Most Recent Messages in Conditions, Meds & Tests

Cardiac Sarcoidosis

I was recently diagnosed with cardiac sarcoidosis as the cause for heart block.  Does anyone have experience with this condition, treatment, etc.?

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Inherited Conditions

Hi so I'm currently 35 weeks pregnant and I have sick sinus syndrome with a pacemaker and my husband has CPVT currently managing on beta blockers. 

We know CPVT is genetic and autosomal dominant and so there is a paediatric alert in place for the baby once they are born to get checked over, but having spoken to the paediatrician apparently SSS can be genetic too and autosomal dominant too? Nothing through the post yet but the consultant was on about getting genetic testing for...

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Pacemaker

Pacemaker with MRI compatibility for patients who have bullet in the body is useful or Not?

India 

+91 9810825500

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PM and Syncope/Seizures? Ictal Asystole

Hi all, I'll get right to it - I started having syncope episodes last May - otherwise a healthy, fit 24 year old guy. Had all sorts of tests done and nothing was showing anythting out of the ordinary cardiac-wise. Finally had a Zio monitor on that caught 2 episodes and they saw my heart stopped for 20sec both times - got a PM placed the next week. That was in August and things have been a lot better since, but still have had 'dizzy spells' every couple of weeks. Not very fun,...

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Newbie

Hi, Fitted with dual chamber pm 2weeks ago. On Flecianide 50mg twice daily. Digoxin 250mg once daily, eliquis 5mg twice daily. Still having tachy Brady mainly tachycardia episodes. Wanting to know if anyone else out there is on these medications and if so did they work for you and did you have to stay on them long term?  With Thanks

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mri of rt shoulder

Cannot belive the time it takes to get approved to have an MRI.  thought i could make the appointment after i saw the last orthro dr. in case i needed an MRI of the knee along with the shoulder. Went accross the street after the knee dr to the Radiology dept at the Public hosipital.  Of course no appointments made there, but i did have them make a copy of my pacemaker card.   I called for an appointment and they asked for the code of course the dr. did not put it...

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New

Hi. Joined the clud last week. Got a pm Wednesday. So far so good. Walked almost a mile around the hospital yesterday.  Didnt seem to get out of breath and actually had a heart rate over a hundred. Haven't seen that sence the last time in a-fib lol. Just wanted to say hi.

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Pulse rate

Should I take amlodipine when my pulse rate stays 100 bpm or above all day?

 

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Tachycardia Episodes

I keep having tachycardia episodes where my heart rate will spike to 109 and then quickly subside to whatever the rate was prior.  This is happening from 10 to 30 times a day.  The worst effects are at night when my heart rate will go from 50 bpm to 109 then back down to the 50's.  I have 3rd degree AV block and my lower chambers are 100% paced with a medtronic device.  

My question to the group - Does this sound like a device setting or just tachy...

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Bell’s palsy

Well  I just received my pacemaker yesterday morning and when I woke up from the anesthesia my lower lip did not work correctly. The doctor said I have symptoms of Bell's palsy. Has anyone else had anything like this happen to them? If so how long did it last? 

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Anyone else out there had a Junctional Rhythm?

As much as I try to connect with people, it seems hard to find other people who have had Junctional Rhythm or even know what it is.  Is this not a common thing?

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Still Tachy after all this time

I have sick sinus with a healthy splash of tachy-brady. This comes after three ablations for afib and double valve replacement. My heart has always been an overachiever. :) Since they put in a pacemaker to help with the brady part, I am still dealing with the tachy part. My heart rate will zoom up to 115 while I'm sitting still. Super uncomfortable and makes it hard to breathe. My doctors keep patting my hand and acting as though none of this is a big deal. It feels like a big deal. Has a...

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Taking Ibuprofen Ok?

Hello!

I am very new (1 week post op) of having my pacemaker. I was wondering if

Ibuprofen is a good thing to take? It's the only thing that works for my arthritis.

I do not want to mess up the little thing that saved my life, however.

Thank you for any help you can provide for a newbie.

Deborah

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Good news --well, sorta. At least there is movement.

At my insistence I was seen at Duke today. Happily I saw an NP who listened, and was willing to explain things. According to her,  I emphatically do not have PMT. They seem to believe PMT is "impossible" as my pacemaker is programmed now. 

What I do have, maybe, is Pacemaker Syndrome. It seems my heart just doesn't like to be paced in the ventricle. The NP deliberately paced the ventricle to see if I would react. My involuntary AIIIIIIE! conviced h...

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Crazy Head Pressure

New to the group.  Pacemaker installed 3 weeks ago for type 2 av block.  Recovery seems to be going normal except for one issue/concern:

I have this discomfort in my head where it feels like it is full of fluid.  No headache or pain.  Just a heavy, cloudy feeling that won't subside.  Seems to get worse when I am sitting still.

Any help would sure be appreciated

BTW: I have to say this group is remarkable.  My doctors really didn't explai...

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PVC-Premature Ventricular Contractions-

I have a 3 wire pacemaker for 2 years,No problems. I recently had a 30 minute period of slow heartbeats on my Pulse Oximeter. Went to ER, blood tests showed low magnesium level. Received magnesium to raise levels. They checked my pacemaker and everything came out good. I was told I had expierienced PVC and my pulse was weak but the pacemaker still picked it up and did not add pulses.

Hospital Cardio said it was plausable but I need to go to my Cardio Clinic for more determination.

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Random question about multi vitamins and asprin regimen

Are multi vitamins ok to consume assuming I am not getting enough vitamins in my diet. I am only on an 81mg aspirin regimen every morning as directed by my cardiologist because of my mitral valve repair surgery. I doubt they would in any form affect my pacer for bradycardia in any way, but would it have any interactions with the baby aspirin. Would call the office to ask a nurse but they are closed right now. I just want another opinion.

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Conundrum - The Saga Continues

jUST SAW SURGEON:  (From Last Night)

by donr - 2020-01-02 15:55:47 Edit

He said he cannot do surgery in current state of heart health..  Problem is that I am in constant state of Tri-Geminy.  Too much risk while on the table.

Appt w/ Cardioo Mon AM to see what he can do - if anythying.  Surgeon came off w/ thids statement - "Perhaps you can do what I do - 500Mg of Magnesium daily.  Cures my PVC problems."

I have been fighting PVC'...

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Microsuction

I am four weeks post implementation now have severe ear wax to the point of hearing loss. If otc olive oil doesn't work will need micro suction. Has anyone had this?  Concerned re interference but in pain both from this and still suffering with pm site. Thank you to all 

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Norvasc as a blood pressure med?

I was on Liprinosil, but the side effects - especially that dry hacking cough - were making me very uncomfortable and so my doc suggested I try a channel blocker called Norvasc.  Anyone have any experience with this prescription drug?  Reading online about it is kind of nerve-wracking.  I know everyone is not the same and not all will get the side effects, but one that is listed as 'common' is swelling of the feet and legs, which I would not like at all, since I am a ru...

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You have a $50,000 chest.

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