Andersen-Tawil Syndrome
- by cubbysmom
- 2007-09-29 05:09:33
- General Posting
- 1753 views
- 3 comments
I would like to communicate with ANYONE who has been diagnosed with Andersen-Tawil Syndrome.
Thanks!
Victoria
3 Comments
ATS
by luckyloo - 2007-09-30 07:09:28
hi victoria,
i was diagnosed with andersen-tawil syndrome by dr. tawil himself. i was diagnosed in the year 2000.
you can email me at zaphearty@yahoo.com.
luckyloo
Andersen-Tawil
by cubbysmom - 2007-09-30 10:09:29
There aren't very many reported cases, and I'm trying to find someone to communicate with. I'm asking on behalf of myself and my 11-year-old son.
Thank you very much,
Victoria
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Andersen-Tawil Syndrome
by scpck - 2007-09-30 04:09:28
I had never heard of this so I did some reading. Apparently there are only about 100 cases reported. Is this your child you are asking about? Bless you.
P