Most Recent Messages

Day 3

What a year, 2020.  Day 3 with my new pacemaker.  Bradycardia.  Bundle blockage.  Still not sure what that means.  I have 2 leads.  I'm feelling pretty good.  I felt a little light headed and dizzy yesterday but today I'm feeling pretty good so far.

I'm glad I found this forum because I suspect its going to be a good resource for information about my new normal.  Sounds like there is a lot to know about this device and my health.

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Post PM op

  • by Abs
  • 2020-08-30 09:40:57
  • Coping
  • 147 views
  • 5 comments

Hi

Im so happy I have found this group, this is truly amazing 😉 

I've had a CRT-P fitted 12 days ago and have notice these last 3 days that my heart rate is pacing up 120bpm on basic walking around without strenuous activity. My device has been set to 70bpm so when I'm walking it does feel uncomfortable as I can feel my heart pounding away.

is this normal?

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Fourth Day Pacemaker

I am not sure if what I am feeling is real or not. I seem to have a lot of tightness in my neck muscles mostly on the side of the pacemaker. A hollow sensation in the middle of my chest, headaches, and I have no energy.

I have expressed these concerns to my physicians's nurse, not sure if the information is getting to the doctor. the nurse doesn't seem concerned. Should I be?

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Nuwave induction stove top Electric magnetic

Anyone have any info on the Nuwave oven as being an issue to a pace maker?

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Changing Drs.

I have Bradycardia and have lived with afib for more than a decade.  So far, I've had two ablations and two cardioversions, the latest about three years ago.  I'm now in afib again, and all I know at this point is that my PM is prompting the ventrical to beat.  My current cardiologist (not an EB) concealed from me this fact when a remote download showed it.

I've no idea what my resting HR is, as we set my PM to prevent rates lower than that.  When I...

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bra

What kind of bra is recommended for dual pacemaker for a small frame person?

 

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PM and AV node ablation - will I still need anti-arrythmics?

Hi All, 

Please excuse the waffling.

I had my PM on the 10th of August and after a call with the EP yesterday I realised I'm to have an AV node ablation at some point.  My next (phone) appointment with cardiology is on 14th September, which will be a year and a day since my first AF diagnosis.  

The Gizmo and I are getting settled, but I don't feel that wonderful and I think I'm still a bit overwhelmed by the journey so far.  It has...

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New to this

I had three episodes, over three months, of what my cardiologist labeled, "heart pauses", I blacked out. With the third episode, I decided to go to the ER. As I was already wearing a heart monitor my cardiologist officer was alerted. They called just after I arrived at the ER. They said I had a pause of 8 seconds. To me, that is a long time in heart time. My cardiologist met me in the ER and said "We need to do a PM" I said "When", he said "Now" I went...

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Relocation?

I spoke via Zoom with my cardiologist this past Monday. One thing he expressed concern over, and yes I've had some problems with this, is how high up my device is. In truth, I can feel it hit my left collar bone when I am at work. I have had my device about two months now and am getting used to it being part of my life. However, when I move my left arm, there is some discomfort. My cardiologist suggested that perhaps we should consider having it moved down and little more to my left. Has...

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Hyperbolic oxygen therapy.

I had a biotronic P.M. implanted about four years ago and have had no issues. Recently had some other medical issues where I need hyperbolic oxygen therapy. To my surprise Biotronic does not recommend this treatement with their devices. Was wondering if anyone in the club has run into this issue and what they did about it. I am considering changing the device to a company where this treatement is acceptable. Any information would be helpfu.

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Medtronic Settings for athletes with Sick Sinus tachy Brady?

Hi I am a 51 year old female who loves to run, lift weights, bike and do Pilates.  I am confused about the rate response setting and wondering if there are any other settings that might help someone who is very active? After the first day having my PM I felt great but didn't like that I would go to 110 just causally walking a hill so they said they could turn that of RR and they did.  Well today I don't feel as much energy and more tired and thinking I made a big mistak...

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Contemplating AV Node Ablation and Pacemaker

Hi everyone.  I'm new to the group.  I'm 78 and active, but have had 3 unsuccessful ablations and am just sick of feeling my heart do it's continual acrobatics.  My little circus is a lifetime of Afib, extra beats and tackycardia, and also brady and longer qt intervals at other times with HR in the 50s.  It all seems to be diet related, because I have so many food and chem intolerances that set it off.   I also feel like I'd go down quickly w...

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SSS/ vasovagal syncope without atrial lead attached

Hi,

This may be a bit long so please bear with me. Does any one have expertise with Sick Sinus Syndrome, sinus pause and vasovagal syncope without the atrial lead hooked up?

i got my third pacemaker implanted 3 weeks ago, I'm 34 years old. The plan was to get the new PM along with remove the old leads. The old leads had been in 15 years and we knew at least the atrial lead was very damaged. When the surgeons got in there it turned out it was much more complicated than they exp...

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Vibrations

Hello,

My name is Santiago and i've had a pacemaker (Medtronic) for a while now but i still don't fully understand the limitations that this implies. As my cardiologist always told me, i have to keep my cellphone away from my chest and on the other side pocket of my pants, i don't know why is this but i do it anyways.

Today i've bought a fitbit that tells me my heart rate all the time but it vibrates with notifications, i wear it in my left hand and i'...

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Nursery Toys

Hi everybody, I'm pretty new to this club. My little boy (10 months) has a Pacemaker fitted and is starting nursery next week. They have asked for some advice on toys that he shouldn't play with, our cardiologist said nothing electronic. Does this mean nothing at all with a battery? 

Thank in advance for any advice at all. 

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RE Low HR

Hi I'm 54 and have had a dual chamber Meditronic PPM in place since Dec 2018 which was inserted for 2:1 heart block. The same week I had an Occlutech occluder device inserted via my groin to block a 3cm hole between my two upper heart chambers. I had some residual right sided heart failure and my cardiologist started me on a tiny dose of Bisoprolol 1.25mg.

In September 2019 I found out I had an inheritable form of high cholesterol (Familial Hypercholesterola...

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It really is failing

Well, I had a remote test last Sunday. I knew something was wrong.  BP went out of control on Saturday. No matter what I did pulse rate was 65. I forgot how tired I was pre PM. Monday morning call to the Dr that is replacing my PM.  Before Dr office called me back the device center that I sent my test to on Sunday called me.  She said my pm was at end of life. I said that was not news to me. Dr office called back have my appt to replace on 9/3 .  I was really dreading this...

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Rate Response

3 months into my St Jude dual lead PM.  Bradycardia with total heart block. I had some problems that seemed to be too sensitive RR.  The tech changed my settings to less sensitive today.  He said if that didn’;t work better for me he would just turn it off.  My question is what difference will I notice if the RR is turned completely off...big deal or no big deal?  Input appreciated!

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Heart rate and excercise

Hi

Last week I had a telephone appointment with a cardiologist I haven't seen before and I explained that I am still suffering with breathlessness and fatigue, so his response was you need to improve your fitness levels. 

I have done a couple of brisk power-walks on the treadmill and I still experience the issue of my heart rate getting to about 120bpm and then crashing to the base limit of 60. It then will only recover by about 20-30bpm thus meaning my workout is ex...

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Does anyone use the Medtronic iPhone app (MyCare Link smart or heart)

  • by WIK
  • 2020-08-24 22:03:25
  • ICDs
  • 189 views
  • 6 comments

Is either of the two apps better than the other, or do they even work with an ICD?  Evidently they potentially could replace my bedside monitoring equipment, which would be beneficial for travel.  Are they reliable?   Thanks!

Bill

 

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You know you're wired when...

You make store alarms beep.

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