Most Recent Messages in Coping

PM Discomfort with sleep

My pacemaker is only 2 months old. I am having a lot of discomfort when laying down to sleep. I used to sleep on my left side. When I turned on my right side the pacemaker flips vertically and I have to push it back dow flat. Sleeping on my back is uncomfortable too. There just seems to ne a lot of pressure and some pulsing feelin going on at night. Is this normal? I don't know anyone personally that has a PM so don't know what to expect. Have a chk up scheduled next month. Any commen...

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Zio patch

Just sent back my zio patch hoping finally they can see the issue, last year I had the 24 hour Holter but no episodes other than a 6% pvc burden. I did have four 3 hour Bigeminy and erratic events during this monitor so hopefully I can finally get help. Thanks to my Apple Watch I have been able to see things more clearly. My cardiologist didn't think last year I had enough issues to go to pacemaker even though my bpm is often in the 30's. Events are not consistent but often...

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Heart beats

This is my 3rd pacemaker, and my heart stopped when they were changing it. Ever since I can feel every heart beat 24/7 and my palpitations are more intense is this normal please help

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Worst Timing!

Hi everyone!

For the past few days in the morning I have been having episodes of presyncope, weakness, lightheaded/dizzy, chest burning/pain/tightness, sometimes nausea and an overall sense of panic/anxiety. I don't know if I'm having issues with my heart or it's a panic attack. Sometimes hours later in the afternoon my legs feel weak, I feel lightheaded but it comes and goes. I'm terrified to go to the ER because of this virus but I'm also terrif...

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pacemaker

Hi i had pacemaker on christmas eve 2019  and had first check in march,all is ok.been working hard in garden and took my pulce and it seems to only be running at 52 or 53 beats per minute.is this ok or do i need to get checked out now.My next check is in May.thank you,Martyn.

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Intro - scared

I have a congenital heart defect and I knew a long time ago that it would probably lead to needing a pacemaker at some point.  I have always had this insane irrational fear and I don't even know what it is I am so afraid of. Well I am going to have to figure it out and how to cope with it soon so I was looking at information online and found this forum.  I probably will just read mostly. were you scared?  what were you scared of?  what was the surgery like - i heard yo...

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Newbie with another question

Hello to all:

I've had my pacemaker for going on 4 weeks now.  All has been OK and I'm feeling good, aside from being stuck in my house like many of you.

I'm curious about the monitoring capability of my device. Mine is a Biotronik, but I understand many manufacturers use similar monitors. I've been told that the monitor uploads data to the manufacturer at night and if there is a problem, the system will notify the doctor on file and they will get in...

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LIght headedness

In the last two nights, when arising and going to the kitchen to get a glass of water I was light-headed. They told me I wouldn't have that anymore after having the PM placed. Is this something I should be concerned about? Thanks. 

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My Corona!

Some levity in a dark world:

Location change: <https://www.youtube.com/watch?v=ojrtwXqqc6g>

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New to the pacemaker world

Hey everybody.

Got my pacemaker 4 days ago after 15years of syncope with no knowledge of what was causing it. After having a Medtronic Reveal device put in a year ago I found out I was having constant ventricular standstills of 20-30 seconds and so a pacemaker it is (or more hospitalisations for the concussions when collapsing). 

I know it's only been 4days but currently I'm feeling pretty apprehensive about the device and the way it makes me feel. The implant site it...

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Beyond FRUSTRATED!

Hi everyone!

So I HAD an appointment this morning at 9am to do a Cardiopulmonary Exercise Test to see what else may be causing my shortness of breath and fatigue. Well yesterday afternoon I received a text saying my appointment was cancelled. Needless to say I had a meltdown. I called the VA and with enough pushing I got the tech who does the test on the phone. She told me they are cutting appointments due to the Coronavirus and after reading my file she didn't think...

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Does anyone know where I stand ..covid-19

I've complete congental heart block, a heart murmur, long qt and high blood pressure and I've been fitted with a dual pacemaker paced at 60bpm. How much am I at high risk with these possible new guidelines of 12 weeks self containment files that could be issued by the weekend. My son attends high school and if he goes to school he could bring the virus home or catch it with out knowing being a carrier so the oscillation I'd be doing wouldn't be any use. Can anyone help me out....

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COVID 19

My husband is 67 and has CHF and after today is taking the decision to shield himself from everyone for 12 weeks by staying st home.I know he will really struggle mentally if I move out for this time as I still work and we have bills to pay etc,so I am considering isolating with him to keep him sane but just wonder where I would stand with my employer.We live in U.K and I work for a well known chemist but would they expect me to take it unpaid?-is the government offering help in a s...

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Coronavirus

Am three months post pacemaker and this was done for bradycardia and 3rd degree heart block. Concerned re what is classed as an underlying health condition. The government is talking about the elderly and those with conditions may need to isolate... does anyone know ? Thank you 

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I don’t get it!

Hi everyone! 
 

I'm back again with some updates. I'm 2.5 months post surgery and still struggling. I don't know if it's mental or if it's an actual problem with my heart. Overall I feel myself getting stronger when it comes to exercise but most days I'm still exhausted. I feel so tired I can't stand it! It's like an overwhelming feeling of fatigue. My body feels like it's ran an entire marathon and I've barely done anythi...

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High heart rate 130

I I received my pacemaker December 29th, 2019. This is the first time I've had a high heart rate. I took my metoprolol, my Pradaxa and three of flecainide. I am now just waiting it out. My heart rate was 130. Just reaching out.

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PTSD

Hi All

12 months ago I had a total heart block and in acute care 12 days before receiving pacemaker. It took a good 9 months to recover. I felt like I was playing on deaths door step and if the door opened i would have no control or choice but to go through.  Im 100% paced, my issue is the intrusive thoughts throughout the day of flashbacks. I think I might have Post traumatic stress disorder. Im feeling well enough now, but cant seem to shake it. Any thoughts or suggestions....

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Traveling to Europe next week

Hello,

I will be traveling to the Azores  on March  17, 2020.  Should I be concerned?  Direct flight for departure, connecting flight on return.   I am 66 years old with Bradycardia.

 

(my first post)

 

thanks,

Adelina

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This Club

I just want to thank everyone for the information and support I have received in this forum. I've had my PM for 5 days. I don't know what I would have done without you guys and gals. Thank you! 

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Pacer

 

 

 I love this site I don't feel so alone just thought I say that. 

 

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