Most Recent Messages

Device adjustments

I had a  PM implant oct 21.  After 4 weeks I began exercising on my Manuel treadman w incline.  I was doing ok until I decided to push its! All of a sudden I felt a pressure in my chest and a feeling in my throat like I wasn't  getting enough air. I sat for a few minutes and I recovered! Went to get a device check and told RN about the event and she said she would make some adjustments. Not sure what was adjusted but she said now my heart would have to work harder...

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PM to ICD with lead extraction

Hi all,

I see there've bene numerous posts recently about swapping out PMs for ICDs. I am scheduled to have such a surgery in two weeks. (I am an otherwise healthy 52 yo female with PM for three years owing to bradycardia and complete heart block. I recently learned I have a rare genetic cardiac disease that also puts me at risk for sudden death. Hence the ICD.) I would love to hear from anyone on the forum who has opted to have a lead extracted (rather than left in place)...

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For Agent and Gemita

  • by Alli
  • 2021-01-01 14:27:04
  • ICDs
  • 217 views
  • 6 comments

Gemita yes you did seem to come on strong but some people can't help it. Anyway anger has helped me get what i needed i have so many stories about that. But not enough room here. If you really want to help me then find me an intellgent dr in Ashland who does icd retractions. Yes i will forgive foolishness. Agent you said trial and error?? What? It has been decades don't drs know anything by now? He told me carvedilol would help shrink my heart, since i have an enlarged heart. I did no...

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SOB ..Entresto or diuretic Treatment? Which doc to follow?

My cardio prescribed Entresto to deal with SOB.  Standard Procedure he says.

I ordered Entresto.  Before taking it I had an annual exam by family doc who discovered fluid in the lungs and elsewhere..  Prescribed diuretic and balanced my blood.    I lost lots of weight, feel good and able to walk hills with frequent stops.   EF = 35. Reduced diuretic.  Visit family doc next week. 

Now what?  Start Entresto ( replacing lisinopri...

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Happy New year

Happy New year to all 

Thank you to all who helped me through a difficult year. 

Here's to a healthy 2021 

God bless all

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procedure confirmed

Hi everyone, 

Just to check in, I have had my operation confirmed for January 21st at Great Ormand Street Hospital. On the 12th of January they would like me to do an exercise test, apparently this is a normal thing before getting a new pacemaker, I never knew this? 
 

Im feeling quite positive about this as I'm sure getting the new pacemaker will help a lot, 

Hayden

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Pacemaker placement

I'm wondering if a pacemaker can ever be placed to far to the side? Every time I raise my arm straight out and up or reach across my chest such as when trying to put my hearing aids in or when I try to do anything like applying mascara or other eye makeup.It feels as if the pacemaker gets caught up or bound with my shoulder and it seems extremely close to my arm pit. It's also still painful with pain that I can't pinpoint after a month and it reminds me of the same pain I had afte...

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Icd

I am new here. I am 45yrs  old and have had a icd for 2 months. What i need to know is when will i start to feel better again? If i must be honest i had felt more better before the implant. Much better in fact!  That being said please pray that God gives my dr a reason to remove my implant. 

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Electrical changing jobs

has anyone ever quit whatever job and decided to become a electrician with zero exeprience

and if so who in the world would hire people like us.and how might i get the training or even get paid again with zero experience.

 

thanks guys

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Epicardial lead revision

I had an  dual epicardial lead revision June of this year (which made it  my 3rd heart surgery this year) after 2 failed attempts to place a lead on left side. I have a left bundle branch block, cardiomyopathy and CHF. I still am having at times severe pain at incision sight/ribs if  I wear anything remotely snug around that area.  I was just wanting  to see if someone could share their experience with this surgery that has been postop longer than me. Thanks...

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New defibrillator

I'm getting a defibrillator Feb. 3 by Dr. Seger in Houston. Any advice about what to expect will be appreciated. How long should I expect to heal and be able to walk 3 miles a day and back to light weight lifting?

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Chest pain

Pacemaker fitted 10/11/20 pacemaker is apparently working fine, I have chest pain akin to having swallowed something too big also the sighting of the wires is uncomfortable, feeling like something is a bit sharp, anyone else have these symptoms?

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Vaccine

Hello,

 

Happy Holidays!

Wondering if anyone has spoken to their cardiologist yet about the vaccine.  I realize everyone's case is different, but wondering if there is a general consensus.

Kristin

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Exercising

I'll be getting a defibrillator soon. I'm 61 and have been into exercising since I was 16. Since I'm older now, I do lighter weights, more repetitions. I keep hearing conflicting things, no more weight lifting at all, lighter weight, more reps are OK and on and on. It is very important to be to keep my body tight and defined. I can't stand the thought of quitting. Tell me about what you all know about all that. Ralph

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I got a new toy

Hello everyone,

You may have read my recent post in which I said that the Energizer Bunny had died. On December 21, after 10 years, I got a new pacemaker. Two days later, I received a box from Medtronic. It contained one of those SmartLink remote monitoring devices. I had a few things on my mind, and I just put it under the Christmas tree.

Naturally, I opened the box on the 25th and set the whole thing up.

I AM IMPRESSED. Things have certainly evolved...

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Swallow Syncope/ Degluttition Sycope

I received a pacemaker in March 2019 due to swallow syncope (blacked out once, and had near-syncope episodes for over 10 yrs before I figured out why). Currently 39yo female. For the first year after the pacemaker, the symptoms of occasional lightheadedness during swallowing certain foods totally went away! Over the past few months, I'm noticing that "almost fainting" feeling again when eating occasionally. Doc says dont worry about it, the pacemaker is working fine. Anyone else...

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Irritating leads

Hello I have a question 

I feel that my leads are irritating my chest bones the lowest bone part at the heart area when I sleep on my side sometimes I feel like the leads are moving on that bone and it feels like cracking a finger is that normal?

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Left ventricular remodelling due to pacing

Morning

I know there have been some papers that suggest a certain percentage of ventricular pacing can result in ventricular remodelling and that this can increase the risk of heart failure in the long run.

I cannot find the answer to the following two questions though.Has anyone seen any studies or even have their own experiences to answer them?

1) if remodelling occurs is the ultimate indication of this the left ventricle ejection fraction?

2) is there any evidence t...

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Pacemaker Listed as Bluetooth Device on Computer, Phone,,Car

My daughter had her pacemaker generator replaced this past summer, and now has a Medtronic Azure HR. She has it paired up via bluetooth with a wireless Medtronic monitor that lives on her nightstand.

She mentioned that recently she began seeing her pacemaker listed with other "available" bluetooth devices on her laptop computer, her phone, and it even shows up on the radio screen in the car ( with the phones listed as available). She says this happens intermittently, sometimes...

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fitbit

At times my fitbit will quit registering HR and show --------, it coincides with unusually high  HR for short time.  Like 180+.  I don't know if myHR really goes up that high or if it is a  fitbit error!  I am being monitored by a Vector device daily so am hoping it would show up on that.  Has anyone else had that problem?  I have had PM for 2 years now and no apparent problems.  Thanks

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