Hey there everyone. I haven't checked back in for quite awhile. A lot has changed, but unfortunately a lot has stayed the same as well.
I went to Cleveland Clinic and was officially diagnosed with vasovagal syncope. He cautioned me about taking the pacemaker out like my new EP wanted to do. He said that although it didn't completely resolve the issue, it was likely making the episodes less severe. He also suggested that I come back and be seen by the neuromuscular department and have the QSART and skin biopsies done. At this point, I'm not able to do this financially but hope to be able to soon.
On November 16th, I was switched to a Biotronik Edora 8 for the CLS feature. A few days later I was reading the manual, and was happily surprised to see a paragraph about PacemakerClub. I didn't realize that any of the manufacturers advertised the forum, but was so happy to see it.
Thankfully, I have not had a full on syncope episode since implant! I have had a few close calls where I had to lay down with my feet up the wall like CC instructed.
Now if only we could figure out the complete exhaustion and muscle weakness, I'd be set. In time, I believe I will have the answers. For now though, I pace myself and do what my body allows. Fighting and trying to do more only seems to make things worse.
You know you're wired when...
You run like the bionic man.
Today I explained everything to my doctor, he set my lower rate back to 80 and I felt an immediate improvement.