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UpToDate? Information my cardiologists didn’t have.

I am a young physician wirth an uncommon, asymptomatic, congenital heart condition. My recent experiences as a patient have inspired me to document my journey. By sharing my writing, I hope to raise awareness about my condition and potentially help other patients or medical practitioners.

My first entry has been published by KevinMD: https://www.kevinmd.com/blog/2019/08/uptodate-information-my-cardiologists-didnt-have.html

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Housekeeping

Looks like we've had a rash of spammers again. I deleted a spam post and a couple dozen spam comments. If I missed any, please message me or post a link here.

 

Tracey, Moderator

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Working out again, shortness of breath, chest and pain down left arm

I'm 37 and a year ago I was in the routine of working out in the morning. One evening I passed out and my heart stopped. It didn't stop long and restarted on its own. From there I had the typical tests and the tilt table test confirmed I have Vasovagal Syncope. I was put on meds but they didn't help so I needed a pacemaker in April of 2019. I was told at my last appointment with the doctor I have cardiomyopathy. Instead of the pacemaker working 20% of the...

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New pacemaker

I see a lot of varied posts on Pacemaker, and subsequent SOB. I went into hospital with SOB, and never had a heart issue. They said I had AFIB, thinking for almost a month. Had gone to my Primary Care Dr. And was sent via ambulance to the hospital. HB 160-135.  Did lots of tests, then a Cardioversion, and an Ablation, then a Pacemaker. All strange to me. In hospital for 8 days, now on 3 meds. Came home,  and for few days home felt good, until SOB again. I cannot walk more...

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Travel insurance

Hi had my pacemaker fitted on April this year,Now I am looking to go on holiday abroad but I am having silly quotes for travel insurance,any help please 

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PM site pain/uncomfortableness

Hi just wondering how long it takes to get used to the Pacemaker under your skin?  I got mine 8/22/19 and still feel like a burning, soar sensation.  Also how long before I can lay on my stomach comfortably?  Can anyone relate?

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A-Fib and Pacemaker

I got Assurity 2272 implanted on August 1, 2019.

Whenever I check my pulse it is regular all the time. My doctor says I been in A Fib all the time.

Can I have Afib or Aflutter as my heart has been  beating regularly.

Thank you in advance.

Raghbir

 

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Can anybody explain this to me

Last week I felt like my heart did something I don't know what then my Pacer area started to heat up a little bit for a couple seconds kind of like my Pacer did something. Has anybody experienced this before and should I inform my ep. I just saw her last month and she gave my heart more time to think on it's own because of intermittence. First time feeling that sensation.

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Insomnia

Hello,

I´m 43 years old and have had my pacemaker for 4 months.

After pacemaker implant been suffering from insomnia (sleeping 3 to 5 hours a night and waking up during those few hours).

Before pacemaker my rest rate would be 20-30 bpm. Pacemaker is set to 50 bpm.

Contacted my Doctor but she says it´s not related.

Anyone struggling with insomnia after pacemaker?

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Safari on iphone not showing latest posts

When I go to recent posts on Safari on my iphone, it keeps referring back to 10/2/19.. I have reinstalled the site, but that does not resolve the issue..   Anyone else having this issue?? If so,  anyone have a resolutuion.. the site works fine on my laptop and Google Chrome.  Thanks for any resolution.

                                              R...

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wheelchair bound

I had a fall 4 weeks ago and broke a bone in each foot, as you can imagine it has been extremely difficult.  I have become reliant on my friends wheelchair but am now having alot of pain on my pacemaker side and wondered if this was just muscle.  I am worried I may be moving the wires with the continual repeated movement of my arms.  Hopefully the plaster will come off this week and I will be able to stand again and stop using wheelchair. 

Has anyone else had this pr...

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Pain

I have had my PM for 6 months, and recently I have noticed a dull small pain that last for a few seconds in the heart? It is random and mild pain, but enough to make me curious. It is about a 3/10 pain level. Is this normal?

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Frequency specific micro current therapy

Can someone with a pacemaker use "Frequency Specific Mico current  (FSM)" therapy as long as they avoid placing it over the chest/left arm?

Am interested in it for low back and feet pain

Thanks

 

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Abnormal heartbeat

Hey guys, 26 been dealing with heart issues, rundown real fast,born with tof got valve replaced in Jan 2019 then in March...had to have pacemaker for slow-fast heart rate... past two months.... we still trying to figure out what's happening....long story short in June is when I first noticed my heart rate was beating to fast over little things....walking to long.....working out.....sex....getting nervous.....it would be fast then slow down from 130s then drops to 60-70 beats for a while t...

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Scared PM is scheduled for 10/24

PM is scheduled for 10/24 as well as loop recorder removal and I am so nervous about it. Scared how it will change my life and put limitations on my life. I am 43 and was told my bradycardia has gotten to the point I need a PM. My heartbeat just randomly drops and I get lightheaded with shortness of breath. Heart issues have taken my brother, sister and most recently my mother. I have been very proactive with my heart health but coming to the realization that this is happening has me que...

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questions

 I have a low EF ( 15-20%) and my cardiologist is recommending a pacemaker. i have no blockages, never had a heart attack. i have hypothyriodism and they think that is the root cause of my heart issues. i have been only taking medication for 2months for the heart ( basic/low level meds) and just started 2 weeks of thyroid meds. i seen a drastic improvement in my thryroid but no change in my EF.

I feel like i could run a marathon or play golf or do the things i used to do before hav...

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pacing percentage

I am 80 years old and my pacemaker is set at 75 beat - it is pacing 80% of the time I am told.  Does a pacemaker keep you alive indefinitely?  LOL  sorry - just wondering - I really dont want to live to 100! lol

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Left Bundle Branch Block

So, I have a pacemaker because I was fainting due to Heart Block 2 due to LBBB.  What happens if my Righ Bundle branch fails?

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AV NODE ABLATION + PACEMAKER AND A PVI ABLATION.

I posted previously regarding the fact that even after these procedures I am come out of sinus and are picking up arrythmias on my BP machine.  My BP is all over the place and I am breathless most of the time especially after eating.  I know when I have an arrythmia as I feel really ill and breathless and when it goes away I feel better and can go shopping or do my housework.  This is done at a slow pace otherwise I come to a fullstop.  My pacemaker is working as it should...

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ulta Fitbit measuring low heart rate readings

My ultra Fitbit has been registering a low heart rate reading of 59-64 lately. I wear it loose on my wrist. This is a low resting rate for me. Do you find that your fit bits are not accurate with readings?

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You know you're wired when...

You participate in the Pacer Olympics.

Member Quotes

But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.