Most Recent Messages

Cardiac Sarcoidosis

Hi!

Has anyone got cardiac sarcoidisis and is fitted with an ICD? I'm due to get one and was researching a bit online and saw that in some studies they state that patients with CS and ICD's are at high risk for ventricular arhythmias and of inappropriate shocks and device complications..

Is that true from your experience?

thanks for any input on this

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Happy Pi Day !

Happy Pi Day to all fellow numbers geeks !  And to anybody who finds this day a fun reason to bake or otherwise enjoy a pie and appreciate its beautiful symmetry.

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herbal tea

is herbal time like sleepy time  ok to drink?

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Dizziness when standing again

Evening all

I'm now getting lightheaded when standing from crouching. I was fitting skirting board today and it was quite hard as every time I stood up I felt it.

I spoke to the EP on Friday after sending a download and he said it was not the pacemaker. He said I might have low blood pressure.

Never had low blood pressure in 45 years. Never felt dizzy when standing in 45 years so it is extremely likely to be the pacemaker settings but he stated he so no reason to change...

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Problems

Had pacemaker implant Oct 2020 and have had at least 6 adjustments! Having dizziness and feeling that my heart is beating loudly and weakness feelings. Asked nurse to check if any events had shown up from the monitor that is by my bed! All looked ok she said! Why am I getting these symptoms  if nothing is showing! They come on with no warning and I am not doing any strenuous activities. The reason for my pacemaker is bradycardia and sick sinus syndrome! This is a scary situation for me!...

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Multiple electronics in close proximity

New member here who just found the club.  I received my first pacemaker almost 25 years ago at the age of 15, am non-dependent, have done great ever since, and had my 4th device impanted last May.  Recently though, I have had a wierd, random problem I am hoping someone here may have knowledge on.  

I teach University-level classes and taught remotely during for the past year during COVID, until about a month ago.  During the COVID pandemic universities &quo...

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Semaglutide

Anyone here had experience of Semaglutide? I've been offered a slot on a trial (double-blind) on a "Research Study to Investigate How Well Semaglutide Works in People Living With Heart Failure and Obesity (STEP-HFpEF)" and am inclined to take it.

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Any questions?

I haven't been on here in a while, but I have a combination pacemaker and ICD and have undergone both SVT and VT ablations if anyone has any questions about that stuff.  :D 

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PM replacement

I need some advice on an unnusual situation. My PM is going on 9 years and for the past 3 checkups over 18 months - same story, good for 6 mos come back in 3 mos. After last check up I never met with the electrophysiologist - but his assistant scheduled me for replacement. On the day of surgery I was prepped (shave, IV etc) and taken to cath lab for total prep and start of "happy juice". The PM company tech now advises the electro Doc that it has 6 months to go and Medicare will not...

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Beginners Help and Advice need please!

Hi all

I am a 62 year old guy and have always been fit and active until about 18 months ago. I started experiencing dizziness, light headedness, balance issues and breathlessness. These got gradually worse and after many scans and tests, my cardiologist suggested a pacemaker as my resting heart rate was around 43.

I had a Medtronic PM fitted on Monday 8th March 2021 (4 days ago) I do feel better as a result, though still far from 100%. I am a complete novice as far as the science...

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Covid vax

Hi all..its been a while since I posted as health has been fantastic.Does anyone know about arrythmia issues and the vaccines available for Covid 19..? Are pacemaker bearers happy with the vaccine and are there any various side effects at all for club members..? chrs Dave

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Pacer has dislodged!

I noticed a bulge near my left underarm area.  Felt like a large lump.  Felt silly going to my heart doctor but he said it was the pacemaker and that I could probably leave it there unless it starts flipping around.  Then another surgery.  NOT what I want at all.  I'm a 77 year old gal and have only had it for a year and a half.  Seems strange it would dislodge.  Anybody else have this issue?  Thanks.  

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Pacemakers and MRI procedures

Has anyone with a pacemaker had a MRI procedure?

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Open heart surgery in patients with pacemakers

Has anyone in this forum had an open heart surgery?

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Site/shoulder discomfort

Hi, I got my pacemaker 3days ago. Im 60 and in very active and want to be completely compliant with my discharge instructions. This is a whole new ballgame for me. How long does the pain in the side last? Everything looks fine I just find it very difficult to sleep in any position but on my back and I'm very nervous about doing anything wrong .Do other people feel this way from the very beginning?

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Weird sensation when sitting in recliner

Hi everyone!

About 5 times now (over the past 6 months or so), I've had a weird sensation while sitting in my recliner. Each time, I'm usually just sitting (very relaxed) in the evening and I feel a quick sharp pain in the area of my heart. I've never had a shock from my ICD, but it almost feels like a very, very short shock. When I get up from this particular recliner, and touch something metal, I often get a small static electricity shock. I wonder if this has something to...

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3rd wire to be inserted

I will be having a third wire inserted into my Biotronik pacemaker to my left ventricle.  I have diastolic heart failure.  Am 79.  Anybody had this done?  My Cleveland Clinic team here in Northern Virginia tells me it is done frequently.  Hopefully will give me a little more pep.

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Hello Everybody

New to the pacemaker/Defib world and thought I would say Howdy!

Got mine on the 16th of February.

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Pacemaker app

Hi guys I live in the uk and I've had my pacemaker in for 10 months now, I was given a Medtronic monitor to place at the side of my bed but I was just wondering if any of you guys have the app on your phone instead. If so how do you get the app and what kind of information does it show.
Many thanks

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Will they let me complete CPET test if I start having NSVT?

Hello all,

Yes I know I have been a question maniac lately and I apologize!  I just have a lot going on, trying to talk to my partner about stuff is like trying to explain calculus to a five year old.  He is smart just doesn't understand all the cardiac stuff, y'all are my people!

I got my CPET moved to the 16th, but I got curious on whether or not they will cut me short if I start having runs of NSVT?  I really need the data from the test as a prognostic ma...

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