Most Recent Messages

Remote Check Notes

Hello All,  I had my second Remote Check for my dual chamber pacemaker.  I don't really understand what these numbers mean.  Is the purpose of this check just to show that the pacemaker is working correctly and how the the battery life is which is 12.9 years.  What does RA paced at 99.6%,  RV oaced at less than 0.1%, HX AF burden 0.1% all mean?  That is all it says.  No other numbers or notes.  Thanks!  Sharon

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New first time PM and overwhelmed

Greetings all. I had my pacemaker put in on March 7 2022. I am one of the ones who was going along thinking my heart was healthy and fine, fell and struck my head, had a complete heart block (still getting used to all these terms) and woke up with a PM the next day.

My recovery has thankfully been uneventful. But my emotions are all over the place: fear, feeling overwhelmed with adjusting to my new health concerns with my heart, and today a little bit of anger about the whole thing. Whi...

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Recent remote transmission question

So I'm 3 1/2 years in with my CRT-P, and post atrial flutter ablation. It appears that I am in atrial flutter for the majority of the time, which is why I am on Eliquis.

The report says "Episodes of AF/AFL shows occaisional undersensing with periods of pacing near max track. Review of presenting rhythm suggests RV paced beat comes before LV impulse. BIV pacing programed 0 offset. "

And then later on, the recommendation is to consider VVIR programing. 

So m...

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trolls

Since tomorrow is April 1st, fools day, hope the trolls and the spammers take the day off.  No need to have those who know how to help others understand about Pacemakers and ICD, waste their time by stressing out how to help those who are only fooling us.

new to pace

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Two weeks after

Phrenic nerve stimulation, a rare complication of pacemaker:... : Medicine (lww.com)

had just about exact complications, and tech provided about exact voltage ajust to cure the problem.......finally feels great, no more body slams (so far!). Removed bandage and a couple of stitches, but never got any instruction about keeping the site clean! :(. Not sre to do normal shower/dry, or?...... Any advice from experience would be greatly appreciated.

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pain after checkup of heart and pacemaker

I am feeling an odd pain around the pacemaker implant site after going for my regular checkup for my heart and pacemaker.  They told me everything was good (I've had my pacemaker since April 8th of 2021).  That was on the 29th and since then I keep having little pains off and on when I move my arm and it's just around the pacemaker area.  Anyone else?

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Fast heart rate all night with biotronik CL S

Hi can anyone help, I got my Cls activated for the first time yesterday after starting off with just basic levels at 60 during the day, 50at night which was an improvement but didn't give me the quality of life I hoped for. I have chronic bradycardia due to brain injury but can mount a good response to exercise, am just not so good sitting still and can't stand in one place without fainting which is why I got the PM.

The Cls function was sold to me like it would be the dogs boll...

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Arrhythmic Storm and ICDs

For the ICD folks who have experienced arrhythmic storm(s) (i.e. multiple episodes of VT or VF over a short period of time 24hrs):

What drugs/actions made it better? What drugs/actions made it worse? What is your current diagnosis? What do you do when you feel an episode might be coming on?

For me:

1.Isoproterenol and overdrive pacing at 90bpm make it better.

2. Amiodarone and Lidocaine don't work. Beta blockers (propranolol and IV esmolol)...

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Struggling with the thought of my battery running out

I often feel like I don't have enough time, as if my batteries will run out and I won't be able to have them replaced on time. It doesn't feel good. 

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Hormones

Has anyone worked with an endocrinologist to understand the if hormonal fluctuations may be causing arrhythmias. I told my electrophysiologist that there seems to be a correlation between my cycle and cardiac events, and he said it’s possible but he didn’t know how to interpret hormone levels. 

I’ve had metabolic panels run in emergency type situations, and nothing has come back out of range. With that said, the timing of my cardiac symptoms and cycle seem su...

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Help for my mother-in-law

Hi all - As I have a heart issue my family ask me advice from time-to-time on things. I am conscious that although I know more than them I do not know on some heart terms, having only suffered one type of heart issue I do not want them to get bad information from me to take back to the GP.

My mother-in-law has palpatations and has recently received the following results from a 72 hour holter monitor.

Sinus Rythm

Frequent ventricular ectopics (1%) with rare...

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Is it muscular pain or cardiac pain?

My pacemaker was sewn into my pectoral muscle one year after original implant because it had migrated too much. Recently I have pain in the left side every time I deep breathe but it doesn't prevent me from a swim or a walk. My cardiologist says he will place a monitor to detect where exactly the pain is coming from. Does anyone have this experience? Thanks. 

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Should I change PM Brand

I had a pacemaker put in about 7 years ago. Medtronic it is good except I am a runner and about a year ago I purchased a Matrix Treadmill. Lately I have been doing training runs that adjust incline and speed depending on HR. I find any time I try to use this feature because of the pacemaker and response time of actual HR, the beginning of programs the treadmill increases speed and pace WAY to fast/up incline. Example at the start of any work out my HR is 60 it takes a while for the pacemaker...

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about to join the team

Will tomorrow is the big day check in early to have the procedure got to tell you felling a little apprehensive

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Dentist Chair

I'm 83 years old and I have been scheduled to have two dental implants. On my first visit to the dentist my blood pressure went up to 200 and the dentist called an ambulance. I stayed in the hospital for several hours. On my second visit my blood pressure went up to 175/110 in 10 minutes. The procedure was cancelled. I didn't fee particularly stressed since I have had dental work done for over 70 years without problems. I have 100% heart block and I'm on my fourth pacemakers. I ha...

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Professional athlete plays with an ICD in his chest.

I'm amazed that Christian Eriksen a professional footballer from Denmark is back playing soccer professionally after having been fit with  an ICD to prevent another bout of ventricular fibrillation that almost killed him 9 months ago in the middle of a match. I thought that rough sports weren't allowed if you have a cardiac device implanted. If this is so, many members of this club that worry about how much physical activitiy they can handle, will be very happy wit...

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abdominal aortic aneurysm screening

I've had a letter to attend an Abdominal Aortic Aneurysm screening due to my age which involves an ultrasound scan and wondered if it would interfere with my CRTD ?

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update to when to turn pacemaker off now on page 2

Just to update everyone his brother passed finally on March 24.  Pacemaker was turned off after hospice got with him on the 22nd.  He had not eaten or drank anything for  nearly 10 days..  Guess his heart was stronger.

new to pace

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Lung function test

Hi all, this is my first time posting, I am on my 7th pacemaker (I am 40 years old), I recently had a health assessment, (a post turning 40 thing, nothing heart related) and I got very bad results on the lung function test. I am not particularly sporty but I am not unfit, and the doc said she thought that maybe all the surgeries I had previously may have affected my lung function, has anyone else heard this? 

I originally had a pacemaker fitted because I had a whole in my hear...

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Phrenic Nerve involuntary abdominal spasms

I have had a medtronic biventricular pacemaker for about 20 months and doing fine except for diaphragm spasms when reclining or lying in certain positions. When  I mentioned this at my cardiologist visit, the medtronic tech was able to adjust the setting on my PM and now the spasms are completely gone!

Has anyone else had these symptoms and had their PM adjusted to relieve the phrenic nerve stimulation from their pacemaker?

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