Most Recent Messages in General Posting

Treatment

Hi Everyone,

 

I'm a 25 year old male that got a pacemaker implanted when I was 2 years of age. I am on the search for any treatments to resolve the need for a pacemaker. If anyone knows of anything please feel free to send it my way. 

 

What I have discovered so far is magnesium apparently is great for healing/ repairing damaged tissue around the heart but I am only early in my search and do not know of any proven studies.  

 

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Remote monitoring

Will i get useful information from remote monitoring, implant was in December 

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PVCs

I've been having tons of what I think are PVCs lately.  I don't feel the "hidden" pulse though, unless it's right after the true pulse. If that's the case, I don't see how the next pulse is being inhibited.  I've been  having them while cooling down after walking but recently at random times, mostly at rest. 

They don't show on interrogation reports but only strings of four or more will record.  My device nurse told m...

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Free Health Care in Canada. (NOT)

First off to quote a famous saying. "There is no such thing as a free lunch"

sure I've spent 15 days in the hospital 5 days each, 3 different times, had a lot tests done, had a lot of doctors fawn over me.  Walked out the front door and not had to fill out 1 form or reach for my wallet. 
BUT

I have pay about 30% combined Federal and Provincial income taxes. 
I also pay 13% sales tax on everything I buy at the store.

<...

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Newly Implanted

Hello all! I'm glad I found this site. I've been all over the place with my new ICD. I was implanted a week ago and a week after I had V-tach and the doctors could not figure out why and had to transfer me to another hospital with an mri team that could do one on my heart. I was told before my mri that I had a right branch block and after it they diagnosed me with myocarditis and significant left ventricle damage. I begged to not get the device but the EP doctor said there was no othe...

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update to my high results to Ferritin and C-Reactive protein tests

Wrote to my doctor to ask what the high blood reaction meant.  She wrote back saying  "its a metabolic issue meaning the way the body is working".  Usually diet and how your body is dealing with the food."  I then wrote and asked  "so the foods i eat are causing this problem".  She then wrote and said "only is so far as how your body processes them".

She then wrote and said she usully recomends :green vegetables and lean p...

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Pacemaker decision

Hello everyone.

 

First of all, my apologies for not being good at English.

 

I shared a few posts before to give you information about my disease and to get information. 6 months ago, I learned by chance that I have a congenital heart block and it is now 3rd degree. All tests were done, including Mri. Some doctors said that one day I would have to wear a pacemaker, some said it would be helpful if I had it installed, and some said I could wait.&nbs...

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doctors leaving or reducing their hours

Continuing the discussion of what Lavender mentioned about her doctor leaving.   Had that happen with my GP who sold her practice to a large corpropration.  This corporation only took Medicare Advantage which meant i had to leave since only have regular Medicare. Because our local hospitals got there own hospitalist.  Meant she lost that money from her 5am rounds.  Unfortunitaly she got Covid19.  Decided to leave her practice intirely .

Cardiologist reduced...

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AV node ablation with pacemaker

Hi all, Just found this forum and it's great to read through some of your experiences with a pacemaker. 

I'm a 51 year old male.  I'm due my second RF ablation in February for persistant AF with an EF of 36%.  Been on Amiodorone for over 2 years which kept me in rhythym.  Unfortunately the Amiodorone has given me an overactive thyroid.  

My EP thinks due to extensive scarring above my atrium and right ventricle that the ablation will not h...

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Arm above your head

Hi ya. The doc said to not raise my arm above my head. Why ? And is it until the pacemaker site has healed or longer ?

Thanks for any information 

 

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Pacemaker dependent

I have been wondering has anyone been a pacemaker dependent for more than 45/50 years? 
 

Thank you and hope everyone is doing well 

 

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grandsons pacemaker

My grandson had a pacemaker installed about four months ago.  He is 6 years old.  We are planning on taking him to Disney World .  Any advice on precautions that we might need to take would be appreciated. 

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CRT-P

Hi I was fitted with a crt-p pacemaker as had complete heart blockage and was born with my heart the wrong way round. Just been looking up about CRP/T pacemaker and people say there for heart failure. It wasn't mentioned to me I had heart failure. An take no medication. Wondering if people know about crp/t packers. Thanks 

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How noticeable will my PM be

Hi everyone, 

Recently informed i will need a PM and i have done a lot of research but have a general question, how noticeable will my PM be. I am 38M and average build. I know there are several models but on average what can i expect. 


Thanks

 

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Chainsaws

Hi. Got a pacemaker less than a week ago and have heard that chainsaw and line trimmers are a no go.Please tell me that's not right. I teach chainsaw use in New Zealand.

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Hello again!

Hey there everyone. I haven't checked back in for quite awhile. A lot has changed, but unfortunately a lot has stayed the same as well.

I went to Cleveland Clinic and was officially diagnosed with vasovagal syncope. He cautioned me about taking the pacemaker out like my new EP wanted to do. He said that although it didn't completely resolve the issue, it was likely making the episodes less severe. He also suggested that I come back and be seen by the neuromuscular department and...

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Measuring VO2 max with Apple Watch and pacemaker

I have a watch 7 and it has a cardio fitness function where it measures VO2 max.  I got a Medtronic dual chamber pacemaker 6 weeks ago, and my readings have been going down since it was implanted.  While I see in some of the literature that Pacemakers can impact the accuracy of the Apple Watch's capacity to measure cardio fitness with the health app, I have not seen how or how much it might affect the accuracy.  

Does anyone have any experience with this. 

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EKG Dance (just for fun)

Found this funny video, this answers so many of my questions  ;-)

EKG Dance:

https://www.youtube.com/watch?v=o44dEib8zbg

 

 

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blood pressure

I just got a pacemaker a week ago.  I had been taking Losartan 50 mg for blood pressure prior to the surgery.  After the pacemaker implant, my systolic blood pressure has been normal to low, in the 115-120 range but the diastolic has been somewhat high, 85-91.  So I have discontinued the blood pressure med for right now, but I wonder it the diastolic is high enough to stay on the medication.  The reason I quit the blood pressure med was that my feet have been so cold after...

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To active

Just had pacemaker /defibrillator for a week .is it normal at this stage for a muscle twitch in the left side around lower stomach that wakes me up if I turn on that side .  

Any information is appreciated . Kind Regards Rob Mogensen Australia 

 

 

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