Most Recent Messages in Coping

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Any suggestions or ideas?

Hello everyone! 

Lately I've had some good days and some bad days. What remains the common denominator is my legs AND when I lie down quickly on my back. Let me explain. Imagine taking an antibacterial wipe, putting it on the floor, and using your feet to scrub the kitchen floor with it. Every time I do the exact same thing I feel horrible after for over an hour. My chest feels like its not getting enough oxygen. I can't explain it. I breathe fine but its just not...

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struggling

HI FOLKS I RECENTLY WROTE TO THE CLUB ABOUT MY RECENT INCREASE IN PVCS WHICH MY GP TOLD ME WAS BECAUSE OF MY ANXIETY. HE SUGGESTED I INCREASE MY LEXAPRO FROM 10 MG TO 20. WELL I DID AND I CANT BELIEVE HOW MUCH OF AN IMPACT IT HAS ON ME. I FEEL LATHARGIC AND TIRED  AND IM REALLY NOT LIKING IT. I ALSO STARTED TAKING MAGNESIUM SUPPLEMENTS TO SEE IF THAT WILL HELP. IVE BEEN ON LEXAPRO FOR AROUNG 8 MONTHS STARTED WITH 5 THEN 10 NOW 20. I FEEL MOST DOCTORS JUST LIKE TO THROW MEDICINE AT YOU. I...

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I think I need to talk to people who experienced the same thing

I got pacemaker surgery 2017, when I was 20. I was unconscious at that time, but soon after I regretted getting the surgery. I can't move on with life like I used to before. I wish I can hear more positive thoughts from you guys. 

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Fast heart rate under a minute

Hello everyone. I have a dual chamber pacemaker for a complete heart block... and there have been a few times during the past year where I'll wake up in the middle of night really thirsty with a dry throat and I'll sit up to have some water but all of a sudden my heart rate will go a bit fast and I can feel my heart pounding on my chest. This usually last 30 seconds to a minute. And maybe has happened like 7/8 times in the last year... I have told my cardiologist and he says that can...

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Confused and overwhelmed

I had my lead revision done on June 30th and feel even more confused and overwhelmed than before.

The doctor came in after they moved me out of recovery and told us that I have been having bouts of high heart rates. He said that he wanted to start me on 25mg metoprolol twice a day. The nurse came in to give me the first dose and said that she was uncomfortable because my BP was so low(running between 95/65 and 113/70). She called the doctor and he called my room somewhat irritated. He n...

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Only 28 Years Old

Hello Friends,

For the past year or so I had been waking up in the middle of the night and fainting. I would get up to use the restroom - and by the time I got back to bed - my heart rate would tank and I would lose consciousness. On July 7th, 2021 I went in for a Tilt Table Test. During my procedure my heart rate plummeted into the 20's, my blood pressure was so low that the machine could not read it, and my heart paused for 20 seconds. The surgeon came in and told m...

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Pacemaker and AFib

Pacemaker implanted 7 weeks ago, have been in AFib several times, one lasting 32 hours.  12 days ago they " turned on" my pacemaker to assist with Afib, I have a new Medtronic that is to recognize when you are in AFib and take control and bring you out of it.  Within 24 hours I went into AFib for about 4 hours, I felt nothing, but?  Then it hit me again hard on Saturday, HR was over 120 felt some pain in R arm and chest area, so I went to the ER.  They observed h...

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scar tissue

Hello everyone, 

 

I was just sat in my living room thinking about pacemakers and I had a thought. Scar tissue caused by myocardial infarction (heart attack) and scar tissue caused by cardiomyopathies can cause electrical impulses that cause potential dangerous arrhythmia. Does anyone know if this is the same as the scar tissue caused by pacemaker leads in the heart? 

If this is the case perhaps this could be a cause of some of my NSVT, or other...

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icd /defibrillator

I had my ICD 2 months ago and I still find the site very sensative , seatbelt , bra strap ... etc

How long before it gets better :( any idea . please help !!

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Four Months Since PM Insert

So after having the St. Jude placed on 02.25.21 I joined this forum and posted my thoughts and fears which the responses that I received were excellent and helpful.  Here we are 4 months later and I still am having some "MINOR" issues. This past Saturday night I was getting ready to go to bed and my heart felt like a flat tire being driven at 100 mph.  I should've pressed the button on the monitor but didn't.  It was a weird and horrible experience. I don...

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Surgery is Monday

Well, my surgery is Monday morning. I just wanted to post some feelings I'm having. Really just a way to get things off my chest. I don't want to burden my wife anymore than I have to. 

Let me start by telling yall (yes, I'm from Texas) about my year. My mom got Covid in January and within 11 days they had to vent her and she had a massive heart attack and passed away. Losing her like that has been so hard. I lost my dad to cancer 7 years ago so now both of my parents a...

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Positive message (finally)

Six months with pacemaker, and I am feeling so positive, I felt I should post something to counter some of the negativity in my early posts. (Go back & read them, boy was I mad!)

I just had a delightful stroll with my canine companion, and felt so good that this time I think I tired her out!

The end of last year I was experiencing pauses & faintness serious enough that I was told I could no longer drive or be out on my own. I was basically homebound. I spent Christmas...

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New PM Strange Case

Hi, New to club. I received my boston scientific multi lead PM on 6/4/21. Still Unbelievable it all happened. I'm a recent 60 yr who had no prior history of any heart problems as well as no family history of problems. my last annual physical in march was clean and numbers were fine (HR/BP), and all EKG's up to that point were good. OK, so my story starts 2 weeks ago when I had my every 5 year colonoscopy and when they were prepping me my HR was 35! and my EKG abnormal. They did the pr...

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Today’s the big first day and I can’t sleep.

I got so many positive messages from everyone and I want to take the time later when I'm not choking back the tears to respond to everyone!  Thanks for all the support and kindness these last five years!  Your friendships have got me through some tuff stuff.  Hopefully this week is not a total hospital nightmare, I will try to update everyone ASAP hopefully with the news that I am officially on the list! I hope y'all are feeling ok these days, we all have are own diffic...

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Pacemaker feels hot

A couple of times a day it feels like my pacemaker is heating up it is much warmer on one side of my chest in the other I have a Medtronic Azur XT. Has anyone else experienced this I put a call out to my doctor but I've  not heard back yet

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Salt...........

Hi agin. I have a question about salt and, pacemakers and CHF.

I understand traditional no/low salt diets are are prescribed for many heart related issues.  However on all my bloodwork for at least the last decade I have had low sodium and low chloride. Realizing how imortant sodium is for body functions, wouldn't restricting salt be detrimental for me?

 

Thanks.

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Breathless

Hello. Everyone ,  Had my Pacemaker fitted 5 weeks ago . Last Friday I had to have the settings adjusted as heartbeat was too low at 52 now set at 60 bpm . I'm also on Bisoprolol 6.25 but still get occasional palpitations, hope the dose doesn't get increased because of the side effects I struggle with .My biggest concern is the breathlessness which happens  after about 50 yards of walking . I was hoping after the pacemaker was fitted this would improve or am I being imp...

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newbie and miserable

Hi all,,,,i was implanted 6 weeks ago,,medtronic bi-ventricuar for SSS and vent tach (at times)  I am having a miserable time sleeping (leftt sided sleeper and left handed too,,,,) I'm still not allowed to swim (i live in fla and always love love my pool activites)   not allowed to lift my elbow above my shoulder or lift more than 5 lbs till JUNE 30th,,,, Is this 'normal' i see so many of you after a couple of weeks to be allowed to 'return' to normal,,,,,,,...

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This too shall pass(?)

I see many postings here about the way the pacemaker feels, asking when will it become unnoticeable, and I do see that the answer is almost always that the sensation is normal & will disappear over time. Yet, here I am with almost the same question, and expecting the same answer--guess I just need to see it in connection with my own experience! Also, I often post with the thought that, if I am feeling this or that, probably many others feel the same & can benfit from the informat...

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So very tired still

Wondering if I will ever get my energy back. I wake up at 5:30 a.m. and by 10 a.m. I'm ready to go back to bed. I am only 57 and feel like I'm 100. I got my pacemaker in April of 2020 and have yet to be able to get my energy back that I had before I feel better because I'm able to actually get out of bed before the pacemaker I can hardly even get out of bed my heart rate was 32 beats a minute. I don't think I would mind so much if I didn't need to go back to work but I can...

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You know you're wired when...

Your device acts like a police scanner.

Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.