Most Recent Messages in General Posting

non pacemaker person

I am not going to help those anymore who say they  did not want a pacemaker along with their phamton problem's.  They have wasted my time and yours.

  This website does need some type of upgrade so we do not have to be subjected to this abuse.  I know spammers can get around this, but we should make it harder for them to do so.  Such as you must  confirm to the email when it is sent to us, when that is back up.  Before you can post.  Or y...

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Co-vid vaccine

Has anyone had a reaction to the second Co-vid vaccine? I had a PM adjustment on Friday, turning on my Rate Respnse and lowering my pulse to 50 at night and 60 during the day. Saturday I had my second Co-vid vaccine. Since both, I have had a light headed feeling. My BP is 103/73 and my pulse is 80 sitting here at the computer. I did run a fever of 101 over the weekend and I know that was due to the vaccine. I tried a 2 mile walk yesterday and at the 1 mile point my pulse was 60 and...

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Do I need to see an Electrophysiologist?

My resting heart rate was in the low 50's for over 15 years.  But, I was always told that it was ok for it to be low, so long as the heart rate goes up appropriately during the day. (I had several occasions of wearing holster monitors, etc... over the years). 
 

My cardiologist implanted a loop recorder, this past September, and based on it's readings, said that my HR was not going up like it should during the day. So, less than two months afte...

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Joining

I joined and was told I needed to reply to an email to be a member, but I never got that email. It also says that when someone replies to my post, I will get an email alerting me and I never have gotten anything. Am I a member?

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CRT vs His Bundle

Anyone have some real life expierience with this?  Also, if someone already has found some papers on this topic you could save me some research time ;)

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Bi-V and heart function

Its been 6 days I had my ICD with Bi-V pacing and I went on couple of walks around my house (roughly 2.5 miles in 40 mins). There was a slight incline along the path and  my apple watch used to show  around 120 BPM once I get to the top of it.Now it shows just 100. I know its not a lot of data and I kept the same speed.It seems like with Bi-V my heart is able to accomplish more output at less BPM. Anyone experiece something similar? 

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T-shirt ideas

So the second year I had my pacemaker I had a friend with a print shop make me a bunch of tank tops for the gym that said "battery operated" on them.  They became some of my favorite wardrobe staples and now are disintegrating.  I am planning on making some new ones but thought I should come up with some new ideas.  I can't think of a better group to ask than all of you, I am sure you all have some great funny ideas for me!

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His bundle pacing?

The EP wants to try his bundle pacing one me.  Anyone with HFrEF make the switch?  If so did you get any significant improvements in cardiac function? A more difficult question would be did you get a mortality benefit from it or just an improvement in symptoms, or both?

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pacemaker moving?

I've lost 70 pounds in the last 6 months and have started exercising.    I'm getting pain at the location of my pacemaker when I move my arms sometimes. .  It's not my heart, it feels like the devise itself might be moving around some.   Has anyone experienced this?  I will call my doctor in a few days if it doesn't improve.   It's fine when I sit and do nothing.

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Coffee and alcohol effect

I used to be a tea drinker and switched to coffee during the pandemic. I also drink alcohol may be couple of times a month which I have stopped totally since 2021.When I asked my EP about the arrythmias produced by these 2 beverages he said if they cause anything bad  it would be consistent each and every time.Just wondering whats the best course going forward regarding coffee. I already had my last drink.

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Do you ever forget you have a pacer?

I have been thinking about something a pacemaker nurse said when I continued to have pain at 4 months after insertion. She said many people forget they even have a pacer. I didn't believe it then, and I don't believe it now. 

I still feel the pacer every day, especially if I do something strenuous, sleep wrong, or get too cold. I see the big lump on my chest every morning, I see the visible veins across one side of my chest, and can see that my arms are different sizes and...

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picking the right cardiologist

Hello everyone ive had a pacemaker for nearly two years and ive had my struggles, anxiety, panic attaks, palpitations, ect. Ive been through at least 4 cardioliogist who really didnt make me feel better about my concerns especially concerning my heart palpitations that i was recieving from time to time. I know i have anxiety and that might be a contributing factor but i wanted to be sure and the other drs would just brush me off. I met this one EP who i was referred to and turned out to be fa...

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After surgery hint

After my PM implantation, I was told to keep my left arm down for 6 weeks, but not to not use it or it would result in a frozen shoulder.  I was concerned for when I slept as I sometimes sleep with my arm behind my head. I came up with a solution. I had a wrist band that I put on my left wrist, then took a bathrobe belt and put it through the wristband, then around my waist. I tied the belt very loose, but it kept me from being able to lift my left arm, but I could move it enou...

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where did they go

Was wondering  wether  the 2 who were struggleing with copping with getting a pacemaker/icd.  Removed themselves or were dropped  by this forum.  As i wanted to sleep on my answer before writing to them. 

New to Pace

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Seat belt or back pack strap

If you are bothered by your seat belt strap or back pack strap, I found fleece velcro seat belt covers at Walmart in the automotive section. They are for people that don't like the seat belt rubbing on their neck, but they are great to position over where the pacemaker is. I also use them on the one strap of my backpack.

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Pacemaker adjustment

I had my pacemaker put in Oct/2020. They had me at 70bpm and I kept getting more short of breath and my exercise tolerance was low. Yesterday he lowered me to 50 while I sleep, 60 during the day and 140. Since then I feel a little light headed-not bad, I can function. Energy level is wonderful! Is the lightheadedness just something that my heart is getting used to the new numbers? The adjustment took away the shortness of breath immediately!

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ICD detecting a heart attack

Will my Medtronic ICD (model DDMB1D4) detect a heart attack and will it show in the records of an interrogation?  We're refering to a heart attack caused by blockage of an artery.

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Head gets heated and I start feeling lightheaded

Dear Friends,

I have had pacemaker for more than 3 years now, but lately I have started noticing that when I get into high pitch while talking my head starts getting heated and I start feeling light headed, anyone else have ever experienced this or knows what it could be?

 

thanks 

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Hello

Hi everyone, I'm Charlie and I want to share my story with you in hope i can find some people in a similar situation..I'm 33 years old and I'm living with a heart condidtion my doctors cant seem to put a name on. It started 5 years ago, when as chance would have it I went into V-fib arrest, just as a friend of mine, who fortunetly knew cpr, had just arrived at my home. 5 years ago the doctors dismissed it as a fluke, probably brought on by a nicotine overdose..side note, my wife w...

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Pacemaker humour (Canadian spelling)

Well I found it funny!

https://www.gocomics.com/speedbump/2021/03/18

 

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You know you're wired when...

You need to be re-booted each morning.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.