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Survey Results: Post Pacemaker/ICD Implant Pain

Hello everyone,

In case you missed my original message dated 15th February 2022, I am again attaching a Dropbox link to a PDF where you can view the Survey results on post pacemaker/ICD implant pain.  There were 322 respondents and your help has been invaluable.

If any member wishes to comment on the results of the Survey, please feel free to do so in the “Add Comment” section below and thank you to all those who have already commented in private me...

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Sick sinus syndrome from covid

I'm am grateful to find this club and appreciate this opportunity to ask for support and understanding.

I am ten days post operation from receiving a Biotronik Edora 8 dual chamber pacemaker to correct sinus bradycardia caused by covid inflammation. 
I'm 49 years old with no pre existing conditions aside from Pectus Excavatum and sunken breast bone birth defect that was determined unrelated to the bradycardia.

I am vaccinated and have had covid twice, the second...

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Survey results post pacemaker/ICD implant pain

Hello everyone,

As you will know, we have been collecting information about the extent of pain experienced by members following their pacemaker/ICD implant.  The Survey results, which I hope you will find of interest, can now be viewed in the attached dropbox link.  

322 members completed our survey.  Without your help this survey report would not have been possible so I am most grateful to each one of you.

The report author, a valued member of the Pacema...

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Disappointed.

Today I was excited to go in to see the EP and have my pacemaker adjusted. It was over a year since the last adjustment. The excitement was lost when I learned that some of the symptoms I thought were from an unadjusted pm turned out to be a new or additonal heart condition. Seven years ago I was first diagnosed with atrial flutter. I put off having an ablastion for 5 years. However, by the time I was ready to have the procedure I needed a pacemaker and cardioversion. Symptoms that I thought...

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5 AT/AF Events since October ICD implant

Hello,

Since my ICD implant in October I've had 5 AT/AF events recorded. Episodes appear to be AT/AF. Longest on 01/04/2022 for a duration of 01 minute and 56 seconds. 

Is this considered ok ? My doctors haven't really responded to me. This data was sent over to me electronically via my iPhone's app during a routine remote interrogation. 

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On the transplant waiting list

So, I am now officially on the routine heart transplant waiting list. 

My SCA was what tipped me over the line to say: yes, put me on the list.

And now I'm just living my life as I have been for the last few years, albeit getting some stuff documented so that the lines of communication are clear to everyone if I do get called, and anyone who cat sits knows how stuff in my house works/is organised. My will and Powers of Attorney have been in place a long time, as has my Ad...

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Concerns about Pacemaker surgery

I am a 77 years old pacemaker receipent, who has felt horrible since surgery on Oct 5.  Prior to surgery I did 5 miles on treadmill within 1 hour, now I have a hard time working out. Everyone is using my age as a factor, so if i did 5 miles prior to surgery what is the difference between 76 and 77?  Is anyone out there having similar issues?

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1st PM, 5 weeks in, sub-pectoral implant, have a few questions

5 weeks ago, I had a sub-pectoral PM implant (Biotronik). I seem to be doing pretty well (was asymptomatic before hand, so hard to tell) but have some follow-up questions

1. I have a feeling of pulling at the incision site and it travels to the crook of my underarm. It gets worse with normal daily activity, so by the end of the day it can be bothersome. When will that feeling go away?

2. My scab has fallen off except for a small dot at one end. Is that a stitch? That area is...

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recent pacemaker insertion L111 Boston Scientific

I went to JH in Baltimore to inquire about low BPM alerts on my iwatch. Over a period of two days the watch warned me that my rate was below 40 for 10 minutes or more. Upon further review over the last couple three years my watch generated the same warning sporadically. I called Teledoc and after 8 hours the call was returned, the doctor told me to go to the emergency room. This was after I worked out at my Crossfit box on Sunday. I did half the workout called 12 days of Christmas as a precau...

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Replacement Pacemaker

I GET MY NEW DEVICE ON 1/14/22!!!

Is it silly that I am super excited 😄!!!

I really am, it's like I get another 10ish years!!!

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Survey Responses - Good News

Hello everyone, you may be surprised and relieved to learn that we have finally achieved our goal of 300+ responses to our Post Op ICD/Pacemaker Pain Survey.  Our closing number of responses is around 314 up from 247 at the last count, which is a good number of responses to work with.  I want to thank you all most sincerely for your help and patience with my posts over 6+ months.  We have got there in the end and I am absolutely delighted with the result and I hope you will be...

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Scar Itch

It isn't uncommon for scars to feel itchy following the healing process, this itchiness can last several months.  In my case 30-days after I had a severe infection and my pacer was removed and a lot of dead tissue was removed my pacer was re-inserted and hooked up.  It’s been 9-months and I have a nasty-looking scar but the past couple of weeks I have developed a severe itch in the scar area and along the collar bone I broke several years ago where a plate was inserted.

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Strange feeling at back of throat

Hi

I'm new to the forum, i had a pm fitted on 23/12/21.

Medtronic dual chamber to treat bradycardia after failed ablation for tachycardia. 

When i stand up, i get a strange pulsing burning sensation at the back of my throat.

I have never had any problems prior to the pm implant.

Any advice or idea's would be greatly appreciated. 

TIA

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Pacemaker/ICD Survey on implant pain

Several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

We are running a survey which is confidential and will not be used for marketing.  All members irrespective of whether or not they experienced post implant pain are welcome to participate, since this will help to provide a balanced, unbiased survey...

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Atrial flutter after generator change.

I just had my first generator change. I went in totally fine, except for the 100 percent heart block I have. During the replacement I developed an atrial flutter. My heart righted itself. An hour after the procedure, my heart went crazy, I went in to AFib, once they got it calmed down, the atrial flutter was back and stayed for another 3 hours until they tricked it with the pacer to get it back in rythm. Now home, I'm on meds to control the flutter, bit I feel like I can't take a deep...

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Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

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Upgrade to CRT seamless

I've mentioned lately that I had surgery scheduled last Friday to upgrade my PM (St. Jude 2240) to a 3-lead for CRT. Also St. Jude but we are still getting acquainted. The surgery was reported as a dream surgery with super easy placement of the third lead. Yeah, yeah, I was semi awake but in no pain for the most part and I heard three "Dammits!" so I doubt it was as easy as they told me. There were also several shoves right over the PM which I felt, but in my mind I'm saying...

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ICD implant

Hi, I've recently received an ICD implant with defibrillator (11/1/2021)   still healing...was wondering those that have had their pacemaker a while, how long did it take to completely heal. Doctor says after 6 weeks the swelling will go down.  I'm approaching week 5 and I feel like I still have a huge lump.  I told the doctor I was worried that the defibrillator would zap me when I'm driving and I could cause an accident.  He said I would feel different b...

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Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

Read More...

Nightmares

I've been having occasional nightmares since getting my pacemaker 3 weeks ago. They are very surreal. Part Bionic Woman changing into the Matrix (literally the whole dream pixelizes) when I think about the device failing. I know it is triggered with the knowledge that my heart would not beat sustainably on it's own if it fails. My rate had been down to the 20's. Then of course I can't get back to sleep. 

 

Roughly how long are people taking to mentally ad...

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Intel inside is your motto.

Member Quotes

It is just over 10 years since a dual lead device was implanted for complete heart block. It has worked perfectly and I have traveled well near two million miles internationally since then.