Most Recent Messages in Coping

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any help or advice would be great, getting fed up

Hello Again,

I am looking for some advice/ knowledge please. 

For about 3 months now I have been feeling bad, I am extremely tired, lacking energy and motivation to do anything, and I have had almost constant headaches throughout this time aswell. 

 

More recently a few weeks ago, my legs began to ache and really hurt. This pain gets worse when I move around, and nothing seems to be helping the aching and pain. 

I feel weak and tired all...

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Moms with pacemakers? Looking for advice for comfort when managing my LO

My Medtronic CRT-D is not submuscular unfortunately and I am quite petite framed, I have been struggling with holding my son during feedings or just carrying him as I get pains in my shoulder, and he keeps accidentally faceplanting onto my device (poor little guy). I also have a port under my skin on the opposite shoulder which he has accidentally bonked against during crying bouts.  I have resorted to wearing multiple layers and sweatshirts to help cushion him if he does faceplant on me...

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Ouch, I am new to the ICD club

Hi all!
About 2-ish months ago I suffered a "cardiac event." Luckily for me, my husband rolled over in bed to make fun of me for making a weird sound. He saw my eyes rolled back in my head and noticed I wasn't breathing. He immediately pulled me onto the floor and started CPR while calling 911. He got me breathing, and luckily I live really close to an excellent heart center. Doctors installed a defibrillator, but we still do not know what caused my ventricul...

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Recent "episode"

Hi All.

I've had a pacemaker now for 3 years. Last night I had a rough bradicardic episode: the PM did cut in and slowly resolved the problem but I felt really Ill with all the symptoms.

I intend to contact the cardio unit at my local hospital on Monday.

My question is, what pulse rate do other members PMs cut in at? 

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Hello from Australia, new to all this

Hi Folks,

 

 I'm a 55year old male and was diagnosed with HOCM about 6 years ago.

It was a shock but did answer some questions as to why I was having trouble exercising (I used to do long distance cycling events), it also put a halt to my hobby of motor racing as they would not endorse my license anymore.

 Anyway three weeks ago I collapsed for a few seconds, stupidly I left it till the next day to go to hospital... Now here I am...

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Newbie

Hi all! I'm new to PMC, glad I stumbled upon it! Brief backstory, I'm 26 years old, I've had 5 previous ablations, my latest being two weeks ago. Unfortunately it put me into a brady junctional rhythm after I was discharged and I was throwing 6 second long pauses every couple of minutes so last week I had a Medtronic dual chamber pacemaker placed. They were able to implant it under the muscle so it wasn't as cosmetically noticeable (which I wasn't concerned about but...

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Daily pacing w/ new defibrillator/pacemaker. Diagnosed with LVNC

My ex-wife is still a very good friend of mine and I'm trying to be supportive because she's going through a lot. When we were married she often passed out and it was always assumed it was just because she had a low ejection fraction etc. When she went to the VA doc (she's a veteran) they never found anything. She's now 45 and this past spring she was told that she has Left Ventricular Non Compaction along with the low ejection fraction. She had a pacemaker implanted before th...

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New Pacemaker

Hi everyone!  :)

After a one-time fainting, I was urgently diagnosed with Bradycardia. It was such a surprise!

I had my PM installed on Jan 11th. I've had a few complications, but recently had it reset.

I feel a bit better, but I've noticed a numbness in both of my thumbs. They are tingly and a little pain.

Has anyone experienced this?

I'm just hoping that it is unrelated to my new PM.

Thank you for the support!!!... so glad I'm not alo...

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Palpitations

Hello everyone,

I've had my pacemaker implanted on October 12 2022.  I was diagnosed with SSS (sick sinus syndrome) with symptomatic bradycardia which caused my heart to pause for 12-seconds.  Trying to cope with this life changing event along with palpitations, anxiety and fatigue. Some days the palpitations are not as frequent as other days and some days I feel fatigue and other days not so much.

I have always had p...

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swallow syncope

  • by 5id
  • 2023-02-22 16:28:43
  • Coping
  • 610 views
  • 3 comments

After TAVR in late October of last year and while wearing a monitor, I had 4 AV blocks with a pause. Only one was diagnosed as 2nd degree and all 4 episodes were within the first week after my procedure.

Now 14 weeks out my electrophysiologist asked that I wear a monitor for 2 more weeks to see how my heart has healed. I trust he is trying to make a final determination to eliminate the need for a permanent pacemaker. Today is my last day of monitoring and this morning while taking ...

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CPAP and Pacemaker

Just wondering if anyone here uses a CPAP machine. Things were great for about the first three weeks, but the last two nights have been a nightmare.I have had the CPAP for years and had no problems. Maybe these are not related but just would like to know if im alone on this one.

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re covid

Hi fellow Pacemakers...I have finally managed to get Covid...day 9 so far...I had thought I was getting better as really only had minor symptons.Today I woke up chesty with a productive cough. It was a bit of a surprise as I had been progressing well. My heart rate PM has been very good at 58 and now shot up to 70, BP is up as well....feeling ok just a little nervous about the next stage.Any advice out there from fellow sufferers..? Thnks Dave

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Hello to my new normal

Hello friends!

My name is Meghan. I am 30 years old and suffered cardiac arrest at the end of October last year. My husband was up having a midnight snack and heard me aginal breathing. He did CPR on me for 10 minutes while he called 911. Once there, the EMT's shocked me and rushed me to the hospital. I was put into an induced coma and when they tried to take me out of it about a week later I had another cardiac arrest. spent a week in the cardio intensive unit where I suffered from...

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Raised Blood Pressure whilst on Digoxin

Sorry to be a pest but its my second day in Digoxin and the first day my BP was normal (122/80) and the second day (today) its shot up to 147/96 and Im panicking a little...is this normal whilst its settling down? I know you have to take an average reading over a certain time but should I be worried about these high readings?

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Smoking cannabis

It's been 2 weeks since I've had pacemaker implant.  Smoking a little cannabis really helps my depression and anxiety.  I asked my doctor  and he said it would be o.k.  He didn't say how long I should. wait.  So my question is - How long should I wait?  Thanks to whomever can help me

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insurance

Good evening!

      My whole life I have been blessed with tricare insurance because of my dad being in the military and then my husband as well, so I have never had to worry about copays or anything like that. Unfortunately, I am about to be divorced and now I need reccomendations on good insurances for people with pre existing conditions and pacemakers like us. If anyone has any suggestions and can also tell me how much you pay in copays for pacemaker replacements, I co...

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Should I get a pacemaker

I recently saw my doctor and through the ECG 12 lead test he said I have trifascicular block.  He said I am a candidate because two of my electrical system are blocked, The third one is open but it could block anytime or never block.  If the third one started to become blocked I would possibly become dizzy or faint the first time . If I was very unlucky and there was a complete blockage which occurs rarely my heart could stop or die.  I am 64 very active by hiking,biking,...

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Paraxysmal afib

Hi everyone, it's 1:30am and I'm at the emergency room for slight case of afib. This was a total shock to me because the last time I had afib is when they detected I needed a pacemaker from sleep apnea. I'm just wondering because I do have anxiety if that might of caused it. I'm just so miserable being here but the Dr said my case was very mild with my heart rate going between 89-105. Hr was 110/70. Oxygen at 97. Can I hear from others experience and how they manage, it would...

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Bumpy Roads--should I change my vacation plans?

I have a Biotronic pm with CLS and just recently noticed minor discomfort on bumpy roads.  I see there are lots of posts with people experiencing similar issues with the pm unnecessarily raising the heartrate.  Our daughter in stationed with the army in Alaska and we were planning to go with her to Wrangell-St. Elias National Park this summer.  The primary destination is the town of McCarthy, the old Kennicott mine, and the Root Glacier, reached by 90 miles of rough a...

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Newbie husband

Hi. My husband who is 77 had a dual lead PM inserted 16th jan. He's had Afib for 4 years with occasional dizzy spells. Takes digoxin and blood thinners. A few days before his op he blacked out and fell and broke his nose. Trip in an ambulance. His heart rate had been as low as 38 and high at 151 all over the place all the time. He came out the next day on a high. Over the moon to get his PM said he felt better already. Next days kept telling me how good he felt. No pain at site all good....

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My ICD/pacer is not a burden. I still play tennis and golf.