Most Recent Messages in General Posting

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Joining question

When I joined the site, one of the questions was "How many devices?"  I'm not sure what that question means.  I have a Medtronic and two leads - dual chamber.  Technically, that means three devices, as it is lilsted on the original document from Medtronic.  Is that the intent of the question?

Thanks!

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medtronics app

My app is working fine, except for the physica activity on my dashboard. It show no activity at all. have had my device for 11 days. Anybody else have tish problem?

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Medtronic ICD ID cards

I had a Medtronic ICD implanted on 12th April 2022 at Hammersmith Hospital and after a few days I got a sheet of A4 paper headed Patient ID Card with all the details on. But the printing is poor quality [I've copied out several copies] but I was wondering if there was a credit card sized card. My previous CRT-P pacemaker had a small fold up card for airports etc.   I saw a much earlier post from 2018 saying that a member had phone Medtronic and got a plastic credit card siz...

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Cell phones with apps for pacemaker

My husband received a Medtronic pacemaker this week, 6/2022.  I need to get him a cellphone compati ble with the app that collects data.  Looking for recommendations for phones you are happy with.  I was given a compatible list by Medtronic.  Hoping to hear here which phones are better!  Thank you!

Marcia

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Ongoing Fatigue. Pacemaker or something else?

I have read many postings where members complain of fatigue issues associated with their pacemakers.  I have been experiencing real fatigue for approximately two years and 2 months.  Pacemaker implant was August 2019 so going on three years for that.  I am paced at 100%. Along with the constant fatigue, I have internal, what I call shaking.  Only lets up when I sleep.  A past neurologist prescribed Gabapentin but I'm not sure how much good that is doing....

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What kind of pacemaker for a Pace & Ablate (AV Node Ablation due to Afib)

Firstly I am a complete novice when it comes to pacemeker, I know almost nothing about makes and models!

I am 52 and have been in permanat Afib for over 25 years but due to my heart valves now getting fatigued and beginning to leak due to my racing heart (meds are not working well to slow it down) my EP has told me we most probably will need to Pace & Ablate.

Before I agree to this I need to do a ton of reseach so I understand what I am getti...

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Did CRT-d improve your quality of life

Interested in other peoples experience of CRT-d on quality of life.

It's been four and a half years since my implant.  I am a super responder - EF back to normal after 3 months.   My kidney disease has improved (but largely due to a very low fat plant based diet IMHO)  and I'm alive, bonus I guess.

But I'm finding my quality of life is not great.  I'm on a minimal dose of beta blocker (bisoprolol) and I am always always tired, really tired....

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Has anyone heard of a CCM ? Cardiac Contractility Modulation therapy device.

Well my cardio doc has recommended that I get a CCM implanted alongside my ICD. I've had my ICD implanted in Oct '21 because of my genetic condition - LMNA Cardiomyopathy. Since then my EF has improved thru medications, etc. I am on 3 different pills a day and he feels that there is room for increased improvement thru the implantation of this newly developed device. From what I know there are only ~7,000 implants worldwide and the therapy that the device delivers can and has reversed...

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Travel with Monitor?

Do I need to bring my home monitor with me when I travel.....in this case for a week?

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Manners

Before we post comments to respond to someone who has shared their concern, please be mindful to be encouraging and sympathetic to their fears. 

Best not to find criticism or try to minimise their concerns. This a safe platform for those who need understanding and for those who are willing to understand.

Thanks. 

 

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AV Node ablation for afib and subsequent exercise tolerance

Hi everyone, what a great forum this is. I have learnt so much through readings old posts in the last 24 hours, I feel I have already gained heaps from it!

However, I thought I'd make my own post just so there's an opportunity for some of my more specific questions to be answered if possible.

I am in afib and have been for almost a year. I have already had a LA ablation (2015) which reduced my afib episodes in frequency and duration until this episode. My left atrium is to...

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Lifting

On my discharge paper it mentions no lifting, pushing heavy things.  Wondering if this means from now on out?  I use an upright walker and need to lift in and out of car.

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Airport security

I  just went through security at terminal 2 and terminal 3 Sydney airport. All staff (6) are untrained in understanding that people with pacemakers can not go through scanner. I am standing there, shoes off,  waiting to be told where to go for a frisk, and staff are telling me to walk through the scanner! I'm standing there, shaking my head saying "no". Then finally, a female came to frisk, and luckily when I asked her to change her gloves before touching me, she was o...

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Airport travel

Travelling 1st time w a PM soon. I know I have to alert TSA and ask to skip the scanners of any kind. Curious if anyone ever had an issue? Thinking it should be pretty routine for TSA these days.

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Diet with a Pacemaker

Hi - I wanted to see if anyone has been on a high protein diet program after getting a pacemaker. I've not been able to lose weight at all and am thinking of going on a diet called OPTAVIA, which is predominantly high protein. Any help is greatly appreciated! I love this group - it has given me a lot of peace of mind, especially since I can't relate to my family or friends about certain things (even though they are very supportive).

Champak

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PT/Massage-therapy

Hi All

I am 4 weeks into a dual chamber drt pacemaker and my back and neck are in need of adjustment just because I am not totally back yet. I made an appointment at my local PT for a massage and general tuneup at the end of June. I am just a bit aprehensive about laying face down on exam table.....thoughts? 

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Shingles?

Hi all - I hope you're having a great Thursday evening. I'm writing to ask about shingles - anybody have recent experience with symptoms of the virus? I see there are older posts upon doing a search here, but wondered if anybody has had a recent experience that they could share.Thanks.

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New to the Club

Great site.  I had a Medtronic PM W1DR01 installed on 4/21 due to low heart beat and Atrial Flutter. Prior to the PM I had ended up in the Hospital for 3 days after I noticed my heartbeat was in the 40's.  My bpm one night got down to 35, got the nurse running around on that one. Heart tests showed the heart was strong and healthy, just my sinus node was diseased.  I had a Cardioversion the 3rd day in the hospital to stop the flutter. 

Prior to the PM,...

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up date to my removal of eye floaters and blurry vision

I understand that many feel this topic does not belong on this site.  Since the blurry vision is subjective does this happen from a fast heart beat.  Or because of the blurry vision does it cause the heart to beat faster to pump more blood into the eye.

None of my doctors will commit to these either.

Did have the 4 week checkup after the removal of the floaters.  healing so well will not to see the retina doctor  for 6 months.  He did say if have vision&nb...

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My son

My son got his pacemaker when he was just 9 years old. Now he is 19 years old. Anyone know anybody who got theirs this young????

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Your ICD has a better memory than you.

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