Pacemaker Surgery, Scars, and Ehlers-Danlos Syndrome
I'm two weeks post pacemaker implantation and generally healing up well. I'm curious if any of y'all have Ehlers-Danlos Syndrome (EDS) and how you managed your scar post surgery.
If anyone need a brief: EDS is a hereditary connective tissue disorder. Some symptoms are skin hyperextensibility and loose joints, as well as cardiac symptoms... I have had multiple surgeries and my scars have a tendency to spit stitches and form keloids (excess collagen forming an overgrowth of scar tissue). My thyroidectomy scar on my neck keloided despite steroids, heavy sunblock, and prescription scar oils.
Now that my pacemaker scar is only a couple inches away from it I fear that it will scar similarly because of the highly stressed and stretchy area it's located in. For reference, my thyroid scar that would normally be a thin nearly invisible three inch line stretched to be a three inch long scar that was a centimeter wide after a year.
Does anyone else deal with cardiac issues and EDS? Anyone have any tips or tricks to keep the scar from stretching? I bought some extremely supportive bras but I don't know what else to do to keep this from happening. It was so awful and so hard to cover up before, I really don't want to go through that "everybody looks at your really obvious ugly scar" process ever again. It was hell on my self esteem.
Don't get me wrong, my pacemaker is saving my life right now and I wouldn't trade this for anything. I'll never have sinus arrest ever again thanks to this little heart robot and I love it, I've even named it. I'm just worried with the fact that I'm going to have to have multiple pacemaker surgeries to replace them over the course of the rest of my life as I'm so young (33) and that this is just going to get ugly.
You know you're wired when...
Your pacemaker receives radio frequencies.
My pacemaker has ultimately saved mine and my unborn childs life for which I am thankful.