Most Recent Messages

Weird sensations in device area last few days

Hi. First time posting, thanks for letting me be a member of the group. I have a Medtronic ICD for nonsustained polymorphic VT and electrical storm in the setting of stress. Stable, taking flecainide and nadolol daily. Recent checkups and stress tests have been A-OK, and I have mostly forgotten the ICD is there. But, over the last 4-5 days, I am getting random tickles in the ICD area. Sometimes below the ICD, sometimes to the side, etc. These weird sensations only last 1/2 seco...

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Mexiletine

Has anyone taken mexiletine for ventricular tachycardia? It helps stop arrhythmias . Any side effects? Was it effective? 

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Keto Diet

Anyone able to do Keto with their PM? 

I have problems with low blood pressure, but that seems to be my only problem.

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First EP Clinic Appointment

Hello Everyone,

My pacemaker was implanted at the end of June following a 12-second pause.  I have my first EP Clinic appointment tomorrow (following the initial appointment a week after implantaton) and I plan to ask about my settings.  In a past post, Gemita offered some terrific questions to pose and those are on the top of my list. 

My queston today: If my settings are changed, how soon might I expect to feel a difference? 

Currently, my heart rate ju...

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Flying

I have had my pacemaker for a year and a half. I was wondering is safe for me to fly. I know that there are certain precautions I have to take. Still a little nervous about flying. 
greennova

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Syncope Neurocardiogenic with Neuropathy

Hi,

 

I have my Biotronic Edora 8 DR-T for almost 2 years now, due to SSS using it a 100%.

After a tilt test they found that I also have Syncope NeuroCardiogenic, which causes blackouts if I stay to long on my feet. Walking is/was fine

2 weeks ago I collapsed having a Syncope and ended up catching a ride to the ER booking a bed for 1 week for observation.

Of course the PM was working fine, but something is there that they can't find.

I got a Holter...

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Cold

Has anyone gotten a cold while on warfarin? If so what medications do not interfeer with it

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Thanksgiving

Happy Canadian Thanksgiving to all. 
 

🇨🇦🍗

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Question regarding website

How do you reply to other peoples comments on your own forum?

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CRT-D

Everyone, I had a three prong CRT-D implaned five weeks ago.  I never had any heart problems, but was diagnosed with a left bundle branch blockage in a routine EKGin preparation for surgery on my hand.  I was not fatigued, short of breath and had no symptoms.  Now after the surgery, I feel tired, my legs hurt and I am generally anxious at night when I go to bed.  I feel my heart beating.  I have monitoring on my cell phone.  No one has called me about any info my...

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Palpitations & unwell

Dear all, I want to share my current situation as I would appreciate your comments. I am 24 days post op a CRT-D and things were going well for a couple of weeks as I put in a previous post. Then I started suffering from high heart rates of 85-90 with palpitations which made me feel unwell. On the advice of my cardiologist by email, I went to my GP and she advised that I increase my bisoprolol to 7.5mg (and 8.75mg if the HR didn't drop). I stayed the same for a couple of days and this is...

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New Member

Hi everyone my name is Adrianne, I'm very excited about being apart of this club. I was unaware that such community's existed until now. Just some background info from me, I'm about to be 21, from LA, got my pacemaker in 2022 for Bradycardia and complete heart block. 

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Update - Sorta..

Hello,

I hope this message finds everyone well. I had written a post in the Coping section on June 16, 2023. It was called vasovagal syncope, and pacemaker.

 Just to recap it, I went to a second opinion in June 2023 because my first cardiologist in May 2023 said I needed a pacemaker. The second opinion agreed with him that I also need a pacemaker but between the two, I still felt very much in the dark. All I knew was that I had vasovagal syncope and that when I expe...

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Going in for Groin Cardiac Ablation

Hi Everyone, I hope this message finds you well...

Last year I had a pacemaker implanted and now due to Afib factors I am going in 10 days for Heart Ablation through my groin.

Does anyone have advice on what I should expect?

In regards to average hospital stay, pain following procedure and recovery...

To be honest I am stressed about this and when I spoke with Surgeon I mentioned I also had Fybromyalgia so pain is a concern and his answer was "We will give you mor...

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Newby

Hi. Just got a pacer on Sunday night.  Had no clue I had any issues with my heart. No conduction issues I was aware of.  Was bradycardic Saturday evening, didn't feel well so went to the er .  Progressed to a third degree block by Sunday evening. Had surgery at 930 pm with a half hour notice. Not a hospital that had an electrophysiologist there.     My question is, is it normal to feel like I've skipped a beat when I've taken a bite of food, chewed and swa...

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Cost of ablation

Anyone have experience with the cost of an ablation? I viewed my bill yesterday online and was blown away at the amount. Anyone have any guesses or experience?

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Antidepressants and QT prolongation

Hi everyone, 

Still a newbie. Got my PM on July 18 of this year.

Went for a check up yesterday and my cardiologist said that my pacemaker is pacing way more than he expected. I'm supposed to be at less than 10%. I have tachy brady syndrome. And he's very concerned because my QT prolongation is worse.

Taking any prescription meds is a huge deal to me. But earlier this year I realized that I was becoming quite depressed. And having trouble sleeping. I started...

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Pacemaker since 3/2021

I've had my pacemaker since 3/2021. It was sudden, my husband noticed one night out of the blue that my speech was off, I wasn't making sense. He quickly dialed 911. The paramedics came and found my heart rate to be plummeting to 27. I was quickly transported to the hospital and given a temporary pacemaker to "buy time" and then roughly 4 hours after I was in the OR again for the placement of my permanent pacemaker.  I woke up feeling drunk. I don't drink, nor smoke...

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covid 19 vaccine

I have a Metronic pacemaker since 2019.  I had the covid 19 vaccine yesterday  Oct 4,2023, called Spikevax by Moderna US, inc.   Had it at my local gocery stores pharmacy.  The pharmacy tech ask which arm , I said i have a pacemaker.  She then said the right one.  Felt a tiny pinch an she said all done.

On the really short drive home wondered if I got the full amount.  Well i have to tell you about an hour later, had a metalic taste in m...

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Medication

Hi, I am on a waiting list for a biventricular pacemaker and have opted to have the ICD as I was given that choice. Hopefully this will be done before Xmas.

My question is regarding the medication I am on, I am diagnosed with Dilated cardiomyopathy with a left bundle branch defect. I have been on Entresto, Dapagliflozin and Eplerenone for 18 months now. The Entresto dosage has just been upped to the next strength. What do these medications actually do for my heart? I was told that...

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Friends call you the bionic man.

Member Quotes

I live an extremely normal life now and my device does NOT hinder me in any way.