Most Recent Messages

Pacs

I was wondering if anyone else has had issues with pacs.  This is the first time I've had them and I'm not sure what started them, but I sure wish they would go away.  Hate the erratic, skipped beats feelings that they cause.  I had been feeling very dizzy, sob and light headed, so my dr had me wear a holter and it showed a very frequent amount of pacs.  He had said that I may need to go on medicine for them.  Anyone know if you can get rid of them with progra...

Read More...

Pacemaker icrtd and microphone

Hi my name is Andrew and am soon to be fitted with an icrtd pacemaker. I am a musician and sing a lot. Is it safe for me to use a microphone. I use sm 58 s mainly folk music. I use a jcb portable pa but mainly on mains electricity. 

Thanks 

Andrew 

Read More...

cycling pacing

I am an active cyclist and  I am finding my hr can only go to 112 and then immediatedly drops to 51 bpm .    I am tired and would like to continue my progress cycling.   I have been to my medtronic clinic where a very nice technician has tried to reset my pacemaker twice.   The clinic does not have experience with someone as active as me.    Does anyone else have this problem?  

Mobitz type 2 heart block Feb 2023

Read More...

Cyclist & active people read

Hi all

I have always been 100% paced in my ventricle yet my atrium has been only about 30% paced. That recently changed to 71% and had been affecting my activity level and endurance when working out in the gym and hiking.
I went in for rate response to be turned on and after a month noticed no changes.

 

long story short the Medtronic rep recently changed my settings completely and it's been a huge help in my active lifestyle!

she told me she doesn't...

Read More...

Aveir LPM implant two days ago

60M. Happy to have found this community. After months of dealing with chronotropic incompetence secondary to an ablation for afib, I had a pacemaker implanted yesterday morning (Aveir Leadless, Atrial). Other than my SA Node, which still produces a p-wave but stalls at around 120bpm, my conduction system is intact (multiple 12-lead ECGs are normal), so single chamber atrial pacing with rate response was recommended and was the approach taken.

The procedure took about 2 hours, a lit...

Read More...

I want my money back🥲🥲

My electrophysiologist recommended Boston scientific  ACCOLADE MRI EL pace maker  due to its long life. 

Got it put in on 6/15/2024

first interrogation on 6/19/2024 showed 15 years battery life

second interrogation on 6/30/2024 showed  11.5 years battery life

comments are spprreciated

                    Rodger

Read More...

Automatic Remote Home Monitoring (e.g. Merlin) Outsourced

I posted before about being informed that Rhythm Management Group in Washington D.C. or Maryland taking over control of my Merlin remote monitor check ups.  Here's what happened. I received an "appointment" reminder for a remote PM check at another hospital's cardiac department. I called my PM clinic, they said I don't do anything, they automatically get it from the Merlin.  Yesterday I  got a MyChart notification for an "After Visit Summary...

Read More...

June's remote quarterly transmission

I knew  my quartely remote tranmission was coming up , was not sure if it would be done before i left for a 10 day vacation.  Thank goodness it was done before.  I had notified my cardiologist  via the patient portal of my away dates.  Who then notified the pacemaker clinic.  When i returned did call the pacemaker clinic to ask for a copy of the log events and the summary page.  Not aware that the clinic is closed on Fridays.  She then called me on...

Read More...

Stinging

Hello everyone,

I've had my pacemaker for three years and no problems until this last few weeks. I get an awful stinging/burning sensation when moving my left arm across my body. Anyone else experienced this? 

Read More...

Key Fob/Keyless Cars

I'm about to lease a new car and it has a key fob. Never had a keyless car and I am wondering if these interfere with pacemakers? 
 

Does anyone own a keyless car and experience issues with pacemaker?

Read More...

Cardiovascular Risk Assessments

I wanted to open up a discussion about the Risk Assessment Calculation tool that doctors use to ascertain our risk of cardiovascular disease or suffering a cardiac event.  

In the UK your GP / General Doctor will put data into an online assessment tool including BMI, Blood Pressure, Age, Other Conditions, Cholesterol levels etc. and the tool will then pump out a number which indicates your risk of a cardiovascular event / disease.  A discussion then takes place regar...

Read More...

PM tested without consent

Hi Everyone,

I had a new Azure dual lead PM placed last week replacing a single lead after I developed 2-1 AV block.

When the Medtronic rep came to my hospital room to test the PM, I asked her not to do anything without telling me. When my atrial lead is tested, I'm symptomatic of dizziness, chest pain and sometimes shortness of breath. They just tested it the day before so I asked that the atrial lead not be tested. She said she would only test the LBBPM lead. 

I w...

Read More...

Recent change in heart rate after extended period with bradycardia

Early in 2023 my resting heart rate abruptly dropped to about 40 bpm (often falling to the mid/upper 30s overnight and sometimes during the day).  I’m currently 63, and for most of my adult life, I’ve had a resting rate in the low to mid 50s, as I’ve been a runner and cyclist since my teen years.

I was diagnosed with sinus node dysfunction, and along with bradycardia, I experienced chronotropic incompetence (heart rate wouldn’t go above 120 during vigorous e...

Read More...

PLSVC - Incidental-oma

During the placement of my PM about 2 months ago, one of the "complications" that they ran into is that apparently I have what is callled a redudant or Persistant Left Superior Vena Cava.  This was one of the main reasons that they were unable to successfully manipulate the leads for CRT device into place and instead went with Plan B of the CAP device that I have (and I'm very happy with -so far).  The EP mentioned it briefly in his brief mtg w/ my famil...

Read More...

ICD Review

I saw my cardiologist last week who did an ECG and said I was in AF and I should have the Rate Response turned off and put on the list for an AV Node ablation (see my post 18th June AV node ablation). This week I had my ICD review. The ECG and the device historic data said I was only in AF once in the last three months and not last week. This is not what the cardiologist had said. The EP doing the review said I was experiencing tachy-brady. This would explain my heart rate frequently going fr...

Read More...

Climbing

Re this sad story,  why would an implanted cardio/defibrillator have meant that he couldn't climb?

https://explorersweb.com/i-choose-climbing-keita-kurakami-dies-on-mt-fuji-after-years-with-heart-condition/

Read More...

Heart beat sensation

I'm almost a year out from getting my PM.  For much of the last year I am very conscious of my heart beating harder than usual even at complete rest.  It feels like it's beating harder than it used to pre-PM.  I'm 100% paced in my ventrical.  Is this normal?   It's not painful but it's weird.  My resting heart now is 70 so it's not high but I'm stuggling to feel ok with this constant pounding.

Read More...

Got Surgery: Aveir Dual Leadless

I had promised to do a write up after my surgery at the Cleveland Clinic which was very long and complex. Just a reminder I am Canadian so this was out of necessity due to poor care and lack of technology at home, including lead extraction volume.

It turns out that the only lead I had working to my ventricle was also fractured, and being pace dependent this could have had catastrophic results. I had had ongoing buzzing as well and was told at in Toronto it was probably in my head (...

Read More...

ICD and CGM - Is it safe

Hey All - this post is mostly for awareness.  Please share if you have similar experiences though

I’ve recently been diagnosed with Type 2 Diabetes.  They finally prescribed a CGM for me.  I was pretty excited because the finger pricking was getting old and painful.

 Last night was my first night using CGM.  Reading though what to expect i came across an article from the manufacturer of the CGM that said it wasn't recommending using yet as t...

Read More...

New wire/pacemaker restrictions

Hi all,

 

it's been awhile since I've had new wires put in and my memory is not that great.

i am looking to geting four leads removed (26 & 16 yrs old) in October this year.

and two new leads and pacemaker placed (hopefully back on left side; non dominant side)

Surgeon said 6-8 weeks recovery.

I plan to check back with him to clarify the restrictions as I'm hoping to be able to go back to work within 3 weeks (with some restrictions...

Read More...

You know you're wired when...

Intel inside is your motto.

Member Quotes

I'm still running and feeling great.