Most Recent Messages in General Posting

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Icd implant under muscle

I am 28 years old and had to have an ICD put in me. I had the procedure done last Thursday. I am very grateful that my doctor decided to place it under the muscle because of my age and size, however I have been experiencing terrible shoulder pain. I have broken my collar bone several times and was in a car accident so I thought I was used to shoulder pain, but I have never felt pain like this. It starts in my shoulder blade and travels down my arm and into my fingers. The office told me this...

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poor ejection fraction

Hi all....(just checking in as hadn't posted for a while)....any thoughts on poor ejection fraction 30-35% but feeling very good and not too many exercise limitations.My cardiologist (Dr Death I call her) says she cant explain that someone with such poor EJ can do what I do.Surf, hike, ski tour,snowshoe, play bagpipes, work.Low to normal blood pressure, I have a CRT pacemaker.Any thoughts, reccomendations appreciated? chrs Dave

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Coronavirus

Hi all 

I am a teacher aged 42 and our staff have been told to go home if we are on the vulnerable list with an underlying condition. We completed our medical information a couple of months ago. 

Based on a list they have of qualifying conditions, I have been told I am on this and need to go home.
 

I have a pacemaker for malignant vasovagal syncope. I've had recent investigations of continuous ectopic beats, but nothing detected. 

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Pacemaker rejection

Since July of 2018 I've had 3 pacemakers implanted the last was the Micra leedless placed in my heart my problem is that no one wants to look into the reason why I rejected the first 2 had no infection before first pacemaker they did a metal test n it was negative but after that placement my body rejected it like a giant splinter does anyone out there know of any place that wishes to find out the reason why my doctor is letting it lie like a sleeping dog since the one in my heart hasn'...

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Corona virus

Hi I'm 51 had my pacemaker for 11 years left bundle branch blockage I'm trying to find out from my cardiac team if it is safe to continue going to work I work for the MOD in a very busy camp in an air conditioned building with no windows any help would be much appreciated thank you Moira 

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How does one find one?

Most common suggestion here is: "Find the best EP you can.....you only want someone with expertise to lay their hands on you."   So..............how does one go about this? An outfit like TCAI supposedly has a top notch Doc., Andrea Natale.  There is also a bottom notch Doc at that same location named Bailey. Unfortunately, that is who (mis)treated me.  Maybe members here can throw names around of who treated them successfully.

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ST JUDE PACER AND STRANGE VIBRATION IN MY CHEST

I am updateing this post in hopes that I get some feedback on thisx subject.  Regarding this situation, I was recently advised of an incident where one wire lead had come detached and was causing similar sensation as what I have been feeling, yet since the problem was not inside of the pacer, there was absolutely no indication on the pacer reading to reveal the problem.  Of course that leaves medical caregivers to beleive there is no problem when in reality there is...

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Normality

Hi everyone,

I am 26 years old and had a duel chamber pacemaker fitted in January for 3rd degree heart block that was causing intense dizzy spells and light headed ness. 
 

I have been struggling emotionally in the run up to the surgery and had a bit of a break down a few days before the surgery. 
 

Since the surgery I have not been having the same lightheadedness and dizziness so I know the pacemaker must be doing it's job but I constantly...

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Wired 2/2/20

Just got wired 2/2/20.  This is all new to me.

I'm male, 67, 5'10", 185lbs  diagnosed 3 years ago with partial heart block.  Asymtomatic - HR resting 30-34.  new HR 60.  Doctor said at my regular cardio appointment it was time.

1) How do I know if a "lead" is damaged, lose or not working?

2) Exercise - been told to hold off lifting my arm above my head for 4 weeks.  I like to do eliptical 30 mins 5 times a week.  Can...

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Recent travel in the times of Coronavirus

Hi! Has anyone with a pacemaker traveled by air in recent days? If so, what precautions did you take? Are we in the "at risk" category for the coronavirus?

Thanks,

Champak

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Tachycardia and Pacemaker

I know my PM causes my heart to beat 60bpm when it slows down. But does it slow your heart down when it is beating too fast? Thanks.

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Touring Musicians with a Pacemaker

Hi there.

I've only just joined this group - because until Tuesday morning, I had no need to.

I'm 42, from the UK and I work as a touring musician - principally a guitar player. It's what I love, and I'm so lucky to have made a career out of playing music and touring the world. Last Sunday I played the last show of an Australian tour (which was fantastic) and started to feel exhausted. A few hours later I was in the ICU covered in wires and drips and had received C...

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Young People with Pacemakers

Hi All 

I was diagnosed with a complete heart block whilst still in the womb. After years of monitoring, at the age of 7 the hospital decided it was time for my first pacemaker. I am now 27 and am celebrating 20 years of living with a pacemaker by recovering from my 4th pacemaker implant, which took place on 10th March 2020. 
Since leaving the children's hospital, it has become very apparent that I am always the youngest person either at pacin...

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Probably well worth watching for an ablation procedure

https://youtu.be/NtxXxgyIZ5Y

 

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Anti-theft portal

Hello, I would like to know if this has ever happened to you to hang and ring an anti-theft portal for shop?  I hung one out of a store in Mexico and it worries me a little.

Thanks for your answer.

 

Chantal

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Doubt on warranty of a CRT-P device

If you have a CRT-P device of Medtronic/st jude/ Biotronik , please tell me the warranty period of your device. Because my father's cardiologist suggested a Mdetronic CRT-P device with only 5 years warranty. When I asked them about lifetime warranty or warranty more than 5 years, they said,for CRT- P device you only get 5 years warranty. Please clear my doubt.

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Ticking?

Hi

Got up this morning feel fine but I have a ticking feeling like a little nerve tick, it's like when the tech first starts your pacemaker check as if the leads are jumping slightly, anyone else have this? Had a PM for 20years never had this before due to have a battery change in 3 months

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Coronavirus and heart patients with especially CRT-D and P

In short, have a CTR-D due to low EF(below 30)

What are your thoughts on people like me that have serious heart diseases as it is stated many times that the death rate is considerably high with elderly, and people with heart issues and diabities?

Most of the people like me have also some issues with kidney and lungs as well due to the nature of our heart problems and/or medicine we need to take

I personally believe, if half of what we read is tr...

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I"d like your thoughts on this...

I just had my pm placed 4 days ago. We are booked to embark on a cruise to Hawaii on March18, 2020. Do you consider me having this procedure 4 days ago putting me at a higher risk of more sever complications should I contract Covid19? 

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CDC Recommends staying home

So, the US CDC is recommending that high risk adults- over 60 with chronic health conditions stay home as much as possible and avoid crowds. 

Depending on age, and the heart condition you have, that may be many of us. 

My AFIB & PM probaby doesn't count, but for those with heart failure and/or other serious chronic conditions, are you staying home?

BTW, I've found it's almost impossible not to touch your face!

https://www.cdc.gov/coronavirus/2...

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You know you're wired when...

You name your daughter “Synchronicity”.

Member Quotes

At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!