Most Recent Messages in General Posting

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New device and New member!

Hello fellow Pacers! I am a new member to this prestigious Club and a new ICD device patient...I am a 48 year-old male and single father of a 14 year old son. Just got my new CRT-D device on Dec. 26, 2018...Merry Christmas to me! Haha...I was diagnosed with dilated cardiomyopathy due to a viral infection which I also had as a child...Everything went well with my surgery and my 2 week checkup went great and I get my staples out in 2 weeks... I am blessed with a great team of Cardiologists...I...

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Pregnant!

Hey everyone, i am 24years old, and i have just found out that i am pregnant! I have been trying for a little while so i have had a chance to speak to the electrophysiologists when having a battery check for my PPM. Unfortunately the physiologist i had, had only experienced 2 other people with a pacemaker that were pregnant in his quite signifiicant career. I have recently had my care moved to a different hospital nearer to where i live, without asking me (NHS for you, love 'em or hate &#...

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Sunburnt Scar

Whilst on Holiday recently i had the misfortune of getting badly sunburnt including my PM scar... 

Its now very red and has clear fluid coming out of it... 

Question... am i at risk of infection of my PM pocket? mine is implanted under the muscle as i am very thin. 

Should i keep it covered with a dressing or let it dry out? 

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Seat Belts

In Australia the front seat passenger sits on the left,therefore the sash part of the belt sits over the left shoulder and right over the area where you have just had a PM fitted and you are on your way home in a friends pick up truck or as we call them a Ute.That area will be quite sensitive and its a 2hour drive got any thoughts anyone re this problem.We have to wear seat belts and its compulsory no dispen sations for PM wearers

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Info

I just found out what kind of PM I'm having put in. It's a st. Jude dual chamber I do not know what that means does anybody know about this type of pacemaker

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Heart rate changes

I guess I don't understand how the PM works.  I am 100% paced due to bradycardia - rate was between 25-30 bpm.  So my PM is set for a rate of 60 bpm.  What makes my rate go above 60 when I exercise if the PM is set for 60?  This makes me think that my heart takes over the pacing when I require a rate greater than 60, but I thought my heart could no longer do the pacing.  What am I missing here?

 

Okay, thanks very much for the responses..  I...

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why do they not have bio-powered, or AI. charger batteries yet

As I'm looking at battery life for one of these devices it struck me that they would be PERFECT for bio-powered, ie heat and/or natural body made electricity or a qi charger for wireless charging.

Get on it maker of devices!

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Is this normal?

I am going to have a PM implanted at the end of January for 3rd Degree AV Block. I wasnt feeling too bad when this all started, however I did occasionally feel like i might pass out. But, now for the past week I have been extremely run down and weak. I've been sleeping for almost 2 days straight. Is this normal?

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Boston Scientific - Minute Ventilation fix

Hi All, 
anyone knows if Boston Scientific have released their MV fix in the UK/Europe?
A while ago (October 2018) spoke to a Boston Scientific rep, who said the fix is out, however my hospital tech team sais it hasn't been rolled out in Europe/UK
Any news, please
Thanks Vassi

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Deciding what to do with old device!

Hey all! I got my old device back after my surgery on the 7th and I'm trying to decide what I want to do with it, any ideas? Part of me wants to keep it as a conversation piece but I also want to take it apart...

I've also got a demo version of my new device but not much to do with that as I'm pretty sure its hollow inside!

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Is a pacemaker right for me?

Hello, I am 27 years old. My story began in April 2018. At the time, I thought I just had nausea and vomiting, went to the ER, they said everything was fine and went home. Next episode happened in June/July. I completely passed out twice. Both times while sitting down. Second time I was sitting in bath tub, boyfriend found me passed out and lifted me up and was shaking me awake. He said he thought I was dead. He said there was no response. Called 911, sat in ER with monitoring. Told Dr. I was...

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AFib and Flutter

Hi, I had a pacemaker fitted last June to rectify an occasional heartbeat of around 29. All has been well since but pacemaker checks have revealed that I am still experiencing periods of flutter and AFIB lasting up to 20 minutes at longest. I suffer from ITP with a platelet count of around 30. One cardiologist wants to do and Ablation but will not do it unless my haematologist will give me medication to lift my platelet count to 70 and then give me anticoagulent treatment. My haematologist is...

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Frustrated

Hello,

I know I've searched and read posts regarding rate response, yet I'm so confused and with my appt tomorrow...in tears.

I've had my Medtronic pm-dual lead will be two years this May. Was suppose to have it many years ago but kept getting talked into ablations.

Anyway- Im 46.  History of ventricular tachycardia, SVT over 200, av node, sinus node issyes..extra pathway. Heart blocks 1st and 2nd degrees and bradycardias... 32 bpm which lead to finally plac...

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Forearm crutch use after PM implantation

I lost my right leg to cancer when I was 10. I'm 55 now, in good shape - aside from having been diagnosed with heart failure 2 1/2 years ago, partially thanks to heart damage from the chemo drugs back then. I'll be getting a pm or ICD soon, I use forearm crutches and my main concern is using crutches during the initial recovery. Although forearm crutches don't come up anywhere near where the pm will be implanted, several chest muscles are used when walking with them in the ar...

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EP wants to see me after reviewing my nuclear stress test

I posted last week about going for a nuclear study due to a 6 second episode of VT in Nov. My stress test was Thursday. Today my EP’s office called to see me within a few weeks. 

My appointment is for this Wednesday. All she could share with me was the fast beats that happened in Nov. She did share that perhaps my EP will discuss meds or changing meds with me.

I am on my 4th pacemaker over the last 28 years. Now, I am worried that they will want to change to a diffibula...

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Linq loop recorder

Just got the linq recorder taken out friday. I had it for 2 1/2 years to try and diagnose unexplaned fainting it didnt pick up anything so I decide to have it out but now Im kinda regretting it. So was wondering if anybody has a smart watch that records hr. Like does anyone have the apple watch series 4 i heard its fda approved?

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Refusal of PM

I am new here. On December 26th of 2018 I was told I have to have a pacemaker implanted at the end of January 2019. I am 39 years old I have 3rd degree AV block and the doctor says I have the heart of an 80 year old man. Apparently it looks genetic related. I am seriously debating if I am going to refuse the p.m. or follow through with it. There are many reasons I do not want to do it including the doctor doesn't have great reviews nor does the hospital that I am supposed to have it done...

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disney ride

does anyone know If toy story slinky dog dash had a magnet

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Paperwork by Soumiya

Back in Oct 18, a young Swiss woman named Soumiya posted  a request for folks to be interviewed for her major paper required  to graduate from their equivalent of high school.

Apparently she only had about 14 take her up on the request, I am one of those volunteers.

Today she sent me a copy of her paper - all 41 pages that she had permission from the interviewees to share.  

This young woman is not a n...

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Pm placement

It is now 5-6 weeks post pm under muscle, and although not doing too much lm finding when l raise my left arm slightly the pm feels a lot bigger than it actually is. I can feel the edge in my armpit. I understand it can take months for all the swelling to reduce to a new normal, but wondering if this will get better. It feels almost like when l try to do anything with my left arm the pm is in the way like a brick in my left armpit. I would have though placement under muscle to have allowed fo...

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