PM replacement with ICD
Hello expert friends,
I've had a PM for bradycardia and complete heart block for three years and learned this week that I have a mutation known to cause PRKAG2, a rare cardiac glycogen storage disease that in some respects mimics hypertrophic cardiomyopathy (indeed, I have a thickened septum). With this diagnosis, my doctor is urging me to have my PM extracted and replaced with an ICD, as PRKAG2 is associated with sudden cardiac death (probability unknown, as there are simply not that many cases available for study). I'm guessing no one else on this forum has PRKAG2, but has anyone had to replace a PM with an ICD? And, if so, did you opt to leave the old PM lead in place or have it extracted? I'm told the choice is mine and am not sure which way to go.
Any thoughts welcome!
You know you're wired when...
Your device acts like a police scanner.
I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.