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Most Recent Messages in ICDs
Fear and Depression
I’m 34 years old and was born with a congenital heart blockage. I had my first pacemaker put in when I was 16 months old. Now, don’t get me wrong, for most of my life I never really paid much attention to it. It was just a part of me and I did almost anything I ever wanted. Every now and then, I couldn’t do something like play football, but for the most part I was a normal kid. Then, when I was 27, I was told that I’d need an ICD. It wasn’t so much that they...
Biventricular ICD Implanted and Performing Well!
- by mlbelanger
- 2012-04-19 03:04:54
- ICDs
- 2334 views
- 2 comments
Greetings All,
Just a brief message of introduction. I'm a long-term CHF patient with a mechanical aortal valve and was recently diagnosed with LBBB. I had a Medtronics Biventricular ICD implanted a week ago and have have stellar results so far. My QRS was 180ms before the implant so I was very aware of my heart rhythm.
The procedure went well under conscious sedation. You have have this upcoming don't worry as you will be very relaxed and the time will pass very quickl...
Wireless pacemaker on the way
A device named WiCS (wireless cardiac stimulation) is undergoing clinical trials in Europe.
Read more here:
www.ebrsystemsinc.com/about_us
Medtronic are also busy developing a similar device.
Cheers,
BG
rash on face
well seems another problem has come up...I am on toprol xl and digoxin...I had my pacemaker-defib put in jan 2012...thought everything had kinda settled down..Now I have rash on my cheeks, side of face and on my neck...have been to 4 doctors and noone can decide what it is...I had a biopsy taken thur but will be 7 days until I get the results...Now,,,has anyone ever been allergic to the medal in the pacemaker or to the troprol or digoxin??? they are wondering if it is something to do with the tr...
CRT-D Shock Questions?
- by Ronniecolorado
- 2012-04-13 02:04:29
- ICDs
- 2301 views
- 2 comments
Good Morning,
On February 28th of this year I received my first "shock" in over two years since implant...and within one week the docs gave me all the usual tests and they were all stable...as in, my heart was performing the same as before the shock.
However...it seems since the shock, I'm having more episodes of lightheadedness...either triggered by PVC's or non-sustained VT...they come, go and when they do I kinda just grimace anticipating a shock...and ride it out.
...
Incomplete BiV implant
Hey all,
Had a BiV ICD put in two weeks ago but the pacer for the LV could not be placed leaving me with just a defib. Anyone have this happen? Any experience with getting the LV lead in later? Doc says they can go in through the chest and fix it to the outside of the heart. Does anyone know what they call that procedure? I'm stumped about this. Right now this thing is bulging out my chest and it is starting to ache. I hope to hear some answers.
Thanks,
George in Washing...
st judes riata leads & ICD
- by papaknight
- 2012-04-13 01:04:30
- ICDs
- 1452 views
- 0 comments
Any St judes employees or x employees interested in joining a lawsuit, possibly turning it into a whistle blowers, . We can prove St Judes made up patient records to cover up a faulty system. This could possibly effect over 100,000 patients and save many lives.. Not trying to insult anyone or grab some money, just hping to prevent a family from enduring the horrific family struggle of over 6 years. full story available to any who want it. kirbyknight@hotmail.com
CRT-D
- by raiderralph
- 2012-04-04 06:04:31
- ICDs
- 1321 views
- 2 comments
After a long wait for my surgery the date is set for Friday at 8:30 am. Thank you to all who have answered my questions. I am anxious and ready to get this over with.
left arm feeling wierd
OK, I have always thought my ICD moves some. (Had it for 2yrs) I am now having some numbness in my left arm... from armpit, down inside of arm to my thumb. I believe my ICD has tilted and hitting nerves? I also can feel scar tissue around where the wire comes out the top and turns to right? They say as long as my arm isnt swelling, I should be fine?? Anyone else have problems?
general
- by jorawarrachel
- 2012-04-01 04:04:47
- ICDs
- 1516 views
- 2 comments
hey I'm 16 I just got my ICD planted in mar . 1st & I'm just wondering is there any advice anyone have for me ? I'm really scared & all having this machine inside of me :( its pretty scary and everything is so new , I read all the information my doctor has given me but I want to know stuff from other people with ICDS .
thanks ,
Rachel
Azimilide???
- by Ronniecolorado
- 2012-03-29 07:03:57
- ICDs
- 1556 views
- 3 comments
Good Evening,
I received a call today from my Electrophysiologist offering me an opportunity to be part of a study of an anti-arrhythmic drug...Azimilide.
He said I meet the criteria for the study...primarily because I had my first CRT-D shock on Feb 28...over two years after the implant.
Anyone have experience with this drug or "studies" in general.
I'm told there'd be a 50/50 chance I'd be given the drug or a placebo.
Thanks!
Ro...
Heart Failure
- by Musictherapy420
- 2012-03-26 03:03:32
- ICDs
- 1454 views
- 0 comments
I Have Had My ICD For 4 Years I Have Been Shocked 7 Times I Have CHF My Heart's Ejection Fraction Was At 4% And I Have Been Fighting For My Life But Now I Have Healed My Heart To 55% Ejection Fraction Thru Live Music Therapy It WORKS I Have Been Thru Alot In 4 Years So If I Can Help A ICD Paitent Feel Not So Alone I Am Here To Help!
upcoming implant
Hey all!
I'm signed up to have a BiV ICD implanted in one week. Anyone out there have any words of wisdom? I'm still a bit apprehensive about the whole thing and need advice, guidance, and support. Thanks ahead of time! George in Washington
CRT-D
- by raiderralph
- 2012-03-22 07:03:08
- ICDs
- 1482 views
- 1 comments
I suppopse it is good news my date was moved up today because of the doctors schedule the date now is the 6th
Has anyone been put to sleep for the procedure? What was it like?
magic mesh screen doors with magnets
I need to see if anyone knows this...I ordered a magic mesh screen door which close with 9 magnets,, the instructions say to consult your doctor before using the screen or putting it up to use..because of possible electromagnetic interference...I hate to bother my doctor with this question so thought someone else might be using one of these screen doors...I ordered it from a TV commercial for my patio door....If anyone has had such an experence would they let me know what they have found out..I...
lawn mowers and CRT-DS
I tried to use my self propelled lawn mower this morning...I notice now I feel kinda funny in my chest area...Is it the vibration of the lawn mower...It was in rather tall grass and hard to mow even being self-propelled..Now im afraid to finish the part I was trying to mow...any responses to this ? also can I ride a rider with an engine on the back of it??? thanks
recalls
what are the persise recalls concerning?? ive had one sence 2008 icd-v-268??
cardiomyopathy
I was diagnosed with dilated cardiomyopathy, LBBB, with a EF of 22%. My cardio Doc originally said that he would like to try me on meds for 6 months to see if they would increase my EF to 35% and then I wouldn't need a CRT-D installed but it remained at 22%. I was also told that I could have my CRT-D removed if my EF got up to 35% at least. I noticed some people on here have an EF of 35% or higher and still have their CRT-D installed. My question is was I misinformed about the EF% and what s...
CRT-D
- by raiderralph
- 2012-03-05 03:03:34
- ICDs
- 4601 views
- 8 comments
I would like to hear from people who have a CRT-D. I have Cardiomyopathy, LBBB, and an EF around 20 for years. After the CRT did anyone experience better breathing and energy? How long was the procedure please? I was supposed to go in today for pre surgery but the doctor had to postpone. I am going crazy
Thank you
Left Bundle Branch Block
Is it really nesessary to have a crt-d if you have a left bundle branch block and a heart muscle problem..with ejection of 30%.
I have been told I will still have to take meds...so if I take meds now, why go thru with the crt-d...I have heard they sometimes make you feel worse and you begin to have all kinds of problems...So, why not just take the meds
You know you're wired when...
You can hear your heartbeat in your cell phone.
Member Quotes
My pacemaker has ultimately saved mine and my unborn childs life for which I am thankful.