Most Recent Messages in General Posting

Positive ANA test

Hi,

I have congenital complete heart block and have been paced since 1998.  I am 39 years old, on my 3rd pacemaker, and lead a very active, healthy lifestyle.  Last week I was diagnosed with Reynaud's Syndrome, and today I found out that the results of my ANA blood test were positive.  My PCP has referred me to a rheumatologist.  The rheumatologist will be in the same large university health system as my EP and cardiologist.

 Are there any other a...

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Cupping Therapy

Is cupping therapy ok? I keep getting mixed answers from various people all of which do not have pacemaker conditions.  Please advise. 

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Pacemaker Manufacturer

Are there Biotronik users in this club, or all Medtronic?

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All of a sudden high pulse on husbands pacemaker

Hello,  My husband has a pacemaker which was installed in April 2020.  It has been keeping a constant 60 pulse but just recently has a pulse of 106 even at rest.  He does have a flutter and this is not new.   Also, ever since having this pacemaker installed he has been having periodic chest pains.  He just recently had two more stents put in but still has chest pains.  They go away with nitro. Doctor said chest pain should go way in time??  and gave him...

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Pacemakers

My doctor advises on a Biventricular pacemaker.. I have several questions before I decide. I can't find the answers on-line. Maybe someone can answer.

Can I pick my own Biventricular pacemaker company and model.? If no, why not?

How can I be sure I am getting the latest model? 

 

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Young People

Hello! I'm Eva and I got my first pacemaker fitted when i was 11, I'm now 22 and have recently had my first replacement surgery. I realised i have never met another person with a pacemaker and I am wondering if there are any other young people on this forum who would like to chat/ exchange stories. Nothing against older people, i'd just love to meet someone around my age who has similar experiences! Bonus points if you live in Scotland :)

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Multivitamin

I learned today that my issue is magnesium and potassium dips. Seeking recommendations for a multivitamin. Centrum silver is not an option.

Thanks

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Iā€™m back

Hi šŸ™‹šŸ½‍ā™€ļø everyone... it's been a longgggg time.. I've been doing great šŸ˜Š I had a few issues with my pacemaker but everything is great. Divorced and finally can breathe. Love šŸ’• you guys 

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heart beat rate

when out walking there i one small incline on route ,ever since rate response was changed heart rate registers way up for one minute on my fit bit ,does anyone else get this 

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Masks

Which masks are you finding easy to breathe in?

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Pacemaker recall

I had my pacemaker implanted November of 2017 has there been any recalls on the saint judes pacemaker? 

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Had a Fall

Had a fall a few weeks ago, seems as though my pacemaker is not working well, been having those black out spells like I had before I got my pacemaker, could it be that I broke a lead or something? Something seems off! 

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Complete heart block to now having a ventricular escape rhythm

I have a damaged heart resulting from radiation therapy directed on my chest for Non Hodgkin Lymphoma in 1995. In December 2018, I passed out a few times and they discovered a complete heart block because sometimes there was no signal going to my AV node. 

At first I was paced perhaps 70-80% of the time but then over time it was 100% ventricular pacing. However, I have been continually going to the EP to get my PM adjusted so that I can get back to my running/cycling, etc. and...

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Newbie

Hi.  I just had my PM surgery on Monday.  One of my leads dislodged and He had to go back in and redo it the next day.  I'm so glad that i found this site especially since this is all new to me.  I was having issues of fainting and then one eay my heart rate dropped into the 40's and wouldn't rise but very little ( unless i did something strenuous like vacuuming).  I went to the ER and they ended up sending me home.  But the next day i received a...

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CRT success rate

Thank you Gemita and Sandoval!

My echocardiogram was done a week ago and I asked what my ejection fraction was and I have to wait to speak to the consultant. I would like to know my previous ejection fraction so I will find out and let you know.Fingers crossed!

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CRT success rate

I have been told that the CRT success rate is much higher around 70%z I had one implanted in May and I feel well. I had an echocardiogram recently and the sonographer said my heart was pumping well.

I wish you success!

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CRT success rate

I've been put on a waiting list for a CRT-D  at Hammersmith hospital . No idea time frame so guessing after Xmas , maybe summer if Covid gets going again.

My question is , now that I'm reading up on it, apparently there is only a 60% - 70% success rate so what happens to the other 30% - 40% ? Is the CRT-D taken out ? I'm not expecting a pre op talk because I didn't get one before my ablation.

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Should I install a PM?

Hi, I'm 43 years old, I have a type 3 heart block, what they call a "complete heart block". This was discovered around 14 years ago and a PM was suggested at the time. I currently do not have a PM.

They've also found that I have a bigger than normal heart (cardiomegaly?). I have a higher than normal ferritin (iron) level - around 300-400, and one time a doctor did a venesection (taking blood out in order to reduce the iron level) he commented that my blood is a lo...

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Mobitz Type 2 heart block.

Can you go from Mobitz type 2 heart block to 3rd degree even though you have a pacemaker?  

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Flu shot

Do most of you get a flu shot .....I do not but thinking of getting one this year

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You know you're wired when...

You invested in the Energizer battery company.

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