Most Recent Messages

Do I need to see an Electrophysiologist?

My resting heart rate was in the low 50's for over 15 years.  But, I was always told that it was ok for it to be low, so long as the heart rate goes up appropriately during the day. (I had several occasions of wearing holster monitors, etc... over the years). 
 

My cardiologist implanted a loop recorder, this past September, and based on it's readings, said that my HR was not going up like it should during the day. So, less than two months afte...

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Joining

I joined and was told I needed to reply to an email to be a member, but I never got that email. It also says that when someone replies to my post, I will get an email alerting me and I never have gotten anything. Am I a member?

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CRT vs His Bundle

Anyone have some real life expierience with this?  Also, if someone already has found some papers on this topic you could save me some research time ;)

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Managed Ventricular Pacing

Second opinion from you super informed people.

I have MVP active and have a combination of 2:1 heart block, Wenkebach (longer and longer AV gaps leading to a loss of a Ventricular beat)  and a PR interval as long as 400ms. 

Medtronic state the following:

MVP does not wait until the next A-event to detect loss of AV conduction (it learns the patient’s conduction to best adapt to it, similar to Search AV+). If the V-sense is late, relative to recent AV...

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Bi-V and heart function

Its been 6 days I had my ICD with Bi-V pacing and I went on couple of walks around my house (roughly 2.5 miles in 40 mins). There was a slight incline along the path and  my apple watch used to show  around 120 BPM once I get to the top of it.Now it shows just 100. I know its not a lot of data and I kept the same speed.It seems like with Bi-V my heart is able to accomplish more output at less BPM. Anyone experiece something similar? 

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Settings parameters emailed today!

My parameter settings were emailed to me today.

I need to think about what my problems are and then ask a few questions to the EP.

What has completely confused me is that rate response is actually on when I was told is wasn't.

It has an adl response of 3 and activity threshold of Low an Adl set point of 46 and UR setpoint of 187.

I have 2nd degree heart block and a very long PR interval does this need turning off?

Could this in anyway be making exercise harde...

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First visit after having PM fitted - Feeling 'drunk'!

Hi all

I had my PM fitted on 8.3.21. My Diagnosis is for sinus bradycardia (resting HR about 45) and chronotropic incompetence. I know that on implantation, my basic HR setting was set to 60bpm and my mode is set to AAIR-DDDR. At this stage, I dont know for sure what other settings were made. Several people were kind enough to reply to my initial post and, as a result, I have a whole host of questions to ask at my follow-up appointment on the 29th March.

In the two weeks or more s...

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T-shirt ideas

So the second year I had my pacemaker I had a friend with a print shop make me a bunch of tank tops for the gym that said "battery operated" on them.  They became some of my favorite wardrobe staples and now are disintegrating.  I am planning on making some new ones but thought I should come up with some new ideas.  I can't think of a better group to ask than all of you, I am sure you all have some great funny ideas for me!

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His bundle pacing?

The EP wants to try his bundle pacing one me.  Anyone with HFrEF make the switch?  If so did you get any significant improvements in cardiac function? A more difficult question would be did you get a mortality benefit from it or just an improvement in symptoms, or both?

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Jardiance

I am about to start jaurdiance in addition to my many other HF meds.  I am not diabetic and have HFrEF.  Has anyone taken this medication for HFrEF that was not diabetic?  If you have did it improve how you felt? We're there side effects? And what "reasoning" did your doctor give you for starting the medication (if they gave you one)?

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Echo Accuracy

I am going for my annual echo on Thrusday. Just wondered how accurate echos arre in general.  Mine as fluxuated between 42 and 28 the last few years and has gone up and down and up again. I just do not want to freak out if it goes down again.

.

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pacemaker moving?

I've lost 70 pounds in the last 6 months and have started exercising.    I'm getting pain at the location of my pacemaker when I move my arms sometimes. .  It's not my heart, it feels like the devise itself might be moving around some.   Has anyone experienced this?  I will call my doctor in a few days if it doesn't improve.   It's fine when I sit and do nothing.

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Coffee and alcohol effect

I used to be a tea drinker and switched to coffee during the pandemic. I also drink alcohol may be couple of times a month which I have stopped totally since 2021.When I asked my EP about the arrythmias produced by these 2 beverages he said if they cause anything bad  it would be consistent each and every time.Just wondering whats the best course going forward regarding coffee. I already had my last drink.

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About to get a pm

Hey everyone!! 
i am about to get a pm soon, I am very very nervous and scared about the recovery. I have decided that I want to implant the pm in the muscle so I won't be able to look at the lump on my skin as I am very anxious. Who has the pm implanted in the muscle? Can you tell me about the recovery? Is it very painful? How long does it take to recover? 
thank you

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Pacemaker syndrome

I have been having lots of bad symptoms  since I had  my pacemaker implanted in Oct 2020 and am thinking I may have developed Pacemaker Syndrome. Any comments on this would be helpful. 

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Finding the right adjustment

WIth my intial implantation (Aug 2020) it took until October to get the settings so I felt "good". After that I was feeling way less symptoms (I had been dizzy from sun up to sun down). In that transition I changed offices and the new place found a second degree type II block that my PM wasn't set for. Things were good.

In December 2020 I had to have a pocket revision (already) and still wasn't back to work full gusto. Now that I am, I'm having a heck of time getti...

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Do you ever forget you have a pacer?

I have been thinking about something a pacemaker nurse said when I continued to have pain at 4 months after insertion. She said many people forget they even have a pacer. I didn't believe it then, and I don't believe it now. 

I still feel the pacer every day, especially if I do something strenuous, sleep wrong, or get too cold. I see the big lump on my chest every morning, I see the visible veins across one side of my chest, and can see that my arms are different sizes and...

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picking the right cardiologist

Hello everyone ive had a pacemaker for nearly two years and ive had my struggles, anxiety, panic attaks, palpitations, ect. Ive been through at least 4 cardioliogist who really didnt make me feel better about my concerns especially concerning my heart palpitations that i was recieving from time to time. I know i have anxiety and that might be a contributing factor but i wanted to be sure and the other drs would just brush me off. I met this one EP who i was referred to and turned out to be fa...

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After surgery hint

After my PM implantation, I was told to keep my left arm down for 6 weeks, but not to not use it or it would result in a frozen shoulder.  I was concerned for when I slept as I sometimes sleep with my arm behind my head. I came up with a solution. I had a wrist band that I put on my left wrist, then took a bathrobe belt and put it through the wristband, then around my waist. I tied the belt very loose, but it kept me from being able to lift my left arm, but I could move it enou...

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CPET results (looking at you slewyn and crustyg)

So I got my complete CPET results (done for transplant consideration and prognostic marker). I saw the advanced HF/Transplant doc today, he says it's time to start talking about transplant (which I thought was funny because clearly we are already talking about it, it's why we ordered the test.  Some of my results came back better than expected some worse so I am not sure where I stand really.  He drew blood today for antibody testing and pro-bnp as well.  Anyways the su...

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You know you're wired when...

You have a $50,000 chest.

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