Most Recent Messages

Coronavirus

Am three months post pacemaker and this was done for bradycardia and 3rd degree heart block. Concerned re what is classed as an underlying health condition. The government is talking about the elderly and those with conditions may need to isolate... does anyone know ? Thank you 

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Old Pacemaker Scar on Stomach - feels like it’s tearing...

Hello everyone!

i'm really happy to have found this site. My name is Jordan, and I was born with Complex Congential Heart Disease. As such, I've had many pacemakers throughout my life - if I had to give a rough estimate, I had about 5 temporary ones (all in my stomach) before I was 3 years old. Upon turning 3 I was flown to Mott's Children's Hospital in Michigan and had a surgery known as the "Double Switch" performed on me. Honestly, I don't even truly und...

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Recent travel in the times of Coronavirus

Hi! Has anyone with a pacemaker traveled by air in recent days? If so, what precautions did you take? Are we in the "at risk" category for the coronavirus?

Thanks,

Champak

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should i check out ?

Recently in hoso..again. w/pnemonia . let go 3 days later March 3 2020.  Breathing is still not good, coughing up storm. Hurts when i do. Nurse had fever show yesterday and the heart  doc is all over phone as he said  i need heart meds i have A-Fib.  WHAT? ARE you kidding me? Sometimes i feel if was not for this pacemaker , i would not be in this condition. Sept was orgiinal surgery day but had to be  put off as  i had pnemonia ..again. so this makes 4 times.&nbs...

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Pacemaker syndrome/lead out of place 2nd time

I'm home. I was in hospital over night. Im i. Much more pain after this 3rd time being cut open. Everything went well. I am tired and aching and feel feverish but no fever. Is this normal? Last 2 surgery's i was on pain management for years before so dont remember all this. Now my body is crystal clean so it seems much more intense. Only taking ibuprofen. Thanks everyone.

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I don’t get it!

Hi everyone! 
 

I'm back again with some updates. I'm 2.5 months post surgery and still struggling. I don't know if it's mental or if it's an actual problem with my heart. Overall I feel myself getting stronger when it comes to exercise but most days I'm still exhausted. I feel so tired I can't stand it! It's like an overwhelming feeling of fatigue. My body feels like it's ran an entire marathon and I've barely done anythi...

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Tachycardia and Pacemaker

I know my PM causes my heart to beat 60bpm when it slows down. But does it slow your heart down when it is beating too fast? Thanks.

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Surgery? By whom?

Since my EP wasn't able to address my third lead issue, he suggested we get together with a cardiovascular surgeon to place a lead into the heart outside a vein.Anyone here have any experience with cardiovascular surgeons getting involved with their PM and/or PM leads?

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High heart rate 130

I I received my pacemaker December 29th, 2019. This is the first time I've had a high heart rate. I took my metoprolol, my Pradaxa and three of flecainide. I am now just waiting it out. My heart rate was 130. Just reaching out.

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PTSD

Hi All

12 months ago I had a total heart block and in acute care 12 days before receiving pacemaker. It took a good 9 months to recover. I felt like I was playing on deaths door step and if the door opened i would have no control or choice but to go through.  Im 100% paced, my issue is the intrusive thoughts throughout the day of flashbacks. I think I might have Post traumatic stress disorder. Im feeling well enough now, but cant seem to shake it. Any thoughts or suggestions....

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Touring Musicians with a Pacemaker

Hi there.

I've only just joined this group - because until Tuesday morning, I had no need to.

I'm 42, from the UK and I work as a touring musician - principally a guitar player. It's what I love, and I'm so lucky to have made a career out of playing music and touring the world. Last Sunday I played the last show of an Australian tour (which was fantastic) and started to feel exhausted. A few hours later I was in the ICU covered in wires and drips and had received C...

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Young People with Pacemakers

Hi All 

I was diagnosed with a complete heart block whilst still in the womb. After years of monitoring, at the age of 7 the hospital decided it was time for my first pacemaker. I am now 27 and am celebrating 20 years of living with a pacemaker by recovering from my 4th pacemaker implant, which took place on 10th March 2020. 
Since leaving the children's hospital, it has become very apparent that I am always the youngest person either at pacin...

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P wave Asystole

Hi All,

I was wondering if anyone has experience of P wave Asystole,

I have recently received pacemaker due to heart block and my discharge 

notes say that I was having P wave Asystole episodes.

i would like to know if anyone has had same condition and how 

pacemaker has helped,my hope is that I will be able to soon be

back to my old self (if possible)

thanks in anticipation 

Tim

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Blood thinners , pacemaker change and Surgery

Dear members,

Please could I ask you your kind advise and/or opinion? My dad who recenlty started having AF is now taking Eliquis as blood thinner and soon to get his PM battery change. He is 70. He was also recently diagnosed with Groin Hernia (moderate) and is recommended to have surgery. Since now he is on blood thinners his EP recommends getting both surgeries done consecutively as he needs to come off blood thinners and while without blood thinners. The Surgeon who's...

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Heart Rhythm Medication - Exhaustion

I was diagnosed with sarcoidosis last May.  It is in my lungs and lymph nodes and migrated into my heart which caused the ventricular tachycardia events which led to my pacemaker and since then an ablation (little back story there).  While recent PET scans have shown it subsiding in my heart, it is still present in lung area (being treated with immunosuppressive steroids).

To my question...........I have always been quite the active person/dad.  I am thin, always moving,...

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Thresholds and battery life

I've had my dual chamber pacemaker for 18 months. When I first got it I had 8.5 years. I now have 4 years left 18 months later. Is this normal? I will explain. I have a pacemaker for 2:1 AV block. My condition progressed to intermittent complete in July but doctors didn't know until January. We did many adjustments to help with pacing. I could all of sudden feel pacing but it was because my block worsened. So with setting changes it got better. I went from pacing 3...

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Share weightlifting lifts

Hey all- I'm 10 months from when I got my battery buddy and thinking about getting started lifting again. EP says I'm good to go, told me a few "don't do" lifts. 

But wanted to hear from the community what lifts do you do? I'm not looking to be the Hulk, but it would be good to do some lifting (I currently run and play tennis frequently).

If you are willing to share your regimine with me I would appreciate it!

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Bundle block, 3 rd wire “moved”

Just had a 3 wire pacemaker 2 weeks ago

i thought the 3rd wire was to help my left bundle branch 

now it has moved and I have to have an electrocardiograph. I guess to see if I still have the bundle

has anyone else experienced this?

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Swimming

I had a Pacemaker implanted in October 2019. I have had the first check up and all was well and I now use a Latitude device at home.

The technician seemed cagey when I asked if I could swim again - I'm afraid I'm a little scared of damaging the leads. How long did other members wait until  continuing to swim?

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New member - pacemaker installed Fri 3-6-2020

AFTER  pacemaker implant for bradycardia...I had 2 severe episodes of angina....now facing a

cardiac catherization because they found calcifications on the thoracic artery while doing a STAT

CT after angina episode.....a little scared and wondering if the heart cath will goof up the leads on my implant.   Anyone have an answer?   

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You know you're wired when...

You make store alarms beep.

Member Quotes

It is just over 10 years since a dual lead device was implanted for complete heart block. It has worked perfectly and I have traveled well near two million miles internationally since then.