Most Recent Messages in Conditions, Meds & Tests

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Heart failure people?

Hello friends! I got my pacemaker/defibrillator when I was 29 because I am in heart failure and my heart was only working 20%. It now works 27% so I'm happy! Is anyone being considered for the heart transplant list? How long have you been in heart failure? And how are you feeling now days? Thank you for commenting! 

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MRIs with a MRI safe device

Has anyone had a MRI with a MRI safe device?  How big a deal was it?  Did you have to have it near your cardiologist's so they could reprogram the device?

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hearing

Was wondering if anyone noticed that their hearing improved after PM implanted?

mary

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Pacemaker/ICD management

I would love to hear of others' experience with the drug flecainide. I began taking it about two months ago and was given a prescription for 100 mg twice a day to supress ventricular tachycardias that began for no apparent reason or trigger. It was almost 15 months to the day of having a pacemaker/ICD implanted for reasons that were later determined to be false (I have posted my story here before).

Flecainide does supress the VTs but brings along a portfolio of side effects tha...

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monomorphic Idiopathic left VT, AV block 3 PM

I am posting this message and my experience with VT in the hope that it might someday help someone else going through a similar experience as what I went through.

My first episode of Ventricular Tachycardia was when I was 18. It lasted around 7 hours. I went home and by the time I contacted a doctor to come to my house the tachycardia had stopped and I was back in Sinus rhythm. My tachycardia was mostly triggered after exercising. I went to a cardiologist and did a stress test...

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Mammogram

Going to get my first mammogram after getting my pacemaker. Procedure is uncomfortable enough as it is. Will it be worse now? What can I expect?

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Post pregnancy with pacing increased

Hi everyone, 

I am currently 5 days post birth of my daughter and am having some issues with my heart rate staying up. I had my pacemaker put in last year on halloween. I have cardio inhibited vasovegal syncope with frequent spells. After implant of  pace maker I have has no episodes and it was pacing 22% of the time. I got pregnant in January and the pacing continued to go down from there with no complications in my heart or pregnancy. Two weeks prior to birth it wa...

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Biological Pacemaker

Hello everyone, im 20 years old and have had my pacemaker for 2 years now from a doctor that ablated my av node from WPW ablation. I want to play sports again and my pacemaker still causes problem such as 2 to 1 atrial tach and also the risk of leads being knocked out. I want to play football again soooo bad! Does anyone know of any clincal studys that may fixed heart block? I want to be able to go without a pacemaker and play sports again!

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Lead and Tricuspid valve

About 3 months ago my EP heard a murmur and after a TEE said my tricuspid valve was leaking high moderate range and borderline of needing surgical repair.  I see my EP every 6-8 weeks to monitor the cardiomyopathy and ventricular arrhythmias and make med changes. I had a 3-month followup echo yesterday and the cardiologist that shares his office came into the room where the tech was doing the echo and said that the lead looked like it was twisted and may be causing a problem wi...

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confused

2 years ago today i recieved a pacemaker due to an AV block.. overall everything has gone well , check ups ect.   Monday I sent a remote transmission and recieved a call from the doctors office that they wanted to see me yesterday.  They said they saw some tachycardia.   I went to the appointment to be told that since Sept 19, 2019 they have seen 124 epiosodes of Atrial Tachycardia.  They questioned if I could feel these.,  To be honest maybe a handful and d...

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Apple Watch

Hello,

I use the Apple Watch to monitor my heart ♥️ rate and take ECGs when I feel palpitations; PAC’sand PVC’s. It also can pick up inconclusive rhythms and my father-in-law uses his for his atrial fib and says it’s very accurate. I also take my pulse and feel the EKG is very accurate. I would love to hear all other opinions on the Apple Watch...🙏🏼Thank you

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watchman vs blood thinner

My doctor/tech keeps mentioning Watchman.  The first time when i saw him about getting a pacemaker.  Which i was not aware that i needed. The next time   was at the pacemaker clinic 2 weeks after PM implanted.  The tech said when i saw the dr. at the 6 week mark.  He will say something to me again.

  After the first time came home and looked Watchman up.  Was not thrilled with what i read.

  I was thinking if i needed blood thinner, why...

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Electro therapy for haemorrhoids

Good afternoon, posting for my Husband who is wondering if anyone has had Ultroid (USA) or Exroid (UK) therapy to treat haemorrhoids.  He will speak with his EP about this but wondered if any one else with a pacemaker has had the procedure. It is something he desperately needs done as is not a good candidate for surgery. Thank you.

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Colonoscopy with polyp removal

Hi All

A couple of questions on behalf of my Husband who had a pacemaker inserted earlier this year. Has anyone had a colonoscopy with polyp removal and / or a treatment for haemorrhoids called Ultroid therapy in the USA and Exroid therapy in the UK? John needs to have these treatments but is waiting for an appointment with his EP to check. Just wondered if any other pacemaker friends have had either treatment. x

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New symptom accompanies PVCs

History: I have had PVCS for always. To me, they are just a fact of life. Some things will make them worse--nothing makes them go away completey. I live with them. I only experience them as a problem when the rhytm goes into bigeminy. Happily, that tends to be self limiting

Two times in July, I had severe PVCs--the kind that feel like a blow to the chest. While that was happening, I began to wheeze. In seconds, ten at the outside, the rythm returned to normal, the wheezing wen...

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Ekg’s.

Hi I was curious. My last 4 ekgs show mid precordial repolarization disturbance consider feminine pattern confirmed by doctor in my chart  

The other day I was at the hospital for arm surgery and they had me hooked up to a monitor and it kept going off beeping. So after the nurse silenced it a few times, she just turned the sounds off. The monitor looked exactly like those ekgs. The nurse did mention a block  but my pacemaker wasn’t doing anything.

Does anyone...

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NSVT and VT

Hi all.

 

Has anybody with a pacemaker on here found that on your PM checks NSVT has been found? Or VT? If so what is your treatment and what did doctors say

 

Thanks

 

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slightly snoozy SSS

Many site members have been told they have Sick Sinus Syndrome.

It's a repellant term. Sinuses are not "sick" -- they're a little on the lazy side.

I  prefer "Slightly Snoozy Sidekick."

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CRT-p then Eliquis and Amiodarone

Is this a frequent combination/sequence?

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Pacemakers and LVAD's

Anyone here have this combo?

--Dave--

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You know you're wired when...

You can feel your fingers and toes again.

Member Quotes

99% of the time, I totally forget I even have this device.