26, I introduced my current situation and myself. I want to thank everyone for his or her comforting words, encouragement, and advice. Thanks so much for the messages. I agree with Frank’s posting. Anything could have caused this...viruses, etc. Also, my concern with a pacemaker could be masking the real cause.

I want to share this with everyone. Might be a remote possibility that you or somone you know had a terrible experience with medications that resulted in a PM...

Read More...

ICD testing

Does anyone know where I can get a defective ICD Interrogated independently?? Best to all Oh!! no its not still inside me...
papaknight

Read More...

PM/ICD Problems

What a great site...wish I ahd found it years ago. I had an ICD implanted in 2002 and a little over a year later the impedence dropped drammatically. They told me that they were watching a possible lead problem but all was well. A yeaar later I went to a differant clinic to have the ICD checked and the tech flipped out and wanted me to stay in the hospital until he could get the company tech there. The company tech checked it and said "all is well". Six months later the unit failed when my heart...

Read More...

chopping firewood

I won't see my cardiologist for over a month so I am hoping to glean some wisdom from this august bunch. Now that winter is gripping the northern climes - I was hoping to split some firewood. Do you think the vibrations from the impact of chopping would have an effect on leads? My PM was implanted two months ago and I don't even know its there anymore (maybe not always such a good thing, huh?)

Gary

Read More...

Sprint Fidelis Leads

Hello all,
I'm sure many of you have read about the Sprint Fidelis Lead
(Models 6930, 6931, 6948, 6949) recalls. I myself have some leads implanted (6949), along witha Medtronic ICD. Luckily I have had no issues with them. I'm due for a checkup next week. .
I am bascially posting this message for people with these leads. I was just wondering for the people who have these leads implanted or know of people with them. Maybe contact me just to see what your status is with you...

Read More...

I'm going to be an Auntie soon!

So this has nothing to do with my heart at all but I had enough energy today to take the two hour drive to come await my sister to have her baby. God sure is blessing me with enough energy to sit and wait but I am ready for he baby to just come.
A quick update for those of you that told me to look into state options I did not qulaify for any help for insurance and still can not seem to fine any insurance company that will cover me. I have been having a lot of spasms through out my body an...

Read More...

PM revision 26th Nov

Hi all, Monday I had my PM changed for a new one, with one new lead also being added (the lower chamber lead) The old lead was left in situ as the Doc said because it had been there for 11 years the risk of damage to the heart was to great it was best to leave it.
Whilst the Operation wasn't the nicest of experiences ( the sedative given via the drip didn't seem to have any effect at all ) Any pain or discomfort felt was bearable. Since having it done I feel 100% better, in fact the moment...

Read More...

First Time Here - Question

I was really glad to find this site. I thought there has to be something like this out there. I have a couple of questions but first some of my story- the short version. I have a Medtronic pacemaker model ADDR put in on December 18, 2006 and I am feeling much better. I had spent the previous 18 months knowing something was wrong and doing a doctor route that only added to my fatigue. Why was this so hard to diagnose? I was diagnosed on December 11th with heart block 3. My heart was not just sl...

Read More...

pacemakers and general anaesthetic

i am due to have a small gynacological operation next week with a light general anaesthetic. i have had anaesthetics in the past but not since i had a pacemaker . can anyone tell me if there are any more risks involved or anything else i might need to know. the consultant told me the aneasetist might want to keep me in overnight cas of the pm even though it is only a day case op but i dont see what difference a having a pm makes.im my husbanda main carer and dont really want to stay in just cas...

Read More...

About to have a dual lead pacemaker

I will be have a Pacemaker fitted within the next 6 weeks :( I am a bit afraid of the injections into the chest as I have been told they can be painful. Is this the only pain that is felt during the procedure?

Any advice regarding questions to ask and what to expect would be gratefully acknowledged.
Tessy

Read More...

You know you're wired when...

You have a dymo-powered bike.

Member Quotes

At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!