cardiomyopathy ?

just looking for others who have this and we could talk , i have had cardiomyopthathy all my life and now have a icd .

thanks talk soon...

3 Comments

I have a similar situation

by turboz24 - 2007-12-01 09:12:15

I had an ICD implanted in September for the same thing. I had cardiomyopathy when I was a teenager, never had problems with it until I went in to the hospital with a 240 pulse in Vtach. I have been shocked 2 times since, not for Vtach, but SVT, which I'm starting to think is anxiety related.

You can message me if you want to talk about it, from the ICD (I can't stand how big it is) to dealing with the shocks. The shock itself I think is rather mild, but adjusting and not being worried after it happens is harder.

me too

by PreciousDays - 2007-12-01 10:12:28

I also have cardiomyopathy - no idea for how long. I had a sister who died from it as an infant - but mine was not diagnosed until last year (I was 45) Not sure what support we might be able to offer each other - but you are welcome to e-mail me. I have an ICD -R with bad leads - so .... sometimes I struggle to feel okay about it all. be well. PD

iam not alone :)

by Aztec - 2007-12-02 09:12:55

thanks guys!, i had my first shock the other day since june 07 when i got this which i think was a panic attack ? i felt no pain just a flash of light and ringing ears. Now im worried its going to happen when iam driving or somthing , ive had cardiomyopathy since birth but never was a prob till last yr iam now 45 and iam on inderal, please keep in touch its good to talk...

Chris

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