Most Recent Messages

Insulation break of lead & antibacterial envelope

Hi

i Recently underwent my 5th generator change.

this one was different in so many ways:

1. My pacemaker went into battery power save mode: this is terrible! I started feeling crappy on a Friday and come Monday I got a call from the doctors that my pacemaker changed into this mode on Friday.

2. I then had an urgent generator change on Tuesday (the following day from finding out about the battery save mode being on) By urgent I showed up at 11:30am (as told too) but did...

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California lead extraction surgeons?

Has anyone had any leads removed by doctors in California? 
 

going out of state is not an option for me with my insurance. I am self employed... not sure if any insurance offer out of state care (that is not emergency based)?

 

thanks!

Amy 

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Dizzness and tightness feeling in heart after pacemaker implantation

Hi,

My father, implanted a dual chamber pacemaker (pm) to treat atrial flutter and atrial fibrillation 2 weeks ago, but ever since he is not feeling ok. He still feels dizzy when stands up, when walking normally in flat surfaces and of course when walking on stairs. He feels strains and tightness in the heart occasionally as well. He needs to stay for a while until his situation normalizes. During this symptoms he feels he is having arrhythmia as well. He descri...

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Holiday insurance

Hi, I know holiday insurance has been discussed on this forum before but as I plan to go to Thailand in January I thought I'd see if anyone can offer any advice. I had an ICD implant 5 weeks ago and as I suffer from AF and cardiomyopathy I went on line for some quotes. I want to be fully covered against all eventualities. Staysure quoted £594 for a single trip whilst M&S quoted £245. The insurance details are very similar but I can't understand the difference. Any thou...

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New pacemaker

Not too bad a complication. Before the pacemaker I never had insomnia, but now I have trouble getting to sleep roughly every other night. Wondering if anyone else is experiencing insomnia after implant. 

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Halloween

Hey all, just wanted to come on here and ask if anyone, (particularly from the U.S.) was going to be celebrating Halloween. If so are you going to wear a costume? I'm aware this club is more of an older crowd, but just thought I'd ask. The holiday is less than 2 weeks away, and I have no idea what i'm dressing up as.

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Life post pacemaker

Hi everyone, I'm new to the forum and I've had my pacemaker since March 2023. I'm 34 and adjusting to life with a PM and more surgeries to replace the battery going forward.

I jwant to share my story. I was quite fit in my 20's but I always felt like I had something wrong with my heart. There were times when I couldn't control my heart rate with breathing and at other times I had strange feelings and 'auras' where I felt unwell, like a general feeling of doom...

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Replacement

Thank you ๐Ÿ™๐Ÿป Penguin and Piglet 22 for your reply's ๐Ÿ™๐Ÿป

Piglet22....your experience leaves me feeling disappointed with Medical fraternity past and present ๐Ÿ’ 

I leave in Australia and I  feel lucky that this things {medical} are the best you can hope for in this volatile state of humanity! I was born in Slovenia....came here when I  was 20๐ŸŒผ

My "event" occurred in 2016 basically out of the...

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Replacementโ€™s

Hello all,

it's been a while๐Ÿ˜Š

I have my pacemaker now over 7 years....Medtronic dual chamber Ensura DR MRI {EN1DR01}.....pacing 25% of the time....check up every 6 months with my ET Cardiologist. Occasional  "thud" or PVC. Very fit 72yo woman with zest for life....and  avid reader of the Club no one wants to be part of...but,hey LIFE is okay....lets enjoy it while we can ๐Ÿ™๐Ÿป

So far so good ๐Ÿ˜Š ...my question is in regards of eventual replacement โ‰๏ธ...

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Heart Failure

Has any ones pacemaker caused heart failure?  They believe my heart failure is pacemaker induced from pacing all the time. 

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Amiodroney

Hi, I have a Biotronik pacemaker/defibrillator.  I was on Sotolol for 2 years that controlled afib.  It stopped working and I have just started amiodrone which has terrible side effects.  Anybody had experience with this drug.  Also, when I am in afib my plus stays stable at 70.  One option is to just not take amiodrone and live with afib.  I am 82 with hf also.

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Atrial septal defect

Spent 2 nights in hospital with weakness and shortness of breath Dr thinking maybe light stroke and found a atrial septal defect or hole in my heart that has never been there before Could this possibly be result of pacemaker implant? I'm 63 never been short of breath until last month

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TAVR & Pacemaker

I had a TAVR procedure and pacemaker implant five months ago. I am still not feeling as well as I anticipated I would. I was wondering if anyone else could comment on a similar experience? Is five months not sufficient recovery time?

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Merlin2home EX1150

Does the blue light on the cellular adapter only come on when transmitting or is it suppose to stay on all the time?

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New to this

Hi....I'm a 53 year old male who received a pacemaker this month. Would love to chat with Anyone that knows of these things. Feeling ok. Woke up today with severe shoulder pain on side of pacemaker. If anyone is feel to chat today, I'd appreciate it. Very isolated among who I know. No one understands or can relate. Tytyty

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Avenir Dual Chamber Leadless?

Has anyone got one of these or is scheduled to? I would like to know more about the procedure and battery life, complications?  Thanks so much.

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Rapid Change in Battery Life from June until Present

Hello, has anyone else experienced a rapid change in battery life? I had 2-2.75 years in June and 2 days ago was now told 1.5-2 years.  If so, were you told as to why this occured?  Thanks in advance for responses.

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Pacemaker lead tethered to tricuspid leaflet

Hi, I haven't been on here in ages. 45yo Aussie, 100% PM dependent since my second valve replacement 18 years ago.

I'm on my 3rd generator, but the original leads are still good. Unfortunately one of the leads became tethered to a leaflet of my tricuspid valve at some point early on, and it interferes with the function of the tricuspid valve. As a result I live with heart failure, and after years of being fairly stable the right side of my heart is becoming enlarged.

I hav...

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Medtronic Pacemaker Monitoring

I had a Medtronic pacemaker implanted on 23/09/28. Apparently there are two options when it comes to monitoring the pacemaker. One is a remote monitoring unit that is supplied by Medtronic and the other is an Medtronic app that runs on a smartphone. I was wondering if any members have had any experience with either of the monitoring systems. I would deeply appreciate any thoughts regarding the monitoring solutions.

Regards,

Rufe

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Almost 2 years

Hi 

I'm not far off 2 years since pacemaker fitting ( duel chamber )

I'm now told I'm permanently in AF , but they didnt tell me what it means . They did mention referring me back to arithma nurses ! 

Also during last check up , they said I'd feel a bit light headed! I ended up half on the floor / half on the chair . I remember shouting " s**t " as a kneejerk reaction to what ever they did !! To say I had a wave wash over me is an understa...

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You know you're wired when...

You fondly named your implanted buddy.

Member Quotes

I have an ICD which is both a pacer/defib. I have no problems with mine and it has saved my life.

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