Most Recent Messages

Waiting is the hardest part?

Hi all sorry for so many successive posts! 3 more nights until my procedure (I have CCHB) and the waiting is driving me insane, im so worried somethings going to happen to me in the meantime! Any advice for coping with the wait? I'm being kept in the hospital under a heart monitor just so they can keep an eye on me but they're saying i'm very low risk of anything bad actually happening. My rates been dropping to the low 30s over night which is scary to see! All...

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Pvcs and AF

Can a pacemaker tell the difference between PVCs and AF?

Liz

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What can I do When

I got my pacemaker 8 weeks ago. What is timeframe to raise my left arm over my head, swim, lift weights (and is 20 lbs my limit) I'm  getting conflicting info from docs. Telling me anywhere from 6 weeks to 3 months. Thank you

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Weight lifting with pacemaker

Anyone with experience on weight lifting and pacemaker? I am getting a pacemaker and I am a heavy weight lifter. Will I have to stop? My cardiologist just said to not do jerking movements but what about heavy weight? 

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Open Enrollment for Medicare Ends December 7, 2019

The Medicare Advantage plans are going crazy with their advertising trying to seduce Medicare recipients to switch or stay on their Advantage plan.  The provider organizations make way more money on these plans than they do on regular Medicare with a Plan F or Plan G supplement which is why the drumbeat goes on every few minutes on TV.  Don't do it.

There is an enormous amount of fine print on these plans.  You will have all kinds of deductibles, co-pays, and out of p...

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Laser hair removal

Hi there! 

This may be a silly question, but I haven’t thought about it until now. I’m getting married in 2020 (woo!) and Me and my friend wanted to get a laser hair removal system to get us both looking good before the wedding. Just one of the shop bought ones. 

I have a subcut ICD so it’s on my side rather than my front chest. Is it safe to use a hair removal system with the ICD as it’s close? I’ve no idea if it even interacts or...

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Has Anyone had Radiation to the Chest?

I was recently diagnosed with breast cancer and need to start radiation treatments.  I know the cancer center can handle this, but has anyone gone through radiation in the chest area?  This is making me nervous, since I'm worried about my pacemaker.

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Neural tube defects

Are neural tube defects common with complete congenital heart block third degree 

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History of pericarditis, can I still get a pacemaker?

My cardiologist office is closed until Monday for me to ask this, but I am wondering has anyone had a history of pericarditis and then got a pacemaker? Would I be more at risk for redeveloping pericarditis? I had pericarditis 11 years ago. I now have bradicardia and 5-10 second stops. I believe my cardiologist is leaning towards a pacemaker. I am worried that I could redevelop pericarditis after implantation. 

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Icd vs entresto

Hi everyone I am days away from having an ICD implanted. Went to see my cardiologist today my EF is 20%. They're going to do another echo to see if my EF has increased since taking entresto about four months ago. My doctor said if I get it up to 35% I may not need the ICD. Has anyone had this or experienced this at all. I'm really reluctant on getting the ICD I'd rather do whatever I can to improve my EF. I have also had LBBB but the doctor says I can live with that but I need to...

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What would you do ?

Ok ..... tomorrow will mark 30 days and I’m told I can lift my left arm overhead . 

Should I exercise it through it’s normal range of motion ? 

What did some of you guys do?

I realize I don’t really lift my arms overhead too often . 

I guess I will have to change that lightbulb in the kitchen my wife asked about 😬?

i moved my office so I have some pictures I can hang? 

A tree branch that need lopped off? 

Giv...

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pacemaker for sick sinus syndrome

Mericare does not pay for a sick sinus syndrome pacemaker if the  patient takes sotalol for AFIB.

Most cardiologists in U.S.use Medicare. Anyone know of a cardiologist in new england  that does not have  this restriction.?

 

 

Curiousd

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pacemaker for sick sinus syndrome

Mericare does not pay for a sick sinus syndrome pacemaker if the  patient takes sotalol for AFIB.

Most cardiologists in U.S.use Medicare. Anyone know of a cardiologist in new england  that does not have  this restriction.?

 

 

Curiousd

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Congenital complete heart block

Hi my son was born with complete congenital heart block which he now uses a pacemaker for,I was looking for some info as now as my sons 20 months old and not walking the doctor has X-ray his spine and there’s a crack in the top where it hasn’t fused together?also has 3 sacrel dimples and a preculiar sinus,I was wondering if anybody else is going thru this,and if it’s all connected to my sons heart condition,or if any body else has spinal conditions,any info wud be greatly ap...

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Emergency trip to Er via ambulance today.

I just arrived at the Er today. About 7 hours ago. I was diagnosed with bradycardia 3 years ago and got better. Then stress of a divorce this summer brought it all back and worse than before. Cause My hr is stuck in the low 30s. Today i was cooking and started sweating profusely and then chest pain, hr shot up and then I vomited. My boyfriend called 911. They did a quick assessment and took me to the hospital in ambulance. My hr was at 285 . They gave me 6 d...

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PM scheduled for 27/11/19

Follow up to my first post titled "CONGENITAL COMPLETE HEART BLOCK FOUND AT 23".

Link: https://pacemakerclub.com/message/36013/congenital-complete-heart-block-found-at-23.

Hi all so if you read my first post you'll know I was recently diagnosed with Congenital Complete Heart Block which was a random finding on an ECG! The initial plan was to go through the wait and watch approach and wait for my symptoms to worsen before getting the PM which i was not a fan...

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third lead

I saw my EP yesterday and we discussed my EF trending down, down, down.  It looks like I'm going to need a new pacemaker sometime in the fairly near future with a third lead in order to make my heart happier.  I'm at 49% right now, but it has been dropping all year from 75% high at implant.  I'm quite active and weight train and am only 63.  He mentioned that there is some thought that younger people should just get a 3-lead at the beginning as a fair percentag...

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Back with another question

Does anyone notice if they lay on their right side their left shoulder rolls over toward the center on their chest and it puts pressure on their device causing discomfort ? Or at least that’s how it feels to me . 

I imagine this device just below my collar bone is laying against my skin and pec muscle ? Something that wasn’t there before .

i might have become a back sleeper 

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Apple 🍎 5? Anyone ?

I have a Garmin Forerunner 35.  Anyone own the Apple5 that can offer feedback? 
 

lookimg online some impressive claims are made about its heart monitoring functionality

two negatives .... It's expensive and see some negatives on battery life 

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Good EP in Texas

Can anyone suggest a good EP for ICD lead extraction in Texas. Lead is 17 years old. Thanks

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