I don’t get it!
I'm back again with some updates. I'm 2.5 months post surgery and still struggling. I don't know if it's mental or if it's an actual problem with my heart. Overall I feel myself getting stronger when it comes to exercise but most days I'm still exhausted. I feel so tired I can't stand it! It's like an overwhelming feeling of fatigue. My body feels like it's ran an entire marathon and I've barely done anything. The strange part is that it comes in waves. One minute I feel so tired and the next I'm totally fine. I'm still short of breath as well. It's more like a hunger for air and discomfort rather than a gasping as if you held your breath too long under water. It sucks! I ask myself daily is this ever going to get better? Lately in the mornings when I first wake up and I take a deep breath through my mouth, I feel this odd sensation in my chest. Not sure if it's fluid but once I stand up and inhale again its gone away. The doctors say I'm fine but I still worry. I've seen expert EP's at the VA and an outside EP who graduated from Columbia & Harvard. He was the EP director at Mount Sinai in New York. So I'm not seeing people who don't know what they are doing. To me the symptoms I experience are of classic heart failure w preserved ejection fraction but they don't agree. What else could it be? I did a Pulmonary Function Test and it was boring. There was NOTHING wrong w my lungs. I'm just at a loss here. Everyone here says sometimes it's tweaking the PM settings but what does that even mean? I barely use the PM as it is so is it only for those who are 100% paced? My last report said I was using the PM only 9% of the time. I have Sick Sinus Syndrome. It was intermittent sinus bradycardia during sleep along with pausing (sinus arrest) while sleeping. It never happened during the day, only when I slept. I have sleep apnea but I use my CPAP nightly.
Has anyone else struggled like this? Does it get better? I just want to be back to my old self already. I'm only 39, recently engaged and just want to focus on life, not my health! It's so frustrating. Anyhow that's my rant. I welcome any comments or PM's. Hope everyone is well!
You know you're wired when...
A thirty-day guarantee is not good enough.
But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.