Most Recent Messages in Complications

Defib

I'm not posting this to concern anyone because I' sure it's rare, My defibrillator shocked me 8 times a little over a week ago duueto a malfunction. I'm having a very hard time calming down over this as it was very traumatic sitting there knowing it was going to happen again and again. It has since been shut off so I was told but my anxiety is still very high and the doctor has put me on medication to calm me but I still cry a lot. Any advice or anyone who has been throug...

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CRT pacemaker

In January I was fitted with a dual lead pacemaker as I had a very slow heartbeat. All was well until May when I collapsed. In hospital they discovered that the left side of my heart was out of synchronisation with the right side.  I was then fitted with a 3 lead pacemaker( CRT)This happens in 1 in 100 cases. I wonder if anyone else has had this experience?

 

 

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Corlanor

I had been on Corlanor after a cardiac arrest/shocks from my ICD in Dec 2019.  I had complained about vision problems after starting the med, but my EP didn't say much about it and I didn't make a big deal of it, as it was listed as a side effect and I figured it was more important to take the med for my heart.  He called me recently and told me to stop the drug immediately.  If you are having vision problems on Corlanor, or if you are taking Corlanor, please speak to y...

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Views on Antibiotic prophylaxis before surgery or a dental procedure

Hi there

I just wondered your views and experiences on using antibiotics before surgery or dental procedure as a precaution to prevent bacterial infections with PMs to reduce risk of infective endocarditis? 

With my PM op they used antibiotics, with my loop recorder insertion they didn't. I've been told by a dentist that it's not normally recommended for teeth extractions, root canal, filing teeth to create space (part of orthodontic treatment) etc, but...

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having problems with newly installed dual chamber Biotronik Edora pacer

i am new to this group and just had my pacer installed thursday July 2nd. I thought everything was ok but a few times during recovery i felt this weird rumbling feeling, i told the doctor and staff about it but they said it was probably normal and was making adjustments... so i went with that, i got released and home friday and contunued to experience the weird feeling events, so on saturday i created a log and started recording when i had the event and low and behold it quickly became obviou...

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Problems with pain and pulsating after pacemaker install

My daughter pointed me to this site after doing a little research to help me with a problem that i have been having since the installation of a pacemaker. After wearing a heart monitor my Dr. contacted me and indicated that I needed a pacemaker.  I had regulalrly missed heart beats and he said that the results were definite and without the pacemaker I was at risk of passing out. I had the pacemaker installed about two weeks ago, and everything seemed to be ok. After o...

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Problems with pacemaker

Hi All had mine fitted 9 weeks ago during worst of Covid.  Was done within a week of being told I needed it without any prior discussion.  Worst experience of my life as surgery was both brutal and barbaric.  Went home same day only to be on way back in two hours with chest pain and difficulty breathing.  Back to theatre as vent lead had moved and punctured wall of heart.  Pain was worse than b4 (sedation didn't work either ) pain was worse than day before as I wa...

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New pacemaker

Hi guys...I'm a 77 yr old man and until recently a fairly healthy old man. About a month ago everything changed! I had a Medtronic pacemaker implanted after my doctor noticed a low heart rate during a monitoring exercise. To quick, too fast in retrospect. But here is where the water gets muddied...whithin a VERY few days of the implantation I started throwing up blood (I know, I know...not connected). But spent most of the next month in and out of hospitals ( three admissions) with low&nb...

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High Heart Rate

Hi 

I'm nearly three years in with my Medtronic Dual Lead Pacemaker - August 2017 for total heart block which lasted 20 seconds in the middle of one night whilst I was asleep and only picked up because I had been feeling faint at times and had a Reveal Device implanted a year before with nothing startling until this! 
 

I wear an Apple Watch which I know some cardiologists say are not reliable for recording ECGs or heart rate reliably. I've be...

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Anaphylactic shock and pacemakers

Hi all I suffer from a severe food allergy to pineapple I am a very new recipient of my pace maker ( I'm 11days in ). I am very curious to see if anyone has experience with this as the 1st treatment for anaphylaxis is huge doses of epienefrin which raises your bpm dramatically ( I have seen mine go north of 200 before being intubated ) the upper level set on my dual chamber device is 140. Not sure I want to have my pacemaker working that hard to keep my heart inline just curious if anyone...

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Post op complications

Hi, I'm very new to this site but I was recommended to come on as I've had a rough 3 months and just need to hear from other people in my situation 

i have had a pacemaker for 10+ years and it has helped me massively. Just before lockdown started I had to have my battery changed and since then I have now had 5 surgeries and been admitted to hospital 6 times (twice was via ambulance). Long story short I was diagnosed with a prevoked DVT in my right arm which runs across to m...

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Hair loss

Has anyone lost Hair/have alopecia after placement of their pacemaker? 

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Pulsating neck

Hi everyone

I had my PM micra leadless implanted almost a year ago in July 2019 and in December 2019 started getting a really strong pulsating neck. It's really visible to the eye and forceful. I'm in the UK, my GP was unhelpful and dismissed this symptom completely without any kind of examination. Not seen cardiologist yet. I have just come across the possibility of valve problems due to damage during insertion of PMs (even leadless ones like mine). Especially the tricuspi...

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Sports

Hi there - 4 wks. ago received a Biotronic 2- leads pm due to a Bradycardie - 3 degree AV block.The cardiologist reassured me that i could continu with my cycling on a 80-85% compared with what i was used to.- have raced on a high level all my life - 71 years old.Yesterday went for my first spin on the road - little scared i admit  ... pm. is fine tuned to a setting of 50- 175 bpm .Q- is it  normal to feel a little lightheaded/dizzy - a feeling i'm having to go through...

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zapping feeling

Has anyone ever felt what I can only describe as a live wire jerking feeling?  It is in the left side closer to middle under my breast.  I can go days without feeling it and then be shopping and it hits which stops me in my tracks.  The duration of the feeling varies as does the jerking motion.  It can happen once and be done or a few times in succession but it hurts and is very uncomfortable.  Since I never experienced this before the PM I assume it is related. ...

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Subclavian DVT - One Year Later

I've been a ski instructor/guide for years, but only worked one winter since my implant joined me last year. For me i've always had more lower than upper body mass, but as COVID struck I saw the opportunity to change that with some easy 5min/day routines and took up surfing.

A month down the line, my left arm started to swell, which I initially mistook for rapid 'gains'. But it turns out that I developed a massive blood clot in my subclavian vein. So far the haemotologis...

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Extraction and replacement

I am having surgery next week to have my whole pacemaker taken out and a new one put in. I am very nervous as I have read taking the wires out of my veins can be dangerous. My pacemaker has been in for 5 years. Has anyone on here had this surgery?

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Persistent Band of Tightness/Pain Since Shortly After Pacemaker Insertion

I am a new member who received a pacemaker six weeks ago for brief periods of intermittent complete heart block occuring infrequently. The pacemaker is set at DDI at 50. I am pacing less than 1% of the time. Beginning within a few days of the pacemaker insertion I started having periods of throbbing heaviness in the substernal and epigastric region. About 10 days after insertion this became continuous and became mildly painful. It has persisted since then.

I have a tight...

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Breathless - Update III

If you read previous posts you will be aware of my complications post PM implant so no point in going over old ground.

Anyway, four months later and after much door knocking, i finally got someone to listen to ME and stop referring / defaulting to tests and manuals etc. So, med professionals if any of you are reading this, for future reference please try HEARING what the patient has to say.

Long story short they made an adjustment (another one) and changed th...

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Not the best update but progress

Hi everyone! 
 

I'm back with some news. This is most likely outside the PM world now but I thought I would still post it. For months I've been telling my doctors I need an exercise test. All of the tests they provided were at rest and my issues always seem to worsen with activity. Anyhow I was scheduled 3/19/2020 for a Cardiopulmonary Exercise Test but it's was delayed due to COVID. I was finally able to take it 6/3 and just as I suspected it revealed so...

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You know you're wired when...

You have a little piece of high-tech in your chest.

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My ICD/pacer is not a burden. I still play tennis and golf.