Most Recent Messages in ICDs

skydiving

Hello!  I need some help!

Can (am I able to) go skydiving with my Defibrilator/pacemaker with the leads and device still being in tact and safe enough to go without being damaged from skydiving in any way?

 

CAN I GO ?!?!?!?  

Any help will do!

thanks guy's!  I love you all!

-Peter

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Lead fracture

i am currently on my second device. A biotronik implanted over 2 years ago. This replaced my original Medtronic device which I received in 2010, when it reached the end of its battery life. When they did the swap, they 're used the original Medtronic leads. A week ago I received a jolt from my ICD while at work. it knocked me off of my feet. No warning. Not pleasant. I had never experienced my ICE firing previous to this. I assumed it fired for cause. Well a 911 call and an ambulance...

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Ripping sensation/pain

Hiya, 

i had a S-ICD places 10 days ago. It’s been healing lovely and I was finally stopping having pain. However yesterday evening and now today, I get a small painful tearing sensation about an inch from my wound site on the front. This is only if I move my boob or stand up too quickly. It doesn’t linger but I’m worried about it as I haven’t had the pain before. I have my first check up in 2.5 weeks. Could this pain be the wires embedding themselves or hav...

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ICD AND WORKING IN A POWER PLANT

In the fall of 2016 I under went surgery for a broken finger and shortly afterward I went into cardic arrest. The next week I had an ICD put in (The model I have is by Medtronics and it is a Visia AF MRI style) I have had no issues with this unit. The only problem that I have is the company I work for said that if you have a ICD you can't work at the power plant. There have been studies completed and some area's do have a high EMF. I have to stay out of area's that...

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ICD and Amateur Radio distance

  • by AB55
  • 2019-02-18 11:40:36
  • ICDs
  • 503 views
  • 4 comments

Hi,
A member of the family who is 80 is about to have an ICD fitted.

I noticed that the leaflet we have from the hospital mentions HAM/Amateur radio as 'special consideration - maintain 2 feet/60cm from ICD' 

I assume that it means the distance from the antenna and not the radio itself but does anyone know for sure?
He will typically sit pretty close to the radio, probably 1 foot away, but the antenna is half way down the back garden essentially in a tree ab...

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Head

  • by El
  • 2019-02-16 20:02:39
  • ICDs
  • 444 views
  • 1 comments

Feeling in head several times a day of movement that lasts a second or two. Not dizzy and not related to exertion.  Usually while sitting calmly reading or watching tv. Had daily episodes 2 weeks ago  went  now back daily    Biotronic defibrillator/ pacemaker.

 

 

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BP NOT GOING DOWN

  • by GARYD
  • 2019-02-15 11:35:44
  • ICDs
  • 468 views
  • 2 comments

Hello,

I am new here, thank you for having me.  My ICD implant was done 01/18/2019. In brief, I had a heart attack 12/26/17, remained on Brilinta and associated stomach, HBP meds. Echo revealed the 30 % and ICD implant was the route.  Previous to the implant, I was at 12.5 MG of Metoprolol as the 25 was too high. My BP before the surgery was getting higher - Doc put me on 25 once a day. I had stability in my BP initially after the surgery but readings have been 165/117 and not...

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sympathectomy side effects

Hi All:

I have been throught the progression of medications to control my ventricular tachycardia.  Sotolol lasted 2 1/2 years without an episode until a month ago.  Had 9 icd shocks in 45 minutes.  Doctor took me off sotalol and put me on amiodarone.  Nothing since then.  He has suggested doing a sympathectomy to control the VT and thus the shocks.  Does anyone know the downside to a sympathectomy?  Reserch on the internet suggest that most are happy...

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House Insurance

I know I am at risk, having the gene associated with a certain channelopothy linked to sudden cardiac death and my ekg shows what could be called a slight abnormality so I have been recommended by a great expert to get an ICD. But I cannot find any cases of ICD's saving anyone. I have found lots of people getting shocks from their implanted cardioverter defibrillator but know one seems to be sure if it was needed therapy or a malfinction. Niether on line or from my doctors...

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Beeping

Had my ICD fitted in Novemeber.had Cardiac Arrest in December and have felt fine.  The last few days it has been beeping at 10.10am.  I phoned the Cardiac Dept.  to be told it is probably a build up of fluids.  Anyone else had this problem ?

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CRT-D fitted

Hi all, here's my story.  In September last year, at 47yrs, I found out that my GPs diagnosis of Asthma 7 years ago was in fact heart failure!  I had an EF of 20% (most likely cause was a virus) and no other heart/valve problems but lets face it thats enough!!  I had a Boston Scientific CRT-D fitted on December 18 and my EF with the help of meds had gone to 32%.  I thought I would bounce back after the operation much quicker than I have.  I am able to do more as e...

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Dolphins, dolphins, dolphins

Hi All:

Couple months ago I asked the "dolphin" question.  There was quite a relay back and forth about different species of dolphins, and some of you actually gave me some good advice on whether I could or should swim with a dolphin. .  I went to the Dominican Republic in January of this year.  I kissed a dolphin.  I shook "hands/flippers" with a dolphin and I hugged a dolphin.  They said I couldn't swim with one, but I did what I though...

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statistics on ICDs

How come there seems to be no statistics on al things related to heart conditions and ICD stuff? Almost every question I asked specialist and cardiologist  was answered with there are no statistics yet. With computers and new ways of compiling data, how could there not be more info on numbers on this topic?  Perhaps all medicine is like that?

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Are all pacemaker defibrillators the same size?

Obviously the smaller the better?

 

Has anyone researched what is the best thinnest smallest high end unit on the market in 2019?  I am only putting in one and I want it to be the best. How do I know my cardiologist is not contracted to a certain brand of ICD that might not be the absolute best? 

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Shocks and babies

Getting an ICD as soon as I decide the time is right - next week or in 3 months. 

 

I survived until now I figure I will last a while longer. 

 

QUESTION

If I have the ICD in and for whatever reason it gives me a shock and I am holding a child or a baby, is it strong enough to harm the baby or child I have contact with?

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ICD moved?

So I just noticed it seems like my ICD has moved a bit south.  Wondering if it's okay to wait until the next business day to call my doctor?  

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9 months later

Thank ypu for your advice. I went to the ER was there for several hours. They told me they dont know whats wrong only the dr who put it in can say whats going on and they made the appt two weeks away. Sometimes i really regret the icd being put in because has been in total alomst 2 years of problems and i am tired. when you get these you cant just get rid of it. The heart becomes dependant and gets lazy so if they take it out it'll cause problems. This just isnt living its more like a bat...

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9 months later

For 9 months i complained of pain swelling after 9 months the dr said the icd had to come out due to corrosion and thinning skin. They replaced the icd because during surgery they discovered it was defective. Now they put a different one in subpectorial and i have had no problems for 9 months until this past week. The area is swollen red mark one can feel the unit where i couldnt 3 weeks ago. When i bend over or move my body it feels like its falling. They looked at eray and appears everythin...

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Third ICD implanted yesterday

Howdy All,

I had my ICD replaced yesterday, for the third time overall, and the second time down here in Myrtle Beach. They also replaced one of my leads at it was one of those recalled ones and he had enough room in the artery to add it. He cut and capped the original flaky one. Since I play golf about three times a week my EP wanted to get this done before I got any older as the risks tend to increase with age. The only downside is that I’m shutdown from golf for two m...

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ICD newbie

I am 48 years old, and I just got my ICD for idiopathic ventricular tachycardia in November.  I received my first defibrillator shock yesterday.  Just saying hi.

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You know you're wired when...

You can feel your fingers and toes again.

Member Quotes

I just want to share about the quality of life after my pacemaker, and hopefully increase awareness that lifestyles do not have to be drastically modified just because we are pacemaker recipients.