Most Recent Messages in General Posting

Post Message!

New to this

I had three episodes, over three months, of what my cardiologist labeled, "heart pauses", I blacked out. With the third episode, I decided to go to the ER. As I was already wearing a heart monitor my cardiologist officer was alerted. They called just after I arrived at the ER. They said I had a pause of 8 seconds. To me, that is a long time in heart time. My cardiologist met me in the ER and said "We need to do a PM" I said "When", he said "Now" I went...

Read More...

Hyperbolic oxygen therapy.

I had a biotronic P.M. implanted about four years ago and have had no issues. Recently had some other medical issues where I need hyperbolic oxygen therapy. To my surprise Biotronic does not recommend this treatement with their devices. Was wondering if anyone in the club has run into this issue and what they did about it. I am considering changing the device to a company where this treatement is acceptable. Any information would be helpfu.

Read More...

Contemplating AV Node Ablation and Pacemaker

Hi everyone.  I'm new to the group.  I'm 78 and active, but have had 3 unsuccessful ablations and am just sick of feeling my heart do it's continual acrobatics.  My little circus is a lifetime of Afib, extra beats and tackycardia, and also brady and longer qt intervals at other times with HR in the 50s.  It all seems to be diet related, because I have so many food and chem intolerances that set it off.   I also feel like I'd go down quickly w...

Read More...

RE Low HR

Hi I'm 54 and have had a dual chamber Meditronic PPM in place since Dec 2018 which was inserted for 2:1 heart block. The same week I had an Occlutech occluder device inserted via my groin to block a 3cm hole between my two upper heart chambers. I had some residual right sided heart failure and my cardiologist started me on a tiny dose of Bisoprolol 1.25mg.

In September 2019 I found out I had an inheritable form of high cholesterol (Familial Hypercholesterola...

Read More...

Rate Response

3 months into my St Jude dual lead PM.  Bradycardia with total heart block. I had some problems that seemed to be too sensitive RR.  The tech changed my settings to less sensitive today.  He said if that didn’;t work better for me he would just turn it off.  My question is what difference will I notice if the RR is turned completely off...big deal or no big deal?  Input appreciated!

Read More...

Rate response settings

After no settings changes after 90 day check up on my dual lead St Jude PM, I had a video appointment with my Cardiologist the next week.  He decided to tell the tech to raise my HR from 60 top 70 and make rate response more sensitive.  It seems my legs have more strength and I’m less fatigued.  But, one of the changes or the other has me wondering.  I was just riding in my golf cart not playing just watching...I followed my buddies foursome about 4 holes and it was...

Read More...

Micra pacemaker

Hello!

i had my micra pacemaker fitted nearly 6 weeks ago,at 44 yrs ol. I know it is a fairly new type of pacemaker.

just wondering who else has one & for how long,your experiences etc.

be good to meet fellow patients like myself!

Read More...

new to pacemaker

Good morning, all.  

Less than a week has gone by from diagnosis to implanting of my pacemaker two days ago.  I'm a 75-year-old woman in (otherwise) good physical condition, an avid walker and hiker.  Now I'm trying to process what's just happened to me and what it all means for my future activities and life style.  I'd appreciate any advice anyone has to share on adapting to life with a pacemaker, what to watch for, how to deal with the emo...

Read More...

Upgrading to CRT-P

I'm new to the forum but have had an implant at 11, and I am now 36. Next week I am getting a whole new device after years of a low EF (45-50) due to 100% pacing from a dual chamber. I am curious if others have had this experience? I was told I it would be good at my age to get the CRT-P to improve my EF. Also,  was told if my EF isn't improved it shouldn't worsen because of the new lead. I'm pretty confident this operation will go smooth but do the same risks and complic...

Read More...

home monitor

I HAVE A BIOTRONIK HOME MONITOR, A CARDIOMESSENGER SMART 4G, RECENTLY I HAVE GOTTEN WHAT APPEARS TO BE AN OPEN BOOK SYMBOL. CAN ANYONE TELL ME WHAT THIS MEANS.  ALSO WHEN I SHUT POWER OFF AND TURN BACK ON THE OK SYMBOL BLINKS AND NORMALLY OK SYMBOL DID NOT BLINK.     

Read More...

Pacemaker

Well, I get my pacemaker the morning of August 21st.  I joined today cause I won't feel like it tomorrow.  lol  I can't say I am glad to be eligeble for this club but I am looking forward to meeting and making new friends.  lol  I certainly hope it makes me feel much better.  I know the stent (#5) I got on June 22 this year helped.   I am looking forward to hearing from anyone.  Bye

Read More...

Seatbelt protector UK

Hi All,

New PM last week.

I'm trying to contact tghe soft touch peopl - are they open at the moment?

I'm allowed to drive now, but I'm more often a passenger in my husbands car.  The seat belt sits bang on top of the device.  If we're in mine the seat belt misses it, but a sports car is not the best for shopping!

Is there a UK supplier?

Many thanks

 

Read More...

Cough

Hi. My husband had his pacemaker fitted nearly 2 years ago. He has had a cough since November. Chest X-ray in February showed clear. Covid meant it just about impossible to be seen. A gp surgery nurse phoned him after I'd contacted them saying he couldn't eat or sleep, he's so worn out. She, disappointingly, prescribed lansoprasole to try and stop the acid in his mouth through coughing so much. Mostly he's bringing up clear frothy phlegm. 
lately, I've...

Read More...

High heart rate

I had a azure XT DR MRI surescan dual chamber placed about six weeks ago. At first I thought the pony races i was going on after walking was my new normal. The car rides and the bumps trigger the heart to beat over 118. I can't catch my breath. I have had one check and set at 60-130. I have tried to find anything to see if this is normal. I keep seeing people talking about tweeting the pacemaker. One check and don't see for a year. I can't do this anymore. I feel my heart is going...

Read More...

annual check up/ a mild case of covid

Saw my ep today. Good news is the 26 year old lead is still not showing any signs of a problem. I didn't get the EF number but he looked at the echo and said it was perfect and I had the heart of an 18 year old. I was shocked to learn I still have 8-10 years on this battery. It's already 5 years old, and before this I've never had one make it past 7 so WOW. 

Bad news is he agrees with my gp that I likely had covid back in March and that it's done some damage. I feel...

Read More...

AMS Episodes

Can someone provide a simple explanation of what AMS episodes are?  I have had a St. Jude 2210 for 8 years.  I usually pace 10- 12 %.  My AMS episodes have ranged from 0 to 350 until last year when it went to 3799.  My last pacer check showed 108238 AMS episodes.  My noise reversion also increased to 414.  The tech talked to me about the noise reversion but did not mention the AMS episodes and I did not see it until after I got home and reviewed my report. ...

Read More...

Ouch!

Not sure what category to post this under, so: this morning, my pacer site started hurting--stinging, in sort of a rhythm.Have done nothing that would aggravate it--no heavy lifting or extreme twists, etc.

I had my 3-month check on Friday and all was well.

I sleep on my sides & can often notice its presence, just as a little pressure. The entire site--plus several inches surrounding it--has been itchy since day one. (Apparently that's normal?)

When the stinging...

Read More...

Close to Fainting

60 year old Female. have St. Jude dual chamber inserted 2/6/18. Diagnosed with SSS. Felt great for 2 years. Today, while preparing my morning smoothie, I felt faint , nauseated, broke out in a cold sweat. I caught myself on the counter. After I got my legs back I went to take BP. It was 117/68. Pulse was 70. I don't have diabetes but took my blood sugar. It was 94. Pulse Ox reading was 98%. All in all, I feel tired enough to sleep all day. I slept 8 hours last night and it was a good unin...

Read More...

PVC/PAC’s

I received pacer 4 weeks ago. I was having a high number of pvc's and PAC's and doc said implanting pacer would allow her to dose me with enough meds to control. Only med she changed was metropolol. Took me from 12.5mg to 25mg 2x a day. No change. Still excessive. Pacer set at 60. Resting HR has gone from 64-70 to 82-90. Any thoughts??

Read More...

COVID 19 & Myocarditis

Good morning all! I'm sharing this with 1) skepticism 2) intrigue 3) genuine interest in what you intelligent and well read folks might think.

My background - I am a healthy 31y/o with no history of health issues except for a VSD murmur which closed up as a child. No symptoms. No issues. Until suddenly I developed heart block in late Feb of this year (PM placed in April). I've come to terms with my condition and ultimately I guess it doesn't matter what got me here...

Read More...

You know you're wired when...

You have the perfect reason to show off your chest.

Member Quotes

My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.