Most Recent Messages in ICDs

help

i just had my medtronic defibrillor placed oct.21,is there anyone havin trouble getin adjusted to it like i am.?im 52 yrs old felmale and live in south carolina.would love in hear from someone with the same problem.

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Galvanic Spa

  • by lbof
  • 2011-11-17 03:11:07
  • ICDs
  • 1436 views
  • 1 comments

Hi, Has anyone used a galvanic spa or had a galvanic treatment by an estitision(sp)

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Fatigue after therapeutic shock?

Fatigue after therapeutic shock?

I have an ICD to deal with some tachycardia. It has not discharged in several years, but did recently (twice within a month),I’m having a some fatigue and mild dizziness after the last discharge, this is new to me, anyone else have this sensation after a therapeutic shock? I’ll be seeing my doctor Friday, to follow up with her,
Thanks all,
Michael

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MRI with ICD

  • by ekt32
  • 2011-11-07 04:11:31
  • ICDs
  • 3301 views
  • 10 comments

The doctors think I had a mini stroke so I have an MRI scheduled for December. I'm terrified to have the test done, though. I'm afraid that the MRI machine will either rip my ICD out of my body or burn me on the inside. I remember before I had my ICD implanted, I had an MRI done and the nurse walked into the room where the machine was and she had keys on her waist and the machine let off this huge alarm sound because of the metal. That, to me, is a clear warning sign to not go into that room wit...

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need ppl to talk to

hello

my name is brenda and i have had my icd for 8 years now but im having a hard time with it, i have bad anxiety about it and would like to have some ppl to talk about this and more stuff

thank you

brenda

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Too much Pain with my ICD

I recently had a ICD implant put in on Sept. 20th it was a month ago yesterday. In the last 2 weeks i have made 5 ER visits , 3 office visits, Catscan, Echo, x-rays, and the makers of my implant check my ICD 3 times. I am hurting under my left brest. I have felt them calabrate my ICD i know what it feels like. And now im feeling like they are calabrating constantly it never goes away. My heart is beating fast staying around 100-105 . But this morning I called my dr. and got we have done everyth...

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15% EF

I have CRT-D, 100% dependent, AV Node Ablation and 15% Ejection Fraction. How does one cope with the such dire circumstances?

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Cardiac Rehab

  • by sonya
  • 2011-09-28 09:09:10
  • ICDs
  • 2114 views
  • 4 comments

I will be starting Outpatient Cardiac Rehab 3 times a week. My Cardiologist thinks this will help my heart muscle. I was just wondering if anyone did this and if it helped. I am hoping that it will get my energy level back up and help my heart muscle. I have Severe Cardiomyopathy, I have had my CRT-D for over a year now. I am also feeling very bloated and my tummy is very tender to touch. I would appreciate any comments. Thanks..

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Hospital stay or Day Surgery?

I had my ICD implanted in 2006, in Oct I will have first replacement. They tell me the leads are fine, but I what I understood would be "day surgery" has become a 3/4 day stay. I am to be admitted to hospital one day, procedure done the next day and then was told to prepare for 2 day stay after that. Anyone else have to stay in hospital?

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Canada to US - health insurance issues

  • by jefff
  • 2011-09-10 05:09:33
  • ICDs
  • 1774 views
  • 1 comments

Hi

I am looking at the possibility to take a job in the US. I am a Canadian & US citizen. Is there any insurance companies I can get US coverage from? I want to retain my Canadian coverage but want to also explore what options are available to me in the US. Now that there is medical coverage for those with a pre existing condition has that helped people with ICD's get coverage?

Thanks

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Travel wait after ICD replacement

  • by jefff
  • 2011-09-10 05:09:31
  • ICDs
  • 1537 views
  • 0 comments

How much time do I have to wait after I have my ICD unit replaced before I can travel and insurance will cover me again. Normally for a pre-existing condition it is 90 days after a change...is that the correct lead time?

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Sept 12th

Having mine put in Sept 12th, my stomach is in knots, the reason is my heart had a viral/baterial infection , left side only working at low 20 des , right side high 80 des, being told the blood is not getting pumped properly out of the left side of my heart , having shortness of breath issues and low energy , my heat rate generally into the high 90 des, becuase of the infection , slow the PM will slow it down and turn up the pumping rate on the left side,

Read alot of low heart b...

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SnowBlowers & ICDs

Hi

I've used a lawn mower many times since I got my ICD. Never had a problem.

Snow season is coming soon and I'm considering getting a self-propelled 2 stage snow blower. Has anyone with an ICD had trouble using a snow-blower?

I know we aren't supposed to lean over car engines beacuse of possible interference. My lawnmower hasn't been a problem but I'm thinking a snow-blower engine is a little bigger and just a little bit closer to the device.

Thanks...

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VT Triggers - Fever or Alcohol?

  • by ekt32
  • 2011-08-18 08:08:04
  • ICDs
  • 2381 views
  • 8 comments

Hey everyone,

I'm 22 years old and I have a preexisting heart condition but I developed VT in April 2010. I had an ablation in July 2010 and my doctors implanted my ICD in August 2010. I have received shocks on two separate occasions. The first was in November 2010 when I was out drinking with my friends, where I received one shock. The doctors concluded that my VT was being caused by alcohol, so I stopped drinking and didn't have any problems. The second time was a little over a week...

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LVAD

Just wanted to know if anyone else has an LVAD implant along with their PM/ICD?  Friday morning I just rolled over in bed and was getting shocked every 2 seconds for a total of 8 events.
Wife called EMS and also the transplant nurse, I was taken to a local ER and was shocked again to restore a correct rhythm, 30 minutes later I was life flighted out .

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AV and VV optimization for CRT

  • by mrag
  • 2011-08-14 05:08:19
  • ICDs
  • 2812 views
  • 2 comments

Has anyone with a CRT ever had an AV Optimization and if so what was the result? This procedure to fine tune your device settings can go by different names. Boston Scientific can call it Quick Opt while I believe St Jude may call it Smart AV. Medtronic may pursue it via "echo optimization."

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recent firing yet again

  • by kcruz
  • 2011-08-12 08:08:30
  • ICDs
  • 1501 views
  • 0 comments

Hi fellows: So I received 2 more shocks from my device for VT and VF, we are doing some changes to medications increasing some and changing some others, we tried to push fluid but had to back off as It started to back up in the lungs. Here is my question to you as I forgot to ask the doc and it will be a few weeks until I see him personally even though I will be having weekly follow ups in clinic. When you have these repeated episodes does anyone know what long term effects it has on your EF?

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Eye tic?

Hello all. In fear of sounding 100% stupid.....I had my ICD installed 2 weeks ago, and for the past 4 days I have had a terrible eye tic (you know, when your eyelid quivers constantly but no-one else can see it!). It is relentless and has never happened to this extent before. Maybe 10 minutes max in the past, which I reckon everyone gets from time to time. I feel dumb asking...but could it be related to my ICD? Karen x

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night time shock

How can you tell if you receive a shock when you are sleeping? I have awakened twice gasping for breath, wide awake and heart beating fast, and sore the next day, bad dreams or?

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Newcomer

Hello all - can I start by saying how lucky I feel to have found this site and how lucky we all are to have the technology that enables us to 'chat' like this.
I had my first ICD implanted 2 weeks ago. I live in Tasmania, the island state that sits at the bottom of Australia. I was diagnosed with Non Compaction Cardiomyopathy 6 months ago and have a recent family history of Sudden Cardiac Death, hence my need for an ICD. The reason it is so great to have all of you to connect with is that...

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You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.