Most Recent Messages

Still waiting but a bit of good news.

Hello y'all,

 I wanted to give you all an update that the transplant coordinator had just called me about the nicotine results.  As soon as I told her I use nicorette she told me that was fine, that the positive test result doesn't stop the process if there is a reason for it.  She said she just needed me to confirm I was not a smoker and that checked the box.

The remainder of my labs have come in and nothing showed up that would be a contraindication for tr...

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Pacemaker and hot weather

Hi.  We live in Spain. My partner got his pacemaker 6 weeks ago and says he feels really well.  However, he has nearly collapsed 2 x recently and says its because of the heat and humidity here. He did recover quickly. He also has had hiccups 2x at night. First time just 2 his second time it was 4. Should I be worried? Should I inform our doctor?

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PHILLIPS SLEEP APNEA MACHINE RECALL

Hello everyone!

It was announced recently that Phillips has recalled a lot of their sleep apnea machines. Apparently the abatement foam is causing some kind of cancer. I contacted the VA today to see what I should do and I was told to stop using it immediately until they come up with a solution. I'm sure they have some kind of contract with Phillips so the turn around time could take quite a while. I am concerned because I have severe sleep apnea and it's probably the...

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B TYPE NATRIURETIC PEPTIDE

I just had this test today and the results are devestating to me, am I too sensetive to it or am I wrong feeling this way?

B TYPE NATRIURETIC PEPTIDE and my results are 858 pg/ml, indicating heart failure, we know I have heart failure, why do the test again and again? Anyone else has been through this hoopla like I am going through it? what is the point of the test? Are they trying to figure out if I am healed from the CHF? or just because?

I am feeliing fiine, no pain, the racing...

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Small frames and sub muscular CRT-D

Ok so over 2 weeks abdominal explant and the shoulder sub muscular placement of my icd.  All the swelling is gone and it's healed up wonderfully.  Problem is the dang thing hurts anytime I move my arm/shoulder, try to lay on that side etc.  Docs say it's my small frame and that I am just going to be uncomfortable until it comes out.  Using ice packs and Tylenol but it seems to be getting worse not better, for example muscle cramping around the shoulder joint.  ...

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Teenage daughter preparing for possible pacemaker this summer

Hello,

We have been in the process of figuring out what is going on with our 16 year olds heart. Currently on our 3rd opinion and so far the first two electrophysiologist have agreed that a pacemaker is needed. She is asymptomatic and stable. We happened to find out about her low heart rate at a well child visit. The dr dont have an official diagnosis as she doesnt seems to have a complete heart block but it is too sporadic to be benign. She is a cheerleader who does stunting, loves eve...

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Security body camera

Can anyone help, I've tried to contact the manufacturers regarding work issued security body camera worn around neck and if it's safe with a pacemaker, but no luck, work has tried to find out too but no luck. Understandable the pacemaker tech dept UK is very busy at the moment. 

Has anyone any experience with  Edesix body cameras. Cheers everyone 

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Protection while biking

Prior to getting my pacemaker a few weeks ago, I was an avid cyclist. Looking forward to getting back on my bike soon.
Can anyone recommend a device/shirt/vest to protect the pacemaker from possible bumps?

I've seen the vital beat and pace guard devices advertised online. Does anyone have any expeience using one of them?

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Pacer/defibrillator

I just got my pacer changed out for a combo defibrillator.  They also put me on Amiodarone.  I am so scared of the side effects.   I am 4 days on it and am so depressed and feeling like crying all the time.  I'm 59 and fear this is my life from now on.

Anyone have experience with this drug?

Thanks

JHF

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lead dislodgement

Hi I got my first pacemaker last week. I was told not to lift anything heavier than 20 lbs or place my arm over my shoulder for a month. I am 42 and have a 5 week old baby. The baby weighs just over 10lbs and I have been mainly carrying him on my right arm and only using the left to make sure he doesn't fall.

When I sleep I often extend my arm over my head when I sleep on my side. Since I have had the pacemaker in I have involuntarily brought my arm up over my head twice w...

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Recent first Pacemaker and sore throat

Hi I got my first pacmaker last week and got some very strange sore throat that won't go away. It's almost as if it was bruised in my throat during the surgery but it's a feeling like I have never experienced before and I am wondering if anyone has had this, if anyone knows what it is, and whether or not I should be worried about it.

Thankyou

 

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Not able to breathe while lying down on bed in any position

Hi there, My dad had pacemaker implantation one month before and after that he started shortness of breath when we was lying on bed in any position. We had xray , blood test and ecg and all looks normal. Doctor says its after effect of pcemaker and asking us not to think too much and try to ignore and it will go awa with time. I just wanted to take your opinion as well on this one, any suggestion will be really helpful. Thanks

 

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pacemaker

Do pacemakers and hearing aids get along?

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Polar verity HRM

Ordered one of these through Amazon so I can return it if necessary. Arm band that uses LED's instead of electrical impulses. Was wondering if anyone else has tried one of these?

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I’m tossing a current resting ekg in photos…

Not feeling good today after the diuretics, clearly tachy but that's not out of norm for me.  Trying to determine if I have low k or low magnesium.  I can't find the u waves maybe someone might have insight.

Thanks all!

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Procrastinated for far too long

Good afternoon everyone! I am new to this club, just joined up 3 minutes ago and I am very excited that this place exists!! I have so many questions and am very interested in getting to learn things here and there from people that have gone through similar things as myself. My name is Wanda, I am 33 years old and live in Florida. I had open-heart surgery in December of 2015 and soon after had a Medtronic pacemaker implanted in early January of 2016. There is a HUGE issue though and...

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pacemaker

Hello,

I'm new here and am so happy to have found this group. My pacemaker was inserted 4 weeks ago. I'm still having pain around the pacenaker and in my left shoulder.  Is thia normal? Its tolerable but worriedsome.  Is this normal? 

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Panicking

So I am an ex smoker for 2 plus years who still uses nicorette aka Nicotine Replacement Therapy.

I have never hid this fact from any of my physicians and even during my transplant eval mentioned it to them several times.  It is also listed in my electronic medical records.

I know that most transplant centers require abstaining from tobacco products, and knew that I needed to be clear that I use nicotine replacement.  I assumed if they were concerned about this they would...

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Almost on the list!

Just a short update:

Had my final appointment today for dental exam and clearance which thank goodness I passed with flying colors (and my teeth are super clean, had put off dental cleanings during covid and I was well past due). 
 

Aside from a double booster vaccine from a nurse on Monday all my tests are done, I have been watching them come in online and although I am not a doctor I can safely assume with my knowledge and understanding that I am likely all cleare...

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Update - PM evaluation

I recently had a PM evaluation here are some notes I received. I am scheduled for the UPGRADE PM SING,DUAL,OR CRTP TO CRTD; 33233+33249 on JUly 12th. My symptoms are still post-ecertional fatigue, exhaustion, edema and, muscle loss and weakness. I am a bit discouraged in finding out the PM is functioning  properly, it means something else is going on. 

"The only changes we ended up making yesterday were that the activity threshold (how sensitive your device is in sensing...

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