Most Recent Messages in General Posting

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General Anesthetic

Hi I'm new to the site 

I had a pacemaker and ablation surgery 18 month ago and now I have got to have surgery on my shoulder.  I'm worried about having it done the first private hospital said it could not do it but I have found one that says it can. Can any one tell me if they have had surgery after having pacemaker and ablation surgery and what the risks are.

 

 

 

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An Exciting New Chapter for the Pacemaker Club!

Today, we are reaching out with an announcement that marks the beginning of an exciting new chapter for the Pacemaker Club. First and foremost, we want to express our gratitude for your continued engagement, contributions, and support for this forum that has helped so many. The Pacemaker Club has been a vital community for individuals with pacemakers for over two decades, and we are honored to be entrusted with its future.

Since the announcement last week that ForHearts Worldwide has ac...

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Daughter needs a pacemaker

Hello, my name is Lucas. My wife and I recently welcomed our daughter who was born prematurely at 35 weeks. She was diagnosed with complete heart block at 21 weeks in utero, and since her birth, her heart rate has not increased as we had hoped. She was given a temporary pacemaker and is currently supported by high flow nasal oxygen for breathing, having progressed from an initial breathing tube and CPAP.

Our medical team is planning for her to receive a permanent pacemaker. They have su...

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Battery Life

I live in a third world country by choice. I am from South Florida. In 2017 I had my St.Jude pacemaker/defibrillator implanted and 90 days later I moved to Philippines.I found a Cardiologist at Makati Medial Ctr,Manilla who read  & printed out my reports every 6 months for 6 years now.  (cost @ $36.00)  My Rythem specialist in Florida told me to track the battery life and when it got to 6 Mo. remaining to plan on returning for a battery devise upgrade. About 2 years&nb...

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Tough question...

I was wondering if there is anyone in this club that has come back from an ejection fraction of 16 or less? Someone with a similar diagnosis of CHF with cardiomyopathy and LBBB. Mine is hereditary and I have no other health problems like diabetes or kidney failure, etc. I'm pretty healthy other than my heart failure. 

If you have gotten stronger and improved your EF, how did that happen? Thanks in advance! 

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Learn Tab

Just noticed that the Learn tab on the bar above has been updated.  Don't know when this happened and I may not be terribly observant, but the FAQ section is now pretty good! Check it out before you answer a post on a subject that comes up a lot and save yourself the effort of giving out all the usual information.

May I contribute a bit of feedback on the 'web links' contained within the 'Learn' Tab? 

The pacemaker manufacturers don't in...

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email notification

this morning Dec 18,2023 i received finally an email saying a comment had been posted to my message.

Someone was either paying attention to our comments or they were on vacation over the weekend.

new to pace

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Email??

Thank you all for quick confirmation about email.

So,my email appear in Spam and now that I want to give my consent it does not allow me to click HERE to confirm my intention to stay? I try my iPhone and my iPad both are saying "insecure" and that is the end!??

Any suggestions how to proceed? I know I got one month before being unsubscribed,but I'm not procrastinator ❤️ 

many thanks 🙏🏻 

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Strange email

Hello 👋🏻 all

Has anyone received an email...very long one. ...informing us that Pacemaker Club has been taken over by ForHearts Worldwide? It's written very well and for that reason I will have open mind !!!!??/

Back in my last post I mention my newly discovered issue.....mild  dilated ascending Aorta 🫀{39mm}   I just have my normal checkup and discussed this concern 🙁 in length with my cardiologist. So...all is well with my Pacemaker....replacing time left at l...

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We are meticulous machines...

This is of course just my opinion, but I want to share it in case it resonates with someone else. 

First of all, I believe in a higher power, a creator, a being that is bigger than us. Religion and politics aside, I don't think we "just happened." With that in mind, I also believe that nothing happens without a reason. Our bodies are a finely tuned machine, given the right input of nutrients, sleep, emotional support, fluids... etc. Every single blood vessel, org...

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Hawthorn berry

ANOTHER UPDATE:  DR. cleared me for using Hawthorn Berry extract.  Am feeling just fine.  Am so grateful to each of you.

Anyone ever tried Hawthorn Berry for the heart?  Am starting to hear about it but wondered if it actually works or is a new "health rumor"   Several practitioners support its use.  

Hawthorn Berry is supposed to help heal and regulate the heart, etc.   Not taking it yet, but might try it. 

Anyone attempt it...

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Dehydrated?

I did some research and what do you think of this? I have mentioned that I probably don't get enough fluids and that may have caused that near fatal arrythmia I had. Well, as it turns out, the day that happened I know I was dehydrated because I had spent the day before going pee a LOT. Sometimes I skip taking my lasix if I'm going to be in town all day and driving. (Before the shock, I would drive 2 hours into a bigger town to shop.) So I hadn't taken my lasix for a day, and took...

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Unable to get MRI- opinions?

71 yr old male. Had a St. Jude/Abott pacemaker placed 6 years ago. I am 100% paced a have been trying to get MRI for chronic lower back pain. Twice Ive been prepped , gowned ready to go and PM tech turned down my PM and consulted with my Cardiologist. Both times i was told too risky. So 2 questions.. anyone else experience this and second, what other imaging would be beneficial for  a neurologist to examine my issue. Xray does not seem to be adequate for Clinic im trying t...

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A conclusion.... of sorts

It seems to me that I may not be the only one to have stumbled across this particular conclusion about my condition, albeit a bit later maybe? I was mulling over in my head some thoughts about the fear element and trying to make sense of it all when I realized something. The reason all of this is so darn scary is because I feel like my heart betrayed me. ( I know, I'm supposed to not be thinking about it for awhile, but I'm on to something here.) 

The only other time my bod...

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New to this!

Hi guys, I had a dual pacemaker fitted in November, I'm 30 years old and was diagnosed with Sick Sinus syndrome. Originally the cardiologist thought I maybe had POTS, after a tilt table test (7mins into it) my heart stopped for 18 seconds, had 1 beat and then stopped for another 10 seconds. After coming around etc I was told what had happened and that I needed a dual pacemaker. It was fitted 3 days later. 
 

Since then I have had my check up etc and all is fine. The o...

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new owners of this site

Was suprised last night Dec15,2023 to receive an email saying this site has new owners.  That explains why there have been many changes to this site.

Glad to find out that the new owners are Pacemaker related. 

Hopefully they will not charge the users to post on this site.  I will for sure drop out then.  I have found  that the other users  are helpful when i have concerns or questions

Do hope one of the first items on their list is to...

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Good news: Extraction was successful

Greetings Everyone!

It's been a while since I've posted.  Life got in the way.  Funny how it does that to us!   

Well,  I've made the decision and deed is done.  No more pacer, leads or software.  I deleted the software months ago - it was causing too many issues, as was the pacer.

Today, my leads and pacer were all successfully extracted.  The surgery completed in less than an hour and I feel absolutely fine.  Sh...

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Taking a hiatus

Okay everyone... What I really need is to unplug from the heart thing for awhile. It's Christmas time and I want to enjoy it fully. I can't do that if I'm talking about this stuff all the time. I'm going to do my best to put it on the back burner for awhile. That's not to say I won't be reading or responding to comments or messages, it just means that I'm going to attempt to stay clear of the serious stuff for a bit. I need peace. I need hope. 

My e...

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News from Doctor today

Well, you all were right. R2D2 saved my life last week. The doc said I wouldn't have survived that episode without it. Something about a heart rate of 260+ and how my difibrillator did exactly what it was supposed to. 

What I find frustrating is that none of my doctors have seemed really all that concerned about my  heart condition. The only person that looked pretty worried was that nice lady that does my echo every six months. She told me that more than likely I wouldn&#...

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A big thank you!

I just want to start by saying I don't honestly know what I would do without the support and kindness of the club members here. This journey is difficult and scary, it's demanding and there is very little satisfaction from searching the internet for answers to our questions. I mean, let's face it: what we really want to hear about is other people's experiences, not our doctor's automated responses based on internet statistics. Not that all doctors are that way. But wi...

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You know you're wired when...

You read consumer reports before upgrading to a new model.

Member Quotes

You now get to start a new life it's like being reborn.