Most Recent Messages in ICDs
CRT-D fitted
Hi all, here's my story. In September last year, at 47yrs, I found out that my GPs diagnosis of Asthma 7 years ago was in fact heart failure! I had an EF of 20% (most likely cause was a virus) and no other heart/valve problems but lets face it thats enough!! I had a Boston Scientific CRT-D fitted on December 18 and my EF with the help of meds had gone to 32%. I thought I would bounce back after the operation much quicker than I have. I am able to do more as e...
Dolphins, dolphins, dolphins
Hi All:
Couple months ago I asked the "dolphin" question. There was quite a relay back and forth about different species of dolphins, and some of you actually gave me some good advice on whether I could or should swim with a dolphin. . I went to the Dominican Republic in January of this year. I kissed a dolphin. I shook "hands/flippers" with a dolphin and I hugged a dolphin. They said I couldn't swim with one, but I did what I though...
statistics on ICDs
- by zebrashadow
- 2019-01-24 16:10:50
- ICDs
- 427 views
- 1 comments
How come there seems to be no statistics on al things related to heart conditions and ICD stuff? Almost every question I asked specialist and cardiologist was answered with there are no statistics yet. With computers and new ways of compiling data, how could there not be more info on numbers on this topic? Perhaps all medicine is like that?
Are all pacemaker defibrillators the same size?
- by zebrashadow
- 2019-01-22 11:13:32
- ICDs
- 561 views
- 1 comments
Obviously the smaller the better?
Has anyone researched what is the best thinnest smallest high end unit on the market in 2019? I am only putting in one and I want it to be the best. How do I know my cardiologist is not contracted to a certain brand of ICD that might not be the absolute best?
Shocks and babies
- by zebrashadow
- 2019-01-22 10:56:40
- ICDs
- 477 views
- 5 comments
Getting an ICD as soon as I decide the time is right - next week or in 3 months.
I survived until now I figure I will last a while longer.
QUESTION
If I have the ICD in and for whatever reason it gives me a shock and I am holding a child or a baby, is it strong enough to harm the baby or child I have contact with?
ICD moved?
- by RowanWolfe
- 2019-01-20 02:20:22
- ICDs
- 406 views
- 2 comments
So I just noticed it seems like my ICD has moved a bit south. Wondering if it's okay to wait until the next business day to call my doctor?
9 months later
Thank ypu for your advice. I went to the ER was there for several hours. They told me they dont know whats wrong only the dr who put it in can say whats going on and they made the appt two weeks away. Sometimes i really regret the icd being put in because has been in total alomst 2 years of problems and i am tired. when you get these you cant just get rid of it. The heart becomes dependant and gets lazy so if they take it out it'll cause problems. This just isnt living its more like a bat...
9 months later
For 9 months i complained of pain swelling after 9 months the dr said the icd had to come out due to corrosion and thinning skin. They replaced the icd because during surgery they discovered it was defective. Now they put a different one in subpectorial and i have had no problems for 9 months until this past week. The area is swollen red mark one can feel the unit where i couldnt 3 weeks ago. When i bend over or move my body it feels like its falling. They looked at eray and appears everythin...
Third ICD implanted yesterday
Howdy All,
I had my ICD replaced yesterday, for the third time overall, and the second time down here in Myrtle Beach. They also replaced one of my leads at it was one of those recalled ones and he had enough room in the artery to add it. He cut and capped the original flaky one. Since I play golf about three times a week my EP wanted to get this done before I got any older as the risks tend to increase with age. The only downside is that I’m shutdown from golf for two m...
ICD newbie
- by RowanWolfe
- 2019-01-10 18:23:05
- ICDs
- 457 views
- 5 comments
I am 48 years old, and I just got my ICD for idiopathic ventricular tachycardia in November. I received my first defibrillator shock yesterday. Just saying hi.
omg the itching
when does the itching stop? it's like a cast and with all my blood thinners it's not a good idea to scratch so anyone else have itching from thier site and how long till it went away? it's been 2 full months I'm hoping once me scar goes fully white it will go away
ICD
Today makes 9 weeks post op of my ICD. The last few days I’ve been experiencing some pinching sensation around my ICD. Even when turning my neck, I feel the pinching. I would like to think this far out it should be settled in.
Possibly having an ICD implanted after my 27 year old sister died suddenly
- by everyonebutjenny
- 2019-01-03 16:52:26
- ICDs
- 560 views
- 7 comments
My sister and i are two years apart exactly (she just turned 27 and i just turned 25). We have both had seemingly random syncope episodes our entire lives. We both have had extensive cardiac workups that showed nothing. She died suddenly a couple weeks ago, presumably a sudden cardiac death as her heart stopped beating for no apparent reason. Everything looked normal on her autopsy too. I went back to my cardiologist and he has mentioned potentially putting an ICD in sometine soon. Even...
20 year old female with pain
My 20 year old daughter was diagnosed with a left ventricular aneurysm at birth and followed by a pediatric cardiologist for 20 years. In these 20 years she never had any substantial symptoms (besides some dizziness) that would lead us to believe that her heart condition would cause her any problems in life...until recently. She was waitressing at a small restaurant in town when she went into sudden cardiac arrest. Luckily there was a first reaponder nearby who pref...
Jobs
Well I'm back again. Just had my checkup after ICD implant and all is good. Sorta. Been told I can go find a job but with only half a working heart finding that my options are pretty limited. Nothing too strenuous is quite a gray area. So am asking if anyone can relate and what kinds of jobs can I do. Feeling pretty stressed about now Thanks for any imput, I would appreciate it.
Pinching & Tenderness 7 post implant
Currently going on 7 weeks post implant. My dominant arm is the left, while at work my arm and around the ICD was sore. I feel that the next morning the implant seems a little more pretruding than usual. Also feel some pinching sensation mainly around top the ICD. Is that normal?
Facial burns from shock therapy
Hello. Has anyone experienced “burns” and bleeding after receiving shock therapy? My device shocked me but it also sent a shock thru my face and lips that left me bleeding and red streaks on my upper lip and cheeks. 😱. I have received one other shock in the past 17 years and it was nothing like this one. I have the same leads for 10 years but just received a new device 3 months ago .
Tickling feeling in my heart
Hello everyone,
I am new to this site, also to the new journey of being a patient of an ICD. Currently going on 6 weeks of my ICD being implanted.
This has been quite a life changing experience at my age.
Since my implant I have noticed and also talked my cardiologist and EA nurse about feeling some tickles in my heart. They seem to happen when I laugh or move certain ways. Has anyone else experienced this before?
Thank you,
Melissa
&...
Diaphragm Twitch - After Adjustment
- by Stan Da Man
- 2018-12-08 20:46:03
- ICDs
- 436 views
- 5 comments
Is it normal after installation and adjustment of your ICD to still get the occasional diaphragm twitch? Or, are there people out there with one installed and never get a twitch of any kind?
In the week I've had mine, I always get one when seated (especially at funny angles) and lying down but never standing.
Any advice much appreciated.
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Member Quotes
My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.