Most Recent Messages

April 10/08 sense brothers surgery

My brother had an implant of the pacemaker and defibrillator. He was told that he would notice an increase in energy that he has not felt sense the decline in his health over a year ago. Instead he has been in and out of the hospital after his implants on April 10th with far less energy then what he had before the surgery and unable to catch his breath. Just walking from his bedroom to the bathroom takes away all his energy reserves and we are talking a matter of only a 8 ft. walk. The breath...

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Why can't I do that?

My husband is only home 2 days a month so I really live alone. I have had my pacemakermaker/defibular for 1 1/2 years. I HAD an above ground pool I really enjoyed....well my husband ripped it up and in the trash it went !!!!!!! He said what if that thing goes off then you drown or eletric shock being in water.....oh I just cried...I love to go yard sales..no you can getting in and out of the car so much..you could make it go off.I use to go to the casino once a month...no you can't the machines...

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Getting my ICD next week

Hi everyone,

I'm new to the board but have been reading some of the older posts and finding them very helpful. I'm 24 and will be getting my ICD next Tuesday. My Dad got his last summer and my uncle just got one last week, so I do know a bit about them, but so far I am the only female in our family to need one. I have HCM and Brugada syndrome. My Dad, aunt, and uncles have HCM but I am the only one who has been found to have Brugada syndrome. I was supposed to have an ablation for Wol...

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Swelling

  • by sll
  • 2008-05-06 11:05:46
  • ICDs
  • 1832 views
  • 2 comments

Hi There - I have a subpectoral ICD implant. However, a big portion of the ICD is sticking out of my chest. My Dr. said that it is the area where the leads are located. Unfortunately, due to complications in the surgery, the entire device is not subpectorally implanted which is why it is sticking out. The problem I am having now is that it is red in that area and swollen and starting to be painful. I was wondering if anyone has ever experienced this. It also hurts under my left breast area...

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Medicine recall

I received a letter from my pharmacy plus a copy of a press release for the recall of Digitek also known as Digoxin in the mail today. These tablets may contain twice the approved level of active inngredient.The manufactors are : Bertek and UDL.
Info number is 1-888-276-6166. It said talk to your healthcare provider about the recall and what to do.
I felt I needed to pass this on just in case you had not been notified yet.

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DO IT YOURSELF EKG

Are you tired of trying to get information about your heart condition from your cardiologist? Well take a look at what's available on EBay.

PORTABLE HANDHELD ECG EKG HEART MONITOR, NEW - Item number: 130220551045

Get the optional USB cable for only $7 extra and it will download the data to your PC and the software which will diagnose the data and give you your condition. The optional software ($35) will include 13 extra different types of arrhythmias. Looks pretty darn...

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DEPENDENCY

ANY ONE THAT IS 100% DEPENDENT ON THERE PACEMAKER. I AM 58 YRS OLD AND HAVE BOTH THE PACEMAKER AND DIFIBULATER. MY FIRST ONE ONLY
LASTED 4YRS,AND MY SECOUND ONE WILL BE REPLACED NEXT WEEK,IT ONLY LASTED 4YRS,AND ONE MONTH

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to linis

i am currently having some dizziness and i am having anxiety i know how you feel about feeling lousy. i pray you get better as time goes by the meds you are on are most likely causing the dizziness.

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anxiety feeling will it go away?

i had icd fire twice a couple of weeks ago . i was put on amioderone and my metropal was increased. i wanted to know if my anxiety will subside and if it is a good idea to take half a zanox a day

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Hi all

Hi had my dual chamber pacemaker fitted 6 weeks ago, it sits on top of my right pec just under the skin. I am already weight lifting at 100%effort but with new routines. I wish to body board etc with my kids is there any kind of padding you buy for protection or is it a case of making something.

Oh and great site,
I had AV block with heart slowing or stopping, it seems good now.
The site is a very valuable source, thank you.

Tony

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Thanks/Post-op outcome

  • by bunnykin
  • 2008-05-05 11:05:46
  • 869 views
  • 4 comments

Hi to all PM/ICD friends who helped pray for my husband, Paul who recently had a large "questionable CA" polyp removed from his rectum; It's been an anxious and traumatic 2 wks for my family, but like we say, everything comes to pass...I'm here to report again.
Paul's operation went well other than some bleeding which the Dr kept him another day in hospital.
There's good news and bad news; The bad one is that the histology report from the tumour was cancerous. The good news is that we...

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21yr old getting a pacemaker..

Hi I am a 21 year old female. I have a condition called IST, and a hole in my heart. I've been on soooo! Many medications, with little to no effect. I recently had ablation surgery and it didnt work : ( My IST is actually worse! The doctors now have informed me that I will be getting a pacemaker within the next month and a half...I'm really scared and was wondering if anyone can give me an insight on what it's like to live with one. Thanks all!

Amber : )

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Continuous underarm, shoulder pain

A few weeks ago, I installed a patio in my backyard which involved moving 30 pavers. Since then my pacemaker has moved and has given me a lot of pain. It probably also doesn't help that I broke the stitch that held it in place about a month after I got it. I called my cardiologist and he referred me to the ER. They confirmed that it had moved, but nothing else was done. The pacemaker clinic at my local hospital also refused to check my pacemaker because I use a different clinic out of town....

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how long will I need physical therapy?

Hi, I'm a 33 year old mom of three. One day, without any prior health problems, I suddenly felt dizzy and fainted. While I was being tended to by EMS and transported to the hospital I lost consciousness several more times. A heart monitor in the hospital detected arrythmia. I got in touch with an excellent cardiologist who had me tested for every possible cause, but could not come up with any. Since the syncope kept recurring while I was in the hospital for several days, and the monitor show...

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Incision Area at 4+ months

It's been over 4 months since PM implant and the incision area still itches now and then. I also sometimes get the feeling of 'pins and needles' (which my cardio acknowledged and said would go away) too. I resist scratching since I know it's not a good idea. The area looks normal. I thought it might be my hair trying to grow back (went through many itchy spells everytime they shaved my chest for Holter monitoring) but it doesn't look like that's the cause. It's more evident after I've done some...

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Anxiety

I'm 52 years old and had my PM implanted one month ago. I"m constantly checking my heart rate and worried that something will go wrong. I have an upset part of most days. I have had one or dizzy spells. Has anyone else experienced this?

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the wand

I showed my card and the lady was rude she started shaking the wand...I kept backing up and said stop.......she said I can wand you below the waist don't worry.....I let her know I wasn't taking any chances.....I had never had my defibular go off...and I sure wasn't taking a chance it would....maybe I over reacted...but it was only out of fear if I did. Was she right as long as she did below the waist I was safe?

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telephone box

It lights up every Monday.....I wonder how fail safe they are....and if something is starting to go wrong will it pick it up?Just wondering if anyone would know? Thank you

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scared that my defibular will go off

I live alone but I do have my emergency necklace....when it goes off are you able to push the button? Some people say theirs have never gone off..
I try to stay very busy all the time...and just live...try not to get into my head about it...but at times it's hard to do. People tell me they admire me because I always smile and laugh...what they don't know inside I feel like crying....but I don't. When I am with my families on outings they watch me like a hawk.....I just don't want to be a bu...

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i'm a new pacemaker member!

Hello to all on this fabulous site!
I recieved my pacemaker on the 16th april 08, i'm 30 years of age and after fainting on the 12th april got admitted to hospital, scared out of my wits. Couldn't believe that I was going to be fitted with one, it was a total shock.
My boyfriend found this site for me and I log on to it on a daily basis now and decided to join.
Think I am still in shock from the whole experience of it all.
I feel better than I did a few weeks ago, but still n...

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I am very happy with mine. I am in the best shape of my life. I lift weights, compete, bike, golf and swim.